scholarly journals Survivorship care plans for people with colorectal cancer: do they reflect the research evidence?

2016 ◽  
Vol 23 (5) ◽  
pp. 488 ◽  
Author(s):  
V. D'Souza ◽  
H. Daudt ◽  
A. Kazanjian
Keyword(s):  
Physical Activity ◽  
Colorectal Cancer ◽  
Survivorship Care Plans ◽  
Lifestyle Behaviors ◽  
Survivorship Care ◽  
Emotional Challenges ◽  
Care Plans ◽  
Methodologic Quality ◽  
Physical Challenges

Aim In the present study, we synthesized the published literature about the psychosocial aspects of colorectal cancer (crc) survivorship to support an update of the evidentiary base of the survivorship care plans (scps) created in our jurisdiction.Methods The psychosocial topics identified in the crc scps created by two different initiatives in our province were used as search criteria: quality of life (qol), sexual function, fatigue, and lifestyle behaviors. An umbrella review was conducted to retrieve the best possible evidence. Only reviews that investigated the intended outcomes in crc survivors and those with moderate-to-high methodologic quality scores were included.Results Of 462 retrieved reports, eight reviews met the inclusion criteria for the synthesis. Of those eight, six investigated the challenges of crc survivors and two investigated the effect of physical activity on survivor wellbeing. Our results indicate that emotional and physical challenges are common in crc survivors and that physical activity is associated with clinically important benefits for the fatigue and physical functioning of crc survivors.Conclusions Our study findings update the evidence and indicate that existing scps in our province concerning the physical and emotional challenges of crc survivors reflect the evidence at the time of their issue. However, the literature concerning cancer risks specific to crc survivors is lacking. Although systematic reviews are considered to be the “gold standard” in knowledge synthesis, our findings suggest that much remains to be done in the area of synthesis research to better guide practice in cancer survivorship.

scholarly journals Survivorship care plans for breast cancer patients: understanding the quality of the available evidence

2017 ◽  
Vol 24 (6) ◽  
pp. 446 ◽  
Author(s):  
V. D'Souza ◽  
H. Daudt ◽  
A. Kazanjian
Keyword(s):  
Breast Cancer ◽  
Stress Reduction ◽  
Knowledge Synthesis ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Breast Cancer Patients ◽  
Emotional Challenges ◽  
Care Plans ◽  
Methodologic Quality

Aim The overall goal of the present study was to contribute to consistency in the provincial approach to survivorship care planning through knowledge synthesis and exchange. Our review focused on the research concerning the physical and emotional challenges of breast cancer (bca) patients and survivors and the effects of the interventions that have been used for lessening those challenges.Methods The psychosocial topics identified in bca survivorship care plans created by two different initiatives in our province provided the platform for our search criteria: quality of life (qol), sexual function, fatigue, and lifestyle behaviours. We conducted an umbrella review to retrieve the best possible evidence, and only reviews investigating the intended outcomes in bca survivors and having moderate-to-high methodologic quality scores were included.Results Of 486 reports retrieved, 51 reviews met the inclusion criteria and form part of the synthesis. Our results indicate that bca patients and survivors experience numerous physical and emotional challenges and that interventions such as physical activity, psychoeducation, yoga, and mindfulness-based stress reduction are beneficial in alleviating those challenges.Conclusions Our study findings support the existing survivorship care plans in our province with respect to the physical and emotional challenges that bca survivors often face. However, the literature concerning cancer risks specific to bca survivors is scant. Although systematic reviews are considered to be the “gold standard” in knowledge synthesis, our findings suggest that much remains to be done in the area of synthesis research to better guide practice in cancer survivorship.

Positive Impact of Internet-based Survivorship Care Plans on Healthcare and Lifestyle Behaviors

2012 ◽  
Vol 84 (3) ◽  
pp. S211-S212 ◽  
Author(s):  
C. Hill-Kayser ◽  
C. Vachani ◽  
M. Hampshire ◽  
G.A. Di Lullo ◽  
J.M. Metz
Keyword(s):  
Positive Impact ◽  
Survivorship Care Plans ◽  
Lifestyle Behaviors ◽  
Survivorship Care ◽  
Care Plans

scholarly journals Patient Satisfaction With Breast and Colorectal Cancer Survivorship Care Plans

2013 ◽  
Vol 17 (3) ◽  
pp. 266-272 ◽  
Author(s):  
Brian L. Sprague ◽  
Kim L. Dittus ◽  
Claire M. Pace ◽  
Dorothy Dulko ◽  
Lori A. Pollack ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Patient Satisfaction ◽  
Cancer Survivorship ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Plans

Randomized trial assessing the impact of survivorship care plans on the quality of care for childhood cancer survivors.

2016 ◽  
Vol 34 (15_suppl) ◽  
pp. 10007-10007
Author(s):  
Cary Philip Gross ◽  
Wilhelmenia Lee Ross ◽  
Jaime L. Rotatori ◽  
Hannah-Rose Mitchell ◽  
Xiaomei Ma ◽  
...  
Keyword(s):  
Quality Of Care ◽  
Cancer Survivors ◽  
Randomized Trial ◽  
Childhood Cancer ◽  
Childhood Cancer Survivors ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Plans ◽  
The Impact

Variations in recommended surveillance in colorectal cancer survivorship care plans.

2020 ◽  
Vol 38 (29_suppl) ◽  
pp. 13-13
Author(s):  
Alaina Chodoff ◽  
Katherine Clegg Smith ◽  
Aishwarya Shukla ◽  
Amanda L. Blackford ◽  
Nita Ahuja ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Cancer Risk ◽  
Controlled Trial ◽  
Center Frequency ◽  
Cancer Center ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Plans ◽  
Follow Up Care

13 Background: Survivorship care plans (SCPs) outline pertinent information about a cancer survivor’s treatment and follow-up care. We describe the content of colorectal cancer (CRC) SCPs, completed as part of a randomized controlled trial of SCPs, and evaluate whether follow-up recommendations are guideline concordant. Methods: We analyzed 74 CRC SCPs from an academic and community cancer center. Frequency distributions and descriptive statistics were calculated for the entire cohort and separately by recruiting site. Follow-up recommendations were compared to American Cancer Society (ACS), American Society of Clinical Oncology (ASCO) and National Comprehensive Cancer Network (NCCN) guidelines (Table). Results: Content routinely provided in SCPs (>80%) included patient demographics, cancer diagnosis, treatment details (surgery, chemotherapy, radiation therapy) as well as treatment-related side effects. SCP content specified less frequently included cancer stage, cancer risk (predisposing conditions), and recommendations for genetic counseling/testing and health promotion. Nearly all SCPs from the community site provided uniform, guideline-concordant follow-up. At the academic site, on average, more than 15 follow-up recommendations were listed for each surveillance modality, except colonoscopy. Among the SCPs that specified the frequency of follow-up care, the rate of guideline-concordant recommendations was 15/42 (36%) for follow-up visits, 29/43 (67%) for imaging, 12/45 (27%) for laboratory and 39/39 (100%) for colonoscopy. Conclusions: SCPs consistently provided information about CRC diagnosis and treatment, but often omitted information about cancer risk, staging and prognosis. There was considerable variation between cancer centers in the follow-up recommendations suggested for CRC survivors. Future work to improve the consistency of SCP follow-up recommendations with guidelines may be needed. Clinical trial information: NCT03035773 . [Table: see text]

scholarly journals Integration of survivorship care plans into standard care: A quality improvement project.

2017 ◽  
Vol 35 (5_suppl) ◽  
pp. 70-70
Author(s):  
Patricia Deslauriers ◽  
Shanmuga Subbiah ◽  
Jane M. Fall-Dickson
Keyword(s):  
Quality Of Life ◽  
Standard Care ◽  
Patient Knowledge ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Improvement Project ◽  
Care Plans ◽  
Sf 36

70 Background: American College of Surgeons’ Commission on Cancer accredited programs are required to provide Survivorship Care Plans (SCPs) to cancer survivors after initial cancer treatment. A critical need exists to evaluate SCP patient outcomes. The primary purpose of this quality improvement project was to integrate SCP into standard care for adult stage I, II, and III breast and colon cancer patients. Secondary aims were to examine the hypothesis that the SCP will improve participants’ knowledge base regarding their cancer, health promotion and disease prevention, satisfaction with delivery of health care, quality of life, and adherence to follow-up and surveillance testing. Methods: The IRB approved study was conducted at a hospital-based Medical Oncology Clinic (MOC) in the Western US. A pre/post design was used. Sociodemographic, Medical Outcomes Study Form-36 (MOS-SF-36), Patient Satisfaction Questionnaire Short Form-PSQ-18 (PSQ-SF-18), and Patient Knowledge of Disease Questionnaire (PKDQ) data were collected pre/post SCP. At the follow-up visit, MOS-SF-36, PSQ-SF-18, PKDQ, and open-ended evaluative questionnaire (OEEQ) data were collected. Results: Forty-two subjects were enrolled. The sample is primarily female (n = 36; 86%), Caucasian (n = 41; 97.6%), Hispanic (n = 36; 85.7%), non-high school graduates (n = 26; 61%), and unemployed/retired (n = 32; 78%). Annual incomes were primarily less than $20K (n = 32; 78%). Paticipants were post-treatment for breast cancer (n = 36) or colon cancer (n = 6). 100% of the participants returned for follow-up visits with only 2 (4.8%) delayed. There were significant increases in knowledge (p < 0.001). There were no statistically significant changes in the MOS-SF-36 ant the PSQ-SF-18. Themes in the OEEQ captured satisfaction with the provision of the SCP, changes in health promotion and disease prevention habits. Conclusions: This pilot study supports the hypothesis that SCPs improve adherence to follow-up and patient knowledge, especially in a unique setting of a low socio-economic, ethnically diverse population. A larger study is needed to show statistically significant improvements in health-related quality of life and satisfaction with delivery of health care.

A systematic review of the effectiveness of individualised survivorship care plans on quality of life of adult female breast cancer survivors.

2012 ◽  
Vol 10 (Supplement) ◽  
pp. 1-15 ◽  
Author(s):  
Teri A. Martin ◽  
Rose M. Moran-Kelly ◽  
Joanna G. Powe ◽  
Lucy M. Roberts ◽  
Sandra N. Farrell ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Systematic Review ◽  
Breast Cancer Survivors ◽  
Female Breast Cancer ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Plans ◽  
Female Breast

Updated patient reported outcomes and survivorship care plan use by survivors of colorectal cancer (CRC).

2014 ◽  
Vol 32 (3_suppl) ◽  
pp. 527-527
Author(s):  
James M. Metz ◽  
Margaret K. Hampshire ◽  
Carolyn Vachani ◽  
Gloria A. Di Lullo ◽  
Christine Hill-Kayser
Keyword(s):  
Colorectal Cancer ◽  
Sexual Function ◽  
Late Effects ◽  
Patient Reported Outcomes ◽  
Care Plan ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Plans ◽  
Patient Reported ◽  
Gi Toxicity

527 Background: Colorectal cancer patients may be at risk for late effects after treatment, the impact of which may difficult to evaluate using conventional methods. Here, we described patient reported outcomes after CRC, as well as use of survivorship care plans. Methods: Patient-reported data were gathered via a convenience sample frame from CRC survivors voluntarily utilizing a publically available, free, Internet-based tool for creation of survivorship care plans. Available at www.livestrongcareplan.com and through the OncoLinkwebsite, the tool allows survivors to enter data regarding diagnosis, demographics, and treatments, and provides customized guidelines for future care. During use of the tool, CRC survivors are queried regarding late effects associated with specific treatments, and asked to answer “yes,” “no,” or “I don’t know.” They are also asked to score GI toxicity using WHO criteria. All data have been maintained with IRB approval. Results: 657 CRC survivors utilized the care plan and answered queries regarding late effects; 64% were female and 82% Caucasian. Median diagnosis age was 50 (24 – 76) and median current age 54 (24 – 77). Many reported having had multimodality therapy - 97% surgery, 89% chemotherapy, and 37% radiation. Overall, 63% reported chronic changes in bowel patterns, 38% chronic diarrhea, 9% bowel obstruction, 18% hernia development, 8% radiation colitis, and 2% fistula formation. Of 249 survivors who graded GI toxicity, 23% reported 4-6 stools per day, and 18% > 6 stools per day or incontinence. When queried regarding sexual function, 35% of men reported worse erectile function than pre-treatment, and 42% of women reported sexual changes such as vaginal dryness. A follow-up survey was completed by 31 (5%) of users, who reported that care plans improved knowledge about late effects (90%) and potential related treatments and tests (83%). Conclusions: Survivors using this tool report significant toxicity after cancer treatment, mainly related to GI and sexual function. Survivors appear to gain knowledge from survivorship care plans. The data reported here may be of significant impact in future study of quality of life, as well as patient counseling and survivor care.

Colorectal cancer survivorship care plans: Variations in documentation and posttreatment surveillance recommendations

2021 ◽  
Author(s):  
Alaina Chodoff ◽  
Katherine C. Smith ◽  
Aishwarya Shukla ◽  
Amanda L. Blackford ◽  
Nita Ahuja ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Cancer Survivorship ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Plans
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