scholarly journals “Sometimes You Just Need People around You Who Understand You”: A Qualitative Study of Everyday Life at a Residential Care Unit for Young People with Diabetes

2021 ◽  
Vol 10 (2) ◽  
pp. 78
Author(s):  
Lise Bro Johansen ◽  
Dan Grabowski
Keyword(s):  
Young People ◽  
Everyday Life ◽  
Social Workers ◽  
Residential Care ◽  
Diabetes Care ◽  
Care Facility ◽  
Target Group ◽  
Illness Behavior ◽  
Sociological Study ◽  
Residential Care Facility

Solglimt is the only long-term residential care facility in Denmark for young people with diabetes who, for various reasons, are particularly exposed or vulnerable. This target group is characterized by poorly regulated diabetes and psychosocial challenges. As this unique setting and specific target group has not been studied before, we designed a qualitative sociological study of the experiences and perceptions of everyday life from the perspectives of current and former residents as well as from those of the residential care social workers (RCSWs). We also studied the specific care practices at Solglimt. The dataset consists of nine days of participatory observations, 29 semi-structured individual interviews with three target groups (9 current residents, 8 former residents and 12 RCSWs) and three participatory workshops. All data were analyzed using radical hermeneutics. The analysis produced four main themes: (1) In it together, like a family—feeling different among peers, (2) Social workers as substitutes for parents and healthcare professionals, (3) Individualization—Increased self-confidence and autonomy, and (4) Tacit knowledge and illness behavior automation. The findings show that the residential care facility is a family-like setting with a strong focus on individualization, which enables new illness behaviors and perceptions. The results offer important steps towards developing improved diabetes care strategies through individualized informal knowledge sharing. Furthermore, the results are applicable to general clinical diabetes care for vulnerable or low-resource children and young people with diabetes.

scholarly journals “Diabetes Makes You Feel Lonely When You’re the Only One”: A Qualitative Study of Identity Development among Young People Living at a Residential Care Facility for People with Diabetes

Adolescents ◽  
2021 ◽  
Vol 1 (3) ◽  
pp. 348-359
Author(s):  
Dan Grabowski ◽  
Louise Norman Jespersen ◽  
Lise Bro Johansen
Keyword(s):  
Young People ◽  
Identity Development ◽  
Residential Care ◽  
Behavioral Problems ◽  
Personal Growth ◽  
Personal Development ◽  
Care Home ◽  
Care Facility ◽  
Structured Interviews ◽  
Residential Care Facility

Young people with poorly regulated diabetes often experience recurrent hospitalization, behavioral problems, higher incidence of psychiatric disorders, as well as family dysfunction. It is crucial that young people with diabetes learn to manage their diabetes effectively. Some young people with diabetes cannot manage their diabetes at home and have to live at a residential care unit for young people with diabetes. In this study we highlight the identity development of these young people. The data consist of semi-structured interviews with current and former residents of a care facility for young people with diabetes. The analysis revealed three themes: (1) the young people report a high level of personal growth and maturity after moving to the care home; (2) the importance of identifying with others and how forming relations plays a significant role in the young people’s personal development; and (3) the young people have a constant fear of being different. Being able to define and shape one’s identity against a background that includes a meaningful perception of diabetes is key to understanding why life at the care home is so identity-changing for the young residents.

scholarly journals INSIGHTS INTO STRUCTURALLY IDENTICAL EXPERIENCES OF RESIDENTIAL CARE ALUMNI: THE PARADOX OF BECOMING AUTONOMOUS IN A RESIDENTIAL CARE FACILITY

2018 ◽  
Vol 9 (2) ◽  
pp. 61
Author(s):  
Andrea Nagy
Keyword(s):  
Young People ◽  
Residential Care ◽  
Social Action ◽  
Care Facility ◽  
Residential Setting ◽  
Group Discussions ◽  
Residential Care Facility ◽  
Documentary Method ◽  
Social Patterns ◽  
Care Leaver

In this study, which is part of my PhD thesis project, I used the documentary method of interpretation to analyze a discourse on the prospect of leaving care and living autonomously that emerged from group discussions among youth living in a residential setting in <em>Alto Adige</em> [South Tyrol], Italy. The documentary method of interpretation not only examines the explicitly expressed contents of the discourse, but also reconstructs the young person’s implicit, or atheoretical, knowledge underlying and orienting habitualized social action. The method focuses on group-based social patterns that, when applied in care-leaver research, give valuable insights into structurally identical experiences young people in institutions of residential care share that concern the normative educational goal and expected learning outcome of autonomy. The analysis of the group discussions suggests that becoming autonomous in a residential institution is, from the perspective of the young people, a paradoxical arrangement with compulsory character, and that they have developed group-specific patterns and strategies to manage it. This article will present those social patterns and strategies. An understanding of the influence of the paradox is necessary if we are to improve outcomes of the social pedagogical treatment model in residential care settings and thus improve the life chances of residential care alumni and the experience of leaving care for young adults.

Blessing’s (Life) Story: An Adolescent in Residential Care Living with HIV

2019 ◽  
Vol 31 (2) ◽  
Author(s):  
Jenita Chiba ◽  
Jeanette Schmid
Keyword(s):  
Identity Formation ◽  
Residential Care ◽  
Antiretroviral Treatment ◽  
Service Providers ◽  
Life Story ◽  
Care Facility ◽  
Hiv Positive ◽  
Residential Care Facility ◽  
Living With Hiv ◽  
Specific Construction

The lifespan of perinatally HIV-infected children in South Africa has increased owing to the availability of antiretroviral treatment, allowing growth into adolescence and beyond. There is limited knowledge of the lived realities of adolescents with HIV. This paper, using life story methodology and based on Blessing’s narrative, provides an intersectional, complex view of the experience of one such teenager who is perinatally HIV-positive, was abandoned by his family and is living in a residential care facility. His story powerfully illuminates the specific construction of adolescence in this context, focusing on identity formation and the need for connection. The narrative also points to service providers’ practice when engaged with such youths.

Geriatrische revalidatiezorg na triage op de Spoedeisende Hulp: Patiëntkarakteristieken en revalidatie-uitkomsten

2019 ◽  
Keyword(s):  
Emergency Department ◽  
Residential Care ◽  
Functional Decline ◽  
Care Facility ◽  
Geriatric Rehabilitation ◽  
Residential Care Facility ◽  
Successful Group ◽  
Geriatrische Revalidatiezorg ◽  
One Year ◽  
Single Contact

In the Netherlands geriatric rehabilitation is possible (among others) for patients who are selected by a geriatrician at the emergency department of a hospital. The aim of this study was to investigate the rehabilitation trajectory of patients who were selected for geriatric rehabilitation at the emergency department after a single contact with the geriatrician and to identify patient factors related to rehabilitation outcome. Successful rehabilitation was defined as discharge to home or a residential care facility after a maximum of 6 months. All patients who in 2016 were selected for geriatric rehabilitation were included. Data were collected retrospectively from electronic patient files. 74 patients were included (mean age 84.7 years). 84% were successfully discharged home or to a residential care facility within six months. The presentation with a fall and the absence of a partner at home was higher in the unsuccessful group. In the successful group more patients lived independent and without professional help prior to rehabilitation. Noteworthy is that the analysed patient group is a frail group, considering the high one-year mortality (21,6%) and overall functional decline despite geriatric rehabilitation.

scholarly journals Involving Family Members of People with Dementia in  the Music Therapy Process at a Residential Care Facility

2021 ◽  
Author(s):  
◽  
Patrice Dennis
Keyword(s):  
Music Therapy ◽  
Residential Care ◽  
Family Involvement ◽  
Theoretical Perspective ◽  
Family Members ◽  
Care Facility ◽  
Therapy Process ◽  
Residential Care Facility ◽  
Music Therapist ◽  
People With Dementia

<p>The therapeutic use of music with older adults with dementia is widely documented, and family involvement is encouraged in both music therapy practice and dementia care services. This qualitative study explores and describes the experience of a student music therapist involving the family members of people with dementia in the music therapy process in a residential care facility. Grounded theory methodology informed analysis of the data sources. Secondary data was analysed and a theoretical perspective regarding family involvement in the music therapy process in this setting was developed. The findings are presented in main categories consisting of: building relationships, sharing information, unplanned family involvement in music therapy sessions, flexibility, spontaneity, joy and humour, and negotiation of the music therapist role in the community of the facility. The emergent theoretical perspective suggests that involving family members in the music therapy process in residential care facility is valuable in fostering and strengthening a sense of community between residents, family members and care staff.</p>

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