scholarly journals The Development of a Personalized Symptom Management Mobile Health Application for Persons Living with HIV in China

2021 ◽  
Vol 11 (5) ◽  
pp. 346
Author(s):  
Shuyu Han ◽  
Yaolin Pei ◽  
Lina Wang ◽  
Yan Hu ◽  
Xiang Qi ◽  
...  

Persons living with HIV (PLWH) continuously experience symptom burdens. Their symptom prevalence and severity are also quite different. Mobile health (mHealth) applications (apps) offer exceptional opportunities for using personalized interventions when and where PLWH are needed. This study aimed to demonstrate the development process of the symptom management (SM) app and the structure and content of it. Our research team systematically searched for evidence-based resources and summarized up-to-date evidence for symptom management and health education. Our multidisciplinary research team that included physicians, nurses, software engineers, and nursing professors, evaluated the structure and content of the drafted app. Both quantitative data and qualitative results were collected at a group discussion meeting. Quantitative data were scores of sufficient evidence, situational suitability, practicability, cost-effectiveness, and understandability (ranged from one to four) for 119 items of the app contents, including the health tracking module, the self-assessment module, coping strategies for 18 symptoms (80 items), medication management, complementary therapy, diet management, exercise, relaxation techniques, and the obtaining support module. The SM app was comprised of eight modules and provided several personalized symptom management functions, including assessing symptoms and receiving different symptom management strategies, tracking health indicators, and communicating with medical staff. The SM app was a promising and flexible tool for HIV symptom management. It provided PLWH with personalized symptom management strategies and facilitated the case management for medical staff. Future studies are needed to further test the app’s usability among PLWH users and its effects on symptom management.

2018 ◽  
Vol 22 (10) ◽  
pp. 3373-3383 ◽  
Author(s):  
Rebecca Schnall ◽  
Hwayoung Cho ◽  
Alexander Mangone ◽  
Adrienne Pichon ◽  
Haomiao Jia

2012 ◽  
Vol 26 (6) ◽  
pp. 335-343 ◽  
Author(s):  
Inge B. Corless ◽  
Dean Wantland ◽  
Kenn M. Kirksey ◽  
Patrice K. Nicholas ◽  
Sarie Human ◽  
...  

Curationis ◽  
2014 ◽  
Vol 37 (1) ◽  
Author(s):  
Regis R. Marie Modeste ◽  
Sisana J. Majeke

Background: It has been reported that South Africa has the highest number of people living with HIV worldwide, with more women being infected than men. Women living with HIV have been documented as experiencing various symptoms related to HIV and use various strategies to manage these symptoms.Objective: The objective of this study was to explore the sources and types of information regarding self-care symptom management strategies received by women living with HIV.Method: The study was conducted at an HIV clinic in an urban area of KwaZulu-Natal. Individual in-depth interviews were completed with 11 women who were living with HIV,exploring the sources of information received on how they manage the HIV- (and/or AIDS-) related symptoms they experienced as well as the types of information received. The collecteddata were analysed using qualitative content analysis.Results: The participants identified various sources, which mainly included groups of people who provided them with information on how to manage their HIV-related symptoms, namely healthcare providers, their personal networks and the community. The different sources offered different types of information, including the use of medication, complementary treatments and self-comforting activities.Conclusion: The study highlights that participants used multiple sources to get information about how to manage the experienced symptoms related to HIV, namely, healthcare providers, family and friends as well as themselves. It is to be noted that each source provided a preferred type of information.


2020 ◽  
Vol 16 (4) ◽  
pp. 359-372
Author(s):  
Jen Rinaldi ◽  
Olga Marques

Purpose This study aims to ask how HIV/AIDS is arranged as a public threat in and through Canadian law, particularly in relation to transmission, and how strategies of capture extend the affective force of criminalization leading to poor health outcomes for persons living with HIV/AIDS. Design/methodology/approach This is a conceptual paper with a focus on applying affect theorist Jasbir Puar’s work on assemblage and debility. The authors use Puar’s work to frame the conditions that persons with HIV/AIDS experience in the Canadian criminal justice context as debilitating. Findings The authors found that while HIV transmission is not itself a criminal act in the Canadian criminal justice context, activities where transmission is prevalent or possible have been criminalized, particularly in relation to nondisclosure of health status, sex work and substance use. Further, the authors found that when the activities associated with HIV transmission are criminalized, strategies of capture extend the affective force of criminalization first in the inadequate provision of health-care and pharma-care services, second in state resistance to implement harm reduction measure and third in punitive population management strategies. Originality/value Persons living with HIV/AIDS have historically experienced stigmatization, especially intersecting with neoliberal, white supremacist and heteropatriarchal axes of power. This paper uses assemblage theory to shore up how these relations operate in ways that close off possibilities, by constituting the HIV/AIDS assemblage as a criminal – rather than a health phenomenon. This paper, thus, holds Canada to account for debilitating a historically disadvantaged and multiplying marginalized population.


2020 ◽  
Author(s):  
Mirasol C. Famador ◽  
Mauro Allan Padua Amparado

This study explored the knowledge and attitudes of the teaching and non-teaching staff of University of Cebu Lapu-Lapu and Mandaue on HIV/AIDS. Specifically, this study determined the knowledge of the informants in terms of the causative factors, mode of transmission, and prevention of HIV/AIDS. It also ascertained the attitudes of the informants towards persons living with HIV/AIDS. The study utilized the mixed method design. This study collected quantitative data first. Then qualitative data was collected and analyzed. The quantitative data was taken from 144 teaching staff and 42 non-teaching staff. The study was conducted at the University of Cebu Lapu-Lapu and Mandaue, Mandaue City, Cebu, Philippines. For the qualitative method, ten informants were interviewed using a structure interview guide.The findings revealed that a majority of the informants attained excellent scores in the aspects of causative factors and modes of transmission. However, the scores were categorized as very good in the aspect of prevention. The following themes emerged: I see persons living with HIV as normal; HIV is a contagious disease; Persons living with HIV should seek professional help; HIV affects one’s social relationships; I pity them; I will not dine with them; PLHIVs have shorter life span; I will think I would be angry if I get infected with HIV; Live life positively; I am eager to learn more about HIV/AIDS.Recommended citation: Famador, M. C. & Amparado, M. A. P. (2018, March). Targeting Wellness, Examining the Scourge: Views from the Academe on HIV/AIDS. Paper presented at the 2018 University of Cebu Research Congress, Cebu City, Cebu, Philippines, 12(1), 21.


AIDS Care ◽  
2021 ◽  
pp. 1-5
Author(s):  
Mark K. Greenwald ◽  
Nora Akcasu ◽  
Paige Baal ◽  
Angulique Y. Outlaw ◽  
Jonathan A. Cohn ◽  
...  

2010 ◽  
Vol 15 (1) ◽  
Author(s):  
Regis R. Marie Modeste ◽  
Sisana J. Majeke

People living with HIV and AIDS experience a number of symptoms such as fatigue, nausea and vomiting, fever and anxiety during the various stages of the illness. This has a negative effect on their quality of life. Women are the most commonly infected group and are at greater risk of acquiring HIV than men. In addition to their vulnerability, women have other responsibilities in society and expectations from society to fulfil. Women’s health-seeking and health practice behaviours are often hindered by a number of factors, including family responsibilities, poverty and fear.This paper presents the findings of a qualitative study aimed at exploring the self-care symptommanagement strategies used by women living with HIV and AIDS in an urban area in KwaZulu-Natal in 2006.Eleven participants were selected through a purposive sampling method until saturation was reached. Individuals were assessed in depth, using the symptom-management strategy interview.Qualitative content analysis was used to examine the transcribed interviews, using a deductive approach based on the categories of self-care symptom-management strategies.Various physical and psychological symptoms and a number of self-care symptom-management strategies were reported by the participants and these included taking medication and seeking help.The study makes recommendations on how to improve women’s ability to employ a self-care strategy in managing their HIV- and AIDS-related symptoms.OpsommingMense wat met MIV en Vigs leef, ervaar verskeie simptome in die verskillende stadiums van die siekte, soos moegheid, naarheid en braking, koors en angstigheid. Dit het ’n negatiewe effek op hul lewensgehalte. Vroue is die groep wat die meeste besmet word, en staan ’n groter risiko om MIV op te doen as mans. Benewens hul vatbaarheid, het vroue ook ander verantwoordelikhede en verwagtinge om in die samelewing te vervul. Vroue se gesondheidsbevorderende en gesondheidspraktykgedrag word dikwels gekniehalter deur ’n aantal faktore, wat familieverantwoordelikhede, armoede en vrees insluit.Hierdie artikel bied die bevindinge aan van ’n kwalitatiewe studie gemik op die verkenning van selfsorg-simptoombeheerstrategieë wat deur vroue met MIV en Vigs in 2006 in ’n stedelike gebiedin KwaZulu-Natal gebruik is.’n Steekproef van 11 respondente is geselekteer deur middel van ’n doelbewuste steekproefmetode totdat versadiging bereik is. Individuele diepte-onderhoude is gevoer deur gebruik te maak van die simptoombeheerstrategie-onderhoud. Kwalitatiewe inhoudelike analise is gebruik om die getranskribeerde onderhoude te analiseer deur middel van ’n deduktiewe metode gegrond op die kategorieë van selfsorg-simptoombeheerstrategieë.Verskeie fisiese en psigologiese simptome asook ’n aantal selfsorg-simptoombeheerstrategieë is deur die respondente gerapporteer. Die selfsorg-simptoombeheerstrategieë wat in die studie identifiseer is, het die neem van medikasie en die soek na hulp ingesluit.Die studie maak aanbevelings oor hoe om vroue se vermoë om ’n selfsorg-strategie om MIV- en Vigs-verwante simptome te beheer, te verbeter.


Pharmacy ◽  
2020 ◽  
Vol 8 (2) ◽  
pp. 92
Author(s):  
Alina Cernasev ◽  
William L. Larson ◽  
Cynthia Peden-McAlpine ◽  
Todd Rockwood ◽  
Paul L. Ranelli ◽  
...  

Minnesota has seen an increase in the number of immigrants from Africa, notably in the mid-1990s, making up around 2% of Minnesota’s total population. This population also faces many impediments that cause important difficulties not only for HIV prevention but also for treatment and care options. The objectives of this study were to capture the experiences of Persons Living with HIV (PLWH) in Minnesota (US) and to elicit their stories about their diagnosis news and what management strategies they use for coping with the stigma associated with the disease. Participants were recruited via fliers in pharmacies, clinics, and HIV service centers located in Minnesota. Recruitment continued until thematic saturation was obtained. Fourteen subjects participated in audio-recorded, semi-structured interviews that were transcribed verbatim into written text. The transcriptions were analyzed using Thematic Analysis. Three themes emerged from the data. Theme 1: Cruel News: “HIV-Oooooo! I wish I was dead”, Theme 2: This is My Secret! and Theme 3: “Stigma and HIV are brother and sister”. The results demonstrate that stigma is an ever-present problem in African-born PLWH living in the US. Participants perceived the stigma associated with HIV status to affect their lives and culture at individual, familial, and societal levels.


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