scholarly journals Translation and Linguistic Validation of Outcome Instruments for Traumatic Brain Injury Research and Clinical Practice: A Step-by-Step Approach within the Observational CENTER-TBI Study

2021 ◽  
Vol 10 (13) ◽  
pp. 2863
Author(s):  
Nicole von Steinbuechel ◽  
Katrin Rauen ◽  
Ugne Krenz ◽  
Yi-Jhen Wu ◽  
Amra Covic ◽  
...  
Keyword(s):  
Traumatic Brain Injury ◽  
Clinical Practice ◽  
Brain Injury ◽  
Target Language ◽  
Patient Reported ◽  
And Performance ◽  
Patient Reported Measures ◽  
Injury Research ◽  
Comprehension Rate

Assessing outcomes in multinational studies on traumatic brain injury (TBI) poses major challenges and requires relevant instruments in languages other than English. Of the 19 outcome instruments selected for use in the observational Collaborative European NeuroTrauma Effectiveness Research in TBI (CENTER-TBI) study, 17 measures lacked translations in at least one target language. To fill this gap, we aimed to develop well-translated linguistically and psychometrically validated instruments. We performed translations and linguistic validations of patient-reported measures (PROMs), clinician-reported (ClinRO), and performance-based (PerfO) outcome instruments, using forward and backward translations, reconciliations, cognitive debriefings with up to 10 participants, iterative revisions, and international harmonization with input from over 150 international collaborators. In total, 237 translations and 211 linguistic validations were carried out in up to 20 languages. Translations were evaluated at the linguistic and cultural level by coding changes when the original versions are compared with subsequent translation steps, using the output of cognitive debriefings, and using comprehension rates. The average comprehension rate per instrument varied from 88% to 98%, indicating a good quality of the translations. These outcome instruments provide a solid basis for future TBI research and clinical practice and allow the aggregation and analysis of data across different countries and languages.

scholarly journals Clinical guidelines for traumatic brain injuries in children and boys

2020 ◽  
Vol 30 (1) ◽  
pp. 159-170
Author(s):  
Hojjat Derakhshanfar ◽  
Elham Pourbakhtyaran ◽  
Samane Rahimi ◽  
Samira Sayyah ◽  
Zahra Soltantooyeh ◽  
...  
Keyword(s):  
Traumatic Brain Injury ◽  
Clinical Practice ◽  
Brain Injury ◽  
Clinical Practice Guidelines ◽  
Practice Guidelines ◽  
Clinical Guidelines ◽  
Pediatric Traumatic Brain Injury ◽  
Normal Ranges ◽  
Pediatric Tbi

The main aim of management of pediatric traumatic brain injury (TBI)  is to hold normal ranges for optimizing the most proper outcomes. However, for providing physiologic requirements of an injured brain it is very important to enhance the quality of recovery and minimize secondary injury. Within this study it is tried to regulate the most proper guidelines for management of pediatric TBI. A comprehensive research was conducted on some biomedical and pharmacological bibliographic database of life sciences such as PubMed, EMBASE, MEDLINE, LILACS database, global independent network of Cochrane, Science Direct and global health library of Global Index Medicus (GIM). By referencing these databases, a universal literature review was carried out through combining various recent studies in terms of pediatric traumatic brain injury, epidemiology, management and related clinical guidelines in accordance with various related articles published from 2000 to 2019 which could cover this area of recommendations.Based on the main objective of this study for providing a comprehensive review around available clinical practice guidelines for more precise management of TBI. These guidelines can be administered especially for pediatric population which possibly could improve the quality of clinical practice guidelines for TBI. The guidelines of TBI could be applied worldwide in various traditional demographic and geographic boundaries which could affect pediatric populations in various ranges of ages. Accordingly, advances in civil foundation and reforms of explicit health policy could decrease the pediatric TBI socioeconomic burdens.

Benefits of Order: The Influence of Item Sequencing on Metacognition in Moderate and Severe Traumatic Brain Injury

2012 ◽  
Vol 18 (2) ◽  
pp. 379-383 ◽  
Author(s):  
Kathy S. Chiou ◽  
Frank G. Hillary
Keyword(s):  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Item Difficulty ◽  
Task Demands ◽  
The Matrix ◽  
Severe Tbi ◽  
And Performance ◽  
Matrix Reasoning ◽  
Neurological Insult

AbstractThe ability to appraise one's own ability has been found to have an important role in the recovery and quality of life of clinical populations. Examinee and task variables have been found to influence metacognition in healthy students; however the effect of these variables on the metacognitive accuracy of adults with neurological insult, such as traumatic brain injury (TBI), remains unknown. Twenty-two adults with moderate and severe TBI and a matched sample of healthy adults participated in this study examining the influence of item sequencing on metacognitive functioning. Retrospective confidence judgments were collected while participants completed a modified version of the Matrix Reasoning subtest. Significant influence of item sequence order was found, revealing better metacognitive abilities and performance when participants completed tasks where item difficulty progressed in order from easy to difficult. We interpret these findings to suggest that the sequencing of item difficulty offers “anchors” for gauging and adjusting to task demands. (JINS, 2012,18, 379–383)

Quality of clinical practice guidelines for persons who have sustained mild traumatic brain injury

Brain Injury ◽  
2011 ◽  
Vol 25 (7-8) ◽  
pp. 742-751 ◽  
Author(s):  
Lindsay Berrigan ◽  
Shawn Marshall ◽  
Scott McCullagh ◽  
Diana Velikonja ◽  
Mark Bayley
Keyword(s):  
Traumatic Brain Injury ◽  
Clinical Practice ◽  
Brain Injury ◽  
Mild Traumatic Brain Injury ◽  
Clinical Practice Guidelines ◽  
Practice Guidelines

Auditory Quality-of-Life Measures in Patients With Traumatic Brain Injury and Normal Pure Tone Audiometry

2020 ◽  
Vol 163 (6) ◽  
pp. 1250-1254
Author(s):  
Renata M. Knoll ◽  
Rory J. Lubner ◽  
Jacob R. Brodsky ◽  
Kevin Wong ◽  
David H. Jung ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Traumatic Brain Injury ◽  
Hearing Loss ◽  
Brain Injury ◽  
Pure Tone Audiometry ◽  
Tinnitus Handicap Inventory ◽  
Hearing Thresholds ◽  
Patient Reported ◽  
Hearing Handicap

Auditory complaints are commonly reported following traumatic brain injury (TBI). However, few studies have examined patient-reported auditory symptomatology and quality-of-life metrics in individuals with TBI. We hypothesize that following TBI, individuals can experience auditory symptoms even with hearing thresholds in the normal range. Adult patients with normal auditory thresholds and a history of TBI were evaluated for subjective hearing loss, tinnitus, aural fullness, hyperacusis, and autophony. Hearing Handicap Inventory for Adults, Tinnitus Handicap Inventory, and Hyperacusis Questionnaire were administered. Thirty-one patients were prospectively recruited. Twenty-eight TBI participants (90%) reported ≥1 auditory symptoms at the time of survey intake. Mild to severe handicap in the Hearing Handicap Inventory for Adults and Tinnitus Handicap Inventory was reported in 71.4% and 40% of the participants with hearing loss and tinnitus, respectively. Hyperacusis handicap was considered significant in 41.1% of the participants who complained of hyperacusis and completed the survey. Despite normal hearing thresholds, individuals with TBI experience decrements in auditory quality-of-life metrics. Level of evidence: 3.

THE IMPACT OF TRAUMATIC BRAIN INJURY ON PATIENT-REPORTED PHYSICAL AND MENTAL HEALTH

2015 ◽  
Vol 86 (11) ◽  
pp. e4.114-e4
Author(s):  
Nikos Gorgoraptis ◽  
Joanna Zaw-Linn ◽  
Claire Feeney ◽  
Carmen Tenorio Jimenez ◽  
Mari Niemi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Injury Severity ◽  
Nottingham Health Profile ◽  
Well Being ◽  
Sf 36 ◽  
Patient Reported ◽  
The Impact

Traumatic Brain Injury (TBI) is a major cause of disability, with staggering social consequences, but little is known on what determines the impact of TBI from the patient's perspective.In an audit of 240 patients (172 males, median age: 42 years, range: 20–89 years) who attended our multidisciplinary TBI clinic, we examined the impact of cognitive function, depression, sleep, history of substance abuse, age, injury severity (172 moderate-severe, 68 possible-mild TBI) and time since injury (median: 4 months, range: 20 days–28 years) on two patient-reported measures of quality of life: SF–36 Health Survey and Nottingham Health Profile (NHP).Worse outcomes in NHP and both Mental and Physical sub-scores of SF–36 were associated with poorer cognitive performance, as measured by ACE–R. Depression, examined using BDI–II, showed a strong negative correlation with both quality of life measures. Sleep-related symptoms were also strongly associated with worse patient-reported outcomes. Patients reported poorer outcomes in both SF-36 and NHP when examined at a later time since their injury, and this effect could not be attributed to older age.Impairments in cognition, mood and sleep following TBI may have a significant impact on patients' perception of their physical and mental well-being.

scholarly journals Quality of the Development of Traumatic Brain Injury Clinical Practice Guidelines: A Systematic Review

PLoS ONE ◽  
2016 ◽  
Vol 11 (9) ◽  
pp. e0161554 ◽  
Author(s):  
Anjni Patel ◽  
Mateus Mazorra Coelho Vieira ◽  
John Abraham ◽  
Nick Reid ◽  
Tu Tran ◽  
...  
Keyword(s):  
Systematic Review ◽  
Traumatic Brain Injury ◽  
Clinical Practice ◽  
Brain Injury ◽  
Clinical Practice Guidelines ◽  
Practice Guidelines
Sign in / Sign up

Export Citation Format

Share Document