scholarly journals Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals

2021 ◽  
Vol 10 (9) ◽  
pp. 1833
Author(s):  
Suzanne Kaal ◽  
Emma Lidington ◽  
Judith Prins ◽  
Rosemarie Jansen ◽  
Eveliene Manten-Horst ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Cancer Patients ◽  
Cancer Diagnosis ◽  
Health Care Professionals ◽  
Physical Symptoms ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

This study aimed to identify health-related quality of life (HRQoL) issues of relevance for adolescent and young adult (AYA) cancer patients, the perception of relevant HRQoL issues for AYA in generalby the health care professionals (HCP), and discrepancies between issues identified by AYAs and HCP. Dutch AYAs aged 18–35 years at the time of cancer diagnosis (N = 83) and HCPs (N = 34) involved in AYA oncology were invited to complete the Quality of Life for Cancer Survivors questionnaire. HCPs rated physical symptoms such as fatigue, appetite, pain, constipation, sleep disorders, nausea and neuropathy among AYA cancer patients significantly higher (i.e., more problems) than AYA cancer patients. AYA cancer patients rated overall physical health and quality of life, happiness, satisfaction, usefulness and support from others, all positively formulated questions, significantly higher (i.e., more positive) than HCPs. The most highly rated issues (negative and positive combined) for AYAs were: perceived support from others, distress about initial cancer diagnosis, distress for family and overall quality of life. HCPs identified distress about diagnosis, treatment, family and interference of illness with employment/study as the most problematic issues (all negative) for AYAs. Five of the ten most common issues listed by patients and HCPs were the same. Male AYAs, patients treated with curative intent and those with a partner rated positive HRQoL issues higher than their counterparts. The discrepancy between the perception of patients and HCPs illustrates the importance of patient involvement in organizing physical and psychosocial care.

scholarly journals Quality of sleep and health-related quality of life among health care professionals treating patients with coronavirus disease-19

2020 ◽  
pp. 002076402094280 ◽  
Author(s):  
Jelena Stojanov ◽  
Marina Malobabic ◽  
Goran Stanojevic ◽  
Milos Stevic ◽  
Vuk Milosevic ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Mental Status ◽  
Health Care Professionals ◽  
Short Form ◽  
Health Related Quality ◽  
Quality Of Sleep ◽  
Related Quality ◽  
Health Related

Background: Health care professionals exposed to coronavirus disease 2019 (COVID-19) are facing high levels of stress. Aim: The aim was to evaluate the quality of sleep (QoS) and health-related quality of life (HRQoL), among health care professionals treating patients with COVID-19, as well as quantifying the magnitude of symptoms of depression and levels of anxiety. Methods: We included 201 health care professionals in a cross-sectional, web-based study by applying 7-item Generalized Anxiety Disorder (GAD-7) Scale, Zung Self-rating Depression Scale, 36-item Health Survey of the Medical Outcomes Study Short Form (SF36), Pittsburgh Sleep Quality Index (PSQI) and additional survey constructed for the purpose of the study. Results: Health care workers who treated COVID-19 patients were more afraid of becoming infected or of transmitting the infection to a family member with a significantly low self-assessment of their mental status. Poor QoS and HRQoL correlated with high health anxiety and severe depressive symptoms and several demographic characteristics. Multiple linear regression analysis showed that higher scores on GAD-7 (beta = .71, p < .01) and lower scores on mental health (MH) subscale on SF36 questionnaire (beta = –.69; p < .01) were independent predictors of the higher PSQI score (adjusted R2 = .61, p < .01 for overall model). Higher scores on GAD-7 (beta = .68, p < .01) and worse self-perceived mental status (beta = .25; p < .05) were independent predictors of the lower SF36 scores (adjusted R2 = .73, p < .01 for overall model). Conclusion: The major MH burden of health care professionals treating infected patients during the COVID-19 pandemic indicates that they need psychological support.

Implementation of an ePRO Application for Health-Related Quality of Life (HrQoL) in Breast Cancer Patients: Evaluation and Usability Analysis (Preprint)

2019 ◽  
Author(s):  
Joachim Graf ◽  
Nina Sickenberger ◽  
Katharina Brusniak ◽  
Lina Matthies ◽  
Thomas M. Deutsch ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Health Care ◽  
Cancer Patients ◽  
Technical Skills ◽  
Health Related Quality ◽  
Breast Cancer Patients ◽  
Related Quality ◽  
Health Related

BACKGROUND One in eight women is diagnosed with breast cancer in the course of her life. As systematic palliative treatment has an only limited effect on survival rates, the concept of Health-related Quality of Life (HRQoL). Various studies have already demonstrated the reliability of paper-based PRO (pPRO) and ePRO and that the two means of assessment are equally valid. OBJECTIVE The aim of this study was to analyze the acceptance and evaluation of a tablet-based ePRO applica-tion for breast cancer patients and to examine its suitability, effort, and difficulty in the context of HRQoL and sociodemographic factors. METHODS In all, 106 women with adjuvant or advanced breast cancer were included in a two-center study at two major university hospitals in Germany. Patients were asked to answer HRQoL (EORTC QLQ-C 30, FACT-B) and PRO questionnaires both on a tablet on-site using a specific eHealth assessment website and on paper. The suitability, effort, and difficulty of the application and self-reported technical skills were also assessed. Only the results of the electronically acquired data are presented here, results of reliability to pPRO data have already been published elsewhere. RESULTS Patients regarded the ePRO assessment as more suitable (74.8%), less stressful (69.8%), and less difficult than pPRO (65.2%). The majority of patients stated that ePRO improves health care in hospitals (82.1%). However, evaluation of ePRO depends on the level of education (p=0.003) and patients’ experience in using a computer (p=0.041). The application was rated highly in all categories. HRQoL data did not show significant correlations to the application’s evaluation parameters. CONCLUSIONS The results indicate that ePRO surveys are also feasible for measuring HRQoL in breast cancer pa-tients and that those patients prefer ePRO to pPRO assessment. It can also be seen that patients consider ePRO to be improve hospital health care. However, studies with larger numbers of patients are needed to develop applications that address the needs of patients with lower levels of education and technical skills.

Patients’ and health care professionals’ evaluation of health-related quality of life issues in bone metastases

2009 ◽  
Vol 45 (14) ◽  
pp. 2510-2518 ◽  
Author(s):  
Kristin Harris ◽  
Edward Chow ◽  
Liying Zhang ◽  
Galina Velikova ◽  
Andrea Bezjak ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Bone Metastases ◽  
Health Care Professionals ◽  
Health Related Quality ◽  
Life Issues ◽  
Related Quality ◽  
Health Related

Association of Physical Morbidity and Health-Related Quality of Life in a Representative Sample of Older German People

2018 ◽  
Vol 25 (4) ◽  
pp. 140-151
Author(s):  
Markus A. Wirtz ◽  
Matthias Morfeld ◽  
Elmar Brähler ◽  
Andreas Hinz ◽  
Heide Glaesmer
Keyword(s):  
Quality Of Life ◽  
Representative Sample ◽  
Short Form ◽  
Physical Symptoms ◽  
German Population ◽  
Health Related Quality ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related

Abstract. The association between health-related quality of life (HRQoL; Short-Form Health Survey-12; SF-12) and patient-reported morbidity-related symptoms measured by the Patient Health Questionnaire-15 (PHQ-15) is analyzed in a representative sample of older people in the general German population. Data from 1,659 people aged 60 to 85 years were obtained. Latent class analysis identified six classes of patients, which optimally categorize clusters of physical symptoms the participants reported: musculoskeletal impairments (39.8%), healthy (25.7%), musculoskeletal and respiratory/cardiac impairments (12.8%), musculoskeletal and respiratory impairments, along with bowel and digestion problems (12.9%), general impairments (4.9%), and general impairments with no bowel and digestion problems (4.8%). The participants’ SF-12 Physical Health Scores (η2 = .39) and their Mental Health Scores (η2 = .28) are highly associated with these latent classes. These associations remain virtually identical after controlling for age. The results provide evidence that profiles of patient-reported physical impairments correspond strongly with reduced HRQoL independently from aging processes.

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