scholarly journals Health Data Collection Before, During and After Emergencies and Disasters—The Result of the Kobe Expert Meeting

Author(s):  
Tatsuhiko Kubo ◽  
Alisa Yanasan ◽  
Teodoro Herbosa ◽  
Nilesh Buddh ◽  
Ferdinal Fernando ◽  
...  

In October 2018, the World Health Organization (WHO) convened a meeting to identify key research needs, bringing together leading experts from WHO, WHO Thematic Platform for Health Emergency and Disaster Risk Management (Health-EDRM) Research Network (TPRN), World Association for Disaster and Emergency Medicine (WADEM), the Japan International Cooperation Agency (JICA), and delegates to the Asia Pacific Conference for Disaster Medicine (APCDM) 2018. The meeting identified key research needs in five major research areas for Health-EDRM. One of the five major research areas was “Health data collection during emergency and disaster”. Experts for this research area highlighted WHO Emergency Medical Team Minimum Data Set (EMT MDS), a standardized medical data collection method during and after disasters, as an example of substantial progress, with knowledge gaps and challenges in implementation in some regions and countries (i.e., information collection methodology in medical facilities of affected local areas, seamless and practical connection between acute phase data collection and post-acute phase local surveillance). The discussion on this research area also identified key research needs in standardization of broader health-related data to inform effective Health EDRM (i.e., community vulnerabilities, hospital functional status, infrastructure, lifelines and health workforce).

2013 ◽  
Vol 687 ◽  
pp. 68-74 ◽  
Author(s):  
Lech Czarnecki ◽  
Hulusi Özkul ◽  
Ru Wang

The aim of the paper is an attempt to prepare draft about the matrix: drivers and research area in the C-PC with an intension to identify future research needs and priorities with relevance to C-PC development. The approach adopted in the paper is limited to the two terms: “drivers” and “research area”. Drivers have been selected to the research areas defined on the base of the 14thICPIC which reflect general scope of the C-PC domain. However, the identification and prioritization is not yet precise and do not define the result but try to establish the starting point. The purpose is that the paper is going to be used as a catalyst to guide discussion among the members of the C-PC community and to maximise the output in C-PC.


2011 ◽  
Vol 20 (1) ◽  
pp. 15-18 ◽  
Author(s):  
K. Wahlbeck

When developing accessible, affordable and effective mental health systems, exchange of data between countries is an important moving force towards better mental health care. Unfortunately, health information systems in most countries are weak in the field of mental health, and comparability of data is low.Special international data collection exercises, such as the World Health Organization (WHO) Atlas Project and the WHO Baseline Project have provided valuable insights in the state of mental health systems in countries, but such single-standing data collections are not sustainable solutions. Improvements in routine data collection are urgently needed. The European Commission has initiated major improvements to ensure harmonized and comprehensive health data collection, by introducing the European Community Health Indicators set and the European Health Interview Survey. However, both of these initiatives lack strength in the field of mental health. The neglect of the need for relevant and valid comparable data on mental health systems is in conflict with the importance of mental health for European countries and the objectives of the ‘Europe 2020’ strategy.The need for valid and comparable mental health services data is today addressed only by single initiatives, such as the Organisation for Economic Co-operation and Development work to establish quality indicators for mental health care. Real leadership in developing harmonized mental health data across Europe is lacking. A European Mental Health Observatory is urgently needed to lead development and implementation of monitoring of mental health and mental health service provision in Europe.


Author(s):  
Myo Aung ◽  
Virginia Murray ◽  
Ryoma Kayano

In October 2018, at Asia Pacific Conference for Disaster Medicine (APCDM), an expert meeting to identify key research needs was organized by the World Health Organization (WHO) Centre for Health Development (WHO Kobe Centre (WKC)), convening the leading experts from Asia Pacific region, WHO, WHO Thematic Platform for Health Emergency and Disaster Risk Management (Health-EDRM) Research Network (TPRN), World Association for Disaster and Emergency Medicine (WADEM), in collaboration with Asia Pacific Conference for Disaster Medicine (APCDM) and Japan International Cooperation Agency (JICA). International experts, who were pre-informed about the meeting, contributed experience-based priority issues in Health-EDRM research, ethics, and scientific publication. Two moderators, experienced in multi-disciplinary research interacted with discussants to transcribe practical issues into related methodological and ethical issues. Each issue was addressed in order to progress research and scientific evidence in Health-EDRM. Further analysis of interactive dialogues revealed priorities for action, proposed mechanism to address these and identified recommendations. Thematic discussion uncovered five priority areas: (1) the need to harmonize Health-EDRM research with universal terms and, definitions via a glossary; (2) mechanisms to facilitate and speed up ethical review process; (3) increased community participation and stakeholder involvement in generating research ideas and in assessing impact evaluation; (4) development of reference materials such as possible consensus statements; and (5) the urgent need for a research methods resource textbook for Health-EDRM addressing these issues.


Author(s):  
Mélissa Généreux ◽  
Philip J. Schluter ◽  
Sho Takahashi ◽  
Shiori Usami ◽  
Sonoe Mashino ◽  
...  

Emergencies and disasters typically affect entire communities, cause substantial losses and disruption, and result in a significant and persistent mental health burden. There is currently a paucity of evidence on safe and effective individual- and community-level strategies for improving mental health before, during, and after such events. In October 2018, the World Health Organization (WHO) Centre for Health Development (WHO Kobe Centre) convened a meeting bringing together leading Asia Pacific and international disaster research experts. The expert meeting identified key research needs in five major areas, one being “Psychosocial management before, during, and after emergencies and disasters”. Experts for this research area identified critical gaps in observational research (i.e., the monitoring of long-term psychological consequences) and interventional research (i.e., the development and evaluation of individual- and community-level interventions). Three key research issues were identified. First, experts underscored the need for a standardized and psychometrically robust instrument that classified the mental health/psychosocial risk of people within both a clinical and community setting. Then, the need for a standardization of methods for prevention, screening, diagnosis, and treatment for affected people was highlighted. Finally, experts called for a better identification of before, during, and after emergency or disaster assets associated with greater community resilience.


2020 ◽  
Vol 36 (4) ◽  
pp. 1199-1211
Author(s):  
Jennifer Parker ◽  
Kristen Miller ◽  
Yulei He ◽  
Paul Scanlon ◽  
Bill Cai ◽  
...  

The National Center for Health Statistics is assessing the usefulness of recruited web panels in multiple research areas. One research area examines the use of close-ended probe questions and split-panel experiments for evaluating question-response patterns. Another research area is the development of statistical methodology to leverage the strength of national survey data to evaluate, and possibly improve, health estimates from recruited panels. Recruited web panels, with their lower cost and faster production cycle, in combination with established population health surveys, may be useful for some purposes for statistical agencies. Our initial results indicate that web survey data from a recruited panel can be used for question evaluation studies without affecting other survey content. However, the success of these data to provide estimates that align with those from large national surveys will depend on many factors, including further understanding of design features of the recruited panel (e.g. coverage and mode effects), the statistical methods and covariates used to obtain the original and adjusted weights, and the health outcomes of interest.


2017 ◽  
Vol 6 (1) ◽  
pp. 91
Author(s):  
Roveneldo Roveneldo

This research discusses the differences of vowel correspondences, vowel, and  consonant variations of Tulangbawang dialect of Lampung language in six research areas. The data collecting technique was conducted by applying  dialectology method. Moreover, this research used the list of questions  that  listed in Swadesh’s basic vocabularies. The result showed that there are  differences in the linguistic elements in Lampung language which include  the  differences in phonology, morphology, and lexicon. In the phonological differences, it was found that there are one vowel correspondence, eleven vowel variations, and twenty three consonant variations. In general, vowel correspondence lies in the end of words, and the tendency of occurring is found  in the research area 1, 3, 4, and 5. All research areas always have similarities  but there are various changes for each correspondence in research area number  six. In the morphological differences, there are differences in the form of suffixes namely correspondences. Besides, there are some lexical differences found in the six research areas.Abstrak Penelitian ini membahas perbedaan korespondensi vokal, variasi vokal, dan variasi konsonan dalam bahasa Lampung dialek Tulangbawang di 6 titik pengamatan. Pengambilan data dilakukan dengan menggunakan metode dialektologi. Selain itu, penelitian ini menggunakan daftar pertanyaan yang digunakan pada 200 kosakata dasar swadesh. Ditemukan perbedaan unsur-unsur kebahasaan dalam bahasa Lampung yang meliputi perbedaan; fonologi, morfologi, dan leksikon. Perbedaan fonologi ditemukan satu korespondensi vokal, sebelas variasi vokal, dan dua puluh tiga variasi konsonan. Umumnya korespondensi vokal posisi akhir kata, ada kecendrungan pada daerah titik pengamatan 1, 3, 4, dan 5. Kesemua itu selalu memiliki kesamaan walaupun pada enam daerah titik pengamatan memiliki perubahan yang berbeda-beda untuk setiap korespondensi yang ditemukan. Dalam perbedaan morfologi terdapat perbedaan bentuk sufiks yang berupa korespondensi. Selain itu, perbedaan leksikon cukup banyak ditemukan pada enam titik daerah pengamatan.


1976 ◽  
Author(s):  
N. Phillip Ross ◽  
Meyer Katzper
Keyword(s):  

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
F Estupiñán-Romero ◽  
J Gonzalez-García ◽  
E Bernal-Delgado

Abstract Issue/problem Interoperability is paramount when reusing health data from multiple data sources and becomes vital when the scope is cross-national. We aimed at piloting interoperability solutions building on three case studies relevant to population health research. Interoperability lies on four pillars; so: a) Legal frame (i.e., compliance with the GDPR, privacy- and security-by-design, and ethical standards); b) Organizational structure (e.g., availability and access to digital health data and governance of health information systems); c) Semantic developments (e.g., existence of metadata, availability of standards, data quality issues, coherence between data models and research purposes); and, d) Technical environment (e.g., how well documented are data processes, which are the dependencies linked to software components or alignment to standards). Results We have developed a federated research network architecture with 10 hubs each from a different country. This architecture has implied: a) the design of the data model that address the research questions; b) developing, distributing and deploying scripts for data extraction, transformation and analysis; and, c) retrieving the shared results for comparison or pooled meta-analysis. Lessons The development of a federated architecture for population health research is a technical solution that allows full compliance with interoperability pillars. The deployment of this type of solution where data remain in house under the governance and legal requirements of the data owners, and scripts for data extraction and analysis are shared across hubs, requires the implementation of capacity building measures. Key messages Population health research will benefit from the development of federated architectures that provide solutions to interoperability challenges. Case studies conducted within InfAct are providing valuable lessons to advance the design of a future pan-European research infrastructure.


Author(s):  
Ryoma Kayano ◽  
Shuhei Nomura ◽  
Jonathan Abrahams ◽  
Qudsia Huda ◽  
Emily Y. Y. Chan ◽  
...  

In response to the increasing burden of recent health emergencies and disasters, the World Health Organization (WHO) and its partners established the WHO thematic platform for health emergency and disaster risk management research network (health EDRM RN) in 2016, with the purposes of promoting global research collaboration among various stakeholders and enhancing research activities that generate evidence to manage health risks associated with all types of emergencies and disasters. With the strong support and involvement of all WHO regional offices, the health EDRM RN now works with more than 200 global experts and partners to implement its purposes. The 1st and 2nd Core Group Meetings of the health EDRM RN were held on 17–18 October 2019 and 27 November 2020, respectively, to discuss the development of a global research agenda that the health EDRM RN will focus on facilitating, promoting, synthesizing and implementing, taking into account the emergence of the coronavirus disease 2019 (COVID-19) (health EDRM RN research agenda). A focus of the meetings was the establishment of an online platform to share information and knowledge, including the databases that the health EDRM RN accumulates (WHO health EDRM knowledge hub). This paper presents a summary of the discussion results of the meetings.


Author(s):  
Ashley T. Scudder ◽  
Gregory J. Welk ◽  
Richard Spoth ◽  
Constance C. Beecher ◽  
Michael C. Dorneich ◽  
...  

Abstract Background Transdisciplinary translational science applies interdisciplinary approaches to the generation of novel concepts, theories and methods involving collaborations among academic and non-academic partners, in order to advance the translation of science into broader community practice. Objective This paper introduces a special issue on transdisciplinary translational science for youth health and wellness. We provide an overview of relevant research paradigms, share the related goals of the Iowa State University Translational Research Network (U-TuRN), and introduce the specific papers in the issue. Method Authors were asked to submit empirical reports, programmatic reviews or policy-related papers that examined youth health issues from a transdisciplinary translational perspective. Results The papers included in this special issue each involve direct and fully-integrated community-university partnerships and collaborations between academic and non-academic partners in scholarship and research. Reports emphasize the value of the applied nature of the work with a research agenda driven primarily by real-world health and social needs. Conclusions There is growing acceptance of the need for transdisciplinary, community-university collaborative research approaches as a means to meet both the requirements posed by real-world problems as well as goals of advancing scientific knowledge and innovation. In this issue, readers will find papers that show the promise of rethinking existing conceptual frameworks to incorporate transdisciplinary approaches as a catalyst to addressing translational science questions related to the field of children and youth care.


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