scholarly journals Oral Symptoms and Oral Health-Related Quality of Life in People with Rare Diseases in Germany: A Cross-Sectional Study

2018 ◽  
Vol 15 (7) ◽  
pp. 1493 ◽  
Author(s):  
Sabrina Wiemann ◽  
Nicolas Frenzel Baudisch ◽  
Rainer Jordan ◽  
Johannes Kleinheinz ◽  
Marcel Hanisch
Keyword(s):  
Quality Of Life ◽  
Cluster Analysis ◽  
Oral Health ◽  
Rare Diseases ◽  
Health Related Quality ◽  
Mean Values ◽  
Related Quality ◽  
Health Related ◽  
Oral Symptoms

Background: The aim of this study was to collect information on oral health-related quality of life (OHRQoL) in people with rare diseases. Methods: A questionnaire comprising free text questions and the German version of the standardized Oral Health Impact Profile-14 (OHIP-14) questionnaire on OHRQoL was developed. All participants who indicated oral symptoms in the questionnaire were included in a cluster analysis. Different cluster analyses were performed (Ward’s, k-Means) to find symptom profile groups in the data. Results: A total of 484 questionnaires with 96 rare diseases were included in the study. The most reported symptoms were anomalies of the tooth formation, dysgnathia, changes in number of the teeth, and malocclusions. The OHIP mean values of the five resulting symptom clusters ranged from 15.1 to 19.9, which is very high compared to the general population in Germany, which has a mean value of 4.09. Discussion: All investigated symptoms show a negative association with OHRQoL, but the strongest were for symptoms of the oral mucosa and periodontal diseases. All the symptoms described in this cluster analysis can lead to considerably higher mean values of the OHIP total score among people with rare disease and thus to worse OHRQoL than reported in the general population.

scholarly journals Oral symptoms and oral health-related quality of life of individuals with x-linked hypophosphatemia

2019 ◽  
Vol 15 (1) ◽  
Author(s):  
Marcel Hanisch ◽  
Lauren Bohner ◽  
Martin M. I. Sabandal ◽  
Johannes Kleinheinz ◽  
Susanne Jung
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Oral Symptoms

4 A Cross-Sectional Study of the Oral Health and Oral-Health-Related Quality of Life of Older Adults Admitted to An Acute Hospital in the North East of England

2021 ◽  
Vol 50 (Supplement_1) ◽  
pp. i1-i6
Author(s):  
B J Steel
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Cross Sectional Study ◽  
Health Related Quality ◽  
Sectional Study ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related ◽  
Oral Symptoms

Abstract Introduction Oral health has a strong relationship with general health, wellbeing and quality of life. The importance of establishing and protecting oral health in older adults is increasingly recognised. Admission to an acute hospital can be a good opportunity to assess and intervene with oral health, however data on the oral health of this population are very sparse. Methods A cross-sectional study of adults aged over 65 admitted to the acute medical ward within the Northumbria Specialist Emergency Care Hospital, Northumberland. Ethical approval was granted and all participants gave written consent. Data were obtained via verbal questions and a bedside visual examination by a dentist. Recorded were—gender, age, time since last dental visit, current oral symptoms, number of teeth present, number of decayed teeth, requirement for dental treatment, global oral health including health of hard and soft tissues and oral hygiene using the Oral Health Assessment Tool (OHAT) and oral-health-related quality of life using the Gohai scale. Results 32 participants took part, 16 male and 16 female, of average age 81.9 (range 69–94). Time since last dental visit ranged from a few months to 30+ years. 14 complained of oral dryness and 7 of loose dentures. 15 had no current oral symptoms. 18 participants had no teeth. The remainder had an average of 13.3 teeth of which 5.8 were restored. 22 had dentures. 9 had active dental disease requiring treatment. OHAT score (with 0 indicating perfect health and 14 the worst score) mean 3.6. Gohai score (scored from 12 indicating best to 60 indicating worst quality of life) mean 19.4 and range 14–33. Conclusions The dental status of this group is variable but this study indicates the presence of troublesome oral symptoms and active dental disease requiring treatment, with a significant number not having seen a dentist for some time.

scholarly journals Oral symptoms and oral health-related quality of life in patients with chronic kidney disease from predialysis to posttransplantation

2018 ◽  
Vol 23 (5) ◽  
pp. 2207-2213 ◽  
Author(s):  
Hellevi Ruokonen ◽  
Karita Nylund ◽  
Jukka H. Meurman ◽  
Anna M. Heikkinen ◽  
Jussi Furuholm ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Kidney Disease ◽  
Oral Health ◽  
Kidney Disease ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Oral Symptoms

scholarly journals Impact of anterior occlusal conditions in the mixed dentition on oral health–related quality-of-life item levels:

2020 ◽  
Vol 90 (4) ◽  
pp. 564-570
Author(s):  
Silvia A.S. Vedovello ◽  
Ana Letícia Mello de Carvalho ◽  
Larissa C. de Azevedo ◽  
Patrícia R. dos Santos ◽  
Mario Vedovello-Filho ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Well Being ◽  
Mixed Dentition ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Oral Symptoms ◽  
The Impact

ABSTRACT Objectives To evaluate the impact of anterior occlusal conditions in the mixed dentition on item-level analysis of oral health–related quality of life (OHRQoL). Materials and Methods A population-based cross-sectional study of 787 children aged 8 to 10 years was conducted. The Child Perceptions Questionnaire (CPQ8-10) was used to evaluate OHRQoL, and the analysis of item levels was performed on CPQ8-10 domains. Anterior occlusal characteristics were diagnosed according to the Dental Aesthetic Index criteria. Individual analyses were performed relating the outcome as independent variables. The variables with P < .20 in the individual analyses were tested in multiple logistic regression models, and those with P < .10 remained in the model. The adjusted odds ratio (OR) was estimated with a 95% confidence interval (CI). Results No associations were found with regard to anterior occlusal characteristics (P < .001) after the variables of the previous determinants were adjusted for multivariate analysis. However, the following variables were significantly associated with negative impact on OHRQoL item levels: sex, in oral symptoms (OR = 1.42; CI, 1.07–1.89) and emotional well-being (OR = 1.34; CI, 1.00–1.79); race, in oral symptoms (OR = 1.48; CI, 1.10–1.98), emotional well-being (OR = 1.54; CI, 1.14–2.06), and social well-being (OR = 1.34; CI, 1.00–1.80); and family income in functional limitation (OR = 1.46; CI, 1.06–2.02), emotional well-being (OR = 1.71; CI, 1.21–2.42), and social well-being (OR = 1.59; CI, 1.14–2.21). Conclusions Anterior occlusal conditions did not affect the levels of OHRQoL items.

scholarly journals Oral Health-Related Quality of Life in People with Achalasia

Medicina ◽  
2020 ◽  
Vol 56 (6) ◽  
pp. 286
Author(s):  
Marcel Hanisch ◽  
Sabrina Wiemann ◽  
Lauren Bohner ◽  
Susanne Jung ◽  
Johannes Kleinheinz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Survey Study ◽  
Free Text ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Oral Symptoms ◽  
The Mean

Background and Objective: The oral health-related quality of life (OHRQoL) of patients with achalasia has not been evaluated to date. Therefore, the aim of this study was to assess the OHRQoL of patients with achalasia and to get information about the time taken for diagnosis and oral symptoms. Materials and Methods: The study was conceived of as an anonymous epidemiological survey study in people with achalasia in order to assess their OHRQoL in each case. For this, a questionnaire was developed consisting of free-text questions and of the standardized German version of the OHIP-14 questionnaire. Results: In total, forty-four questionnaires were analyzed including 31 female and 13 male participants. Regardless of gender, the mean age was 50.57 years (range: 17–78). Of the surveyed individuals, seventy-nine-point-five-five percent had been diagnosed between 25 and 60 years of age. The period from the first signs of the disease to diagnosis was 6.15 years, irrespective of gender. The overall OHIP-14 score without gender differentiation was 8.72 points (range 0–48); the mean score of female participants was 11.13 (range: 0–48), and the OHIP score of male participants was 3.15 on average. Two participants reported oral symptoms. Conclusions: The already known problem of the delayed diagnosis of rare diseases was also confirmed in the case of achalasia. Females with achalasia seemed to be significantly affected by lower OHRQoL than males with achalasia and women of the general population. Demineralization of the tooth structure was described in two participants.

scholarly journals Oral Health-Related Quality of Life in People with Rare Hereditary Connective Tissue Disorders: Marfan Syndrome

2018 ◽  
Vol 15 (11) ◽  
pp. 2382 ◽  
Author(s):  
Marcel Hanisch ◽  
Sabrina Wiemann ◽  
Susanne Jung ◽  
Johannes Kleinheinz ◽  
Lauren Bohner
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Marfan Syndrome ◽  
Correct Diagnosis ◽  
Health Related Quality ◽  
Significance Level ◽  
Related Quality ◽  
Health Related ◽  
Oral Symptoms

Background: The aim of this study was to analyze data on oral health-related quality of life (OHRQoL) in people with Marfan syndrome and to obtain information on the diagnosis period, orthodontic treatment, and oral symptoms. Methods: A questionnaire was developed consisting of open questions and the standardized German version of the OHIP-14 (Oral Health Impact Profile) questionnaire for the evaluation of OHRQoL. The age of diagnosis, time period from the first signs of the disease to diagnosis, and OHIP-values were compared between male and female participants. Additionally, the OHIP-values between participants who were orthodontically treated and those who were not treated were assessed. The statistical analysis was performed using the Mann–Whitney test with a significance level at p = 0.05. Results: A total of 51 questionnaires were evaluated, which included 34 female and 17 male participants. Overall, 84% of respondents reported oral symptoms. Male respondents tended to diagnose the disease earlier (p = 0.00), with a smaller period between the first symptom and the diagnosis (p = 0.04). The OHIP-14 score was gender-neutral at 13.65 ± 13.53 points. Conclusion: In Marfan syndrome, many years (12.01 ± 11.61) elapse between the onset of first symptoms and correct diagnosis of the disease. People with Marfan syndrome have a worse OHRQoL than do the general population.

scholarly journals Oral symptoms and oral health related quality of life in people with Ehlers-Danlos syndromes (EDS): a questionnaire-based cross-sectional study

2020 ◽  
Author(s):  
Marcel Hanisch ◽  
Moritz Blanck-Lubarsch ◽  
Melanie Maus ◽  
Dominik Suwelack ◽  
Lauren Bohner ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Cross Sectional Study ◽  
Health Related Quality ◽  
Sectional Study ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related ◽  
Oral Symptoms

Abstract Background: To date, there have only been a few studies on the oral health-related quality of life (OHRQoL) of people with Ehlers-Danlos syndromes (EDS) and the oral symptoms. The aim of this study was, therefore, to analyse the OHRQoL of people with EDS from their own point of view as well as obtain information about their age at the time of the diagnosis, the period of time until diagnosis, and the presence of oral symptoms (if any) and their association with oral health quality.Methods:The study was designed as an anonymous questionnaire-based cross-sectional study. We conducted a descriptive analysis of the Oral Health Impact Profile-14 (OHIP-14) scores, age of the participants, age at diagnosis, and the time period between the first signs of the disease and the diagnosis of EDS. To verify the differences in OHIP-14 scores between patients with and without oral symptoms, a Mann-Whitney U test was performed.A multivariate quantile (median) regression analysis was performed to evaluate the effect of different general characteristics (gender, age, and the presence of oral symptoms) on the OHIP‑14 scores. Furthermore, using a Mann-Whitney U test, the influence of different oral symptoms was verified by testing the differences between patients without any oral symptoms and patients with a specific diagnosis.Results:A total of 79 evaluable questionnaires from 66 female (83.5%) and 13 male (16.5%) participants were analysed. On average, after the first symptom, it takes 18.36 years before EDS are correctly diagnosed.Oral symptoms were described by 69.6% of the participants. The OHIP-14 score was 8 (10) points for patients without oral symptoms and 19 (15) for patients with oral symptoms. The quantile regression for OHIP-14 scores, depending on oral symptoms, was highly significant (p = 0.0007). OHIP-14 scores for dysgnathia, periodontitis, TMD, a high-arched palate, malocclusion, and the anomaly of tooth formation were significantly different between the participants with and the participants without oral symptoms.Conclusion:Long diagnostic pathways seem to be a typical problem in patients with EDS. Oral symptoms associated with the underlying disease occurred regularly and showed a negative correlation with OHRQoL.

scholarly journals Self-Assessment of Oral Health-Related Quality of Life in People with Ectodermal Dysplasia in Germany

2019 ◽  
Vol 16 (11) ◽  
pp. 1933 ◽  
Author(s):  
Marcel Hanisch ◽  
Sonja Sielker ◽  
Susanne Jung ◽  
Johannes Kleinheinz ◽  
Lauren Bohner
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Health System ◽  
Ectodermal Dysplasia ◽  
Negative Impact ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Oral Symptoms

Background: Ectodermal dysplasia describes a heterogeneous group of hereditary, congenital malformations involving developmental dystrophies of ectodermal structures. The aim of this study was to analyse the oral health-related quality of life (OHRQoL) in people with ectodermal dysplasia and to evaluate the influence of different variables. Methods: The study was designed as an anonymous epidemiological survey study among people with ectodermal dysplasia to evaluate oral symptoms, satisfaction with the health system and their respective OHRQoL using the validated German version of the OHIP-14 (Oral Health Impact Profile) questionnaire. Results: When asked about oral symptoms, 110 of the participants provided responses, of which 109 (99.09%) described oral symptoms. The average age of the female participants at the time of diagnosis was 17.02 years (range: 0 to 48 years), the average age of men was 5.19 years (range: 0 to 43 years). The average OHIP-14 overall score for female participants was 12.23 points (SD: 12.39), for male participants an average OHIP score of 11.79 points was recorded (SD: 11.08 points). Difficulty in finding a dentist (p = 0.001), and the dissatisfaction with the health system (p = 0.007) showed a negative impact on the OHRQoL. Conclusion: People with ectodermal dysplasia rate their OHRQoL worse than is usually prevalent in the normal German population (4.09 points); women are diagnosed with “ectodermal dysplasia” later than men. Participants who reported difficulties in finding a dentist for treatment exhibited higher OHIP values. Likewise, dissatisfaction with the health system demonstrated a negative impact on the oral health-related quality of life.

Sign in / Sign up

Export Citation Format

Share Document