scholarly journals Development of an Online, Evidence-Based Patient Information Portal for Congenital Heart Disease: A Pilot Study

2017 ◽  
Vol 4 ◽  
Author(s):  
Jonathan R. G. Etnel ◽  
Arie P. J. van Dijk ◽  
Jolanda Kluin ◽  
Robin A. Bertels ◽  
Elisabeth M. W. J. Utens ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Pilot Study ◽  
Patient Information ◽  
Congenital Heart ◽  
Evidence Based ◽  
Information Portal

The prevalence of adult congenital heart disease, results from a systematic review and evidence based calculation

2012 ◽  
Vol 164 (4) ◽  
pp. 568-575 ◽  
Author(s):  
Teun van der Bom ◽  
Berto J. Bouma ◽  
Folkert J. Meijboom ◽  
Aeilko H. Zwinderman ◽  
Barbara J.M. Mulder
Keyword(s):  
Systematic Review ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Adult Congenital Heart Disease ◽  
Evidence Based ◽  
Adult Congenital

Abstract 14215: Cognitive Impairment in Adult Congenital Heart Disease Survivors: A Pilot Study

Circulation ◽  
2020 ◽  
Vol 142 (Suppl_3) ◽  
Author(s):  
Carla P Rodriguez Monserrate ◽  
Rajeshwari Jakkam ◽  
Emily Clay ◽  
Kimberlee Gauvreau ◽  
Michelle Z GURVITZ
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Pilot Study ◽  
General Population ◽  
Ventricular Function ◽  
Congenital Heart ◽  
Education Level ◽  
Factors Associated

Introduction: The most common comorbidities in children with congenital heart disease (CHD) are neurodevelopmental and psychosocial impairments, particularly in areas of executive function, memory, attention, and behavioral control. Limited studies in the adult CHD population suggest similar impairments exist and adults with CHD may be at increased risk for dementia. No studies have screened specifically for mild cognitive impairment and dementia in adult CHD patients. Methods: We performed a prospective cross-sectional study of adult CHD patients, ages 30-65 years, who were coming for routine clinic visits. We administered the Mini-Mental State Exam (MMSE) and scores were compared with population norms adjusted by age and education level. We also evaluated the association of MMSE scores with CHD complexity, demographic and clinical risk factors. Results: A total of 125 patients were recruited (55% male). The median age was 40 years (range 30-65). Almost all participants (97%) had a high school degree and 75% had some college education or advanced degrees. The majority of patients (94%) had moderate or complex CHD. Adjusting for age and education, CHD participants scored significantly lower than the general population (median 1 point lower, p=0.001). The greatest impairments occurred in recall and orientation. Factors associated with lower scores included decreased systemic ventricular function (p=0.028) and having ≥2 cardiac catheterizations (p=0.006). Five percent of the total cohort met the general threshold for mild cognitive impairment (MMSE<24). Clinical factors associated with this degree of cognitive impairment were duration of cyanosis (p=0.005) and decreased systemic ventricular function (p=0.003). Conclusions: Our pilot study showed that, when adjusted for age and education level, adult CHD patients had significantly lower MMSE scores than the general population, with 5% meeting criteria for mild cognitive impairment. These findings suggest that subtle and early neurodevelopmental changes are present in the adult CHD population. Further studies are needed to investigate those changes and evaluate potential disease modifying therapies that might influence long-term outcomes in the adult CHD population.

Toward a characterization of language development in children with congenital heart disease: A pilot study

2019 ◽  
Vol 26 (1) ◽  
pp. 1-14
Author(s):  
Giulia Sommariva ◽  
Tiziana Zilli ◽  
Cristiano Crescentini ◽  
Andrea Marini ◽  
Chiara Pilotto ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Pilot Study ◽  
Language Development ◽  
Congenital Heart

scholarly journals Pulse Oximetry and Congenital Heart Disease Screening: Results of the First Pilot Study in Morocco

2020 ◽  
Vol 6 (3) ◽  
pp. 53
Author(s):  
Nadia El Idrissi Slitine ◽  
Fatiha Bennaoui ◽  
Craig A. Sable ◽  
Gerard R. Martin ◽  
Lisa A. Hom ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Pilot Study ◽  
Pulse Oximetry ◽  
Screening Test ◽  
Congenital Heart ◽  
False Negative ◽  
University Hospital ◽  
Critical Congenital Heart Disease ◽  
Negative Case

Congenital heart disease (CHD) is the most common congenital malformation. Diagnosis of critical congenital heart disease (CCHD), the most severe type of congenital heart disease, in a newborn may be difficult. The addition of CCHD screening, using pulse oximetry, to clinical assessment significantly improves the rate of detection. We conducted a pilot study in Morocco on screening neonates for critical congenital heart disease. This study was conducted in the maternity ward of Mohammed VI University Hospital of Marrakesh, Morocco, and included asymptomatic newborns delivered between March 2019 and January 2020. The screening of CCHD was performed by pulse oximetry measuring the pre- and post-ductal saturation. Screening was performed on 8013/10,451 (76.7%) asymptomatic newborns. According to the algorithm, 7998 cases passed the screening test (99.82%), including one inconclusive test that was repeated an hour later and was normal. Fifteen newborns failed the screening test (0.18%): five CCHD, five false positives, and five CHD but non-critical. One false negative case was diagnosed at 2 months of age. Our results encourage us to strengthen screening for CCHD by adding pulse oximetry to the routine newborn screening panel.

scholarly journals Unsupervised free-breathing 3-dimensional imaging of morphology, function and flow in congenital heart disease under 30 minutes: pilot study

2014 ◽  
Vol 16 (S1) ◽  
Author(s):  
Rajesh Krishnamurthy ◽  
Ramkumar Krishnamurthy ◽  
Elijah Bolin ◽  
LaDonna Malone ◽  
Myriam E Almeida-Jones ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Pilot Study ◽  
Congenital Heart ◽  
Free Breathing ◽  
3 Dimensional
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