scholarly journals CAREGIVERS’ NEEDS IN CARING FOR RELATIVES WITH SCHIZOPHRENIA IN MEDAN INDONESIA: A PHENOMENOLOGICAL STUDY

2017 ◽  
Vol 3 (6) ◽  
pp. 656-661 ◽  
Author(s):  
Jenny Marlindawani Purba
Keyword(s):  
Home Care ◽  
Unmet Needs ◽  
Phenomenological Study ◽  
Family Members ◽  
Optimal Care ◽  
Knowledge And Skills ◽  
Long Period ◽  
Primary Nurse ◽  
Caregiver Needs ◽  
One Year

Background: A caregiver is a primary nurse and has a major role in providing care for people with schizophrenia. Caring for those with schizophrenia for a long period of time is a challenge for families, especially caregivers. Various needs ought to be studied by nurses to assist caregivers in providing optimal care for family members who experience schizophrenia.Objective: This qualitative study aims to explore the needs of caregivers in treating schizophrenia at home.Methods: The method used in this study is the method of purposive sampling with the number of participants as many as 10 people with criteria: 1) have family members diagnosed with schizophrenia, 2) directly involved in home care patients, 3) caring for schizophrenia for more than one year, 4) willing to be a participant by signing informed consent, 4) being able to identify what is needed in treating schizophrenia. Colaizzi is used to analyze interview data.Results: The results of the study found four themes of caregiver needs in caring for schizophrenia patients at home, ly: 1) seeking information about schizophrenia, 2) sought schizophrenic relatives’ recovery, 3) looking for appropriate rehabilitation for relatives with schizophrenias, and 4) utilizing mental health facilities.Conclusions: It is expected that nurses have the knowledge and skills in identifying and helping families, especially caregivers, to meet unmet needs so they can optimize home care.

P12.06 Unmet needs and wish for support of informal caregivers of primary brain tumour patients

2021 ◽  
Vol 23 (Supplement_2) ◽  
pp. ii31-ii32
Author(s):  
L Pointon ◽  
R Grant ◽  
S Peoples ◽  
S Erridge ◽  
P Sherwood ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Disease Progression ◽  
Family Caregivers ◽  
Brain Tumour ◽  
Unmet Needs ◽  
Emotional Health ◽  
Informal Caregivers ◽  
Family Members ◽  
Primary Brain Tumour ◽  
Caregiver Needs

Abstract BACKGROUND Most primary brain tumour patients rely on informal caregivers (i.e. family members or friends) for practical and emotional support. While caregiving can be rewarding, it also commonly leads to significant burden. In developing support for caregivers, it is vital to distinguish between caregivers’ unmet needs, and their actual wish for support to resolve unmet needs. We aimed to 1) identify the presence and magnitude of unmet needs; 2) examine associations between unmet needs and desire for support; 3) evaluate perceived usefulness of caregiver needs screening in clinical practice. MATERIAL AND METHODS Family caregivers of patients with primary brain tumours were recruited and asked to complete an adapted version of the Caregiver Needs Screen (CNS). This covered the level of distress resulting from 33 common issues in neuro-oncology caregiving (scale 0–10), and wish for information or support for any issue (yes/no). In addition, participants were asked to rank (0–7) their experience of using the CNS based on items covering ‘ease of us’, ‘usefulness’ and ‘satisfaction’. Descriptive and correlational analyses were applied. RESULTS Caregivers (N=79) reported between 1–33 unmet needs (M=17.20, sd=7.98) but did not always wish for support for each need (range 0–28, M=4.71, sd=6.63). Most distressing items were patient’s fatigue (M=5.58), recognising signs of disease progression (M=5.23), changes in patients’ thinking or behaviour (M=5.04), patient distress or sadness (M=4.68), and changes in caregivers’ own emotional health (M=4.44). A weak correlation was found between the total number of unmet needs and the desire for support (r=0.296, p=0.014). Caregivers most often desired support with recognising disease progression (N=24), managing medications and side-effects (N=18), and least often with managing spiritual issues (N=0), communication with (grand)children (N=2) and communication with family members and friends (N=3). Caregivers evaluated the CNS tool positively (mean item scores ranging 4.19–6.21 out of 7). CONCLUSION Family caregivers of brain tumour patients experience distress resulting from many neuro-oncology specific needs, but this is not directly related to a wish for support or information. Caregiver needs screening could be useful to tailor support or information to suit caregivers’ preferences in clinical practice.

scholarly journals The experiences of caregivers providing home care for terminally ill family members at the end of life: A phenomenological study in Bahrain

2018 ◽  
Vol 6 (3) ◽  
pp. 57
Author(s):  
Fatima Saleh ◽  
Catherine S. O’Neill
Keyword(s):  
Home Care ◽  
Lived Experience ◽  
Family Caregivers ◽  
Nursing Care ◽  
Phenomenological Study ◽  
Family Members ◽  
Terminally Ill ◽  
Well Being ◽  
Care Clinic ◽  
Hermeneutic Phenomenological

Objective: The aim of the study was to explore the lived experience of caregivers providing home care for terminally ill family members, with the objectives of describing their experiences of caring for relatives who are terminally ill with cancer and the needs of home caregiving in Bahrain.Methods: The study adopted a Heideggerian, hermeneutic phenomenological design, with a purposive sample of eight family caregivers. Data was generated through one to one, in-depth interviews and analyzed using Interpretative Phenomenological Analysis.Results: Three main themes emerged from the data: (1) the burden of care, (2) comforts, and (3) coping. The findings showed that the lived experience of home caregiving includes physical, emotional and financial burdens, combined with a lack of professional support. The collective experience was infused with intense emotions because of a lack of structured support, resulting in negative emotions that frequently affected the caregivers’ well-being and their ability to care for the ill person. Nevertheless, caregivers tried to maintain care and comforts for their terminally ill relative in the home. They adopted the home environment, arranged resources to ease caring and provided psychological care. Caregivers utilized three coping mechanisms, faith, personal strategies and distribution of the care responsibilities among family members.Conclusions: Caregivers were not prepared for the commitment and burdens of home care when a family member is terminally ill. A recommendation from the study findings is that training be offered on nursing care before patients discharge. In addition, a reactivation of the palliative care clinic hotline service would support family caregivers. A further recommendation is that home nursing care and hospice services be established to improve homecare services for family caregivers in Bahrain.

Dementia families: Relinquishing home care to aged care services: Guilt, traumatic loss and growth

Dementia ◽  
2020 ◽  
pp. 147130122097078
Author(s):  
Bruce D Walmsley ◽  
Lynne McCormack
Keyword(s):  
Home Care ◽  
Family Member ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Study ◽  
Care Home ◽  
Family Members ◽  
Well Being ◽  
Aged Care ◽  
Structured Interviews ◽  
The Impact

Background and Objectives Few studies explore both negative and positive perspectives of family members who relinquish home care of a family member with dementia for systemic aged care. Research Design and Methods This phenomenological study sought the ‘lived’ experience of relinquishing the role of home carer for a family member with mild to severe dementia to others within care home settings, by seeking to understand the impact of aged care on family members’ psychological well-being. Using semi-structured interviews, positive and negative subjective interpretations from 17 families (27 individuals) provided data for analysis, following the protocols of interpretative phenomenological analysis. Results One superordinate theme, mistrust/integrity, overarched oscillation between mistrust of the aged care system and a struggle for personal integrity in caring for these participants. Two sub-themes emerged: intrinsic trauma and extrinsic trauma. Intrinsic trauma explained feelings of helplessness and guilt, and internally directed responses that triggered a retreat into submission ultimately reducing the participant’s role in advocacy. Extrinsic trauma represented externally directed responses such as anger and frustration, where family members became more engaged and watchful and recognised a need for vigilance and advocacy. Paradoxically oscillating between these personal struggles, participants exhibited growth, a third theme that defined assertive/advocacy utilised to nurture hope, gratitude, courage and change. Discussion and Implications Family members experienced complex distress as they relinquished home care to others within systemic aged care for a member with dementia. By developing adaptive responses as appropriate, for example, advocating for their family member or accepting compliance with treatment, collaborative care between family and staff created better outcomes for the family member with dementia.

scholarly journals The unmet needs of family members of patients with progressive neurological disease in the Czech Republic

PLoS ONE ◽  
2019 ◽  
Vol 14 (3) ◽  
pp. e0214395 ◽  
Author(s):  
Radka Bužgová ◽  
Radka Kozáková ◽  
Lubica Juríčková
Keyword(s):  
Czech Republic ◽  
Neurological Disease ◽  
Unmet Needs ◽  
Family Members ◽  
The Czech Republic

Enhancing the professional dignity of midwives: A phenomenological study

2017 ◽  
Vol 26 (4) ◽  
pp. 1062-1074 ◽  
Author(s):  
Christelle Froneman ◽  
Neltjie C van Wyk ◽  
Ramadimetja S Mogale
Keyword(s):  
Research Design ◽  
Phenomenological Study ◽  
Tertiary Hospital ◽  
Ethical Considerations ◽  
Optimal Care ◽  
Team Members ◽  
University Of Pretoria ◽  
Phenomenological Research Design ◽  
The University ◽  
Depth Interviews

Background: When midwives are not treated with respect and their professional competencies are not recognised, their professional dignity is violated. Objective: This study explored and described how the professional dignity of midwives in the selected hospital can be enhanced based on their experiences. Research design: A descriptive phenomenological research design was used with in-depth interviews conducted with 15 purposely selected midwives. Ethical considerations: The Faculty of Health Sciences Research Ethics Committee of the University of Pretoria approved the study. The research was conducted in an academic tertiary hospital with voluntary participants. Findings: To dignify midwives it is essential to enhance the following: ‘to acknowledge the capabilities of midwives’, ‘to appreciate interventions of midwives’, ‘to perceive midwives as equal health team members’, ‘to invest in midwives’, ‘to enhance collegiality’, ‘to be cared for by management’ and ‘to create conducive environments’. Conclusion: The professional dignity of midwives is determined by their own perspectives of the contribution that they make to the optimal care of patients, the respect that they get from others and the support that hospital management gives them. With support and care, midwives’ professional dignity is enhanced. Midwives will strive to render excellent services as well as increasing their commitment.

PELATIHAN IDENTIFIKASI FORMALIN DAN BORAKS PADA MAKANAN SECARA SEDERHANA DI KELURAHAN PAMIJEN KABUPATEN BANYUMAS

2021 ◽  
Vol 1 (1) ◽  
pp. 17-21
Author(s):  
Adita Silvia Fitriana ◽  
Sri Royani
Keyword(s):  
Community Service ◽  
Family Members ◽  
Food Samples ◽  
Service Program ◽  
Easy Method ◽  
Food Preservatives ◽  
Knowledge And Skills ◽  
The Impact

Formalin and borax are dangerous chemicals that are often misused as food preservatives. Various inspections have been carried out to minimize the use of formalin and borax in food, but there are still many formalin and borax in foods. The community, especially housewives, should have the ability to identify the presence of formalin and borax in food in order to protect family members from the exposure of those chemicals. Housewives in Pamijen Sub-District do not have knowledge and skills to identify formalin and borax content in food yet. Through this community service program, housewives in Pamijen Sub-District are expected to be able to test formalin and borax content in food independently. The program began with counseling about the food characteristics that contains formalin and borax; and the impact on health. This program continued with training on how to identify and practicing on how to detect formalin and borax in some food samples with a simple and an easy method. The results indicate that this program can increase patricipants’ knowledge about formalin and borax; and skills to identify them. Keywords: preservatives, formalin, borax, food

scholarly journals Assessment of Needs of Hospitalized Cancer Patients with Advanced Cancer

2016 ◽  
Vol 9 (6) ◽  
pp. 184
Author(s):  
Theocharis I. Konstantinidis ◽  
George Samonis ◽  
Pavlos Sarafis ◽  
Anastas Philalithis
Keyword(s):  
Supportive Care ◽  
Psychometric Properties ◽  
Advanced Cancer ◽  
Unmet Needs ◽  
Supportive Care Needs ◽  
University Hospital ◽  
Validity And Reliability ◽  
Treatment Needs ◽  
Care Needs ◽  
Optimal Care

BACKGROUND: Needs assessment of patients with advanced cancer (ACPs) is essential for optimal care. This study evaluated the psychometric properties of the Needs Evaluation Questionnaire (NEQ) and assessed the supportive care needs of hospitalized ACPs with solid tumors.METHODS: The validated Greek version of the NEQ along with demographic and clinical data of 95 consecutive breast, colon and lung ACPs hospitalized in the University Hospital of Heraklion, Crete, Greece, were used to assess their supportive care needs. The NEQ score was subsequently rescaled to 0-100.RESULTS: NEQ displayed adequate psychometric properties in validity and reliability tests. The average number of needs reported was 8.4(4.1). Female and younger patients reported a higher score of unmet needs than their male (40.3 versus 30.0, p=0.005) and elder (40.1 versus 29.2, p=0.001) counterparts. Patients reported higher needs in receiving information about their future (73.7%), treatments (56.8%), examinations (51.6%) and for the need "to speak with people who had the same experience" (53.7%). In contrast, lower scores were observed in the assistance and treatments needs regarding intimacy (11.6%), "better attention from nurses" (15.8%), "more help with eating, dressing, and going to the bathroom" (18.9%). Lung ACPs reported more assistance and treatment needs than colon and breast ACPs (p<0.05).CONCLUSIONS: ACPs reported many unmet needs, mainly informational, that were related to gender, age, and type of cancer. NEQ is a useful tool in everyday clinical practice for obtaining information for supportive care needs. Health care personnel has to address these needs for implementing effective patient-centered care.

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