Risk of forced marriage among people with learning disabilities: carers provide insights into consent, care needs and the place of marriage in South Asian communities

2021 ◽  
Keyword(s):  
Learning Disabilities ◽  
South Asian ◽  
Forced Marriage ◽  
Care Needs

scholarly journals Risk of forced marriage amongst people with learning disabilities in the UK: Perspectives of South Asian carers

2020 ◽  
Vol 34 (1) ◽  
pp. 200-210
Author(s):  
Michelle McCarthy ◽  
Rachael Clawson ◽  
Anne Patterson ◽  
Rachel Fyson ◽  
Luftha Khan
Keyword(s):  
Learning Disabilities ◽  
South Asian ◽  
Forced Marriage ◽  
The Uk

scholarly journals Palliative care for older South Asian migrants: A systematic review

2019 ◽  
Vol 18 (3) ◽  
pp. 346-358 ◽  
Author(s):  
Jahan Shabnam ◽  
Helle Timm ◽  
Dorthe S. Nielsen ◽  
Mette Raunkiaer
Keyword(s):  
Systematic Review ◽  
Decision Making ◽  
Palliative Care ◽  
South Asian ◽  
Family Members ◽  
Care Practice ◽  
Care Needs ◽  
International Evidence ◽  
Migrant Families ◽  
Care Decision

AbstractObjectiveSouth Asian migrants have a higher burden of life-threatening diseases and chronic diseases compared to other ethnic groups. Yet, knowledge gaps remain around their palliative care needs in the host countries. The aim of the review was to present results from a systematic literature review of available international evidence on experiences with and perspectives on palliative care among older South Asian migrants, relatives, and healthcare providers.MethodsA systematic review in accordance with PRISMA guidelines was conducted in February 2018, searching PubMed, CINAHL, PsychINFO, and EMBASE databases. PROSPERO #CRD42018093464. Studies included empirical research, providing international evidence on experiences and perspectives on palliative care of South Asian migrants and were published between 2000 and 2018. Thematic synthesis was used to analyze data.ResultsA total of 30 articles were included: qualitative (24), quantitative (5), and mixed methods (1). Three main themes were discovered: 1) palliative care practice within the family, 2) trust as a precondition of palliative care, and 3) the importance of knowledge and cultural competency. All the themes, to a greater or lesser extent, are related to access to and use of palliative care services by South Asian migrant families.Significance of resultsInvolvement of family members in palliative care decision making could improve the satisfaction of South Asian migrant families toward the service. For example, Advanced Care Planning involving family members could be a possible way to engage family members in palliative care decision making. Supportive interventions, e.g. providing knowledge, aimed at patients and their family members might improve knowledge and increase awareness among South Asian migrant families of palliative care. Knowledge gained from this review could be implemented with other ethnic minority groups.

The mental health needs of older people with learning disability

2005 ◽  
Vol 15 (3-4) ◽  
pp. 245-253 ◽  
Author(s):  
Patrick SG Chance
Keyword(s):  
Mental Health ◽  
Learning Disabilities ◽  
Older People ◽  
Learning Disability ◽  
Learning Disabled ◽  
Health Needs ◽  
Differential Mortality ◽  
Functional Impairments ◽  
Mental Health Needs ◽  
Care Needs

The term ‘older people with learning disability’ refers to a highly heterogeneous group of people. By definition, they all have delayed or abnormal early development, together with significant intellectual and functional impairments, but they differ considerably in terms of cause, developmental profile, nature and degree of impairments and their social and personal backgrounds. Overall, people with learning disabilities make up only a small minority of the population, however it is well recognized that they have increased overall health care needs, including mental health needs. It has been estimated there are 210 000 people living in England and Wales who have a severe or profound learning disability: only 25 000 (12%) of these are older people aged over 60 years. Of the 1.2 million people with mild or moderate learning disability, 265 000 (21%) of these are older people over the age of 60. Life expectancy seems to be influenced by severity of learning disability, the age profile of the mild to moderate learning-disabled population being much more closely matched to that of the general population. As a result of this differential mortality, across the spectrum of disability there is a reduced level of learning disability with advancing age, and older people with learning disabilities, when considered as a group, have higher levels of functional ability (and reduced levels of challenging behaviour) than the younger group.

The use of culturally adapted and translated depression screening questionnaires with South Asian haemodialysis patients in England

2021 ◽  
Author(s):  
Shivani Sharma ◽  
Sam Norton ◽  
Kamaldeep Bhui ◽  
Roisin Mooney ◽  
Tarun Bansal ◽  
...  
Keyword(s):  
South Asian ◽  
English Language ◽  
Depression Scale ◽  
Depression Screening ◽  
Receiver Operating Curve ◽  
Care Needs ◽  
Asian Patients ◽  
Culturally Adapted ◽  
Screening Questionnaires ◽  
Icd 10

Background: Depression is common amongst patients receiving haemodialysis (HD). Assessment and intervention when faced with language and cultural barriers is challenging. To support clinician decisions, we assessed the use of culturally adapted and translated versions of commonly-used depression screening questionnaires with South Asian patients receiving HD in England. Methods: Patients completed adapted versions of the Patient Health Questionnaire (PHQ-9), the Centre for Epidemiological Studies Depression Scale Revised (CESD-R), and the Beck Depression Inventory II (BDI-II). All questionaries were available in Gujarati, Punjabi, Urdu, and Bengali. A comparative sample of white-Europeans completed the questionnaires in English. The research was based across 9 National Health Service (NHS) Trusts in England. Structural validity of translated questionnaires was assessed using confirmatory factor analysis. Diagnostic accuracy was explored in a subgroup of South Asians against ICD-10 categories using the Clinical Interview Schedule Revised (CIS-R) with receiver operating curve (ROC) analysis.Results: 229 South Asian and 120 white-European HD patients participated. A single latent depression factor largely accounted for the correlations between items of the PHQ-9, CESD-R and BDI-II. Issues with measurement equivalence implied that scores on the translations may not be comparable with the English language versions. Against CIS-R based ICD-10 diagnosis of depression, sensitivity was modest across scales (50-66.7%). Specificity was higher (81.3-93.8%). Alternative screening cut-offs did not improve positive predictive values.Conclusions: Culturally adapted translations of depression screening questionnaires are useful to explore symptom endorsement amongst South Asian patients. However, data indicate that standard cut-off scores may not be appropriate to classify symptom severity. Use of the CIS-R algorithms for optimal case identification requires further exploration in this setting. Strategies to encourage recruitment of under-represented groups in renal research are also warranted, especially for in-depth discussions related to psychological care needs.

scholarly journals The demographics of forced marriage of people with learning disabilities: findings from a national database

2020 ◽  
Vol 22 (2) ◽  
pp. 59-74
Author(s):  
Rachael Clawson ◽  
Anne Patterson ◽  
Rachel Fyson ◽  
Michelle McCarthy
Keyword(s):  
Learning Disabilities ◽  
Design Methodology ◽  
Social Care ◽  
Geographic Location ◽  
National Database ◽  
Forced Marriage ◽  
Content Type ◽  
The Uk ◽  
First Time ◽  
Practical Implications

Purpose The purpose of this study is to compare the UK demographics of forced marriage of people with learning disabilities and people without learning disabilities to inform effective safeguarding practice. Design/methodology/approach An analysis of all cases of forced marriage reported to the UK Government’s Forced Marriage Unit (FMU) between 2009 and 2015. Findings People with learning disabilities are at five times greater risk of forced marriage than people without learning disabilities. Men and women with learning disabilities are equally likely to be forced to marry, whereas amongst the general population, women are more likely than men to be forced to marry. Patterns of ethnicity, geographic location within the UK and reporters are the same for people with and without learning disabilities. Research limitations/implications The analysis is based on cases reported to the FMU, and for some cases, data held was incomplete. More importantly, many cases go unreported and so the FMU data does not necessarily reflect all cases of forced marriage in the UK. Practical implications Forced marriage of people with learning disabilities is a safeguarding issue. Practitioners across health, education, criminal justice and social care need to better understand the risk of forced marriage for people with learning disabilities. Links to practice resources developed as part of the wider project are provided. Originality/value This is the first time that researchers have been given access to FMU data and the first time that a statistical analysis of cases of forced marriage involving someone with a learning disability have been analysed.

scholarly journals “Honour”-based violence in a British South Asian community

2018 ◽  
Vol 17 (1) ◽  
pp. 11-21 ◽  
Author(s):  
Roxanne Khan ◽  
Shamam Saleem ◽  
Michelle Lowe
Keyword(s):  
South Asian ◽  
Service Provision ◽  
Design Methodology ◽  
Local Community ◽  
Vulnerable Groups ◽  
Forced Marriage ◽  
Convenience Sample ◽  
Health Service Provision ◽  
Content Type ◽  
The Uk

Purpose The purpose of this paper is to explore attitudes towards, and victimisation experiences of, “honour”-based violence (HBV) in a reportedly vulnerable population in the UK. Design/methodology/approach A convenience sample of 216 participants were recruited from a local community in England; the majority were young (mean age=21.93), Indian or Pakistani (85 per cent), Muslim (96 per cent), females (67 per cent). Findings Although gender differences were found for attitudes towards one aspect of HBV (namely, forced marriage), these were not significant. While HBV victimisation affected only a small proportion of this sample, when it was reported, the effects were serious and included anxiety, attempted suicides and running away from home. This highlights the need to identify and safeguard vulnerable groups without stigmatising whole communities. Originality/value These findings contribute to the scarce literature available on HBV in British communities, and highlight a need for culturally aware emergency and health service provision.

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