scholarly journals Health-Related Quality of Life, Emotional and Behavioral Problems in Children and Adolescents with Ebstein Anomaly

2020 ◽  
Vol 15 (5) ◽  
pp. 457-472
Author(s):  
Lianne M. Geerdink ◽  
Malindi van der Mheen ◽  
Gideon J. du Marchie Sarvaas ◽  
Irene M. Kuipers ◽  
Stefan Frerich ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Behavioral Problems ◽  
Emotional And Behavioral Problems ◽  
Health Related Quality ◽  
Ebstein Anomaly ◽  
Related Quality ◽  
Health Related

Health-related quality of life in transgender adolescents: Associations with body image and emotional and behavioral problems

2018 ◽  
Vol 19 (1) ◽  
pp. 78-91 ◽  
Author(s):  
Mieke Röder ◽  
Claus Barkmann ◽  
Hertha Richter-Appelt ◽  
Michael Schulte-Markwort ◽  
Ulrike Ravens-Sieberer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Body Image ◽  
Behavioral Problems ◽  
Emotional And Behavioral Problems ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals The impact of COVID-19 related lockdown measures on self-reported psychopathology and health-related quality of life in German adolescents

2021 ◽  
Author(s):  
Julian Koenig ◽  
Elisabeth Kohls ◽  
Markus Moessner ◽  
Sophia Lustig ◽  
Stephanie Bauer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Behavioral Problems ◽  
Well Being ◽  
Emotional And Behavioral Problems ◽  
Health Related Quality ◽  
Convenience Sample ◽  
Related Quality ◽  
Health Related ◽  
The Impact

AbstractThe impact of school-closings on adolescents’ mental health and well-being in the management of the ongoing COVID-19 pandemic is subject to ongoing public debate. Reliable data to inform a balanced discussion are limited. Drawing on a large ongoing multi-site project in Germany, we assessed differences in self-reported psychopathology in a matched convenience-sample of adolescents assessed pre- (November 26, 2018 to March 13, 2020; n = 324) and post the first lockdown (March 18, 2020 to August 29, 2020; n = 324) early 2020 in Germany. We found no evidence for an increase in emotional and behavioral problems, depression, thoughts of suicide or suicide attempts, eating disorder symptoms, or a decrease in general health-related quality of life. Reported suicide plans significantly decreased from 6.14 to 2.16%. Similarly, conduct problems decreased in the post-lockdown period. Family risk-factors did not moderate these findings. The influence of socioeconomic status on emotional and behavioral problems as well as depression decreased during the lockdown. Based on the present findings, the first school-closing in Germany had no immediate and severe impact on adolescents’ well-being. However, caution is warranted as our data covers a fairly small, affluent sample over a limited time-span and long-term consequences cannot be ruled out.

scholarly journals Reliability of generic quality-of-life instruments in assessing health-related quality of life among children and adolescents with idiopathic nephrotic syndrome: a systematic review

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Ann E. Aronu ◽  
Samuel N. Uwaezuoke ◽  
Uzoamaka V. Muoneke
Keyword(s):  
Quality Of Life ◽  
Nephrotic Syndrome ◽  
Children And Adolescents ◽  
Idiopathic Nephrotic Syndrome ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Generic Quality ◽  
Quality Of Life Instruments

Abstract Introduction Most of the studies reporting the negative impact of idiopathic nephrotic syndrome on health-related quality of life in children and adolescents were conducted with generic quality-of-life instruments rather than disease-specific instruments. The consistency of these studies' findings using these generic instruments is not well established. Aim This systematic review aims to determine the reliability of current generic quality-of-life instruments in assessing health-related quality of life among children and adolescents with idiopathic nephrotic syndrome. Methods We searched the PubMed, MEDLINE, EMBASE, and Google Scholar databases for articles published between 2000 and 2020, using appropriate descriptors. We included primary studies that met the eligibility criteria, independently screened their titles and abstracts, and removed all duplicates during the study-selection process. We resolved disagreements until a consensus was reached on study selection. We independently retrieved relevant data, including the generic quality-of-life instruments and the subjects’ and controls’ aggregate health-related quality of life scores, using a preconceived data-extraction form. Results Ten original articles were selected for qualitative and quantitative analyses. Some of the studies reported the following significant findings. The mean health-related quality of life scores for children with prevalent and incident nephrotic syndrome were 68.6 (range, 52.6–84.6) and 73.7 (range, 55.9–91.5), respectively. Children with idiopathic nephrotic syndrome and their controls with other chronic diseases had median scores of 65 (interquartile range, 59–68.75) and 62.2 (interquartile range, 58.05–65.78). Patients on oral immunosuppressive drug and intravenous rituximab reportedly had median scores of 76.2 and 72.6 and mean scores of 71.4 (range, 55.4–87.4) and 61.6 (range, 42.1–81.1) respectively for quality-of-life assessment on the ‘school functioning domain.’ Conclusions The health-related quality of life scores in patients with idiopathic nephrotic syndrome are consistently low. Lower scores occur in prolonged disease duration and severe clinical phenotypes, whereas the scores are higher than the scores obtained in other chronic diseases. These consistent findings underscore the reliability of the current generic instruments in assessing health-related quality of life in patients with idiopathic nephrotic syndrome.

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