Personal, health and function, and career maintenance factors as determinants of quality of life among employed people with multiple sclerosis

Work ◽  
2020 ◽  
Vol 67 (1) ◽  
pp. 81-94 ◽  
Author(s):  
Phillip Rumrill ◽  
Jian Li ◽  
David Strauser ◽  
Richard T. Roessler ◽  
Malachy Bishop ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Multiple Regression Model ◽  
Future Research ◽  
Personal Health ◽  
Washington Dc ◽  
Perceived Quality Of Life ◽  
National Multiple Sclerosis Society ◽  
And Function

BACKGROUND: Multiple sclerosis (MS) is an intrusive disease that significantly affects labor force participation. OBJECTIVE: This study examined the extent to which factors at the personal, health and function, and environmental/career maintenance levels contribute to the predictability power for quality of life among employed people with MS. METHOD: Participants consisted of 523 members of nine National Multiple Sclerosis Society chapters representing 21 states and Washington, DC. These individuals were employed at the time of the survey, and they were primarily middle age (average age of 48 years) and Caucasian (74%). RESULTS: The final hierarchical multiple regression model explained 54 percent of the variability in participants’ quality of life scores, although none of the hypothesized personal/demographic predictors were significant. Participants who perceived better overall health and lower levels of stress, who experienced less severe cognitive and mobility-related MS symptoms, and who expressed stronger job-person matches and higher levels of job satisfaction reported higher quality of life scores than did other participants. CONCLUSIONS: The findings underscore the complexity involved in predicting perceived quality of life among employed people with MS. Implications of these findings for future research and clinical practice are discussed.

scholarly journals Mindfulness in Motion for People with Multiple Sclerosis: A Feasibility Study

2017 ◽  
Vol 19 (5) ◽  
pp. 225-231 ◽  
Author(s):  
Rachel M. Gilbertson ◽  
Maryanna D. Klatt
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Multiple Sclerosis ◽  
Mindfulness Meditation ◽  
Short Form ◽  
Physical Symptoms ◽  
Future Research ◽  
Five Facet Mindfulness Questionnaire ◽  
Anxiety Depression

Background: Mindfulness in Motion is an 8-week mindfulness-based intervention that uses yoga movement, mindfulness meditation, and relaxing music. This study examined the feasibility of using Mindfulness in Motion in people with multiple sclerosis (MS) and the effect of this program on stress, anxiety, depression, fatigue, and quality of life in people with MS. Methods: Twenty-two people with MS completed the 8-week mindfulness program as well as assessments 1 week before and after the intervention. Results: Pre/post comparison of four self-reported questionnaires—the Mental Health Inventory, 36-item Short Form Health Status Survey, Modified Fatigue Impact Scale, and Five Facet Mindfulness Questionnaire—showed significant improvement in physical functioning, vitality, and mental health. Specifically, improvements were seen in anxiety, depression, and positive affect; cognitive, psychosocial, and overall functioning regarding fatigue; and mindfulness in the areas of observing, acting with awareness, nonjudgment, and nonreactivity. Conclusions: Due to the uncertainty in disease progression associated with MS, and the multiplicity of mental and physical symptoms associated with it, programming that addresses anxiety, depression, and fatigue is a key area of future research in MS disease management. Mindfulness in Motion proved to be a feasible program yielding positive results, supporting the need for research to determine the extent to which the program can improve quality-of-life outcomes for people with MS.

scholarly journals The Influence of Self-Perception on Manipulative Dexterity in Adults with Multiple Sclerosis

2021 ◽  
Vol 2021 ◽  
pp. 1-8
Author(s):  
Rosa M. Martínez-Piédrola ◽  
Cristina García-Bravo ◽  
Elisabet Huertas-Hoyas ◽  
Patricia Sánchez-Herrera Baeza ◽  
Jorge Pérez-Corrales ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Daily Living ◽  
Negative Impact ◽  
Leisure Activities ◽  
Cross Sectional Study ◽  
Self Perception ◽  
Cross Sectional ◽  
Perceived Quality Of Life

Background. Multiple sclerosis is a disorder which causes a loss of functionality, affecting the person’s ability to perform activities of daily living, such as interpersonal interactions and relationship, dressing, self-care, or bathing, as well as having a negative impact on work and leisure activities. Aims. This study examined the relationship (correlational or associations/predictive) between self-perceived quality of life and performance of manipulative dexterity. Also, this study sought to measure predictors of dexterity. Study Design. A cross-sectional study from two associations of MS within the Community of Madrid, Spain. Methods and Procedures. A final sample of 30 people with multiple sclerosis. The outcome measures used were the ABILHAND questionnaire, the Purdue Pegboard Test, the Nine Hole Peg Test, and the Box and Block Test. Results. No significant correlations were found between dexterity and self-perception tests; however, correlations were found between perceived dexterity and quality of life ( p < 0.001 ). Scores for the ABILHAND questionnaire, which measures the perception of skills in daily living, predicted up to 60% of the variance in the dexterity tests. Conclusions. The results of this study suggest that interventions for improving the manipulative dexterity of people with multiple sclerosis should address the person’s perception of improving their manipulative dexterity and the perceived of quality of life, as both factors may influence manipulative dexterity.

Determinants of General Satisfaction With the Employment Situation Among People With Multiple Sclerosis

2020 ◽  
Vol 34 (2) ◽  
pp. 86-102
Author(s):  
Jian Li ◽  
Richard T. Roessler ◽  
Phillip D. Rumrill ◽  
James Krause
Keyword(s):  
Multiple Sclerosis ◽  
College Graduates ◽  
Washington Dc ◽  
Full Time ◽  
General Satisfaction ◽  
Perceived Quality Of Life ◽  
Employment Situation ◽  
National Multiple Sclerosis Society ◽  
Environmental Participation ◽  
Employment Concerns

BackgroundSocial and environmental participation endeavors are theorized to shape one's general satisfaction with the overall employment situation facing people with MS.ObjectiveResponding to a national survey of the employment concerns of Americans with multiple sclerosis (MS), this study examined the extent to which factors at the demographic, disease-related, and social and environmental participation levels contribute to the predictability power for general satisfaction with the employment situation for people with MS.MethodParticipants in this study consisted of 1,149 members of nine National Multiple Sclerosis Society (NMSS) chapters representing 21 states and Washington, DC. In a hierarchical multiple regression analysis, participants were mostly older (average age of 50 years) White (74%) individuals, nearly half of whom were unemployed (47%) but well educated (98% were high school graduates, 45% were college graduates).FindingsFindings underscore the complexity involved in predicting how satisfied people with MS are with their overall employment situation.ConclusionsYounger, less educated individuals with higher levels of perceived quality of life who were employed full-time and experiencing no or lower levels of cognitive impairment were more likely than other participants to be satisfied with 17 high-priority employment concerns.

Physiotherapy and related activities in multiple sclerosis

2008 ◽  
Vol 14 (7) ◽  
pp. 863-871 ◽  
Author(s):  
CM Wiles
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Complex Interventions ◽  
Response Shift ◽  
Evidence Base ◽  
Verbal Interactions ◽  
Intention To Treat ◽  
Primary Hypothesis ◽  
And Function

There are now about 50 randomized controlled trials into rehabilitation packages, physiotherapy or related specific and non-specific techniques in multiple sclerosis (MS). Generally these, and related systematic reviews, report benefits. Particular problems arise, however, with the blinding of assessment, determination of what is the active or beneficial input by the therapist, the use of multiple domains of assessment of quality of life and function without, sometimes, a clear statement of a trial hypothesis or primary outcome and the short-term nature of many studies. Therapy inputs can be broadly broken down into verbal interactions with the patient, physical inputs and referral/recommendation processes. Each may be relevant to the outcome. ‘Response-shift’ may be an important internal mechanism of mind whereby changes in ‘quality of life’ may not always parallel function emphasizing the case for clearly separating quality of life from functional assessment and attempting to make the latter as objective as possible. Trials of such complex interventions will need to randomize specified components of therapy against appropriate placebos or active treatment arms rather than no therapy, which will be ethically harder to sustain. Classification of physiotherapy inputs by type and ‘dosage’, a primary hypothesis under test and attention to concealed allocation of treatment, assessor blinding and intention to treat analysis together with improved measurements of function will assist in the consolidation of the evidence base for physiotherapy as an important component of management for MS patients.

Prevalence and Cumulative Incidence of Caregiver-Reported Aggression in Advanced Parkinson Disease and Related Disorders

2021 ◽  
pp. 10.1212/CPJ.0000000000001110
Author(s):  
Zachary A Macchi ◽  
Janis Miyasaki ◽  
Maya Katz ◽  
Nicholas Galifianakis ◽  
Stefan Sillau ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Caregiver Burden ◽  
Physical Aggression ◽  
Cumulative Incidence ◽  
Sexual Aggression ◽  
Neuropsychiatric Symptoms ◽  
Point Prevalence ◽  
Future Research ◽  
Perceived Quality Of Life

ABSTRACTObjective:To estimate the point prevalence and cumulative incidence of caregiver-reported aggressive behaviors amongst people living with advanced Parkinson’s disease and related disorders (PDRD) and secondarily examine variables associated with aggression.Methods:Caregivers from a clinical trial of outpatient palliative care for PDRD were surveyed about patient aggression at baseline and every three months over 12 months. Baseline responses were used for point prevalence. Cumulative incidence was calculated using responses from caregivers with no reported baseline aggression and available data at all other timepoints. Measures of disease severity, quality of life, mood and caregiver burden were included in correlation and relative risk models, adjusting for age, sex, and diagnosis.Results:Of 170 caregivers, 31 (18.2%) reported physical aggression and 18 (10.6%) reported sexual aggression. 12-month cumulative incidence for physical and sexual aggression were 21.1% (23/109) and 16.0% (19/119) respectively. Physical aggression cumulative incidence was associated with patient depression (r=0.37), patient-perceived quality of life (r= -0.26), caregiver burden (r=0.26), caregiver-perceived patient quality of life (r= -0.26), and caregiver anxiety (r=0.20). Age, sex, cognitive impairment and dementia were not associated with aggression. No variables were associated with cumulative sexual aggression.Conclusion:There was a high prevalence and incidence of aggression in our PDRD cohort. This is an understudied issue in PDRD and our findings highlight the need for increased awareness among neurologists. Providers should consider assessing for aggression when discussing neuropsychiatric symptoms or screening for caregiver burden. Future research should examine the relationship between aggression and patient and caregiver health outcomes.

scholarly journals Sustainable Urban Tourism Development and Quality of Life: A Case of Kampung Bharu, Kuala Lumpur

2021 ◽  
Vol 28 (3) ◽  
pp. 27-34
Author(s):  
Mohd Hafiz Hanafiah ◽  
Ahmad Fitri Amir ◽  
Nurul Nazirah Shamsul Kamal ◽  
Nur Nabihah Saharuddin
Keyword(s):  
Quality Of Life ◽  
Local Community ◽  
Tourism Development ◽  
Urban Tourism ◽  
Future Research ◽  
Community Perception ◽  
Kuala Lumpur ◽  
Perceived Quality Of Life ◽  
Community Livability

Abstract Introduction. With the transformation of Kuala Lumpur as a mega city and the boom of Malaysian urban tourism, understanding the interaction between tourism and local community livability is important for sustainable urban tourism development. Material and methods. Founded in 1899, Kampung Bharu is a famous traditional Malay village facing conflicting urban development and local community livability issues. Thus, to understand the local community perception of urban tourism development and its effect on their quality of life, this study investigates the effect of sustainable tourism development on the local Kampung Bharu community’s quality of life. This study collected 364 valid responses from the local community through a self-administered survey. Results. The study confirms that economic and environmental impacts of urban tourism development deteriorate the local community’s quality of life. However, the socio-cultural impacts of urban tourism development positively and significantly enhance the quality of life of the local community in Kampung Bharu. Conclusions. The study highlighted the importance of the local community’s perceptions, community attachment, and perceived quality of life to destination managers responsible for planning and developing future tourism projects. Several limitations and recommendations for future research are presented.

scholarly journals Quality of Life of Children and Adolescents with Multiple Sclerosis—A Literature Review of the Quantitative Evidence

2021 ◽  
Vol 18 (16) ◽  
pp. 8645
Author(s):  
Slávka Mrosková ◽  
Eleonóra Klímová ◽  
Ľudmila Majerníková ◽  
Ľubomíra Tkáčová
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Literature Review ◽  
Children And Adolescents ◽  
Future Research ◽  
Quantitative Evidence ◽  
The Social ◽  
The Central Nervous System ◽  
Generic Module

Background: Multiple sclerosis (MS) is a chronic disease of the central nervous system that also develops in patients under 18 years of age. The disease negatively affects the quality of life (QoL) of children and adolescents. We conducted a literature review. The aim of the review was to identify the QoL of pediatric patients with MS and assess the factors determining their QoL. Methods: We analyzed studies published between 2000 and 2020 in PubMed, Scopus, Science Direct, Web of Science, and EBSCO databases. Results: In all, 17 studies were included in the review. The most common tool in assessing QoL was the generic module PedsQL. The range of mean/median global score of QoL was 53.8–81.7. The worst QoL was dominantly reported in the school and emotional spheres, on the contrary, the disease’s least determined area of QoL was the social and physical dimension. In particular, disability and fatigue were important predictors of QoL. Conclusions: MS negatively affects the school and emotional spheres in particular, so it is important to pay greater attention to these spheres of life of MS patients. As the review studies pay insufficient attention to the analysis of positive factors and their impact on the QoL of MS patients, research should integrate these phenomena. The use of MS-targeted tools in future research in the pediatric MS population is also appropriate.

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