scholarly journals Conceptualization of Hand-TaPS to measure the subjective experience of dynamic hand orthoses in promoting functional recovery at home after stroke

2020 ◽  
Vol 32 (4) ◽  
pp. 285-294
Author(s):  
Manon M. Schladen ◽  
Yiannis Koumpouros ◽  
Melissa Sandison ◽  
Rafael Casas ◽  
Peter Lum
Keyword(s):  
Assistive Technology ◽  
Functional Recovery ◽  
Personal Experience ◽  
Interpretative Phenomenological Analysis ◽  
Subjective Experience ◽  
Subject Matter Experts ◽  
Reliable Instrument ◽  
Task Practice ◽  
Special Case ◽  
Background Dynamic

BACKGROUND: Dynamic exoskeleton orthoses provide assistance needed to complete movements that would otherwise be impossible after stroke. Beyond the demonstration of their effectiveness, the subjective experience of dynamic orthoses also needs to be considered. OBJECTIVE: To support functional recovery after stroke through the development of Hand-TaPS (Task Practice after Stroke), an instrument to evaluate dynamic hand orthoses in home therapy. METHODS: Dynamic hand orthosis subject matter experts (N= 14), professionals and consumers, considered the items of PYTHEIA, a valid and reliable instrument merging well-tested, assistive technology (AT) assessment items with those tuned to the greater complexity of emerging technologies. Experts reflected on how each item aligned with their personal experience of dynamic orthosis use. Interpretative Phenomenological Analysis guided identification of themes. RESULTS: Four themes (5/20 items) appraised highly relevant for Hand-TaPS. The remaining eight themes (15/20 items) were deemed in need of modification. CONCLUSIONS: Dynamic hand orthoses constitute a special case of AT; the assistance they provide targets therapy, not ADLs. Our work to develop Hand-TaPS provides a clear example of the theoretical difference between rehabilitative and assistive technology and underscores the importance of consideration of how a device is used in its assessment.

scholarly journals Toward Evaluation of The Subjective Experience of A General Class of User-Controlled, Robot-Mediated Rehabilitation Technologies for Children with Neuromotor Disability

2020 ◽  
Author(s):  
Manon Maitland Schladen ◽  
Kevin Cleary ◽  
Yiannis Koumpouros ◽  
Reza Monfaredi ◽  
Tyler Salvador ◽  
...  
Keyword(s):  
Assistive Technology ◽  
Subjective Experience ◽  
Intensive Therapy ◽  
Potential Conflict ◽  
Target Populations ◽  
Duration Of Therapy ◽  
Technological Advances ◽  
Reliable Instrument ◽  
Depth Interviews

Technological advances in game-mediated robotics provide an opportunity to engage children with CP and other neuromotor disabilities in more frequent and intensive therapy by making personalized, programmed interventions available 24/7 in children’s homes. Though shown to be clinically effective and feasible to produce, little is known of the subjective factors impacting acceptance and of such assistive/rehabilitative gamebots by their target populations and their families. This research describes the conceptualization phase of an effort to develop a valid and reliable instrument to guide the design of A/R gamebots. We conducted in-depth interviews with 8 children with CP and their families who had trialed an A/R gamebot for 28 days in their homes to understand how existing theories and instruments were either appropriate or inappropriate to measuring the subjective experience of A/R gamebots. Key findings were the importance of differentiating the paradigm of rehabilitative from that of assistive technology, the need to incorporate the differing perspectives of children with CP and those of their parents into A/R gamebot evaluation, and the potential conflict between the goals of preserving the quality of the experience of game play for the child while also optimizing the intensity and duration of therapy provided during play.

Exploring how educational leaders in England experience and promote their own well-being

2021 ◽  
pp. 089202062110038
Author(s):  
Lucy Lindley
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Subjective Experience ◽  
Personal Autonomy ◽  
Personal Responsibility ◽  
Educational Leaders ◽  
Well Being ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
What Works

This study aimed to explore how educational leaders in England experience and promote their own well-being. To address this, five semi-structured interviews were carried out with educational leaders who expressed that they had personally experienced high levels of well-being. Using Interpretative Phenomenological Analysis (IPA), four themes were identified, which highlighted that well-being is a subjective experience (‘there’s no blueprint’); that high levels of well-being are commonly described as feeling balanced (‘maintain a balance’); that well-being is perceived as a personal responsibility (‘you’ve got to find ways to manage that’); and that participants were leading by example in relation to well-being (‘be a well-being supermodel’). Overall, this study emphasised that there is no one-size-fits-all approach to well-being, so educational leaders (and their colleagues) should be given space and personal autonomy to work out what works for them.

scholarly journals “We Thought We Were Alone”: The Subjective Experience of the Siblings of Anorexic Adolescent Patients

2021 ◽  
Vol 12 ◽  
Author(s):  
Angelo Persico ◽  
Salome Grandclerc ◽  
Catherine Giraud ◽  
Marie Rose Moro ◽  
Corinne Blanchet
Keyword(s):  
Support Group ◽  
Interpretative Phenomenological Analysis ◽  
Subjective Experience ◽  
Emotional Experience ◽  
Active Role ◽  
Structured Interview ◽  
Interview Guide ◽  
Family Based ◽  
The Individual ◽  
Sibling Group

Objective: The siblings of patients suffering from Anorexia Nervosa (AN) are potentially affected by a disturbed emotional experience that often remains undetected. In order to bring them a psychological support, the Maison de Solenn proposed a support group program for these siblings. The current research explores their mental representations of AN and their emotional experience in the support group named “sibling group.”Method: This exploratory study is based on a phenomenological and inductive qualitative method. Four girls and three boys aged between 6 and 19 participating in the “sibling group” were included in a one-time focus group session using a semi-structured interview guide. The thematic data analysis was performed by applying the methods of interpretative phenomenological analysis.Results: Themes that emerged from the interview fall into four categories: AN explained by siblings; the individual emotional experience of siblings; the family experience of siblings and the experience inside the “sibling group.”Discussion: According to our participants, the “sibling group” thus functions as a good compromise between keeping an active role in the anorexic patient's care and taking a step back to avoid being eaten up by the illness. Sibling-group participants retrieved a sense of belonging, which is normally one of the functions of being a sibling. It is important to note that the “sibling group” is part of the comprehensive (or global) family-based approach included in an institutional multidisciplinary integrative care framework.

scholarly journals ELT- Autobiographic memory: a source for communicative competence

2016 ◽  
Vol 3 (1) ◽  
pp. 9
Author(s):  
A.V.S. Jayaannapurna
Keyword(s):  
Personal Experience ◽  
Subjective Experience ◽  
Aesthetic Experience ◽  
Communicative Competence ◽  
New Horizons ◽  
Autobiographic Memory ◽  
Inherent Nature

Language with all its paraphernalia, opens its wings of expression and communication in to new horizons of aesthetic experience. In addition, there is the inherent nature of language itself, which ultimately represents, symbolises, expresses, and can even shape our experience, but it is not the experience itself .With in communication, there is a lot of translation that must take place to go from the essence of our personal experience to the communication of words. In order to understand autobiographic memories, we use language to bridge the gap between dimensions ― between the dimension of subjective experience and the dimension of objective manifestation.

scholarly journals Video Meeting Signals: A randomised controlled trial of a technique to improve the experience of video conferencing

2021 ◽  
Author(s):  
Daniel C. Richardson ◽  
Miles R. A. Tufft ◽  
Mackenzie Clavin ◽  
Paul Hills
Keyword(s):  
Randomised Controlled Trial ◽  
Social Interactions ◽  
Personal Experience ◽  
Subjective Experience ◽  
Video Conferencing ◽  
Controlled Trial ◽  
Training Session ◽  
Socially Isolated ◽  
Randomised Controlled ◽  
Video Meeting

We found evidence from a randomised controlled trial that a simple set of techniques can improve the experience of online meetings. Video conferencing technology has practical benefits, but psychological costs. It has allowed industry, education and social interactions to continue in some form during the covid-19 lockdowns. But it has left many users feeling fatigued and socially isolated, perhaps becausethe limitations of video conferencing disrupt users’ability to coordinate interactions and foster social affiliation. Video Meeting Signals (VMS™) is a simple technique that uses gestures to overcome some of these limitations. We carried out a randomisedcontrolled trial with over 100 students, in which half underwent a short training session in VMS. All participants rated their subjective experience of two weekly seminars, and transcripts were objectively coded for the valence of language used. Compared to controls, seminar groups with VMS training rated their personal experience, their feelings toward their group, and their perceived learning outcomes as significantly higher. Also, they were more likely to use positive language and less likely to use negative language. While future, pre-registered experiments will explore which aspects of the technique are responsible for these benefits, the current results establish that VMS has great potential to overcome the psychological problems of group video meetings.

scholarly journals How do lesbian and gay people experience dementia?

Dementia ◽  
2016 ◽  
Vol 17 (4) ◽  
pp. 452-477 ◽  
Author(s):  
James McParland ◽  
Paul M Camic
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Subjective Experience ◽  
Dyadic Relationships ◽  
Heterosexual Couples ◽  
Structured Interviews ◽  
Inclusive Practice ◽  
Lesbian And Gay ◽  
Psychosocial Influences ◽  
Person With Dementia ◽  
Dementia Services

Introduction The subjective experience of dementia for lesbian and gay individuals is largely absent from the extant literature. This study aimed to explore what it means to experience dementia in this context given the documented psychosocial influences facing this population. A second aim was to develop understanding of these experiences within dyadic relationships. Method Ten semi-structured interviews were conducted with lesbian and gay individuals with dementia and people with whom they had a significant relationship and analysed using interpretative phenomenological analysis. Results Three superordinate themes, reflecting characteristics of participants’ experience, were identified: duality in managing dementia, giving yourself away vs. holding onto yourself and relationships as sheltered harbours. Ten subthemes indicated the processes that were adopted to adjust and make sense of the experience of dementia. These included decisions around concealment, ensuring safety and the promotion of personhood and couplehood. In line with findings for heterosexual couples, partners had an important role in maintaining the identity of the person with dementia. Conclusions Results suggest additional and distinct challenges, including experienced and perceived discrimination and heterosexism. In response to these conditions, interviewees worked to resist a ‘double stigma’ of dementia and sexuality. Findings indicated areas of improvement for dementia services, including training in inclusive practice.

The interaction of subjective experience and attitudes towards specific antipsychotic-related adverse effects in schizophrenia patients

2013 ◽  
Vol 28 (6) ◽  
pp. 340-343 ◽  
Author(s):  
T. Fischel ◽  
A. Krivoy ◽  
M. Kotlarov ◽  
Z. Zemishlany ◽  
O. Loebstein ◽  
...  
Keyword(s):  
Adverse Effects ◽  
Personal Experience ◽  
Antipsychotic Drugs ◽  
Subjective Experience ◽  
Drug Effects ◽  
Negative Attitude ◽  
Inverse Correlation ◽  
Subjective Response ◽  
Weak Correlation ◽  
Affective Flattening

AbstractBackground:Discontinuation of antipsychotic drugs in schizophrenia patients is a major concern, since it results in relapse and re-hospitalizations. Non-adherence is strongly associated with negative-subjective response to antipsychotics, which is composed of the subjective experience of negative drug effects and attitude towards the treatment.Objective:To investigate the elements of subjective experience and subjective attitude towards specific drug-related adverse effects, leading to a generally negative-subjective attitude towards antipsychotics.Methods:Schizophrenia inpatients (n = 84) were administered a questionnaire measuring attitude and experience on eight subscales: weight gain, sedation, sexual anhedonia, extra-pyramidal syndrome, affective flattening, excessive sleep, diminished sociability and metabolic syndrome. DAI-30 was used to measure attitude towards drugs, and PANSS to assess psychopathology.Results:Weak correlation was found between subjective experience and attitude on most of the subscales. The only strong, albeit inverse, correlation between experience and attitude that was found was with regard to affective flattening, experienced by 37% of the sample, and it also predicted negative drug attitude as measured by the DAI-30, RR: 1.87 (95% CI: 1.06–3.3, df = 1, χ2 = 4.525, P < 0.05).Conclusion:Negative attitude towards most adverse drug effects did not correlate with personal experience. Drug-related affective flattening should be evaluated routinely, since experiencing it may predict negative attitude towards drugs, potentially leading to poor compliance and relapse.

scholarly journals Qualia, (Private) Language and Experience

СИНЕЗА ◽  
2021 ◽  
Vol 2 (1) ◽  
Author(s):  
Igor Janković
Keyword(s):  
Personal Experience ◽  
Subjective Experience ◽  
The Other ◽  
Final Conclusion ◽  
Active Function ◽  
Traditional Sense ◽  
Ontological Sense ◽  
Relationship Of ◽  
Object Relationship

The purpose of this paper is to analyze the relationship between qualia and language. Author will begin with the explanation of the nature of qualia using the negative method (second and third chapter), which will reveal that qualia are neither ontological properties in a traditional sense, viewed as instances of subjective experience, nor that they possess any epistemological value as such. In the fourth chapter, qualia will be confronted with language on the grounds of experience which we understand as holistic. Experience as such is not differential, which means it does not contain subject-object relationship in an ontological sense. Afterwards, phenomenologically analyzed, experience will be shown in two modes: pre-personal and personal. Pre-personal experience as unreflective cannot produce a subject-object relationship and as such is a birthplace of qualia as a stimuli-response structure. On the other hand, the possibility of personal experience depends only on consciousness. Consciousness is an active function of experience which produces the subject-object relationship by objectifying the relations between itself and the other. Such objectification is only possible within the boundaries of language which is constituted as a relationship of meanings; which is to say that without meaning there is no object at all. The final conclusion of the paper refers to the bridge connection between qualia and language (pre-personal and personal) which is established by consciousness.

scholarly journals Allophilia and Experience: Predictors of Fear in Developing Dementia

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 603-604
Author(s):  
Amber Rusch ◽  
Michaela Clark ◽  
Moyosoreoluwa Jacobs ◽  
Carmen Thomassy ◽  
Julie Hicks Patrick
Keyword(s):  
Path Analysis ◽  
Personal Experience ◽  
Subjective Experience ◽  
Age Effects ◽  
Model Fit ◽  
Medical Attention ◽  
Objective Knowledge ◽  
Subjective Experiences ◽  
Positive Attitudes

Abstract Fear of developing dementia is common and has been linked to delays in seeking medical attention (Arlt et al., 2008). We used data from 320 adults (M age = 39.7, SD = 12.3, range 20 – 70) to examine the ways in which objective knowledge and subjective experience with dementia influence positive attitudes toward persons with dementia. We further examined how these constructs related to fear of developing dementia. A path analysis showed the model fit the data well, X2 (DF = 1) = 0.74, p = .39; RMSEA &lt; .001. Objective knowledge and subjective experience were significantly associated with higher allophilia. Allophilia and subjective experiences were associated with personal fear. However, allophilia decreased fear, whereas subjective experiences were associated with increased fear of developing dementia. To clarify these findings, we conducted a moderated regression in which age was examined as a moderator of the relation between allophilia and fear as well as the relation between subjective experience and fear. Significant results were obtained [F (5, 294) = 10.41, p &lt; .001; R2 = .15]. Age moderated the effect of personal experience on fear. Stronger effects emerged for adults in their 20s compared to those in their 40s; similarly, age exerted a stronger effect for those in their 40s than for those in their 50s. Regarding age effects on the relation between allophilia and fear of dementia, for adults in their 20s and 40s, allophilia reduced fear of dementia. For adults in their 50s, allophilia was associated with higher fear.

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