Assessment of family needs of children with cerebral palsy in Northern-Nigeria: A cross-sectional study

2021 ◽  
pp. 1-10
Author(s):  
Abdullahi B. Umar ◽  
Abdulsalam M. Yakasai ◽  
Musa S. Danazumi ◽  
Usman T. Shehu ◽  
Umaru M. Badaru ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Cross Sectional Study ◽  
Rehabilitation Services ◽  
Family Needs ◽  
Cross Sectional ◽  
Exact Test ◽  
Active Involvement ◽  
Adequate Care ◽  
Children With Cerebral Palsy ◽  
Similar Experience

PURPOSE: This study aimed to identify the needs and priorities of parents of children with cerebral palsy (CP) in order to improve care by increasing family participation in rehabilitation programmes. METHODS: This cross-sectional questionnaire-based study was conducted between January to March 2019. Convenience sampling was used to recruit 43 family members (18 years and above) of children with CP who came to the physiotherapy departments for rehabilitation services for their children. Fisher’s exact test was used to analyse the association between socio-demographic characteristics and each of the need items. RESULTS: Five different items were identified to be the family needs that were most frequently met: a) ‘need for active involvement in the child’s treatment and therapies’ (n= 40; 93.0%), b) ‘need for the provision of standard medical care (n= 39; 90.7%), c) ‘need for questions to be answered honestly’ (n= 38; 88.4%), d) ‘need for healthcare professionals to respect the child’s wishes’ (n= 36; 83.7%), e) ‘need for mothers to discuss their feelings (depression, stress etc.) with someone who has similar experience’ (n= 36; 83.7%). Conversely, three items were the most unmet family needs: a) ‘need to have professionals to consult whenever the child needs help’ (n= 39; 90.7%), b) ‘need to be informed about the child’s prognosis’ (n= 41; 95.3%), and c) ‘need to have financial support to provide the child with adequate care’ (n= 43; 100%). CONCLUSION: All participants overwhelmingly reported that their financial needs were their highest priority. The multiple needs of families of children with disabilities must be assessed and considered in rehabilitation services when treating children with CP.

scholarly journals Orthopaedic Disorders in Cerebral Palsy in International Cooperation Projects: A Descriptive Cross-Sectional Study

2021 ◽  
Vol 18 (15) ◽  
pp. 7872
Author(s):  
Elisa Maria Garrido-Ardila ◽  
Berta Caro-Puertolas ◽  
Maria Jiménez-Palomares ◽  
Jesús Montanero-Fernández ◽  
Trinidad Rodríguez-Domínguez ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
International Cooperation ◽  
Community Education ◽  
Cross Sectional Study ◽  
Development Aid ◽  
Development Cooperation ◽  
Rehabilitation Services ◽  
Sectional Study ◽  
Cross Sectional ◽  
Children With Cerebral Palsy

Background: In international cooperation projects that are carried out in less developed and developing countries, a large number of children with disabilities present cerebral palsy (CP). Orthopaedic disorders are frequent complications associated with this disorder. Their prevention and early intervention are essential to achieve an appropriate therapeutic approach for children with PC and to improve their quality of life. Objective: To describe the treatment approach that is currently used in international cooperation projects for the rehabilitation management of the orthopaedic disorders in children with cerebral palsy. Methods: This is an observational, descriptive, cross-sectional study, carried out by means of an online questionnaire to professionals in the field of Physiotherapy and Rehabilitation working in international cooperation projects. The inclusion criteria were professionals working in the rehabilitation field in development aid, humanitarian action or emergency projects that provided rehabilitation services, working with children with cerebral palsy from 0 to 18 years old. Results: Ninety-eight questionnaires were analysed. The average age of the participants was 33.2 years, they were mainly working in development cooperation projects (83.33%) that were implemented in rehabilitation centres and through community-based rehabilitation services (60%). The projects were located in countries all over the world but mainly on the Asian continent (71.4%). Physiotherapists and orthopaedic technicians (72.22%) were the main professionals working in these projects, followed by occupational therapists and social workers (55.56%). The results indicated that the orthopaedic disorders were very frequent in the sample (66.67%), with hip subluxation (50%), scoliosis (77.78%), kyphosis (61.1%), clubfoot (88.7%) and varus foot (61.11%) standing out. The most commonly used treatment approaches were positioning (88.89%) and the Bobath concept (83.33%). The technical aids that were used by the professionals were ankle foot orthosis (AFO) (94.44%), bracing (66.67%), standing frames (83.33%), moulded seats (100%), corner seats (93.75%) and adapted seats (92.85%). Conclusions: In international cooperation projects, the rehabilitation treatment of children with cerebral palsy is based on a holistic approach. This is reflected in the interventions that are carried out to treat their orthopaedic disorders and in locally produced devices, awareness raising and community education. However, the professionals surveyed considered that the aids or orthoses used are insufficient in the treatment and prevention of orthopaedic disorders in cerebral palsy.

A Cross-Sectional Study to Evaluate the Quality of Life of Caregivers for Children with Cerebral Palsy in Saudi Arabia, Jeddah

2021 ◽  
Author(s):  
Alanoud Akram Aman ◽  
Bashaer Baharoon ◽  
Haifa Jamal Idrees ◽  
Ahad Mohammedyusuf Taj ◽  
Bassmah Ali Alzahrani ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Saudi Arabia ◽  
Cerebral Palsy ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Children With Cerebral Palsy

Participation in Leisure Activities by Portuguese Children With Cerebral Palsy

2020 ◽  
Vol 127 (6) ◽  
pp. 1051-1067 ◽  
Author(s):  
Fabio Vila-Nova ◽  
Raul Oliveira ◽  
Rita Cordovil
Keyword(s):  
Cerebral Palsy ◽  
Leisure Activities ◽  
Leisure Activity ◽  
Cross Sectional Study ◽  
Family Factors ◽  
Activity Participation ◽  
Cross Sectional ◽  
Convenience Sample ◽  
Children With Cerebral Palsy ◽  
Activity Types

Leisure participation contributes to the health and wellbeing of children with and without physical disabilities. In the present cross-sectional study, we aimed to assess the influence of child and family factors on leisure activity participation of children with cerebral palsy (CP) aged 8-18 years. A convenience sample of 69 participants with CP (M age = 12.75 years, SD = 2.95; 45 males) responded to the Children’s Assessment of Participation and Enjoyment questionnaire to report participation diversity, frequency, companies, environment and enjoyment in leisure activities. From these questionnaires, we used descriptive statistics to summarize overall participation, two activity domains (formal and informal) and five activity types (recreational, social, active physical, skill-based, and self-improvement). Regression analysis assessed child and family factors’ influence on participation. On average, children with CP were involved in 21 leisure activities in the last four months. Within activity types, social and recreational activities were the most frequently reported. Participation in physical and skill-based activities was low. Overall children with CP experienced high enjoyment with engagement in leisure activities. Collectively, factors of age, cognitive function, gross motor function, and mother’s education level predicted 33% of activity diversity and 30% of activity frequency. We concluded that children with CP show diverse leisure activity participation and high leisure activity enjoyment. Health, education and sports professionals should consider the child’s functional profile and family context when promoting participation.

Occupational performance in mothers of children with cerebral palsy

2019 ◽  
Vol 26 (4) ◽  
pp. 1-7 ◽  
Author(s):  
Naser Havaei ◽  
Mandana Rezaei ◽  
Hamid Reza Rostami ◽  
Ahmad Mohammadi ◽  
Babak Kashefimehr ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Cross Sectional Study ◽  
Performance Measure ◽  
Demographic Variables ◽  
Typically Developing ◽  
Occupational Performance ◽  
Cross Sectional ◽  
Occupational Satisfaction ◽  
Canadian Occupational Performance Measure ◽  
Children With Cerebral Palsy

Background/Aims Caring for children with cerebral palsy may affect different domains in the caregiver's life. This study aimed to compare the occupational performance of mothers of a child who has cerebral palsy with mothers of a typically developing child. Methods A total of 41 mothers with a child who has cerebral palsy and 45 mothers with a typically developing child were recruited in this cross-sectional study. The age-matched mothers had only one child. The Canadian Occupational Performance Measure was used to collect data on the occupational performance and satisfaction of mothers. Findings There was a statistically significant between-group difference in maternal occupational performance and occupational satisfaction (P<0.05), with mothers of children with cerebral palsy reporting lower scores for both. There were no relationships between demographic variables and the occupational performance and satisfaction of mothers with a child with cerebral palsy (P>0.05). The age of children with cerebral palsy had a direct positive relationship with the mothers' level of occupational satisfaction (P<0.05). Conclusion Mothers who take care of a child with cerebral palsy face significant reductions in occupational performance and satisfaction compared to mothers with a typically developing child, and therefore may need help and education in performing and organising their daily activities and roles.

scholarly journals Association between gross motor function and nutritional status in children with cerebral palsy: a cross-sectional study from Colombia

2016 ◽  
Vol 58 (9) ◽  
pp. 936-941 ◽  
Author(s):  
Elizabeth Herrera-Anaya ◽  
Adriana Angarita-Fonseca ◽  
Víctor M Herrera-Galindo ◽  
Rocío D P Martínez-Marín ◽  
Cindy N Rodríguez-Bayona
Keyword(s):  
Cerebral Palsy ◽  
Nutritional Status ◽  
Motor Function ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Gross Motor ◽  
Gross Motor Function ◽  
Children With Cerebral Palsy

scholarly journals Chronic pain among children with cerebral palsy attending a Ugandan tertiary hospital: a cross-sectional study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Emma Nsalazi Bambi ◽  
Angelina Kakooza Mwesige ◽  
Hervé Monka Lekuya ◽  
Philip Kasirye ◽  
Richard Idro
Keyword(s):  
Chronic Pain ◽  
Cerebral Palsy ◽  
Pain Management ◽  
Classification System ◽  
Behavioral Problem ◽  
Cross Sectional Study ◽  
Mulago Hospital ◽  
Sectional Study ◽  
Cross Sectional ◽  
Children With Cerebral Palsy

Abstract Background Children with cerebral palsy (CP) frequently experience chronic pain. The burden and severity of such pain is often underestimated in relation to their other impairments. Recognition and awareness of this chronic pain among children with CP constitute the cornerstone for caretakers and clinicians to improve the quality of life of those children. This study aimed to determine the prevalence of chronic pain among children with CP, and the factors associated. Methods A cross-sectional study of children with CP, aged 2–12 years, attending the CP rehabilitation clinic and Pediatric Neurology Clinic at Mulago Hospital, Uganda from November 2017 to May 2018. A detailed history and clinical examination were performed and the co-morbidities were determined. CP was classified using the Gross Motor Function Classification System (GMFCS), Manual Ability Classification System, Communication Function Classification System (CFCS), and the Eating and Drinking Ability Classification System (EDACS) and documented with the level of impairment in the different domains. Pain was assessed by using the revised Face, Legs, Activity, Consolability, Cry pain scale. Results A total of 224 children with CP were enrolled. The prevalence of chronic pain was 64.3%. The majority had spastic bilateral CP (77.8%), moderate pain lasting over 6 months, and none of them was on long-term pain management. Epilepsy (60.9%), behavioral problem (63.2%), hearing impairment (66,7%), learning problem (67,6%), dental caries (75%), gastro-esophageal reflux (75%), sleep disorders (79.5%), vision impairment (80%), and malnutrition (90%) were co- morbid conditions of chronic pain in children with CP in this study. The factors independently associated with chronic pain among children with CP were the GMFCS level IV & V, CFCS level IV & V, EDACS level IV & V, female children, and caretaker aged more than 30 years. Conclusions Two-thirds of children with CP attending rehabilitation in this hospital had chronic pain. None was receiving pain management. Chronic pain was associated with the presence of multiple co-morbidities and more severe disability. Rehabilitation and care programs for children with CP should include assessment of pain in routine care and provide interventions for pain relief in children with CP even at an early age.

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