scholarly journals Molecular and Clinical Characteristics of a National Cohort of Paediatric Duchenne Muscular Dystrophy Patients in Norway

2019 ◽  
Vol 6 (3) ◽  
pp. 349-359 ◽  
Author(s):  
Ellen Johanne Annexstad ◽  
Toril Fagerheim ◽  
Inger Holm ◽  
Magnhild Rasmussen
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Clinical Characteristics ◽  
National Cohort

scholarly journals Descriptive Characteristics of Males with Duchenne Muscular Dystrophy in Those Covered by Government (Medicaid) and Non-government (Private) Health Plans

US Neurology ◽  
2018 ◽  
Vol 14 (2) ◽  
pp. 88
Author(s):  
Oscar Henry Mayer ◽  
John Karafilidis ◽  
Kate Higgins ◽  
Brian Griffin ◽  
◽  
...  
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Clinical Characteristics ◽  
International Classification Of Diseases ◽  
Neuromuscular Disorder ◽  
Healthcare Resource Utilization ◽  
Office Visits ◽  
Mechanical Ventilators ◽  
Classification Of Diseases ◽  
Male Patients

Duchenne muscular dystrophy (DMD) is a rare, inherited neuromuscular disorder.Methods:To describe the clinical characteristics and healthcare resource utilization (HCRU) of male patients with DMD in commercial and Medicaid cohorts, this retrospective study identified male patients in the Truven Health MarketScan® Commercial and Medicaid databases diagnosed with hereditary progressive muscular dystrophy (HPMD) presumed to have DMD between 2011–2014. Patients with ≥2 medical claims with a diagnosis for HPMD (International Classification of Diseases, 9th revision, ClinicalModification:359.1) were included. Patients were followed for 12 months after diagnosis date, during which clinical characteristics and HCRU were assessed.Results:In total, 2,285 patients met the selection criteria. In these patients, corticosteroid and anti-infective agents were commonly utilized. Physician office visits were extremely common, with over 70% of all patients having at least one visit. Wheelchairs were commonly used, with the incidence of use increasing with age. Mechanical ventilators and airway clearance devices were underrepresented in the data.Conclusion:Patients with DMD had higher annual HCRU costs when compared with a non-DMD age-matched cohort, with patients in commercial cohorts having a higher annual average cost than those in Medicaid cohorts.

Growth and psychomotor development of patients with Duchenne Muscular Dystrophy

2012 ◽  
Vol 43 (02) ◽  
Author(s):  
E Sarrazin ◽  
M von der Hagen ◽  
U Schara ◽  
K von Au ◽  
A Kaindl
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Psychomotor Development

The Six-Minute Walk Test (6MWT) as Endpoint in Duchenne Muscular Dystrophy (DMD) Clinical Studies

2016 ◽  
Vol 47 (S 01) ◽  
Author(s):  
S.-M. Park ◽  
C. McDonald ◽  
H. Sweeney ◽  
X. Luo ◽  
G. Elfring ◽  
...  
Keyword(s):  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Clinical Studies ◽  
Walk Test ◽  
Six Minute Walk Test ◽  
Minute Walk
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