scholarly journals Dementia Caregivers’ Experiences Engaging Supportive Services While Residing in Under-Resourced Areas

2021 ◽  
pp. 1-9
Author(s):  
Quinton D. Cotton ◽  
Amy J.H. Kind ◽  
Alice J. Kim ◽  
Laura M. Block ◽  
Jochen René Thyrian ◽  
...  
Keyword(s):  
Service Use ◽  
Social Work Practice ◽  
Future Research ◽  
Service Needs ◽  
Supportive Services ◽  
Care Needs ◽  
Related Factors ◽  
Socially Disadvantaged ◽  
Service Engagement ◽  
Supportive Service

Background: Family caregivers of people living with dementia benefit from supportive service use to address care needs associated with caregiving. Yet, research consistently demonstrates low rates of service use. Existing research has focused on barriers and facilitators to service use, with few studies examining the influence of caregivers’ environmental context which often patterns social advantage and health services accessibility. Objective: To describe the perspectives caregivers residing in socially disadvantaged areas have in regards to utilizing supportive services. Methods: Ten informal caregivers residing in socially disadvantaged areas participated in in-depth interviews that were analyzed using thematic analysis. Results: Across all interviews, caregivers spontaneously described common precedents of service use (crisis or accumulation of unmet needs) and a distinct sequence of stages (seeking, initiating, and utilizing) surrounding service engagement. Major themes characterizing caregivers’ experiences throughout service engagement highlight the varied influence of personal, familial, health, and social system-related factors. Findings demonstrate that caregivers may have different service needs as dementia progresses and that gerontological social work practice can facilitate service use. Conclusion: While preliminary, these findings provide important insights into new domains that can be further examined in future research and intervention efforts to improve supportive service use in socially disadvantaged and underserved communities.

scholarly journals Caring From Afar: Long-Distance Caregivers’ Use of Supportive Services for Themselves

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 354-354
Author(s):  
Molly Wylie ◽  
Jillian Minahan Zucchetto ◽  
Francesca Falzarano ◽  
Amy Horowitz ◽  
Verena Cimarolli
Keyword(s):  
Service Use ◽  
Care Recipient ◽  
Hierarchical Regression ◽  
Care Utilization ◽  
Supportive Services ◽  
Long Distance ◽  
Enabling Factors ◽  
Predisposing Factor ◽  
Care Partners ◽  
Supportive Service

Abstract Although long distance caregivers (LDCs) are starting to be recognized as a subgroup of care partners experiencing unique challenges and stresses, it is unknown 1) what types of supportive services LDCs use for themselves and 2) what factors are associated with supportive service use in this understudied caregiving population. In our sample of 304 LDCs (Mage=56.9), the most frequently utilized service was video phone/webcam systems to monitor the care recipient (CR). Guided by Andersen’s Model of Health Care Utilization and using multiple hierarchical regression analysis, younger age of the LDC (a predisposing factor) and need-related characteristics (greater caregiving burden and depressive symptoms, more time spent helping the CR, and worse CR functional status) were associated with greater use of supportive services. Enabling factors were not associated with service use. These study findings can help inform how to engage LDCs in supportive service utilization.

scholarly journals Predisposing, Enabling, and Need Factors Associated with the Choice of Pharmacy Type in the US: Findings from the 2015/2016 National Consumer Survey on the Medication Experience and Pharmacists’ Roles

Pharmacy ◽  
2021 ◽  
Vol 9 (2) ◽  
pp. 72
Author(s):  
Mohamed Rashrash ◽  
Suhila Sawesi ◽  
Jon C. Schommer ◽  
Lawrence M. Brown
Keyword(s):  
Side Effects ◽  
Service Use ◽  
Patient Characteristics ◽  
Behavioral Model ◽  
Future Research ◽  
Related Factors ◽  
Factors Associated ◽  
Highly Educated ◽  
Medication Therapy ◽  
Medication Experience

Background: Knowing the type of pharmacy used by the patient is meaningful to the pharmacist. Previous studies have assessed different factors predicting the kind of pharmacy selection and reached inconsistent findings. Objectives: To identify patient and health-related factors associated with pharmacy type selection. Methods: The Andersen Behavioral Model of Health Service Use was used to organize the selection of patient characteristics and categorize them as predisposing, enabling, and need factors. The dependent variable was the type of pharmacy used. Logistic regression was used to predict the association between patient-related characteristics and the type of pharmacy used. Results: Older age respondents were less likely to use independent pharmacies (OR = 0.992) and more likely to use mail pharmacy services (OR = 1.026). Highly educated people showed higher use of chain and mail pharmacies (OR = 1.272, 1.185, respectively) and less tendency to use the independent, supermarket, and prescription-only pharmacy types. Men were less likely to use chain pharmacies (OR = 0.932) and more likely to use supermarket pharmacies than women. Patients who use Medication Therapy Management (MTM) services had higher odds of using independent and supermarket pharmacies (OR = 2.808, 1.689, respectively). Patients with a higher number of chronic diseases and experienced side effects of medications were more likely to use independent pharmacies (OR for number of disease = 1.097 and for side effects = 1.095). Conclusions: This study’s findings identify characteristics associated with selecting certain pharmacy settings and direct future research to include other predictors encompassing beliefs, attitudes, and other social factors.

scholarly journals The Dynamics of Frailty Development and Progression in Older Adults in England (2006 – 2017): A Retrospective Cohort Profile

2021 ◽  
Author(s):  
Carole Fogg ◽  
Simon DS Fraser ◽  
Paul Roderick ◽  
Simon Lusignan ◽  
Andrew Clegg ◽  
...  
Keyword(s):  
Older Adults ◽  
Primary Care ◽  
Retrospective Cohort ◽  
Service Use ◽  
Frailty Index ◽  
Population Level ◽  
Service Needs ◽  
Care Needs ◽  
Future Health ◽  
Long Term Conditions

Abstract Background: Frailty is a common condition in older adults and has a major impact on patient outcomes and service use. Information on the prevalence in middle-aged adults and the patterns of progression of frailty at an individual and population level is scarce. To address this, a cohort was defined from a large primary care database in England to describe the epidemiology of frailty and understand the dynamics of frailty within individuals and across the population. This article describes the structure of the dataset, cohort characteristics and planned analyses.Methods: Retrospective cohort study using electronic health records. Participants were aged ≥50 years registered in practices contributing to the Oxford Royal College of General Practitioners Research and Surveillance Centre between 2006 to 2017. Data include GP practice details, patient sociodemographic and clinical characteristics, twice-yearly electronic Frailty Index (eFI), deaths, medication use and primary and secondary care health service use. GP and patient characteristics at cohort entry are described. Planned analyses include frailty incidence, prevalence and transitions between frailty categories, predictors of transitions and trajectories, and relationships between frailty, service use and outcomes. Techniques including regression, multistate models and cost analyses will be used. Results: The cohort includes 2,177,656 patients, contributing 15,552,946 person-years, registered at 419 primary care practices in England. The mean age was 61 years, 52.1% of the cohort was female, and 77.6% lived in urban environments. Frailty increased with age, affecting 10% of adults aged 50-64 and 43.7% of adults aged ≥65. The prevalence of long-term conditions and specific frailty deficits increased with age, as did the eFI and the severity of frailty categories. Conclusion: A comprehensive understanding of frailty dynamics will inform predictions of current and future care needs to facilitate timely planning of appropriate interventions, service configurations and workforce requirements. Analysis of this large, nationally representative cohort including participants aged ≥50 will capture earlier transitions to frailty and enable a detailed understanding of progression and impact. These results will inform novel simulation models which predict future health and service needs of older people living with frailty. Study registration: registered on www.clinicaltrials.gov October 25th 2019, NCT04139278.

An Examination of the Health Profile, Service Use and Care Needs of Older Adults in Residential Care Facilities

2004 ◽  
Vol 23 (3) ◽  
pp. 281-294 ◽  
Author(s):  
F. Aminzadeh ◽  
W.B. Dalziel ◽  
F. J. Molnar ◽  
J. Alie
Keyword(s):  
Older Adults ◽  
Residential Care ◽  
Service Use ◽  
Functional Health ◽  
Future Research ◽  
Health Profile ◽  
Care Needs ◽  
Research Attention ◽  
Residential Care Facilities ◽  
Care Facilities

ABSTRACTPrivate, unregulated residential care facilities have become an increasingly important component of the continuum of housing and care for frail older adults in Canada. To date, this growing segment of the older population has received very little research attention. This study involved an in-depth examination of the functional/health profile, patterns of service use, and medical/care needs of a representative sample of 178 older adults in residential care facilities in the City of Ottawa. The results indicate great diversity in resident and facility profiles in this setting and confirm earlier impressions that special care units in the residential care sector have become increasingly close to being unlicensedpseudo-nursing homes. Despite the heavy burden of care, the evidence suggests that the care needs of the majority of residents are adequately met in the residential care environment. The results can inform future research, case finding, educational, and policy planning initiatives in this setting.

scholarly journals The dynamics of frailty development and progression in older adults in primary care in England (2006–2017): a retrospective cohort profile

2022 ◽  
Vol 22 (1) ◽  
Author(s):  
Carole Fogg ◽  
Simon D. S. Fraser ◽  
Paul Roderick ◽  
Simon de Lusignan ◽  
Andrew Clegg ◽  
...  
Keyword(s):  
Older Adults ◽  
Primary Care ◽  
Older People ◽  
Retrospective Cohort ◽  
Service Use ◽  
Frailty Index ◽  
Service Needs ◽  
Care Needs ◽  
Long Term Conditions ◽  
Link Type

Abstract Background Frailty is a common condition in older adults and has a major impact on patient outcomes and service use. Information on the prevalence in middle-aged adults and the patterns of progression of frailty at an individual and population level is scarce. To address this, a cohort was defined from a large primary care database in England to describe the epidemiology of frailty and understand the dynamics of frailty within individuals and across the population. This article describes the structure of the dataset, cohort characteristics and planned analyses. Methods Retrospective cohort study using electronic health records. Participants were aged ≥50 years registered in practices contributing to the Oxford Royal College of General Practitioners Research and Surveillance Centre between 2006 to 2017. Data include GP practice details, patient sociodemographic and clinical characteristics, twice-yearly electronic Frailty Index (eFI), deaths, medication use and primary and secondary care health service use. Participants in each cohort year by age group, GP and patient characteristics at cohort entry are described. Results The cohort includes 2,177,656 patients, contributing 15,552,946 person-years, registered at 419 primary care practices in England. The mean age was 61 years, 52.1% of the cohort was female, and 77.6% lived in urban environments. Frailty increased with age, affecting 10% of adults aged 50–64 and 43.7% of adults aged ≥65. The prevalence of long-term conditions and specific frailty deficits increased with age, as did the eFI and the severity of frailty categories. Conclusion A comprehensive understanding of frailty dynamics will inform predictions of current and future care needs to facilitate timely planning of appropriate interventions, service configurations and workforce requirements. Analysis of this large, nationally representative cohort including participants aged ≥50 will capture earlier transitions to frailty and enable a detailed understanding of progression and impact. These results will inform novel simulation models which predict future health and service needs of older people living with frailty. Study registration Registered on www.clinicaltrials.gov October 25th 2019, NCT04139278.

A qualitative study of the service experiences of women with autism spectrum disorder

Autism ◽  
2017 ◽  
Vol 22 (8) ◽  
pp. 928-937 ◽  
Author(s):  
Ami Tint ◽  
Jonathan A Weiss
Keyword(s):  
Autism Spectrum Disorder ◽  
Service Use ◽  
Service Providers ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Future Research ◽  
Service Needs ◽  
Employment Services ◽  
Effective Care ◽  
Experiences Of Women

It is recognized that the experiences of women with autism spectrum disorder are often underrepresented in the literature. In this study, 20 women with autism spectrum disorder participated in five focus groups with discussions centered on their service use, unmet service needs, and barriers to care. Overall, women emphasized high unmet service needs, particularly with respect to mental health concerns, residential supports, and vocational and employment services. Participants also perceived many service providers as disregarding or misunderstanding women’s service needs. Findings of the current exploratory study are discussed in relation to areas of future research required to ensure effective care for this understudied population.

scholarly journals Disrupting the Status Quo: The New Normal of Family Caregivers’ Service Use

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 353-354
Author(s):  
Karen Moss ◽  
Verena Cimarolli ◽  
Karen Rose
Keyword(s):  
Native American ◽  
Family Caregivers ◽  
Support Groups ◽  
Family Caregiver ◽  
Service Use ◽  
Care Program ◽  
Supportive Services ◽  
Long Distance ◽  
New Findings ◽  
Supportive Service

Abstract Family caregivers are essential partners in chronic disease management for older adults. However, being a family caregiver can have negative mental and physical health consequences, making it important for some caregivers to rely on supportive services, either for themselves (e.g. support groups) or to get help with caregiving tasks (e.g. home care). Supportive service use by family caregivers is well documented; yet, this research has often not included specific subgroups of caregivers (e.g. the racially/ethnically, or geographically diverse). Hence, the purpose of this symposium is to share new findings from research on supportive service use in understudied caregiving populations. First, Dr. Cimarolli presents findings from a study on the types of supportive services long-distance caregivers use for themselves and the factors associated with supportive service use in this caregiver population. Then, Dr. Wyman reports findings from a survey on the use of home and community-based resources by family caregivers in a Native American community. Dr. Wright will share the results of a systematic review of self-care interventions designed for caregivers of African Americans living with dementia. Finally, Dr. Mavandadi presents the results of a study examining the effectiveness of a telephone-based, collaborative dementia care program for improving outcomes in caregivers of military veterans living with dementia. Dr. Karen Rose will discuss the implications of each of these study findings for the development and evaluation of supportive interventions for these specialized family caregiver groups.

"He seems odd": The effects of risk-irrelevant information and actuarial risk estimates on mock jurors' perceptions of sexual recidivism risk

2020 ◽  
Author(s):  
Jennifer Kamorowski ◽  
Karl Ask ◽  
Maartje Schreuder ◽  
Marko Jelicic ◽  
Corine de Ruiter
Keyword(s):  
Contextual Information ◽  
Individual Characteristics ◽  
Risk Estimate ◽  
Case Vignette ◽  
Future Research ◽  
Sexual Recidivism ◽  
Mock Jurors ◽  
Related Factors ◽  
Risk Estimates ◽  
Actuarial Risk

Previous research has shown that mock and actual jurors give little weight to actuarial sexual offending recidivism risk estimates when making decisions regarding civil commitment for so-called sexually violent predators (SVPs). We hypothesized that non-risk related factors, such as irrelevant contextual information and jurors’ information-processing style, would influence mock jurors’ perceptions of sexual recidivism risk. This preregistered experimental study examined the effects of mock jurors’ (N = 427) need for cognition (NFC), irrelevant contextual information in the form of the offender’s social attractiveness, and an actuarial risk estimate on mock jurors’ estimates of sexual recidivism risk related to a simulated SVP case vignette. Mock jurors exposed to negative risk-irrelevant characteristics of the offender estimated sexual recidivism risk as higher than mock jurors exposed to positive information about the offender. However, this effect was no longer significant after mock jurors had reviewed Static-99R actuarial risk estimate information. We found no support for the hypothesis that the level of NFC moderates the relationship between risk-irrelevant contextual information and risk estimates. Future research could explore additional individual characteristics or attitudes among mock jurors that may influence perceptions of sexual recidivism risk and insensitivity to actuarial risk estimates.

scholarly journals Negotiating (dis-)engagement in K-12 blended learning

2021 ◽  
Author(s):  
Nina Bergdahl ◽  
Melissa Bond
Keyword(s):  
Active Learning ◽  
Blended Learning ◽  
Digital Technologies ◽  
Vital Role ◽  
Future Research ◽  
Socially Disadvantaged ◽  
Leadership Engagement ◽  
Upper Secondary ◽  
K 12 ◽  
Engagement And Disengagement

AbstractIt is well-recognised that engagement is critical for learning and school success. Engagement (and disengagement) are, however, also influenced by context. Thus, as digital technologies add complexity to the educational context, they influence classroom leadership, lesson designs and related practices, and thereby engagement. Despite being critical, engagement and disengagement are not well explored concerning these influences, with a lack of research undertaken within socially disadvantaged schools. In this qualitative study, 14 classroom observations were conducted, during five months, in twelve classes in an upper secondary school in Sweden, along with dialogues with teachers (n=12) and students (n=32). The data were analysed using thematic analysis and descriptive statistics. Identified themes include digital context, teacher leadership, engagement and disengagement. A network of relations between the (dis-)engagement compound and themes is presented. The results identified processes in which engagement shifted into disengagement and vice versa; in particular, that the intention of active learning does not automatically translate to active learning for all students, although teachers employed a higher work pace than did their students. Teacher self-efficacy and awareness of how to manage digital technologies in and outside the classroom was found to play a vital role in facilitating engagement. Understanding the (dis-)engagement compound in blended learning environments is key to inform active and visible learning for future research and supportive organisational structures.

Treatment alliance and needs of care concerning religiousness and spirituality: A follow-up study among psychiatric inpatients

2021 ◽  
pp. 002076402110230
Author(s):  
Joke C van Nieuw Amerongen-Meeuse ◽  
Arjan W Braam ◽  
Christa Anbeek ◽  
Jos WR Twisk ◽  
Hanneke Schaap-Jonker
Keyword(s):  
Mental Health ◽  
Mental Health Professionals ◽  
Structural Equation ◽  
Treatment Compliance ◽  
Health Clinic ◽  
Care Needs ◽  
Service Engagement ◽  
Treatment Alliance ◽  
Over Time

Background: Patient satisfaction with religious/spiritual (R/S) care during mental health treatment has been associated with a better treatment alliance. Aims: To investigate the longitudinal relations between (un)met R/S care needs and treatment alliance/compliance over a 6-month period. Method: 201 patients in a Christian (CC) and a secular mental health clinic completed a questionnaire (T0) containing an R/S care needs questionnaire, the Working Alliance Inventory (WAI) and the Service Engagement Scale (SES). After 6 months 136 of them took part in a follow-up (T1). Associations were analysed using hybrid linear mixed models and structural equation modelling. Results: R/S care needs decreased over time, but a similar percentage remained unanswered (e.g. 67% of the needs on R/S conversations in a secular setting). Over a 6-month period, met R/S care needs were associated with a higher WAI score (β = .25; p < .001), and unmet R/S care needs with lower WAI score (β = −.36; p < .001), which were mainly between subjects effects. Patients reporting a high score of unmet R/S care at baseline, reported a decrease in SES over time (β = −.13; p < .05). Conclusions: Satisfaction with R/S care among mental health patients is related to a better treatment alliance. When unmet R/S care needs persist, they precede a decrease in treatment compliance. Mental health professionals are recommended to assess the presence of R/S care needs and consider possibilities of R/S care especially in the first weeks of treatment.

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