scholarly journals Mixed-Methods Study on Caregiver Strain, Quality of Life, and Perceived Health

2021 ◽  
Vol 80 (2) ◽  
pp. 799-811
Author(s):  
Claudio Di Lorito ◽  
Alessandro Bosco ◽  
Maureen Godfrey ◽  
Marianne Dunlop ◽  
Juliette Lock ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Controlled Trial ◽  
Perceived Health ◽  
Mixed Methods Study ◽  
Caregiver Strain ◽  
Positive Experiences ◽  
Older Caregivers ◽  
Person With Dementia

Background: Caring for someone with dementia is associated with negative and positive experiences. There is little evidence based on large datasets. Objective: To present data around the experience of caring for someone with dementia, to identify support (emotional and practical) needs, and inform future service provision. Methods: A mixed-methods study embedded in the Promoting Activity, Independence and Stability in Early Dementia (PrAISED) Randomized Controlled Trial. We administered questionnaires on strain, quality of life (QoL), and perceived health to 301 caregivers and assessment of cognitive performance, depression, anxiety, and disability in activities of daily living to 301 participants with dementia. Data were analyzed through descriptive and modelling statistics. A subsample of 20 patient-caregiver dyads were qualitatively interviewed. Data around caregivers’ experience of providing care were extrapolated and analyzed through inductive thematic analysis. Results: There were significant negative associations between caregiver strain and QoL (p < 0.01) and between caregiver age and QoL (p < 0.01), and significant positive associations between caregiver strain and disability (p < 0.01), cognitive impairment (p < 0.01), depression (p < 0.05), and anxiety of the person with dementia (p < 0.05). Older caregivers reported a lack of support, reinforced by their reluctance to seek help. All caregivers reported contradictory emotions associated with caring and accumulation of strain over time. Conclusion: While there is recognition that it is essential to support caregivers, dedicated intervention programs, and support strategies to respond to the needs of older caregivers are still needed.

scholarly journals Pilot Randomised Evaluation of Singing in Dementia (PRESIDE): protocol for a two-arm, parallel-group randomised controlled feasibility study with waiting-list control

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Becky Dowson ◽  
Justine Schneider ◽  
Boliang Guo ◽  
Philip M. Bath ◽  
Orii McDermott ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Randomised Controlled Trial ◽  
Controlled Trial ◽  
Waiting List ◽  
Community Group ◽  
People With Dementia ◽  
Parallel Group ◽  
Randomised Controlled ◽  
Person With Dementia

Abstract Background As the number of people living with dementia grows, so does the need to provide them with adequate psychosocial support. Many people with dementia live at home with family carers, who also require social and emotional support to cope with their role. Community group singing has received attention for its potential to support people with dementia and their carers. It is postulated that singing can improve cognitive function, strengthen the bonds between care partners and help to establish social support networks. However, there is a lack of rigorous evidence of singing’s benefits for this population. This study aims to test the feasibility of a randomised controlled trial of community singing in dementia, to pave the way for a larger, conclusive study. Methods The PRESIDE study is designed as a two-arm, parallel-group randomised trial with a waiting list control. Dyads consisting of a person with dementia (n = 80) and their carer (n = 80) will be recruited. Each dyad will be randomised either to attend 10 weeks of community group singing sessions straight away or to wait for 3 months before attending the sessions. The singing sessions will be led by experienced professional musicians and will last about 90 min, including time for socialising. The primary outcome of this study is the attainment of feasibility criteria around recruitment, retention and the acceptability of the waiting list control. Secondary outcomes include the quality of life, mood, cognition, and musical engagement of the person with dementia, and quality of life, mood, and experiences/challenges of the carer. These data will be collected during home visits at baseline, and 3 and 6 months post-baseline. Discussion Despite growing public interest in the positive effects of singing, and encouraging findings from qualitative and non-randomised quantitative studies, there is a lack of rigorous evidence. This is the first randomised controlled trial of community group singing for people with dementia in Europe, to our knowledge. If the results favour a full trial, conclusively demonstrating the effectiveness of group singing could positively affect the opportunities available to community-dwelling people with dementia and their carers. Trial registration Unique identification number in ISRCTN registry: ISRCTN10201482. Date registered: 12 May 2020

Perceptions of Stress, Mindfulness, and Occupational Engagement Among Graduate-Level OT Students

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512505140p1-7512505140p1
Author(s):  
Patricia A. Henton ◽  
Acacia Gambrel ◽  
Jerome Klah ◽  
Catherine Rink ◽  
Caroline Targonski ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Graduate Students ◽  
Coping Strategies ◽  
Mixed Methods Study ◽  
Coping Mechanism ◽  
Occupational Engagement ◽  
Graduate Level ◽  
Primary Author

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. The exploratory mixed-methods study of 490 OT graduate students revealed that high levels of reported stress along with limited coping strategies impacted students’ perceived occupational engagement and quality of life. Students identified mindfulness as an effective coping mechanism; however, its reported use did not appear to alter quality of life. The study supported a link between mindfulness and occupational engagement and has broad implications for the field of OT. Primary Author and Speaker: Patricia A. Henton Additional Authors and Speakers: Acacia Gambrel, Jerome Klah, Catherine Rink, Caroline Targonski, and Sarah Wirtz

scholarly journals Quality of life among survivors of prolonged critical illness; a mixed methods study

Critical Care ◽  
2008 ◽  
Vol 12 (Suppl 2) ◽  
pp. P508
Author(s):  
P Ramsay ◽  
G Huby ◽  
A Thompson ◽  
T Walsh
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Critical Illness ◽  
Mixed Methods Study

Health-related quality of life in adult CHD surgical patients in a low middle-income country: a mixed-methods study

2020 ◽  
Vol 30 (8) ◽  
pp. 1126-1137
Author(s):  
Laila A. Ladak ◽  
Robyn Gallagher ◽  
Babar S. Hasan ◽  
Khadija Awais ◽  
Ahmed Abdullah ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Income Country ◽  
Surgical Patients ◽  
Health Related Quality ◽  
Middle Income ◽  
Related Quality ◽  
Health Related

AbstractBackground and objectives:This mixed-methods study aimed to assess health-related quality of life in young adults with CHD following surgery in a low middle-income country, Pakistan. Despite the knowledge that geographic, cultural and socio-economic factors may shape the way health and illness is experienced and managed and consequently determine a person’s health-related quality of life, few health-related quality of life studies are conducted in low middle-income countries. This deficit is pronounced in CHD, so there is little guidance for patient care.Methods:The study utilised concurrent, mixed methods. Adults with CHD (n = 59) completed health-related quality of life surveys (PedsQLTM 4.0 Generic Core Scale, PedsQLTM Cognitive Functioning Scale and PedsQLTM 3.0 Cardiac Module). Semi-structured interview data were collected from a nested sub-sample of 17 participants and analysed using qualitative content analysis, guided by the revised Wilson–Cleary model of health-related quality of life.Results:The lowest health-related quality of life domain was emotional with the mean score (71.61 ± 20.6), followed by physical (78.81 ± 21.18) and heart problem (79.41 ± 18.05). There was no statistical difference in general or cardiac-specific health-related quality of life between mild, moderate or complex CHD. Qualitative findings suggested low health-related quality of life arose from a reduced capacity to contribute to family life including family income and gender. A sense of reduced marriageability and fear of dependency were important socio-cultural considerations.Conclusions:CHD surgical patients in this low-income country experience poor health-related quality of life, and contributing factors differ to those reported for high-income countries. Socio-cultural understandings should underpin assessment, management and care-partnering with young adults with CHD following surgical correction.

scholarly journals A mixed methods study of physical activity and quality of life in adolescents with Turner syndrome

2019 ◽  
Vol 182 (2) ◽  
pp. 386-396
Author(s):  
Talia Thompson ◽  
Brianna Zieba ◽  
Susan Howell ◽  
William Karakash ◽  
Shanlee Davis
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Mixed Methods ◽  
Turner Syndrome ◽  
Mixed Methods Study

scholarly journals A Mixed-Methods Study of Pain-related Quality of Life in Sickle Cell Vaso-Occlusive Crises

Hemoglobin ◽  
2015 ◽  
Vol 39 (5) ◽  
pp. 305-309 ◽  
Author(s):  
Richard J. Lin ◽  
Arthur T. Evans ◽  
Kerri Wakeman ◽  
Michelle Unterbrink
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Sickle Cell ◽  
Mixed Methods Study ◽  
Related Quality

scholarly journals Preference-based disease-specific health-related quality of life instrument for glaucoma: a mixed methods study protocol

BMJ Open ◽  
2016 ◽  
Vol 6 (11) ◽  
pp. e012732 ◽  
Author(s):  
Sergei Muratov ◽  
Dominik W Podbielski ◽  
Susan M Jack ◽  
Iqbal Ike K Ahmed ◽  
Levine A H Mitchell ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Health Related Quality ◽  
Life Instrument ◽  
Related Quality ◽  
Health Related ◽  
Disease Specific ◽  
Specific Health
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