scholarly journals To Assess the Quality of Life among Primary Caregivers of Intellectually Disabled Children Attending Outpatient Department in a Tertiary Health Center of City

2019 ◽  
Vol 5 (4) ◽  
pp. 101-106
Author(s):  
Sumit Khare ◽  
Shilpa Parkhe ◽  
Pratibha Gunjal ◽  
Sonali Shinde ◽  
Rama Arbatti
Keyword(s):  
Quality Of Life ◽  
Health Center ◽  
Primary Caregivers ◽  
Outpatient Department ◽  
Disabled Children ◽  
Intellectually Disabled

scholarly journals Measuring health-related quality of life of intellectually disabled children: a narrative review

2021 ◽  
Vol 8 (7) ◽  
pp. 3652
Author(s):  
Karthikayini Sasinthar ◽  
Abhijit V. Boratne ◽  
Arun Sugumaran ◽  
Raj Kumar Patil
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
English Literature ◽  
Self Report ◽  
Health Related Quality ◽  
Disabled Children ◽  
Intellectually Disabled ◽  
Related Quality ◽  
Health Related

To identify currently available measures of Health-related quality of life (HRQOL) for intellectually disabled children and to describe their content. A comprehensive retrieval of the English literature from 2001 to 2021 was done in the PubMed and Google Scholar. The terms ‘Intellectual disability’, ‘Differently abled’, ‘Special children’, ‘Differently challenged’, ‘Mental retardation’, ‘Health-related quality of life’, ‘Quality of life’, ‘Burden of intellectual disability’ and ‘India’ were used to identify measures of HRQOL for children’s with intellectual disability. Several tools were identified to measure HRQOL for children with intellectual disability. Many have parent proxy as well as self-report form with good validity and reliability. Though, they were often developed with minimal involvement from families, focus on functioning rather than wellbeing, and have items that sometimes may cause emotional upset. When children with different health problems are compared, the degree of their particular health condition should be measured. Furthermore, overlap of items seems not to be a problem when the HRQOL of children with intellectually disability is studied. Hence, HRQOL assessments are useful for collecting information beyond the clinical symptoms of a health problem thus improving quality of care.

scholarly journals Anxiety, depression and quality of life in mothers of intellectually disabled children

2018 ◽  
Vol 6 (2) ◽  
pp. 28-35
Author(s):  
N Sapkota ◽  
A K Pandey ◽  
BK Deo ◽  
MK Shrivastava
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Poor Quality ◽  
Anxiety And Depression ◽  
Disabled Children ◽  
Intellectually Disabled ◽  
Icd 10 ◽  
Anxiety Depression ◽  
The Relationship

Introduction: Studies have shown that there is an association between Anxiety, Depression in mothers of children having Intellectual disability with poor quality of life (QOL) in mothers of such children. This study was carried with the objectives to describe the clinico-socio-demographic profile of mothers of intellectually disabled children and to investigate the relationship among anxiety and depression with quality of life in mothers with intellectually disabled children.Material And Method: Mothers (N=31), whose children's IQ score was below 70, were enrolled in to the study with their informed consent. Depression and Anxiety disorders were diagnosed as per ICD 10. Severity of depression was measured with BDI and Anxiety symptoms with STAI. WHOQOL-BREF was used to assess Quality of life. The relationship among anxiety, depression and QOL were analysed using diagonal matrix, ANOVA and Pearson correlation test.Results: The mean age of participants was 50.23 (S.D= 6.11), BDI score was 13.65(S.D= 11.301), STAI score was 53.90 (SD= 15.821), WHOQOL- BREF in all four domains was 290.90 (S.D=49.42). There was significant correlation between BDI and STAI (P=0.01, r:0.651 ) and the three domains of WHOQOL- BREF(P=0.01, r:0.821, 0.843, 0.635 respectively) scale except Environment domain. Among the participants, 48.4% (ICD 10) had depression of varying degree along with 54.8% depression as per BDI cut off score. Anxiety disorder was seen in 22.6% as per ICD 10 but as per STAI it was 53.90(SD=15.821) which was statistically significant (p:0.01, r: -0.507). Depression when compared with no diagnosis persons has poor quality of life in WHOQOL-BREF physical domain (p:0.002) but with compared to Anxiety or both it was not statistically significant.Conclusion: The findings of this study revealed that mothers of children having Intellectual disability have high level of Anxiety and Depression which indeed had impact in quality of life. J Psychiatrists’ Association of Nepal Vol. 6, No. 2, 2017 Page: 28-35

MY CHILD’S DISABILITY AND ME”: IMPACT OF CHILD DISABILITY ON MATERNAL QUALITY OF LIFE AND COPING STRATEGY

2021 ◽  
Vol 23 (07) ◽  
pp. 1406-1418
Author(s):  
Shreya Chaudhary ◽  
Keyword(s):  
Quality Of Life ◽  
Coping Strategies ◽  
Visually Impaired ◽  
Hearing Impaired ◽  
Disabled Children ◽  
Intellectually Disabled ◽  
And Coping ◽  
Impaired Children ◽  
Hearing Impaired Children

The birth of differently-abled child brings huge impact on the life of parents. This condition results in adverse impact on quality of life of parents. The study examined the components of quality of life and coping strategies of mothers of children with visual impairment, hearing impairment, locomotor disability, and intellectual disability. This was a cross-sectional, ex-post facto research study. The statistical population included the mothers of differently abled children. 200 mothers of differently-abled children participated in the study. WHOQOL-BREF and Coping strategies scale was used for data collection. Findings revealed that the quality of life has statistically significant difference among the mothers of visually impaired, hearing-impaired children and mothers of locomotor disabled and intellectually disabled children. The mothers of visually impaired and hearing-impaired children use approach coping more than the mothers of intellectually disabled and locomotor disabled children. The avoidance coping is used more by mothers of locomotor disabled children followed by mothers of intellectually disabled children. Efficient social skill training programs should be provided to enhance their social network and quality of life. The professionals should also assess the needs, potential problems of mothers and integrate effective strategies with the treatment of their children.

Health- and Vision-Related Quality of Life in Intellectually Disabled Children

2010 ◽  
Vol 87 (1) ◽  
pp. 37-44 ◽  
Author(s):  
Yu Cui ◽  
Fiona Stapleton ◽  
Catherine Suttle ◽  
Anita Bundy
Keyword(s):  
Quality Of Life ◽  
Disabled Children ◽  
Intellectually Disabled ◽  
Related Quality

Family burden and quality of life of mothers of children and adolescents with mental retardation or borderline mental capacity

2016 ◽  
Vol 33 (S1) ◽  
pp. S192-S192
Author(s):  
L. Utas Akhan
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Mental Capacity ◽  
World Health ◽  
Family Burden ◽  
Disabled Children ◽  
World Health Organization Quality ◽  
Significant Difference ◽  
The Family

IntroductionStudies have found that the cognitive function levels of intellectually challenged children add a burden to the family and affect quality of life.ObjectivesThe purpose of this study was to determine the family burden felt by mothers of children, ages 6–16, whose mental capacity evaluation indicates an IQ of 35–79 to explore the mother's quality of life and discover the factors that yield an impact in this context.AimsThe main objective of this study therefore was to ascertain the family burden and quality of life experienced by the parents of children with mentally retarded or borderline mental capacity.MethodsThe WISC-R test was used in the research to determine the intellectual capacity of children, 6–16 years of age. The sample comprised 131 children and adolescents between the ages 6–16 with IQs in the interval of 35–79 and their mothers. The parents accompanying their children were assessed using the Family Burden Assessment Scale, the World Health Organization Quality of Life instrument and a sociodemographic questionnaire that was filled out during face-to-face interviews.ResultsThe quality of life of the mothers was found to be average. At the same time, as the IQ level of the children went up, the less the mothers felt they were under a family burden. It was seen that the mothers experienced the most difficulty in the domains of “perception of inadequacy” and “emotional burden.”ConclusionMothers with intellectually disabled children need psychosocial support. Providing all members of the family with counseling services to help them cope with the issues and responsibilities involved in the care of disabled children may make a significant difference in quality of life.Disclosure of interestThe author has not supplied his/her declaration of competing interest.

Health-Related Quality of Life in Primary Caregivers of People Receiving Palliative Home Care

2022 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Nadia Carolina Reina-Gamba ◽  
Judith Medellin-Olaya ◽  
Daira Vanesa Burbano-Rivera ◽  
Hilda Mireya Miranda-Rojas ◽  
Lina Maria Vargas-Escobar ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Home Care ◽  
Primary Caregivers ◽  
Health Related Quality ◽  
Palliative Home Care ◽  
Related Quality ◽  
Health Related

scholarly journals Hubungan Interaksi Sosial Dengan Kualitas Hidup Lansia Di Wilayah Kerja Puskesmas Bangkala Kelurahan Biring Romang

2020 ◽  
Vol 5 (1) ◽  
pp. 1-8
Author(s):  
Kurniawan Amin ◽  
Sigit Mulyono ◽  
Lili Herlina
Keyword(s):  
Quality Of Life ◽  
Social Interaction ◽  
Health Center ◽  
Elderly Person ◽  
The Elderly ◽  
P Value ◽  
Cross Sectional ◽  
Work Area ◽  
Relationship Of

Quality of life is a level that describes the advantages of an individual that can be assessed from their lives. The purpose of this study was to determine the relationship of social interaction with the quality of life of the elderly in the work area of Bangkala Health Center, Kel. Biring Romang, Kec Manggala, Makassar City. Method: This research is a quantitative study with a type of research with cross-sectional studies with a sample size of 219 respondents using a computerized application of SPSS 20 Che Square test. The results showed that interaction using social media in the elderly P-value = 0,000, which means there is a significant relationship between quality of life in the elderly in the area of Bangkala Health Center, Kel. Biring Romang, Kec. Manggala, Makassar City. Conclusion: There is a relationship between quality of life in the elderly, therefore it is expected that an elderly person should slowly be acquainted with so that in the process of daily life can do social interaction Keywords: Social Interaction, Quality of Life.

scholarly journals Prevalence and correlates of depression and quality of life among primary caregivers of patients with schizophrenia attending a Nigerian Tertiary Hospital

BJPsych Open ◽  
2021 ◽  
Vol 7 (S1) ◽  
pp. S3-S4
Author(s):  
Akinloye Akinfala ◽  
Oladipo Sowunmi ◽  
Imam Sakeeb
Keyword(s):  
Quality Of Life ◽  
Mental Illness ◽  
Rating Scale ◽  
Primary Caregivers ◽  
Previous Treatment ◽  
Female Gender ◽  
World Health ◽  
World Health Organization Quality ◽  
Prevalence Of Depression

AimsTo determine the prevalence and correlates of depression and quality of life and their relationship among primary caregivers of patients with schizophrenia in a psychiatry specialist hospital.MethodA total of 138 caregivers of patients diagnosed with schizophrenia attending the outpatient clinic of the Neuropsychiatric Hospital Aro, Abeokuta were recruited. Sociodemographic questionnaire, Mini International Neuropsychiatric Interview (MINI-PLUS) (depressive module) and World Health Organization Quality of Life-Bref (WHOQOL-Bref) were administered on the caregivers while Brief Psychiatric Rating Scale (BPRS) was used to measure symptoms severity in the patients.ResultThe mean (±SD) age of respondents was 48.3 years (±14.7), 53.6% were females and 33.3% were without partners. The prevalence of depression among the caregivers who participated in the study was 13.8%. Female gender (χ2 = 5.68, df = 1, p = 0.02), hailing from a minority tribe (χ2 = 9.78 df = 1, p < 0.01), and Previous treatment for mental illness (χ2 = 8.24 df = 1, p < 0.01) were associated with depression. Female gender (ß = 1.35, OR = 3.86, p = 0.03), minority tribe (ß = 1.95, OR = 7.03, p < 0.01), and previous treatment for mental illness (ß = 3.19, OR = 24.21, p = 0.01) were independently predictive of depression in the caregivers.Independent predictors of lower quality of life (QOL) were: Parents/siblings relationship for social relationship domain (ß = −7.076, p = 0.037) and spending more than 35 hours per week for Environmental domain (ß = −5.622, p = 0.028).Finally, a significant correlation was also found between Depression and Psychological Domain of QOL (t = 3.048, p < 0.01) and Social Domain of QOL (t = 2.154, p = 0.03).ConclusionThis study shows that primary caregivers of patients with schizophrenia have high prevalence of depression and poor quality of life. There is need to pay attention to the psychological wellbeing and quality of life of caregivers who come in contact with psychiatric services, and not just the patients they accompany.

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