scholarly journals Factors related to parent-child communication about end-of-life care -A survey of adult children with an elderly parent-

2018 ◽  
Vol 55 (3) ◽  
pp. 378-385
Author(s):  
Kazuhiro Nakazato ◽  
Tomoko Wakui ◽  
Ryo Hirayama ◽  
Chiho Shimada
Keyword(s):  
End Of Life ◽  
Adult Children ◽  
End Of Life Care ◽  
Life Care ◽  
Elderly Parent ◽  
Parent Child Communication ◽  
Parent Child

scholarly journals Conversations About Death and Dying, End-of-Life Care Plans and Preferences Between Aging Parents and Adult Children

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 417-417
Author(s):  
Hyo Jung Lee ◽  
Jacobbina Jin Wen Ng
Keyword(s):  
Decision Making ◽  
End Of Life ◽  
Adult Children ◽  
End Of Life Care ◽  
Death And Dying ◽  
Family Members ◽  
Life Care ◽  
Joint Decision ◽  
Aging Parents ◽  
Care Plans

Abstract This study aims to investigate whether attitude and perception on late-life death and dying, end-of-life care plans and preferences could be better understood from current values shared between aging parents and their adult children in the multi-cultural city-bound country, Singapore. We are in the process of interviewing 20 aging parent-adult child dyads. Up to date, six semi-structured interviews were completed and transcribed. We performed Content analysis to analyze the transcripts. Preliminary findings showed that both aging parents and adult children rarely discussed this issue, although parents had their own plans or preferences. The major barriers against open conversations about death and dying of aging parents include: the perception of not-yet time to talk about this issue (without knowing when the right time is) and tendency to have conversations about death in tandem with finances, but not death itself. Although specific end-of-life care plans or arrangements were not thought out thoroughly, aging parents expressed a high level of trust and reliance on close family members’ decisions regarding their end-of-life care. They tended to agree on joint decision-making process within family, even though adult children had no or unmatched ideas about their aging parents’ end-of-life wishes. This did not necessarily align with previous findings in Western countries, underscoring individuals’ control over their own death and dying process. Open conversation within family, family-involved advance care planning, or joint decision-making processes may be warranted to promote quality of life and death in older Singaporeans and well-being of their family members of all ages.

scholarly journals INTERGENERATIONAL SOLIDARITY AND PARENT-CHILD DISCUSSION ON END-OF-LIFE CARE IN JAPAN

2017 ◽  
Vol 1 (suppl_1) ◽  
pp. 379-379
Author(s):  
R. Hirayama ◽  
C. Shimada ◽  
T. Wakui ◽  
K. Nakazato
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Intergenerational Solidarity ◽  
Life Care ◽  
Parent Child

scholarly journals Perspectives of elders and their adult children of Black and minority ethnic heritage on end-of-life conversations: A meta-ethnography

2020 ◽  
Vol 34 (2) ◽  
pp. 195-208 ◽  
Author(s):  
Joanna De Souza ◽  
Karen Gillett ◽  
Katherine Froggatt ◽  
Catherine Walshe
Keyword(s):  
End Of Life ◽  
Adult Children ◽  
End Of Life Care ◽  
Quality Level ◽  
Care Planning ◽  
Life Care ◽  
Inclusion Criteria ◽  
Ethnic Heritage ◽  
Critical Appraisal Skills ◽  
Minority Ethnic

Background: People of Black and minority ethnic heritage are more likely to die receiving life supporting measures and less likely to die at home. End-of-life care decision making often involves adult children as advance care planning is uncommon in these communities. Physicians report family distress as being a major factor in continuing with futile care. Aim: To develop a deeper understanding of the perspectives of elders of Black and minority ethnic heritage and their children, about end-of-life conversations that take place within the family, using a meta-ethnographic approach Design: Systematic interpretive exploration using the process of meta-ethnography was utilised. Data sources: CINAHL, MEDLINE, PubMed and PsycINFO databases were searched. Inclusion criteria included studies published between 2005 and 2019 and studies of conversations between ethnic minority elders and family about end-of-life care. Citation snowballing was used to ensure all appropriate references were identified. A total of 13 studies met the inclusion criteria and required quality level using Critical Appraisal Skills Programme. Results: The following four storylines were constructed: ‘My family will carry out everything for me; it is trust’; ‘No Mum, don’t talk like that’; ‘I leave it in God’s hands’; and ‘Who’s going to look after us?’ The synthesis reflected the dichotomous balance of trust and burden avoidance that characterises the perspectives of Black and minority ethnic elders to end-of-life care planning with their children.

scholarly journals Can We Talk About It Now? Recognizing the Optimal Time to Initiate End-of-Life Care Discussions with Older Chinese Americans and Their Families

2018 ◽  
Vol 29 (6) ◽  
pp. 532-539 ◽  
Author(s):  
Han-Lin Chi ◽  
Janine Cataldo ◽  
Evelyn Y. Ho ◽  
Roberta S. Rehm
Keyword(s):  
End Of Life ◽  
Adult Children ◽  
End Of Life Care ◽  
Chinese Americans ◽  
Community Dwelling ◽  
Optimal Time ◽  
Optimal Timing ◽  
Life Care ◽  
Older Chinese ◽  
Older Chinese Americans

Introduction: Older Chinese Americans often defer end-of-life care discussions. Researchers sought to explore how to engage older Chinese Americans and their families in end-of-life care discussions and to understand the optimal timing to initiate such discussions. Methods: Individual, semistructured interviews were conducted with 14 community-dwelling older Chinese Americans, 9 adult children, and 7 clinicians. The data were collected and analyzed using focused ethnographic methodology. Results: Older Chinese Americans and their families would discuss end-of-life care when introduced at “optimal times,” which included after-triggering events (e.g., death of loved ones, fall accidents), changes in health status, or advanced age. Discussion: Adult children are not expected to initiate end-of-life care discussions with their parents. Thus, culturally congruent health care that could better engage Chinese Americans in such discussions would be optimized by having clinicians proactively assess their patients’ readiness and initiate such discussion at optimal times.

scholarly journals FREQUENCY OF CONTACT AMONG FAMILY MEMBERS AND END-OF-LIFE CARE PLANNING

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S669-S670
Author(s):  
Meghan McDarby ◽  
Elissa K Kozlov ◽  
Brian Carpenter
Keyword(s):  
End Of Life ◽  
Adult Children ◽  
End Of Life Care ◽  
Adult Child ◽  
Potential Range ◽  
Life Care ◽  
Care Plans ◽  
Phone Calls ◽  
Frequency Of Contact ◽  
Future Care

Abstract The purpose of the current analysis was to examine how contact between adult children and their older parents may relate to having end-of-life care conversations. We analyzed responses from adult children (n = 66) of 36 older adults (65+) who participated in an intervention to improve family communication. Children reported the frequency of their in-person and phone contact with parents. They also completed the Conversations about Care Arrangements Scale (alpha = 0.95), 8 items that measure the extent to which adult children have discussed plans about future care with their parents (1=have not talked at all, 5=talked extensively). We calculated a composite from all 8 items (potential range 5-40). Participants reported that they had, on average, not talked extensively with their parent about plans for future care (M = 18.7, SD = 8.22). Overall, 42.4% of children reported that they visited their parent one time or less per year. Children reported speaking on the phone with their parent an average of 4.74 times per week (SD = 6.80, range = 0-30) and initiating an average of 2.59 of those calls (SD = 3.82, range = 1-20). Frequency of weekly phone conversations between child and parent was significantly associated with having talked more extensively about future care plans (r = 0.25, p < 0.05), as was frequency of phone calls initiated by the adult child (r = 0.29, p < 0.05). Frequency of in-person visits to parents was not significantly associated with conversations. Infrequent contact may limit opportunities for care conversations.

scholarly journals ADULT CHILDREN’S UNDERSTANDING OF PARENTS’ CARE AND LIVING PREFERENCES AT END OF LIFE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S668-S669
Author(s):  
Meghan McDarby ◽  
Matthew Picchiello ◽  
Elissa K Kozlov ◽  
Catherine Ju ◽  
Dani Worthalter ◽  
...  
Keyword(s):  
End Of Life ◽  
Family Communication ◽  
Adult Children ◽  
End Of Life Care ◽  
Medical Decision ◽  
Life Care ◽  
Demographic Differences ◽  
Frequency Of Contact ◽  
Healthcare Decision Making

Abstract Adult children who are uninformed about their parents’ preferences for end-of-life care may not be prepared to advocate on their behalf when the circumstances arise. The purpose of the current analysis was to examine how well adult children understand their parents’ end of life preferences. We analyzed responses from adult children (n = 70) of 40 older adults (65+) who participated in an intervention to improve family communication about end-of-life care. We compared children’s and parents’ responses on the same set of 6 questions about healthcare decision-making (e.g., “Which medical decision-maker has the final say?”) and 4 questions about living preferences (e.g., “Would you want to move to a nursing home?”). We also examined demographic differences between children who had higher agreement (≥ 6/10 questions correct; n = 32) versus lower agreement (<6/10 questions correct; n = 38). On average, children provided the same response as their parents on approximately 5 out of 10 questions. Overall, adult children answered more questions correctly about living preferences compared to preferences about healthcare decisions (t(69) = 6.59, p < 0.001). In terms of demographic characteristics, there were no significant differences between children with higher and lower agreement with their parents’ preferences on variables including gender, frequency of contact with parents, and living proximity to parents. Our results underscore the need for increased communication between adult children and their parents about topics likely to influence quality of care at end of life.

Dysphagia in Hospice Care: The Roles of Social Work and Speech-Language Pathologists

2014 ◽  
Vol 23 (4) ◽  
pp. 173-186 ◽  
Author(s):  
Deborah Hinson ◽  
Aaron J. Goldsmith ◽  
Joseph Murray
Keyword(s):  
Social Work ◽  
End Of Life ◽  
Case Studies ◽  
End Of Life Care ◽  
Hospice Care ◽  
Patient Communication ◽  
Life Care ◽  
Speech Language Pathologists ◽  
Four Levels

This article addresses the unique roles of social work and speech-language pathologists (SLPs) in end-of-life and hospice care settings. The four levels of hospice care are explained. Suggested social work and SLP interventions for end-of-life nutrition and approaches to patient communication are offered. Case studies are used to illustrate the specialized roles that social work and SLP have in end-of-life care settings.

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