scholarly journals Perspectives on Telehealth Projects in Northern Communities: Lessons Learned for Decolonized Participatory Design and Assessment

2021 ◽  
Author(s):  
Joelena Leader ◽  
Abby Goodrum
Keyword(s):  
Participatory Design ◽  
Indigenous Communities ◽  
Healthcare Services ◽  
Lessons Learned ◽  
Structural Constraints ◽  
Knowledge Mobilization ◽  
Community Based ◽  
Community Benefit ◽  
Technological Limitations

Northern and Indigenous communities face well documented challenges to accessing services and are impeded by significant infrastructure and technological limitations prompting the urgency to adopt innovative approaches to overcome these barriers. Telehealth – the means of accessing healthcare services and information across distance – promises to augment services to address access issues, yet notable utilization and structural constraints remain. Drawing on a recent community-based study capturing the perspectives from four Northern Saskatchewan communities on telehealth utilization, this paper draws attention to the importance of community collaborations as crucial to better decision-making and pathways forward. Specifically, this work identifies the need for decolonized participatory design (PD) and participatory technology assessment models that consider broader socio-cultural and technical factors to inform Indigenous technology design, adoption, and assessment for long-term community benefit. Further, to this is the need for community driven approaches and engagement through knowledge mobilization strategies that could better inform future community development.

Maximizing Outcomes in Group Treatment of Aphasia: Lessons Learned From a Community-Based Center

2014 ◽  
Vol 24 (3) ◽  
pp. 100-105 ◽  
Author(s):  
Darlene Williamson
Keyword(s):  
Group Treatment ◽  
Treatment Protocol ◽  
Lessons Learned ◽  
Group Program ◽  
Community Based ◽  
Multiple Treatment ◽  
Use Of Technology ◽  
Communication Impairments ◽  
Treatment Settings

Given the potential of long term intervention to positively influence speech/language and psychosocial domains, a treatment protocol was developed at the Stroke Comeback Center which addresses communication impairments arising from chronic aphasia. This article presents the details of this program including the group purposes and principles, the use of technology in groups, and the applicability of a group program across multiple treatment settings.

Sustaining University-Community Partnerships in Indigenous Communities: Five Lessons from Papakōlea

2019 ◽  
Vol 16 (1-2) ◽  
pp. 35-63
Author(s):  
Robert Agres ◽  
Adrienne Dillard ◽  
Kamuela Joseph Nui Enos ◽  
Brent Kakesako ◽  
B. Puni Kekauoha ◽  
...  
Keyword(s):  
Learning Community ◽  
Ways Of Knowing ◽  
Indigenous Communities ◽  
Community Based ◽  
Urban And Regional Planning ◽  
Culture Of Learning ◽  
Community Values ◽  
University Of Hawai'i ◽  
The University

This resource paper draws lessons from a twenty-year partnership between the Native Hawaiian community of Papakōlea, the Hawai‘i Alliance for Community-Based Economic Development, and the Department of Urban and Regional Planning at the University of Hawai‘i. Key players and co-authors describe five principles for sustained partnerships: (1) building partnerships based upon community values with potential for long-term commitments; (2) privileging indigenous ways of knowing; (3) creating a culture of learning together as a co-learning community; (4) fostering reciprocity and compassion in nurturing relationships; and (5) utilizing empowering methodologies and capacity-building strategies.

Peer support in community settings: getting back to our roots

2017 ◽  
Vol 21 (3) ◽  
pp. 184-190 ◽  
Author(s):  
David Crepaz-Keay
Keyword(s):  
Mental Health ◽  
Peer Support ◽  
Community Settings ◽  
Community Based ◽  
Community Benefit ◽  
Content Type ◽  
Mental Health Foundation ◽  
The Impact

Purpose The purpose of this paper is to look at peer support in the context of broader communities. Design/methodology/approach It builds on the author’s experience working with the Mental Health Foundation of developing delivering and evaluating several self-management and peer support initiatives in a variety of settings with a range of different peer groups. It will consider what constitutes a peer and a community, and explore the notion of community solutions for community problems. Findings Peer support in community settings has the capacity to address social isolation, build skills and self-esteem and give individuals a better quality of life – it can also add value to whole communities and reframe the way entire groups are considered within them. It has the ability to be both more accessible and less stigmatising and thus reach more people. This also offers community based peer support as a contributor to preventing the deterioration of mental health and potentially reducing the impact of mental ill-health. Social implications The author needs to think more in terms of whole community and get better at improving how the author measures and articulates this community benefit. This will allow us to make better decisions about how best to apply resources for long term whole community gain. Peer support and peer leadership needs to be at the heart of this process. Originality/value This paper places a familiar approach in a different setting placing peer support firmly outside services and within comunities.

scholarly journals Learning to Fail Better: Reflections on the Challenges and Risks of Community-Based Participatory Mental Health Research With Inuit Youth in Nunavut

2021 ◽  
Vol 9 ◽  
Author(s):  
Polina Anang ◽  
Nora Gottlieb ◽  
Suzanne Putulik ◽  
Shelley Iguptak ◽  
Ellen Gordon
Keyword(s):  
Collective Efficacy ◽  
Community Based Participatory Research ◽  
Indigenous Communities ◽  
Well Being ◽  
Moral Dilemmas ◽  
Lessons Learned ◽  
Colonial Power ◽  
Power Structures ◽  
Community Based ◽  
On The Road

Community-based participatory research (CBPR) is a mine field of moral dilemmas. Even when carefully planned for and continuously critically reflected upon, conflicts are likely to occur as part of the process. This paper illustrates the lessons learned from “Building on Strengths in Naujaat”, a resiliency initiative with the objective of promoting sense of belonging, collective efficacy, and well-being in Inuit youth. Naujaat community members over time established strong meaningful relationships with academic researchers. Youth took on the challenge of organizing community events, trips out on the land, and fundraisers. While their creativity and resourcefulness are at the heart of the initiative, this paper explores conflicts and pitfalls that accompanied it. Based on three themes – struggles in coming together as academic and community partners, the danger of perpetuating colonial power structures, and the challenges of navigating complex layers of relations within the community – we examine the dilemmas unearthed by these conflicts, including an exploration of how much we as CBPR researchers are at risk of reproducing colonial power structures. Acknowledging and addressing power imbalances, while striving for transparency, accountability, and trust, are compelling guiding principles needed to support Indigenous communities on the road toward health equity.

scholarly journals Supporting cancer control for Indigenous Australians: initiatives and challenges for cancer councils

2008 ◽  
Vol 32 (1) ◽  
pp. 56 ◽  
Author(s):  
Shaouli Shahid ◽  
Kerri R Beckmann ◽  
Sandra C Thompson
Keyword(s):  
Cultural Awareness ◽  
Indigenous Population ◽  
Cancer Control ◽  
Indigenous Communities ◽  
Developed Countries ◽  
Lessons Learned ◽  
Indigenous Australians ◽  
Cancer Statistics ◽  
Local Partnerships

As in other developed countries, the Australian population is ageing, and cancer rates increase with age. Despite their substantially lower life expectancy, Indigenous Australians are also experiencing concerning cancer statistics, characterised by increasing rates, later diagnosis, higher mortality, and lower participation in screening than the non-Indigenous population. Eighteen months after the first national Indigenous Cancer Control Forum, this environmental scan within the statebased Cancer Councils was undertaken to map activities in service provision in Indigenous cancer control with a view to sharing the lessons learned. The findings show that although most of the organisations had tried to work with Indigenous communities on cancer issues, there have been difficulties in building and sustaining relationships with Indigenous organisations. Lack of having Indigenous staff internally, few Indigenous-specific resources, and few planned, long-term commitments were some of the major impediments. Some of these limitations can easily be overcome by building and improving regional or local partnerships, providing cultural awareness training to internal staff, and by building the capacity of Indigenous organisations. Health promotion projects of the Cancer Councils directed at Indigenous people could be more effectively implemented with such considerations.

scholarly journals “Stay with your words”: Indigenous youth, local policy, and the work of language fortification

2016 ◽  
Vol 24 ◽  
pp. 52 ◽  
Author(s):  
Elizabeth Sumida Huaman ◽  
Nathan D. Martin ◽  
Carnell T. Chosa
Keyword(s):  
Policy Development ◽  
Indigenous Communities ◽  
Local Policy ◽  
Community Based ◽  
Indigenous Youth ◽  
Pueblo Indian ◽  
Agents Of Change ◽  
Alternative Approaches ◽  
Key Steps

This article focuses on the work of cultural and language maintenance and fortification with Indigenous youth populations. Here, the idea of work represents two strands of thought: first, research that is partnered with Indigenous youth-serving institutions and that prioritizes Indigenous youth perspectives; and second, the work of cultural and linguistic engagement that is often taken for granted as part of the sociocultural fabric of Indigenous communities where youth are active participants. By highlighting a study with Pueblo Indian youth in the southwestern United States, we aim to build on the counter-narrative frameworks of other educational scholars and community-based researchers in order to offer alternative approaches towards understanding how Indigenous youth can and do participate in representing themselves as cultural and language agents of change. Arriving at this realization requires several key steps, including deconstructing dominant assumptions, holding ourselves accountable for interrogating and revisiting our own biases, and ultimately committing to long-term research and support with Indigenous youth. As such, we offer empirical evidence that contradicts universal discourse of Indigenous peoples and youth as victims at risk. Instead, we focus on the ways in which Indigenous youth demonstrate both tentative and bold fortification of key elements in their Indigenous identities and illustrate promise in contribution to multiple levels of policy development to address their communities’ most urgent needs and goals. 

Spiritual Beliefs and Ecological Traditions in Indigenous Communities in India: Enhancing Community-Based Biodiversity Conservation

2011 ◽  
Vol 6 (2) ◽  
pp. 168-191 ◽  
Author(s):  
Maria Costanza Torri ◽  
Thora Martina Herrmann
Keyword(s):  
Cultural Practices ◽  
Indigenous Communities ◽  
Current Status ◽  
Cultural Representations ◽  
Community Based ◽  
Cultural Traditions ◽  
Conservation Policies ◽  
Community Based Conservation ◽  
Sustainable Conservation

From time immemorial, local and indigenous communities in India have developed traditions, representations, and beliefs about the forest and biodiversity. The cultural practices and beliefs of a community play a significant role in enhancing community-based initiatives, particularly in achieving sustainability in the long term. Nevertheless, too often conservation policies do not take into consideration the link between the culture of local communities and their environment. A comprehensive understanding of the relationship between cultural traditions and practices related to biodiversity and their current status and manifestations is crucial to the concept of effective and sustainable conservation policy. This article examines the traditional practices of the communities in the Sariska region (Rajasthan, India) as well as their beliefs and their values, underlining the special relationship that these tribal and indigenous communities maintain with the forest and their usefulness in community-based conservation. Some conclusive remarks on the importance of adapting conservation approaches to local cultural representations of the environment will be drawn.

Participatory Design of Language and Culture Archives

2021 ◽  
Author(s):  
Christina Wasson
Keyword(s):  
Cultural Heritage ◽  
Participatory Design ◽  
Indigenous Communities ◽  
Indigenous Language ◽  
Endangered Languages ◽  
Community Members ◽  
Community Based ◽  
User Research ◽  
Language And Culture ◽  
Indigenous Materials

Online archives to preserve and share Indigenous language and culture materials emerged in the 1990s and 2000s. They were, in part, a response to concerns about Indigenous language and culture loss that gained prominence during that time period, both in Indigenous communities and in fields such as anthropology and linguistics. From an Indigenous perspective, language and culture were central to community members’ identities and exercise of sovereignty. The development of online archives was also facilitated by technology advances in the 1990s and 2000s, including more sophisticated online platforms for storing and sharing information, broader access to the internet, and digital recording technologies. Prior to the development of online archives, traditional brick-and-mortar archives had a long history of collecting language and culture materials from Indigenous communities. However, they operated in a colonial context in which their practices contributed to the subjugation of Native peoples. In response, the 1970s and 1980s saw a rise in tribal archivists and Indigenous approaches to managing Indigenous materials and collections. Concerns to treat Indigenous materials appropriately and with respect have continued with the development of online archives. One focus has been Indigenous data sovereignty. Some online archives have focused more on language and some have focused more on cultural heritage. The field of documentary linguistics has been highly active in developing language archives, with a particular concern for endangered languages. For example, Endangered Languages Archive (ELAR), Pacific and Regional Archive for Digital Sources in Endangered Cultures (PARADISEC), Archive of the Indigenous Languages of Latin America (AILLA), and The Language Archive (TLA) all include data from a large number of different languages. A smaller group of anthropologists has engaged with the development of cultural heritage archives. Anthropologists have also critiqued the colonial logics of traditional archives and theorized what a “postcolonial archive” might look like. Some cultural heritage archives have started to enact these new principles. At the same time, Indigenous communities have developed their own community-based archives, often focused on meeting the needs of community members. Although Indigenous community-based archives have generally had a solid understanding of the needs of their users, archives that collect materials from a large number of communities have not always conducted user research. A user-centered design approach to archives was initiated through a 2016 workshop funded by the US National Science Foundation. In addition, there has been a trend to integrate language and culture materials into combined archives. Participatory design may be the most appropriate approach for archive development because it recognizes and honors the sovereignty of the Indigenous peoples whose materials are included in an archive. One example of an ongoing participatory design process for an archive is a collaboration between Christina Wasson’s research team and four Indigenous communities in Northeast India. Language and culture archives offer opportunities for design anthropologists to engage in a more participatory process than is possible in most private sector work. Many archives, museums, and libraries would be open to hiring people with this expertise.

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