scholarly journals Canada’s Health Data Repositories: Challenges of Organization, Discoverability and Access

2019 ◽  
Author(s):  
Ali Shiri ◽  
Gail M. Thornton
Keyword(s):  
Best Practices ◽  
Evidence Based Medicine ◽  
Open Data ◽  
Health Data ◽  
Evidence Based ◽  
Data Repositories ◽  
Data Environment ◽  
Based Medicine

Evidence-based medicine relies on health data. Open health data initiatives need to be supported with data repositories that are optimized for searchability and discoverability. Five Canadian open health data repositories were evaluated for metadata-based searching, browsing, and navigational functionalities. In the different national, provincial and institutional open data repositories evaluated, the preliminary findings reveal the variability in these functionalities. This research will contribute to the development of guidelines and best practices for implementing metadata and searching and browsing functionalities for open health data repositories that will ultimately lead to a more interoperable open health data environment.

scholarly journals Evidence-Based Medicine and Clinical Research: Both Are Needed, Neither Is Perfect

2018 ◽  
Vol 72 (Suppl. 3) ◽  
pp. 13-23 ◽  
Author(s):  
Hania Szajewska
Keyword(s):  
Health Outcomes ◽  
Clinical Research ◽  
Evidence Based Medicine ◽  
Health Data ◽  
Evidence Based ◽  
Clinical Expertise ◽  
Basic Principles ◽  
The World ◽  
Pediatric Nutrition ◽  
Based Medicine

Currently, it is impossible to think of modern healthcare that ignores evidence-based medicine (EBM), a concept which relies on 3 pillars: individual clinical expertise, the values and desires of the patient, and the best available research. However, EBM is not perfect. Clinical research is also far from being perfect. This article provides an overview of the basic principles, opportunities, and controversies offered by EBM. It also summarizes current discussions on clinical research. Potential solutions to the problems of EBM and clinical research are discussed as well. If there were specific issues related to pediatric nutrition, an attempt was made to discuss the basic principles and limitations in this context. However, the conclusions are applicable to EBM and clinical research in general. In the future, considering that new ways of obtaining health data will continue to emerge, the world of EBM and clinical research is likely to change. The ultimate goal, however, will remain the same: improving health outcomes for patients.

Optimising the process for conducting scoping reviews

2020 ◽  
pp. bmjebm-2020-111452
Author(s):  
Colleen Pawliuk ◽  
Helen L Brown ◽  
Kim Widger ◽  
Tammie Dewan ◽  
Anne-Mette Hermansen ◽  
...  
Keyword(s):  
Best Practices ◽  
Scoping Review ◽  
Evidence Based Medicine ◽  
Knowledge Synthesis ◽  
Systematic Search ◽  
Evidence Based ◽  
Scoping Reviews ◽  
Current Guidance ◽  
Based Medicine

Knowledge synthesis constitutes a key part of evidence-based medicine and a scoping review is a type of knowledge synthesis that maps the breadth of literature on a topic. Conducting a scoping review is resource intensive and, as a result, it can be challenging to maintain best practices throughout the process. Much of the current guidance describes a scoping review framework or broad ways to conduct a scoping review. However, little detailed guidance exists on how to complete each stage to optimise the process. We present five recommendations based on our experience when conducting a particularly challenging scoping review: (1) engage the expertise of a librarian throughout the process, (2) conduct a truly systematic search, (3) facilitate communication and collaboration, (4) explore new tools or repurpose old ones, and (5) test every stage of the process. These recommendations add to the literature by providing specific and detailed advice on each stage of a scoping review. Our intent is for these recommendations to aid other teams that are undertaking knowledge synthesis projects.

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