scholarly journals The Perceived Impact of Diabetes Support Groups

2011 ◽  
Author(s):  
Rebecca Garofalo
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Subjective Experience ◽  
Well Being ◽  
Lifestyle Behaviors ◽  
Positive Health ◽  
Practice Nurses ◽  
Group Problem Solving ◽  
Perceived Impact ◽  
The Impact

<p>A dearth o f research exists describing the perceived impact o f diabetes support groups from the perspective o f support group participants. This study examined the subjective experience of being a participant in a diabetes support group upon a person's physical and emotional well being. Participants were recruited from a diabetes support group and interviewed individually through a series of open ended interview questions. The participants reported various physical and emotional challenges related to their diabetes. The support group was a source of information, hope, shared experience and group problem solving as individuals strived to maintain lifestyle behaviors required to manage their diabetes. This support group was a positive source of support for these participants. More studies, with larger sample sizes, examining support group interventions or strategies would be beneficial in order to gain an understanding of which aspects of a support group promote positive client outcomes. Advanced practice nurses play a pivotal role in designing further studies that examine the impact of support groups. This will enhance our understanding of a support group's role in sustaining and promoting positive health behaviors and well being. In order to continue this form of support in the community, health policy needs to address the funding of this resource to sustain it as a tertiary intervention in the future.</p>

3. Learning Modules in a Support Group Context for Caregivers of Individuals with Alzheimer’s Disease and Related Dementias

2017 ◽  
Author(s):  
Wafa Nurdin ◽  
Aicha Wane
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Support Groups ◽  
Support Group ◽  
Well Being ◽  
Community Dwelling ◽  
Daily Activities ◽  
Caregiver Support ◽  
Learning Modules ◽  
The Impact

The majority of community dwelling individuals with dementia have informal caregivers. With the risk of developing care related stress, it is important for community agencies, like the Alzheimer Society of Kingston (ASK), to provide support, resources, and information. The goal of this intervention was that caregivers of individuals with Alzheimer’s disease and related dementias (ADRD) would improve physical, social, and mental well-being. A search of the literature, as well as surveys of support group facilitators, forty caregivers, and consultation with ASK helped determine information relevant to the caregivers. The purpose of this project was to develop learning modules on: a) using a problem-based strategy to assist with daily activities of the person they are caring for; b) self-care strategies; c) positive coping strategies; d) assertive communication skills, and e) home environment safety to be delivered during caregiver support groups. The module on a problem-based strategy to assist with daily activities was pilot tested, utilizing five caregivers. It was found that the learning module was approximately 30 minutes over the stated timeframe and the case study component of the module was ineffective. Recommendations include implementing the module as two parts. Furthermore, additional research is needed on the impact of the modules on caregiver stress and burden.

scholarly journals Delivering an efficient and effective support group for patients with implantable cardioverter-defibrillators (ICDs): patient perspectives of key concerns and predictors of inclination to attend

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Kathryn Murray ◽  
Kelly Buttigieg ◽  
Michelle Todd ◽  
Vicky McKechnie
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Qualitative Data ◽  
Implantable Cardioverter Defibrillators ◽  
Cardioverter Defibrillator ◽  
And Coping ◽  
Patients Experience ◽  
The Impact ◽  
Cardioverter Defibrillators ◽  
Patient Concerns

Abstract Background A subset of patients experience psychological distress following insertion of an implantable cardioverter-defibrillator (ICD) and ICD support groups are recommended, however access to these groups is limited. This study aimed: to gauge a better understanding of patients’ key ICD-related concerns; to determine patient interest in a support group and topics deemed helpful to address in a support group; and to examine factors which affect patient inclination to attend. Methods One hundred and thirty nine patients completed the ICD Patient Concerns Questionnaire – Brief (ICDC-B) and a semi-structured survey. Non-parametric tests were used to examine associations and differences in the quantitative data. Qualitative data were analysed using thematic analysis. Results 42% of respondents said they would attend a support group and inclination to attend was associated with higher ICD concerns and a shorter time since implant. Topics considered important to address in a group were information about heart conditions and devices, the impact of an ICD on daily life and coping with fear of shocks. Conclusion We concluded that there is interest in further support amongst many patients and that ICD support groups may be delivered efficiently by targeting patients who have higher levels of ICD concerns and within the first few years after implant.

scholarly journals An evaluation of Cognitive Stimulation Therapy sessions for people with dementia and a concomitant support group for their carers

Dementia ◽  
2016 ◽  
Vol 16 (8) ◽  
pp. 985-1003 ◽  
Author(s):  
Jan Bailey ◽  
Paul Kingston ◽  
Simon Alford ◽  
Louise Taylor ◽  
Edward Tolhurst
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Qualitative Data ◽  
Cognitive Stimulation ◽  
Structured Interviews ◽  
Post Intervention ◽  
Cognitive Stimulation Therapy ◽  
People With Dementia ◽  
Quasi Experimental ◽  
The Impact

This research aimed to ascertain the impact of a pragmatic Cognitive Stimulation Therapy course of 10 sessions on the cognitive function of people living with dementia and whether attending a concomitant carers support group was beneficial to carers. A mixed method quasi-experimental approach was adopted; data were collected pre- and post-intervention. The quantitative arm utilised three validated questionnaires rated by the carers. Qualitative data were collected via semi-structured interviews with carers regarding their perceptions of the impact of Cognitive Stimulation Therapy and the carers support group. Quantitative data analysis found no statistically significant differences within or between groups. The qualitative data demonstrated that carers perceived Cognitive Stimulation Therapy had some benefits for the people living with dementia, especially social benefits. Carers also perceived that attending the carers support group was beneficial for them in terms of gaining a better understanding of dementia, developing coping skills and having peer support. The study was limited in scale and further research with a larger sample, using direct measures of the impact of Cognitive Stimulation Therapy with people living with dementia and supplementary research exploring which characteristic of carers support groups are effective would be worthwhile.

scholarly journals Trainees4trainees: an innovative peer support project for junior doctors across specialties

BJPsych Open ◽  
2021 ◽  
Vol 7 (S1) ◽  
pp. S126-S126
Author(s):  
Sophie Behrman ◽  
Aisling Higham ◽  
Haido Vlachos ◽  
Gerti Stegen
Keyword(s):  
Peer Support ◽  
Support Groups ◽  
Psychological Impact ◽  
Working Hours ◽  
Well Being ◽  
Training Programme ◽  
Mental Wellbeing ◽  
Junior Doctors ◽  
Training Programmes ◽  
The Impact

AimsThe BMA's survey results (Caring for the Mental Health of the Medical Workforce, 2019) and HEE's NHS Staff and Learners’ Mental Wellbeing Commission report (2019) highlighted declining staff wellbeing. The COVID-19 pandemic has sharpened focus on this and the effects of moral injury on healthcare professionals. Shielding, social distancing and redeployment led to many medical trainees being increasingly isolated at a time of heightened anxiety and adversity. Psychiatry trainees tend to have good access to reflective groups, but this is not customary in other training programmes.MethodIntervention“Trainees4trainees” was set up by trainees across specialties as a HEE-TV well-being project, led by the Deanery Trainee Improvement Fellow. Peer support groups are run on Zoom, facilitated by 2 trainees with special training in peer support. Psychiatry trainees have been involved in designing and facilitating groups and training facilitators from other specialties; facilitators have regular supervision from a consultant psychiatrist in medical psychotherapy. Trainees are supported to discuss challenging experiences and think about their emotional responses in a supportive and validating group.ResultFeedbackWe are in the process of formal data collection to assess the impact of the intervention. Informal feedback suggests the groups are a powerful support to individuals who otherwise have no avenue to think about the psychological impact of their experiences. The groups have supported trainees to feel less isolated and bolstered their resilience.ConclusionFuture plansWe have faced challenges in the practicalities of establishing and maintaining groups. We are working with Training Programme Directors to move towards running the groups in protected time within working hours and advocate that reflective groups, such as our peer support groups, are a key part of future medical and surgical Training Programmes.

Do online support groups help individuals affected by HIV/AIDS?: A systematic review of the quantitative and qualitative literature (Preprint)

2021 ◽  
Author(s):  
Neil Stewart Coulson ◽  
Heather Buchanan
Keyword(s):  
Systematic Review ◽  
Support Groups ◽  
Online Communication ◽  
Well Being ◽  
Qualitative Studies ◽  
Online Support ◽  
Illness Management ◽  
Online Support Groups ◽  
The Impact ◽  
Hiv Aids

BACKGROUND Online support groups provide opportunities for individuals affected by HIV/AIDS to seek information, advice and support from peers. However, if and how engagement with online support groups helps individuals affected by HIV/AIDS remains unclear. OBJECTIVE To systematically review the evidence (both quantitative and qualitative) around the benefits of online support groups for individuals affected by HIV/AIDS in terms of psychosocial wellbeing and/or illness management. In addition, the review sought to identify and describe any negative aspects experienced by individuals as well as the types of social support exchanged within such online groups. METHODS A systematic review of English language articles was undertaken using Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Databases searched included Medline, PubMed, EMBASE, CINAHL, PsycINFO, CENTRAL (Cochrane Register of Controlled Trials) and SCOPUS. Key findings were critically synthesized using a narrative and thematic approach. RESULTS 22 papers met the inclusion criteria from an initial pool of 4501 abstracts. These papers included 5 quantitative, 2 mixed-methods and 15 qualitative studies published between 2007 and 2019. CONCLUSIONS Some cross-sectional and qualitative studies suggest there may be an association between engagement and a range of psychosocial processes and outcomes. However, studies with robust methodological designs are needed to definitively establish whether HIV/AIDS-related online support groups improve psychosocial well-being and/or illness management. Qualitative data highlights users can have negative experiences in terms of interpersonal conflict and the challenges of encountering negative content. In addition, there may be aspects of the internet-mediated nature of the online communication which compromise member experiences. Finally, HIV/AIDS-related online support groups are venues through which individuals can solicit support, most commonly informational or emotional support. Future research should seek to examine the impact of engagement with online support groups over time including appropriate control or comparison groups. CLINICALTRIAL N/A

scholarly journals Participating in a support group: experience lived by women with breast cancer

2008 ◽  
Vol 16 (4) ◽  
pp. 733-738 ◽  
Author(s):  
Cleoneide Paulo Oliveira Pinheiro ◽  
Raimunda Magalhães da Silva ◽  
Marli Villela Mamede ◽  
Ana Fátima Carvalho Fernandes
Keyword(s):  
Breast Cancer ◽  
Breast Carcinoma ◽  
Support Groups ◽  
Support Group ◽  
Well Being ◽  
Self Esteem ◽  
Structured Interviews ◽  
The City ◽  
Group Experience ◽  
Differentiated Care

The goal of the study was to understand the meaning of support groups in the life of women with breast cancer. It is a qualitative study with 30 mastectomized women who belonged to six support groups in the city of Fortaleza, Ceará. Data were collected with semi-structured interviews, organized and analyzed based on the interactionism concept. The results characterized the support groups as a mechanism to cope with the situation and to overcome the suffering derived from the diagnosis and treatment of the breast carcinoma. The socialization of the experiences facilitated the search for assistance in the support groups, since sharing the problems with mastectomized women was a way to preserve a high self-esteem, have faith and overcome some difficulties. Participating in the group provided well-being and a differentiated care, since it was considered a way to know, accept and understand the disease and its cure, facilitating the socialization of ideas.

The Political and Economic Determinants of Health Outcomes: A Cross-National Analysis

1993 ◽  
Vol 23 (3) ◽  
pp. 585-602 ◽  
Author(s):  
Hugh F. Lena ◽  
Bruce London
Keyword(s):  
Health Outcomes ◽  
Well Being ◽  
International Investment ◽  
Complex Model ◽  
Left Wing ◽  
Positive Health ◽  
Economic Determinants ◽  
State Strength ◽  
National Analysis ◽  
The Impact

This article investigates the impact of selected political and economic processes on the well-being of domestic populations within samples of 50 to 84 peripheral and noncore nations. Existing research by Cereseto and Waitzkin on the relative merits of market versus socialist systems for the provision of health and welfare needs of their populations is extended by employing a more complex model than the original study. More specifically, the authors assess the impact on measures of population health and mortality rates of regime ideology, state strength, multinational corporate penetration, and position in the world economy. In general, high levels of democracy and strong left-wing regimes are associated with positive health outcomes, and strong right-wing regimes have populations with lower life expectancies and higher levels of various measures of mortality. These findings support the conclusion that political systems make a difference in health and well-being independent of national (gross national product per capita) and international (investment dependency) economic factors.

Effects of Support Groups on Post Traumatic Stress Responses in Women Experiencing Stillbirth

2007 ◽  
Vol 55 (1) ◽  
pp. 71-90 ◽  
Author(s):  
Joanne Cacciatore
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Stress Responses ◽  
Traumatic Stress ◽  
Post Traumatic Stress ◽  
Impact Of Event Scale ◽  
Event Scale ◽  
Quantitative Results ◽  
Post Traumatic ◽  
The Impact

This research study explores the effects of support groups on traumatic stress responses of women experiencing stillbirth. Women ( N = 47) responded to a mixed method questionnaire. Quantitative results utilizing the Impact of Event Scale Revised demonstrate that women who attend support group, when controlling for time, had fewer post traumatic stress symptoms than did the women who did not attend support group. Qualitative results elucidate the role of support groups in managing grief, suggesting that connectivity with other like women may be a useful strategy in reducing problematic psychological outcomes.

scholarly journals Not Able to Lead a Healthy Life When You Need It the Most: Dual Role of Lifestyle Behaviors in the Association of Blurred Work-Life Boundaries With Well-Being

2020 ◽  
Vol 11 ◽  
Author(s):  
Helen Pluut ◽  
Jaap Wonders
Keyword(s):  
Emotional Exhaustion ◽  
Healthy Lifestyle ◽  
Well Being ◽  
Dual Role ◽  
Work Life ◽  
Shared Responsibility ◽  
Lifestyle Behaviors ◽  
Subjective Well Being ◽  
The Impact

As there is a growing trend for people to work from home, precipitated by the COVID-19 pandemic, this research examines the impact of blurred work-life boundaries on lifestyle and subjective well-being. Our cross-sectional study in the Netherlands demonstrates that heightened levels of blurred work-life boundaries predict negative changes in happiness through enhanced emotional exhaustion. In addition, the findings point to a dual role of lifestyle in this process. On the one hand, we observed that healthy overall lifestyle patterns buffered employees against the detrimental effects of blurred work-life boundaries and emotional exhaustion on happiness. On the other hand, employees who experienced increases in blurring of work-life boundaries reported a deterioration in healthy lifestyle behaviors, which in turn was related to reduced happiness. Paradoxically, it seems that those who would benefit the most from a healthy lifestyle are less able to sustain health-promoting behaviors. A case for shared responsibility between employers and employees is built as we discuss the practical implications of the current research.

Assessing the impact of an online survivorship program.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. e285-e285
Author(s):  
Helayne Waldman ◽  
Shani Fox
Keyword(s):  
Cancer Survivors ◽  
Support Groups ◽  
Well Being ◽  
Dietary Guidelines ◽  
Care Plan ◽  
Survivorship Care Plan ◽  
Institute Of Medicine ◽  
Plan Implementation ◽  
Knowledge And Attitude ◽  
The Impact

e285 Background: In the report From Cancer Patient to Cancer Survivor: Lost in Transition (2006), the Institute of Medicine identified follow-up of cancer survivors as a missing link in cancer care and made recommendations to the medical establishment to fill that gap. So far, studies of recommendation effectiveness have revolved around survivorship care plan implementation. However, a 2013 study indicated that use of SCPs is still more the exception than the rule. Methods: We have created a unique online program that is intended to address two key mandates of the IOM report: 1) Educationfor theprevention of recurrent and new cancers, and 2) Self-carestrategiesto help deal with consequences of cancer and its treatment i.e. lymphedema, fatigue; [and] psychological distress. Dr. Helayne Waldman and Dr. Shani Foxhave fashioned an online, real time, 12 week education and support program for cancer survivors, the first of its type in the U.S. The focus of the content is on maintaining wellness after treatment and includes topics such as physical activity, dietary guidelines, inflammation control and stress management. The program also contains a coaching component, where participants track their activities and share information via live discussion and interactive blogs. Results: We have established a framework for gathering, analyzing and reporting our data. Our target sample size is 40-50 participants. At the program’s outset we will administer a 20 question self-assessment to test participants’ knowledge of self-care practices and attitudes about their current state of wellness. At the program’s end in December we'll readminister in order to measure the change in both knowledge and attitude. We’ll then conduct an analysis of the data, and will report our findings at the ASCO meeting in January. Conclusions: We believe that education and support for survivors is critical to their physical and emotional well-being. Unfortunately, there is currently no program available to do this in a live, interactive format from the comfort of one’s home. We believe PCPs, hospital support groups and other non-profits will find this type of program to be an invaluable resource in serving to educate and manage the concerns of cancer survivors and to move closer to realizing the promise of the IOM report.

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