scholarly journals Challenges to Family Caregivers in Caring for Gastric Cancer Patients from Perspectives of Family Caregivers, Patients, and Healthcare Providers: A Qualitative Study

2021 ◽  
Vol 0 ◽  
pp. 1-9
Author(s):  
Fariba Taleghani ◽  
Maryam Ehsani ◽  
Sedigheh Farzi ◽  
Saba Farzi ◽  
Peyman Adibi ◽  
...  
Keyword(s):  
Gastric Cancer ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Healthcare Providers ◽  
Physical Symptoms ◽  
Bad News ◽  
Psychological Consequences ◽  
Structured Interviews ◽  
Data Saturation ◽  
Gastric Cancer Patients

Objectives: Cancer affects both patients and their families. Sometimes, the effects of cancer on families are greater than its effects on patients. Family caregivers play significant roles in car for patients with cancer. Nonetheless, the data on the challenges they face in caregiving are limited. The present study explored the perspectives of patients with gastric cancer (GC), their family caregivers, and healthcare providers regarding family caregivers’ challenges in caregiving to patients with GC. Materials and Methods: This descriptive exploratory qualitative study was conducted in 2019–2020. Six GC patients, six family caregivers, three physicians, and five nurses took part for a total of twenty participants. Purposive sampling was performed, and data were collected through semi-structured interviews and continued up to data saturation. Conventional content analysis was used for data analysis. Results: Caregivers’ challenges in caregiving to patients with GC were grouped into five main categories, namely, lengthy process of GC diagnosis, delivery of bad news, management of physical symptoms, altered relationships, and psychological consequences, and 14 subcategories. Conclusion: Educating the public about the primary symptoms of GC and the importance of timely seeking medical care as well as using culturally appropriate protocols for delivering bad news is recommended. Empowering family caregivers for the effective management of GC symptoms and caregiving-related challenges are also recommended to reduce their caregiver burden.

scholarly journals White lie during patient care: A qualitative study of nurses’ perspectives

2020 ◽  
Author(s):  
Alireza Nikbakht nasrabadi ◽  
soodabeh joolaee ◽  
Elham Navab ◽  
Maryam esmaeilie ◽  
mahboobe shali
Keyword(s):  
Qualitative Study ◽  
Patient Care ◽  
Healthcare Providers ◽  
Cultural Knowledge ◽  
Hospital Nurses ◽  
Structured Interviews ◽  
Related Factors ◽  
Patient’S Rights ◽  
Wide Range ◽  
Data Saturation

Abstract Background: Keeping the patients well and fully informed about diagnosis, prognosis, and treatments is one of the patient’s rights in any healthcare system. Although all healthcare providers have the same viewpoint about rendering the truth in treatment process, sometimes the truth is not told to the patients; that is why the healthcare staff tell “white lie” instead. This study aimed to explore the nurses’ experience of white lies during patient care. Methods: This qualitative study was conducted from June to December 2018. Eighteen hospital nurses were recruited with maximum variation from ten state-run educational hospitals affiliated to Tehran University of Medical Sciences. Purposeful sampling was used and data were collected by semi-structured interviews that were continued until data saturation. Data were classified and analyzed by content analysis approach. Results: The data analysis in this study resulted in four main categories and eleven subcategories. The main categories included hope crisis, bad news, cultural diversity, and nurses’ limited professional competences. Conclusion: Results of the present study showed that, white lie told by nurses during patient care may be due to a wide range of patient, nurse and/or organizational related factors. Communication was the main factor that influenced information rendering. Nurses’ communication with patients should be based on mutual respect, trust and adequate cultural knowledge, and also nurses should provide precise information to patients, so that they can make accurate decisions regarding their health care.

scholarly journals Explain the Experience of Family Caregivers Regarding Care of Alzheimer's Patients: A Qualitative Study

2021 ◽  
Vol 12 ◽  
Author(s):  
Hadis Ashrafizadeh ◽  
Mahin Gheibizadeh ◽  
Maryam Rassouli ◽  
Fatemeh Hajibabaee ◽  
Shahnaz Rostami
Keyword(s):  
Content Analysis ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Personal Growth ◽  
Structured Interviews ◽  
Term Care ◽  
Care Experience ◽  
Four Dimensions ◽  
Data Saturation

Introduction: Due to the long-term and progressive nature of Alzheimer's disease, these patients need caregivers who will be responsible for their long-term care and who may then experience an increasing burden related to the progressive disease course, so it is important to understand the experiences of caregivers. The aim of this study was to explain the experience of family caregivers regarding care of Alzheimer's patients.Methods: The present qualitative study employed a conventional content analysis approach and was conducted in Iran in 2020. This research was done through in-depth and semi-structured interviews with 11 qualified caregivers enrolled in a purposive sampling method. Interviews continued until data saturation. Data analysis was performed simultaneously with data collection. Interviews were recorded, transcribed and analyzed through Graneheim and Lundman style content analysis and data management was done with MAXQDA software. In order to achieve the accuracy and validity of the study, the Four-Dimensions Criteria (FDC) by Lincoln and Guba, credibility, dependability, confirmability, and transformability were considered and used.Results: A total of 11 caregivers with mean age and standard deviation 48, ±26.12 participated in the study. The acquired data were put in two main categories of “burnout and exhaustion” with six subcategories and “excellence and personal growth” with three subcategories.Conclusion: In this study, we found that perceptions of caregivers' role were not the same among study participants, who experienced both positive and negative dimensions of care provision to AD patients. The care experience has a spectrum that, in some people, leads to positive outcomes such as growth. A major part of caregiver challenges is related to the burden of caregiving strain and the erosive nature of the disease. Therefore, health planners should identify the challenges, pain and suffering of caregivers and seek to address them through appropriate strategies.

scholarly journals Psychological consequences for family caregivers of patients receiving hemodialysis: threat or opportunity?

2021 ◽  
Vol 9 (1) ◽  
Author(s):  
Abbas Ebadi ◽  
Seyedeh Azam Sajadi ◽  
Seyed Tayeb Moradian ◽  
Roghayeh Akbari
Keyword(s):  
Family Caregivers ◽  
Psychological Disorders ◽  
Research Approach ◽  
Psychological Consequences ◽  
Structured Interviews ◽  
Main Category ◽  
Data Saturation ◽  
Positive Feelings ◽  
Related Stress ◽  
And Coping

Abstract Background Family caregivers of patients receiving hemodialysis experience physical and psychological disorders. They are unfortunately neglected. The aim of this study was to explain the psychological consequences for family caregivers of patients receiving hemodialysis. Methods This qualitative inductive conventional content analysis research approach was conducted in Tehran, Iran. Nineteen hemodialysis patient caregivers were enrolled via purposive sampling. Data collection was conducted through in-depth and semi-structured interviews until reaching data saturation. All interviews were recorded, transcribed, imported into the Open Code Software, and analyzed using the Graneheim and Lundman methods. Results The results included two main categories: (1) threats to the psychological integrity; (2) development of capabilities. The first main category comprised the sub-categories of “care-related negative feelings and emotions,” care-related stress and its behavioral impacts on care, “psychological disorders arising from care provision,” and “impaired quality and quantity of sleep.” The second main category comprised of the sub-categories of “care-related positive feelings and emotions” and “coping strategies.” Conclusions The present study showed that though caring for hemodialysis patients threatens the caregiver’s psychological integrity, it provides the opportunity of development capabilities.

scholarly journals NICU and postpartum nurse perspectives on involving fathers in newborn care: a qualitative study

BMC Nursing ◽  
2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Katharine W. Buek ◽  
Dagoberto Cortez ◽  
Dorothy J. Mandell
Keyword(s):  
Qualitative Study ◽  
Father Involvement ◽  
Perinatal Care ◽  
Healthcare Providers ◽  
Newborn Care ◽  
Small Scale ◽  
Structured Interviews ◽  
Provider Attitudes ◽  
Attitudes And Practices ◽  
Sense Of Efficacy

Abstract Background Perinatal care nurses are well positioned to provide the education and support new fathers need to navigate the transition to fatherhood and to encourage positive father involvement from the earliest hours of a child’s life. To effectively serve fathers in perinatal settings, it is important to understand the attitudes, beliefs, and behaviors of healthcare providers that may encourage and engage them, or alternatively alienate and discourage them. Methods This qualitative study involved structured interviews with ten NICU and postpartum nurses from hospitals in two large Texas cities. The interview protocol was designed to elicit descriptive information about nurses’ attitudes and beliefs, sense of efficacy and intention for working with fathers, as well as their father-directed behaviors. Nurses were recruited for the study using a purposive sampling approach. Interviews were conducted by telephone and lasted approximately 25 to 35 min. Data were analyzed using a qualitative descriptive approach. Results Overall, study participants held very positive subjective attitudes toward fathers and father involvement. Nevertheless, many of the nurses signaled normative beliefs based on race/ethnicity, gender, and culture that may moderate their intention to engage with fathers. Participants also indicated that their education as well as the culture of perinatal healthcare are focused almost entirely on the mother-baby dyad. In line with this focus on mothers, participants comments reflected a normative belief that fathers are secondary caregivers to their newborns, there to help when the mother is unavailable. Conclusions Nurse attitudes and practices that place mothers in the role of primary caregiver may be interpreted by fathers as excluding or disregarding them. Further research is needed to validate the results of this small-scale study, and to assess whether and how provider attitudes impact their practices in educating and engaging fathers in newborn care.

Perception of the lived experience of women with dyspareunia and vaginismus: qualitative study

2021 ◽  
Author(s):  
Maryam Heydarian ◽  
Maryam Gholamzadehjefreh ◽  
Shahbazi Masoud
Keyword(s):  
Lived Experience ◽  
Physical Symptoms ◽  
Research Literature ◽  
Sexual Intimacy ◽  
Structured Interviews ◽  
Purposeful Sampling ◽  
The Family ◽  
Data Saturation ◽  
The Individual ◽  
Inferiority Feeling

Aim: Dyspareunia and vaginismus are important issues in the lives of women with these disorders and have adverse, damaging consequences for the individual, the family, and the couple's intimacy. Therefore, the purpose of the present study was to investigate the lived experience of women with dyspareunia and vaginismus. Methods: The method of this study was descriptive-phenomenological psychological in which nine female participants suffering from dyspareunia and vaginismus were selected through purposeful sampling and data collection was continued through semi-structured interviews until data saturation was reached. After collecting the data and transcribing them, the researcher used Giorgi’s five-step phenomenological data analysis method. Results: Analyzing data led to 12 contributing components of the lived experience of women with dyspareunia and vaginismus which included: lack of awareness, experiencing the physical symptoms of anxiety, fear, predicting pain, feeling of inadequacy and inferiority, feeling of shame, hatred of sex and of spouse, a feeling of suffering, feeling of anger, feeling of guilt, decreased emotional and sexual intimacy, and regret about marriage. Conclusion: The results of this study also enrich the previous research literature on the lived experience of dyspareunia and vaginismus. Also, the structure of the lived experience of dyspareunia and vaginismus derived from this study is widely used to develop and apply preventive and therapeutic programs for this condition and its consequences.

Psychological Distress in Iranian Military Personnel: A Qualitative Study

2020 ◽  
Author(s):  
Azizeh Alizadeh1 ◽  
Behnaz Dowran ◽  
maryam azizi ◽  
Seyed -Hossein Salimi
Keyword(s):  
Mental Health ◽  
Psychological Distress ◽  
Qualitative Study ◽  
Military Personnel ◽  
Mental Health Problems ◽  
Structured Interviews ◽  
Military Organization ◽  
Military Members ◽  
Data Saturation ◽  
The Military

Abstract Background: Military personnel are likely to encounter mental health problems due to High-risk occupations associated with significant levels of psychological distress. The aim of the present study was to explore psychological distress experienced by Iranian military personnel. Methods: The present qualitative study was conducted on 15 Iranian military personnel. Purposeful sampling was used to select the participants and continued until data saturation was reached. Data were collected using semi-structured interviews and then the qualitative data were analyzed through direct content analysis. Results: By analyzing show 395 primary codes, 2 main categories, including demands and resources were extracted from the experiences of military members. The categories included several sub-categories, which were classified according to their significant characteristics. Findings of this study ascertain that different factors affect the military member’s psychological distress.Conclusions: Military organization and leaders should consider the factors of psychological distress that raised by specialists, and assign policies to improve their mental health. According to the present results, it is recommended that the process of psychological distress in military members be investigated further.

scholarly journals “How Long Can I Carry On?” The Need for Palliative Care in Parkinson’s Disease: A Qualitative Study from the Perspective of Bereaved Family Caregivers

2020 ◽  
Vol 10 (4) ◽  
pp. 1631-1642
Author(s):  
Herma Lennaerts-Kats ◽  
Anne Ebenau ◽  
Maxime Steppe ◽  
Jenny T. van der Steen ◽  
Marjan J. Meinders ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Qualitative Study ◽  
Family Caregivers ◽  
Interpretative Phenomenological Analysis ◽  
Healthcare Professionals ◽  
Structured Interviews ◽  
Practice Nurses ◽  
Bereaved Family

Background: Family caregivers provide the majority of care for people with Parkinson’s disease (PD) in the palliative care phase. For many this is a demanding experience, affecting their quality of life. Objective: We set out to map the experiences of bereaved family caregivers during the period of informal care in the palliative care phase as well as after the death of their loved one with PD. Methods: Ten bereaved family caregivers participated in this qualitative study. Semi-structured interviews were conducted and interpretative phenomenological analysis was used executed. Results: We identified four main themes. 1) Feeling like a professional caregiver: while caring for a person with PD, the family caregivers took over many roles and tasks of the person with PD. 2) Healthcare professionals do not always know what PD really means: most interviewees had negative experiences with knowledge and understanding of PD of, especially, (practice) nurses. 3) Being on your own: many respondents had felt highly responsible for their loved one’s care and lacked time and space for themselves. Grief and feelings of guilt were present during the caregiving period and after death. 4) Being behind the times: to provide palliative care in line with patients’ preferences and to feel prepared for the palliative care phase of PD, proactive palliative care planning was considered important. However, the interviewees told that this was most often not provided. Conclusion: These findings indicate that caring for a person with PD in the palliative care phase is a demanding experience for family caregivers. They experience psychological problems for many years before and after the death of the person with PD. Increasing healthcare professionals’ awareness of family and bereaved caregivers’ needs may mitigate these long-term detrimental effects.

scholarly journals Causes of medical errors and its under-reporting amongst pediatric nurses in Iran: a qualitative study

2018 ◽  
Vol 31 (7) ◽  
pp. 541-546
Author(s):  
Razieh Sadat Mousavi-roknabadi ◽  
Marzieh Momennasab ◽  
Mehrdad Askarian ◽  
Abbas Haghshenas ◽  
Brahmaputra Marjadi
Keyword(s):  
Qualitative Study ◽  
Teaching Hospital ◽  
Medical Errors ◽  
Reporting System ◽  
Pediatric Nurses ◽  
Personal Factors ◽  
Structured Interviews ◽  
Pediatric Department ◽  
Data Saturation ◽  
Context Specific

Abstract Objectives To explore the causes of medical errors (ME) and under-reporting amongst pediatric nurses at an Iranian teaching hospital. Design A qualitative study, based on individual, in-depth, semi-structured interviews and content analysis approach. Settings The study was conducted at the Pediatric Department of the largest tertiary general and teaching hospital in Shiraz, southern Iran. Participants The study population was all pediatrics nurses who work at Pediatric Department and they had been trained on ME, as well as methods to report them through the hospital’s ME reporting system. Purposive sampling was used by selecting key informants until data saturation was achieved and no more new information was obtained. Finally, 18 pediatric nurses were interviewed. Main outcome measure(s) Pediatrics nurses’ views on the causes of ME and under-reporting. Results We found five main factors causing ME and under-reporting: personal factors, workplace factors, managerial factors, work culture and error reporting system. These factors were further classified into proximal and distal factors. Proximal factors had direct relationship with ME and distal factors were contextual factors. Conclusion Causes of ME and under-reporting amongst pediatric nurses are complex and intertwined. Both proximal and distal factors need to be simultaneously addressed using context-specific approaches. Further research on other groups of healthcare workers and using a quantitative approach will be beneficial to elucidate the most appropriate interventions.

Conceptualization of a good end-of-life experience with dementia in Japan: a qualitative study

2019 ◽  
Vol 32 (2) ◽  
pp. 255-265
Author(s):  
Mayumi Nishimura ◽  
Ayako Kohno ◽  
Jenny T. van der Steen ◽  
Toru Naganuma ◽  
Takeo Nakayama
Keyword(s):  
Qualitative Study ◽  
End Of Life ◽  
Family Caregivers ◽  
Life Experience ◽  
Central Position ◽  
Structured Interviews ◽  
Cultural Backgrounds ◽  
Term Care ◽  
Family Structures ◽  
People With Dementia

ABSTRACTObjectives:To conceptualize a “good end of life” for people with dementia from the perspectives of bereaved family caregivers in Japan.Design and participants:A qualitative study using in-depth, semi-structured interviews focused on the family caregivers’ perceptions of their loved one’s experiences. Family caregivers who had lost their relatives with dementia more than six months previously were recruited using maximum variation sampling by cultural subpopulation. A thematic analysis was conducted.Results:From 30 interviews held, four main themes emerged. A good end of life for people with dementia means experiencing a “Peaceful Death” while “Maintaining Personhood” at a “Preferred Place” allowing for feelings of “Life Satisfaction.” A “Preferred Place” emerged as a basic requirement to achieving a good end of life according to the three other themes, in particular, “Maintaining Personhood.” However, the interviewees experienced difficulties in ensuring that their loved ones stayed at a “Preferred Place.”Conclusions:Despite different cultural backgrounds, perceptions of a good end of life with dementia were remarkably similar between Japan and Western countries. However, recent societal changes in family structures and long-term care access in Japan may explain the theme of a comfortable place taking a central position. We suggest that these themes be considered and translated into care goals. They could supplement established end-of-life care goals for quality of life in dementia, which aim to maximize functioning and increase comfort.TRIAL REGISTRATION NUMBEREthics Committee of the Graduate School and Faculty of Medicine, Kyoto University (R0808-2)

Sign in / Sign up

Export Citation Format

Share Document