scholarly journals The Challenges, Coping Mechanisms, and the Needs of the Inhospital Parents Caring for Children with Life-limiting Neurological Disorders: A Qualitative Study

2021 ◽  
Vol 0 ◽  
pp. 1-7
Author(s):  
Fahisham Taib ◽  
Khoo Teik Beng ◽  
Lee Chee Chan
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Thematic Analysis ◽  
Neurological Disorders ◽  
English Language ◽  
Kuala Lumpur ◽  
Neurological Conditions ◽  
Depth Interviews

Objective: Parents who have children with complex lifelong and life-limiting neurological conditions experienced many stresses and anxieties throughout their lives as caregivers. However, this information is still very limited. The study aimed to explore the challenges faced by parents with children who have complex neurological conditions, their coping strategies, needs, and expectations. Materials and Methods: A semi-structured, in-depth interviews were conducted in the either Malay or English language among the parents of children with complex lifelong neurological conditions and have been on long-term in-patient hospital care. The interviews were audio-recorded and transcribed for thematic analysis. The qualitative study was conducted from October to November 2016 at the Paediatric Institute of Hospital Kuala Lumpur. Grounded theory was used to examine the qualitative data with inductive and deductive types of coding. The transcripts were read repeatedly to allow familiarity to the themes presented by the participants. Further discussions were conducted among the researchers to triangulate the information. Results: A total of 11 parents were interviewed for this study. The thematic analysis resulted in 8 challenges: Physical wellbeing, Environment, Relationship, Financial, Occupational, Rational, Mental, and Spiritual. Coping strategies comprised problem focused issues related to the key challenges in the caregivers’ context. Similar to the needs and expectations, the key themes were derived from the key understandings of the challenges and looking at the palliative care impacts for these children. Conclusion: There are various challenges faced by parents of children with life-limiting neurological disorders. Physical, Environment, Relationship, Financial, Occupational, Rational, Mental, and Spiritual Wellbeing can be a platform for the assessment of the caregivers’ needs and the planning for palliative care support.

scholarly journals How do Key Populations Cope their Behaviour Related Stigma? A Qualitative Study in a Province in Sri Lanka

2021 ◽  
pp. 11-15
Author(s):  
T.S.M. Fernando ◽  
H.M.J.P. Vidanapathirana
Keyword(s):  
Sri Lanka ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Thematic Analysis ◽  
Key Populations ◽  
Analysis Method ◽  
Human Immuno Deficiency Virus ◽  
Global Target ◽  
Related Stigma ◽  
Depth Interviews

Key populations are at the highest risk of acquiring and transmitting the Human Immuno-deficiency Virus (HIV). Due to the stigma vested upon them, they have become least accessible for preventive and curative services for HIV. Therefore, coping strategies are essential to minimize stigma to end AIDS by 2025, five years ahead of the global target of ending AIDS in 2030. The objective was to describe the coping strategies adopted by key-populations to overcome behavior-related stigma. Data from thirty-two in-depth interviews were analyzed using the thematic analysis method.

Hope in Palliative Care: A Thematic Analysis

2020 ◽  
pp. 082585972094897
Author(s):  
Tan Seng Beng ◽  
Cheah Ai Xin ◽  
Yeoh Kee Ying ◽  
Lim Poh Khuen ◽  
Anne Yee ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Qualitative Data ◽  
Healthcare Providers ◽  
Terminally Ill ◽  
Coping Mechanism ◽  
Kuala Lumpur ◽  
Positive Coping ◽  
Data Management Software

Background: Hope is a positive coping mechanism that is important at all stages of illness, more so for palliative care patients. Purpose: To explore the experiences of hope of palliative care patients. Methods: A qualitative study was conducted at University of Malaya, Kuala Lumpur, Malaysia. Adult palliative care in-patients were recruited and interviewed with semi structured questions on hope. Transcripts from the interviews were thematically analyzed with qualitative data management software NVIVO. Findings: 20 palliative care patients participated in the study. The themes generated from thematic analysis were (1) The notions of hope, (2) The sources and barriers of hope and (3) The contents of hope. Conclusion: Hope is an ever-present source of energy that gives people strength to carry on even in the most adverse situations. Understanding hope from the palliative care perspective may allow healthcare providers to develop strategies to better foster hope in the terminally ill.

Exploring Interpersonal Relationship of Female Patients with Persistent Depressive Disorder: A Qualitative Study with a Phenomenological Approach

2021 ◽  
Vol In Press (In Press) ◽  
Author(s):  
Fatemeh Asadollahi ◽  
Hamid Taher Neshat Doost ◽  
Mohammad Reza Abedi ◽  
Hamid Afshar Zanjani
Keyword(s):  
Qualitative Study ◽  
Depressive Disorder ◽  
Interpersonal Relationships ◽  
Interpersonal Relationship ◽  
Phenomenological Approach ◽  
Relationship Of ◽  
Depth Interviews ◽  
Chronic Problem ◽  
Persistent Depressive Disorder

Background: Persistent depressive disorder (PDD) is a chronic problem that is more prevalent among women than men. Various studies have revealed that these people experience many problems in their interpersonal relationships, which increase their suffering. Objectives: The present study was done to identify how people suffering from PDD experience interpersonal relationships that often seem troubled and broken. Methods: A phenomenological approach was adopted for this qualitative study. For this purpose, in-depth interviews were conducted with 21 individuals with PDD, focusing on exploring their experience and suffering in interpersonal relationships. All interviews were recorded and transcribed, and the transcripts were analyzed using Giorgi’s phenomenological descriptive method. Results: In general, five main themes and 16 sub-themes emerged. The main themes were: (1) Feeling empty of love and compassion; (2) feeling ignored; (3) ignoring others’ needs, conditions, and suffering; (4) feeling of being annoying to others; and (5) feeling confused and helpless in relationships. Conclusions: It seems that all five themes convey the message that these individuals demonstrate less skill in feeling compassion and receiving it from others. Therefore, it appears that long-term compassion-based interventions can effectively reduce the interpersonal suffering of these individuals. It should be noted that although these themes have commonalities in different cultural contexts, the culture can influence the content and intensity of these feelings.

scholarly journals Could coronavirus 2019-infected disease patients get cope with the treatment?: A qualitative study

2021 ◽  
Vol 10 (4) ◽  
pp. 880
Author(s):  
Fery AM Mendrofa ◽  
Umi Hani ◽  
Yuni Nurhidayat
Keyword(s):  
Data Collection ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Phenomenological Approach ◽  
Cross Infection ◽  
Psychological Aspect ◽  
Future Research ◽  
The World ◽  
Novel Coronavirus ◽  
Depth Interviews

A pandemic of a novel coronavirus-infected disease is currently ongoing in the world. Most patients have to be isolated due to the treatments. This study aimed to make sense of how patients with coronavirus-infected disease understand and experience infectious isolation. The research used a qualitative design with a phenomenological approach. Data collection was conducted with in-depth interviews of nine patients with coronavirus disease-2019 (COVID-19) confirmed who had been in the isolation room. The analysis was conducted on interview transcripts by organizing keywords found into categories, sub-themes, and themes based on Colaizzi's approach. The results indicated that the participants experienced fright due to the isolation and attempted to integrate their isolation experiences. Isolation highlighted a sense of threat posed by cross-infection, a threat that participants experienced as originating from others and from themselves to others. Participants described feeling changes experienced after several days of treatment. Participants reported various symptoms of the disease and received careful care while in isolation. They still communicate with family. Isolated patients are able to deal with the treatment by improving their coping strategies. Participants reported the most support from their families, even from a distance. Future research could explore experiences of isolation from family and staff perspectives and identify the psychological aspect in caring for the COVID-19 patients.

scholarly journals Knowledge, Attitudes and Expectations of Physicians with Respect to Palliative Care in Ecuador: A Qualitative Study

2020 ◽  
Vol 17 (11) ◽  
pp. 3906 ◽  
Author(s):  
Viviana Dávalos-Batallas ◽  
Vinita Mahtani-Chugani ◽  
Carla López-Núñez ◽  
Víctor Duque ◽  
Fatima Leon-Larios ◽  
...  
Keyword(s):  
Palliative Care ◽  
Health Policy ◽  
Qualitative Study ◽  
Health Services ◽  
Human Resources ◽  
Thematic Analysis ◽  
Medical Professional ◽  
Structured Interviews ◽  
Unequal Distribution

Background: The worldwide need for palliative care is high, especially in mid- income countries like Ecuador, where the percentage of patients receiving such care is very small due to the scarcity of infrastructure and specialized personnel and to the unequal distribution in the country. The objective of this study is to explore the knowledge, attitudes and expectations related to palliative care of the physicians in Ecuador. Methods: A qualitative study based on 28 semi-structured interviews, from March 2014 to November 2016, with physicians working in four cities in Ecuador recruited through the snowball technique. Thematic analysis was developed supported by the ATLAS.ti software. Results: Five core themes were identified: (1) training, (2) health policy, (3) professionals’ activities, (4) health services and (5) development of palliative care in Ecuador. Conclusions: Strategies are needed which intensify the training of medical professional in palliative care, as well as avail the human resources and materials for providing it.

scholarly journals How do sporting organisations conceptualise and operationalise the prevention of violence against women?

2019 ◽  
Vol 53 (1) ◽  
pp. 121-136
Author(s):  
Gemma Hamilton ◽  
Ruth Liston ◽  
Shaez Mortimer
Keyword(s):  
New Zealand ◽  
Violence Against Women ◽  
Thematic Analysis ◽  
Team Sport ◽  
Prevention Of Violence ◽  
Qualitative Thematic Analysis ◽  
Long Term Changes ◽  
Prevention Programmes ◽  
Depth Interviews

Sport settings have great potential to influence social change and are therefore important locations to engage in the prevention of violence against women. The following study draws on in-depth interviews with 16 stakeholders who have been involved with the implementation of prevention programmes within competitive/team sport settings. A qualitative thematic analysis of the interviews was undertaken to examine how sporting organisations understand, strategise and practise prevention work in Australia and New Zealand. Implications for long-term changes in the prevention of violence against women are discussed with reference to key prevention actions and frameworks.

scholarly journals The ABCDE of good care: A thematic analysis on the art of caring for terminally ill patients in Malaysia

2017 ◽  
Vol 3 (s1) ◽  
pp. 65 ◽  
Author(s):  
Tan Seng Beng ◽  
Ng Jia Hui ◽  
Lau Xin Rou ◽  
Mah Zhou Lhe ◽  
Lim Ee Jane ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Thematic Analysis ◽  
Terminally Ill ◽  
Point Of View ◽  
Good Care ◽  
Kuala Lumpur ◽  
Terminally Ill Patients ◽  
The University ◽  
Insight Into ◽  
Bed Numbers

<p>The first and foremost requisite of caring is to treat patients as persons, not as diseases or bed-numbers. A qualitative study was conducted to explore the perception of good care from the point of view of 13 terminally ill patients<br />and 8 caregiving family members of the University of Malaya Medical Centre, Kuala Lumpur, Malaysia. The results were thematically analyzed. Five basic themes were generated: (1) Attitude, (2) Behaviour, (3) Communication, (4) Duty and (5) Environment—ABCDE. The results may provide useful insight into the art of caring.</p>

scholarly journals Novice Teachers’ Challenges and Coping Strategies in Qatari Government Schools

2020 ◽  
Vol 19 (9) ◽  
pp. 118-142
Author(s):  
Shaikha R AL-Naimi ◽  
Michael H Romanowski ◽  
Xiangyun Du
Keyword(s):  
Qualitative Study ◽  
Coping Strategies ◽  
Novice Teachers ◽  
Structured Interviews ◽  
Government Schools ◽  
Professional Challenges ◽  
Active Communication ◽  
And Coping ◽  
Personal Challenges

This study examined the challenges novice teachers encountered in Qatari government schools and the coping strategies they adopt. A qualitative study was conducted using semi-structured interviews with 15 novice teachers during their initial years of teaching. The findings demonstrated that most participants faced several personal challenges and other challenges within and beyond the school. Findings also indicated that these teachers confronted these challenges using various coping strategies. The challenges facing novice teachers include teaching and classroom, government, and administrative, and professional challenges. Novice teachers' coping strategies included individual internal peace strategies, active communication, and changing environment. Finally, based on these findings, suggestions are provided to support novice teachers' long-term success in Qatari government schools or similar contexts.

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