scholarly journals Stress and Coping among Caregivers with Cerebral Palsy and ADHD Children

2017 ◽  
Vol 4 (3) ◽  
Author(s):  
Pushpalatha. R ◽  
Shivakumara. K
Keyword(s):  
Cerebral Palsy ◽  
Short Form ◽  
Female Parent ◽  
Stress And Coping ◽  
Stress Index ◽  
Significant Difference ◽  
Adhd Children ◽  
Children With Cerebral Palsy ◽  
Parent Caregivers ◽  
And Coping

The aim was to study stress and coping between parent caregivers of children with cerebral palsy and ADHD children. 120 parent caregivers, of them 30 male and 30 female parent caregivers having children with cerebral palsy and 30 male and 30 female parent caregivers having children with ADHD were considered for the study. The male parent caregiver’s age ranged between 28-40years and the female parent caregiver’s age ranged between 22-30 years. The disabled children age ranged between 7-12 years. A between group research design with purposive sampling technique was opted for the study. After obtaining socio-demographic details the caregivers were administered Parenting Stress Index (Short Form) and Coping Checklist. The data was subjected to‘t’ test to find the significant difference between the two sample groups. Results revealed that there was significant difference in stress and coping between caregivers of cerebral palsy children and caregivers of ADHD children.

Stress, Burden and Coping between Caregivers of Cerebral Palsy and Autism Children

2016 ◽  
Vol 4 (1) ◽  
Author(s):  
Pushpalatha. r ◽  
Shivakumara. K
Keyword(s):  
Cerebral Palsy ◽  
Short Form ◽  
Sampling Technique ◽  
Children With Autism ◽  
Stress Index ◽  
Group Research ◽  
Significant Difference ◽  
The Difference ◽  
Stress Burden ◽  
And Coping

The objective of the study was to find the difference in stress, burden and coping between caregivers with cerebral palsy and autism children. 30 caregivers having children with cerebral palsy and 30 caregivers having children with autism were part of the study. The age of the caregivers ranged between 23-40 years.  For the study caregivers of children aged between 7-12 years were considered. A between group research design with purposive sampling technique was opted for the study. After obtaining socio-demographic details the caregivers were administered Parenting Stress Index (Short Form), Schedule to Assess Burden and Coping Checklist.  The data was subjected to ‘t’ test to find the significant difference between the two sample groups. Results revealed that there was significant difference in stress, burden and coping between caregivers of cerebral palsy children and caregivers of autistic children.

Examining the psychometric properties of the simplified Parenting Stress Index-Short Form with Chinese parents of children with cerebral palsy

2021 ◽  
Vol 49 (1) ◽  
pp. 1-10
Author(s):  
Yongli Wang ◽  
Jing Song ◽  
Jianfeng Chen ◽  
Yiwen Zhang ◽  
Qin Wan ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Parenting Stress ◽  
Measurement Invariance ◽  
Short Form ◽  
Perceived Support ◽  
Stress Index ◽  
Internal Reliability ◽  
Parenting Stress Index ◽  
Chinese Parents ◽  
Children With Cerebral Palsy

We examined the factorial validity, measurement invariance, reliability, and concurrent validity across gender groups of the simplified Parenting Stress Index-Short Form (S-PSI-SF) with a group of 486 Chinese parents of children with cerebral palsy. Participants completed the S-PSI-SF and the Multidimensional Scale of Perceived Support. Findings based on a confirmatory factor analysis suggest that the original three-factor model was duplicated in this population, and displayed measurement invariance for both fathers and mothers. The internal reliability of the S-PSI-SF was confirmed, and composite reliability values were larger than .70. Furthermore, all subscales of the S-PSI-SF were significantly correlated with the Multidimensional Scale of Perceived Support. These results show that the S-PSI-SF is a trustworthy and effective tool for evaluating parenting stress and can be used confidently with both fathers and mothers of children with cerebral palsy.

scholarly journals Rasch Analysis of the Korean Parenting Stress Index Short Form (K-PSI-SF) in Mothers of Children with Cerebral Palsy

2020 ◽  
Vol 17 (19) ◽  
pp. 7010
Author(s):  
Eun-Young Park ◽  
Soojung Chae
Keyword(s):  
Cerebral Palsy ◽  
Parenting Stress ◽  
Rasch Analysis ◽  
Item Difficulty ◽  
Short Form ◽  
Likert Scale ◽  
Stress Index ◽  
Psychometric Characteristics ◽  
Parenting Stress Index ◽  
Children With Cerebral Palsy

The purpose of this study was to investigate the psychometric characteristics of the Korean Parenting Stress Index Short Form (K-PSI-SF) for mothers of children with cerebral palsy (CP) by using a Rasch analysis. The participants were 114 mothers of children with CP whose ages ranged from 2.79 to 11.90 years. The K-PSI-SF consists of 36 items, with a 5-point Likert scale grading along three subscales (Parent Distress, Parent–Child Dysfunctional Interaction, and Difficult Child). The response data were analyzed, and we determined the item fitness and item difficulty, rating scale fit, and separation index. The results show that two items did not have the required fitness. After these two items were deleted, the means of the 34 items in two of the subscales were statistically different from those of the original 36 items. Our analysis of the item difficulty identified the need to add easier question items. The 5-point Likert scale used in the questionnaire was found to be appropriate. This significance of this study is that it suggested the need to modify item fitness and difficulty level, as it identified the psychometric characteristics of the K-PSI-SF through a Rasch analysis based on the item response theory.

scholarly journals Reliability and validity of a computer game-based tool of upper extremity assessment for object manipulation tasks in children with cerebral palsy

2021 ◽  
Vol 8 ◽  
pp. 205566832110140
Author(s):  
Anuprita Kanitkar ◽  
Sanjay T Parmar ◽  
Tony J Szturm ◽  
Gayle Restall ◽  
Gina Rempel ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Upper Extremity ◽  
Performance Measures ◽  
Assessment Tool ◽  
Computer Game ◽  
Object Manipulation ◽  
Manual Dexterity ◽  
Assessment Tools ◽  
Significant Difference ◽  
Children With Cerebral Palsy

Introduction A computer game-based upper extremity (CUE) assessment tool is developed to quantify manual dexterity of children with Cerebral Palsy (CP). The purpose of this study was to determine test-retest reliability of the CUE performance measures (success rate, movement onset time, movement error, and movement variation) and convergent validity with the Peabody Developmental Motor Scale version 2 (PDMS-2) and the Quality of Upper Extremity Skills Test (QUEST). Methods Thirty-five children with CP aged four to ten years were tested on two occasions two weeks apart. Results CUE performance measures of five chosen object manipulation tasks exhibited high to moderate intra-class correlation coefficient (ICC) values. There was no significant difference in the CUE performance measures between test periods. With few exceptions, there was no significant correlation between the CUE performance measures and the PDMS-2 or the QUEST test scores. Conclusions The high to moderate ICC values and lack of systematic errors indicate that the CUE assessment tool has the ability to repeatedly record reliable performance measures of different object manipulation tasks. The lack of a correlation between the CUE and the PDMS-2 or QUEST scores indicates that performance measures of these assessment tools represent distinct attributes of manual dexterity.

Commercial Exergaming in Home-Based Pediatric Constraint-Induced Therapy: A Randomized Trial

2021 ◽  
pp. 153944922098411
Author(s):  
Tien-Ni Wang ◽  
Yu-Lun Chen ◽  
Jeng-Yi Shieh ◽  
Hao-Ling Chen
Keyword(s):  
Parental Stress ◽  
Short Form ◽  
Self Care ◽  
Stress Index ◽  
Dose Equivalent ◽  
Nintendo Wii ◽  
Home Based ◽  
Significant Difference ◽  
Motor Outcomes ◽  
Psychosocial Benefits

Constraint-induced therapy (CIT) is highly effective yet not accessible to many families. Integrating commercial exergaming in home-based CIT may support the availability and attainability of the intervention. The study compared the effects of supplementary use of Nintendo Wii in home-based CIT with dose-equivalent conventional CIT. Eighteen children with cerebral palsy were randomly assigned to 8 weeks of CIT (CIT) or 4 weeks of CIT, followed by 4 weeks of Wii-augmented CIT (CIT-Wii). Outcome measures included the Bruininks–Oseretsky Test of Motor Proficiency (Manual Dexterity), the ABILHAND-Kids, the WeeFIM (Self-Care), the Test of Playfulness, the Engagement Questionnaire, and the Parenting Stress Index–Short Form. Both groups significantly improved motor outcomes and playfulness. The CIT group demonstrated greater improvement in self-care skills, whereas parental stress decreased only in the CIT-Wii group. CIT-Wii yields no significant difference in treatment effects from conventional CIT and may provide psychosocial benefits.

Randomized controlled trial of occupational performance coaching for mothers of children with cerebral palsy

2018 ◽  
Vol 82 (4) ◽  
pp. 213-219 ◽  
Author(s):  
Mina Ahmadi Kahjoogh ◽  
Dorothy Kessler ◽  
Seyed Ali Hosseini ◽  
Mehdi Rassafiani ◽  
Nazila Akbarfahimi ◽  
...  
Keyword(s):  
Randomized Controlled Trial ◽  
Cerebral Palsy ◽  
Self Efficacy ◽  
Controlled Trial ◽  
Performance Measure ◽  
Occupational Performance ◽  
Randomized Controlled ◽  
Performance Coaching ◽  
Significant Difference ◽  
Children With Cerebral Palsy

Introduction The purpose of this study was to assess the efficacy of occupational performance coaching in mothers of children with cerebral palsy. Method A randomized controlled trial was used. Thirty mothers of children with cerebral palsy were randomly assigned to an occupational performance coaching group or control group. The Canadian Occupational Performance Measure and Sherer General Self-efficacy Scale were measured before and after the study. Results Occupational performance coaching had significant effects on participants’ occupational performance and self-efficacy. In child-related goals, there was also a statistically significant difference between two groups ( p = 0.05). Conclusion The results indicated that occupational performance coaching could be an effective intervention to increase the self-efficacy of mothers and improve the occupational performance of children and mothers of children with cerebral palsy. This trial is registered at NCT02915926 at clinicaltrials.gov

scholarly journals Access to Intrathecal Baclofen Treatment for Children with Cerebral Palsy in European Countries: An SCPE Survey Reveals Important Differences

2020 ◽  
Vol 51 (02) ◽  
pp. 129-134
Author(s):  
Kate Himmelmann ◽  
Magnus Påhlman ◽  
Guro L. Andersen ◽  
Torstein Vik ◽  
Daniel Virella ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Gross Domestic Product ◽  
Sex Difference ◽  
Motor Function ◽  
Classification System ◽  
Intrathecal Baclofen ◽  
Population Based ◽  
Treatment Access ◽  
Significant Difference ◽  
Children With Cerebral Palsy

Abstract Aim The aim is to study access to intrathecal baclofen (ITB) for children with cerebral palsy (CP) in Europe, as an indicator of access to advanced care. Methods Surveys were sent to CP registers, clinical networks, and pump manufacturers. Enquiries were made about ITB treatment in children born in 1990 to 2005 by sex, CP type, level of gross motor function classification system (GMFCS) and age at the start of treatment. Access to ITB was related to the country's gross domestic product (GDP) and % GDP spent on health. Results In 2011 population-based data from Sweden, Norway, England, Portugal, Slovenia, and Denmark showed that 114 (3.4%) of 3,398 children with CP were treated with ITB, varying from 0.4 to 4.7% between centers. The majority of the children were at GMFCS levels IV-V and had bilateral spastic CP. In Sweden, dyskinetic CP was the most commonly treated subtype. Boys were more often treated with ITB than girls (p = 0.014). ITB was reported to be available for children with CP in 25 of 43 countries. Access to ITB was associated with a higher GDP and %GDP spent on health (p < 0.01). Updated information from 2019 showed remaining differences between countries in ITB treatment and sex difference in treated children was maintained. Conclusion There is a significant difference in access to ITB for children with CP across Europe. More boys than girls are treated. Access to ITB for children with CP is associated with GDP and percent of GDP spent on health in the country.

scholarly journals The Appendicular Lean Mass Index Is a Suitable Surrogate for Muscle Mass in Children with Cerebral Palsy

2019 ◽  
Vol 149 (10) ◽  
pp. 1863-1868
Author(s):  
Ibrahim Duran ◽  
Kyriakos Martakis ◽  
Mirko Rehberg ◽  
Christina Stark ◽  
Anne Koy ◽  
...  
Keyword(s):  
Skeletal Muscle ◽  
Cerebral Palsy ◽  
Muscle Mass ◽  
Lean Mass ◽  
Skeletal Muscle Mass ◽  
Rehabilitation Program ◽  
Appendicular Lean Mass ◽  
Significant Difference ◽  
Children With Cerebral Palsy ◽  
Level I

ABSTRACT Background Densitometrically measured lean body mass (LBM) is often used to quantify skeletal muscle mass in children with cerebral palsy (CP). Since LBM depends on the individual's height, the evaluation of $\frac{{{\rm{LBM}}}}{{heigh{t^2}}}\ $ (lean BMI) is often recommended. However, LBM includes not only skeletal muscle mass but also the mass of skin, internal organs, tendons, and other components. This limitation applies to a far lesser extent to the appendicular lean mass index (LMIapp). Objectives The aim of the study was to evaluate skeletal muscle mass in children with CP using total lean BMI (LMItot) and LMIapp. Methods The present study was a monocentric retrospective analysis of prospectively collected data among children and adolescents with CP participating in a rehabilitation program. In total, 329 children with CP [148 females; Gross Motor Function Classification Scale (GMFCS) I, 32 children; GMFCS II, 73 children; GMFCS III, 133 children; GMFCS IV, 78 children; and GMFCS V, 13 children] were eligible for analysis. The mean age was 12.3 ± 2.75 y. Pediatric reference centiles for age-adjusted LMIapp were generated using data from NHANES 1999–2004. Low skeletal muscle mass was defined as a z score for DXA determined LMItot and LMIapp less than or equal to −2.0. Results The z scores for LMIapp were significantly lower than LMItot in children with CP, GMFCS levels II–V (P < 0.001), with the exception of GMFCS level I (P = 0.121), where no significant difference was found. The prevalence of low LMItot (16.1%; 95% CI: 16.1, 20.1%) was significantly lower (P < 0.001) than the prevalence of LMIapp (42.2%; 95% CI: 36.9, 47.9%) in the study population. Conclusions The prevalence of low skeletal muscle mass in children with CP might be underestimated by LMItot. LMIapp is more suitable for the evaluation of skeletal muscle mass in children with CP.

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