Music Engagement Questionnaire Development for Individuals with Dementia or Other Cognitive Impairments

2018 ◽  
Author(s):  
Tina Poon
Keyword(s):  
Cognitive Deficits ◽  
Cognitive Impairments ◽  
Cognitive Disorders ◽  
Questionnaire Development ◽  
Self Report ◽  
Third Party ◽  
Validity And Reliability ◽  
Dementia Patients ◽  
Everyday Living

Previous literature has shown the importance of music engagement in everyday living, particularly for regulating emotions and enhancing the quality of life. However, the benefits individuals derive from music vary based on degree and method of use. Current measures of music engagement are designed for healthy populations and rely heavily on introspective self-report. Unfortunately, special populations with cognitive deficits, such as dementia patients, cannot accurately report introspective emotions and mood. Thus, there is a need for a more concrete behavioural-based measure suitable for reporting by a third party. The current study addressed these issues by developing a music engagement questionnaire suitable for dementia patients. The questionnaire will be tested with a large sample of adults with a range of ages. Furthermore, the questionnaire will undergo statistical analysis to determine validity and reliability. The result will be a measure of music engagement suitable for use with participants who suffer from dementia or other cognitive disorders.

scholarly journals Self-perceived cognitive impairments in psychosis ultra-high risk individuals: associations with objective cognitive deficits and functioning

2020 ◽  
Vol 6 (1) ◽  
Author(s):  
Louise Birkedal Glenthøj ◽  
Lise Mariegaard ◽  
Tina Dam Kristensen ◽  
Christina Wenneberg ◽  
Alice Medalia ◽  
...  
Keyword(s):  
Quality Of Life ◽  
High Risk ◽  
Cognitive Deficits ◽  
Cognitive Impairments ◽  
Self Report ◽  
Psychotic Symptoms ◽  
Neurocognitive Deficits ◽  
Cognitive Difficulties ◽  
Ultra High Risk

AbstractThere is a scarcity of evidence on subjectively reported cognitive difficulties in individuals at ultra-high risk (UHR) for psychosis and whether these self-perceived cognitive difficulties may relate to objective cognitive deficits, psychopathology, functioning, and adherence to cognitive remediation (CR). Secondary, exploratory analyses to a randomized, clinical trial were conducted with 52 UHR individuals receiving a CR intervention. Participants completed the Measure of Insight into Cognition—Self Report (MIC-SR), a measure of daily life cognitive difficulties within the domains of attention, memory, and executive functions along with measures of neuropsychological test performance, psychopathology, functioning, and quality of life. Our study found participants with and without objectively defined cognitive deficits reported self-perceived cognitive deficits of the same magnitude. No significant relationship was revealed between self-perceived and objectively measured neurocognitive deficits. Self-perceived cognitive deficits associated with attenuated psychotic symptoms, overall functioning, and quality of life, but not with adherence to, or neurocognitive benefits from, a CR intervention. Our findings indicate that UHR individuals may overestimate their cognitive difficulties, and higher levels of self-perceived cognitive deficits may relate to poor functioning. If replicated, this warrants a need for both subjective and objective cognitive assessment in at-risk populations as this may guide psychoeducational approaches and pro-functional interventions. Self-perceived cognitive impairments do not seem to directly influence CR adherence and outcome in UHR states. Further studies are needed on potential mediator between self-perceived cognitive deficits and functioning and quality of life.

scholarly journals PERCEIVED PHYSICAL LITERACY FOR CHINESE ELDERLY QUESTIONNAIRE DEVELOPMENT: PRELIMINARY VALIDITY AND RELIABILITY

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S523-S523
Author(s):  
Haocen Wang ◽  
Barbara King
Keyword(s):  
Older Adults ◽  
Sense Of Self ◽  
Reliability And Validity ◽  
Questionnaire Development ◽  
Self Report ◽  
Validity And Reliability ◽  
Physical Literacy ◽  
Chinese Elderly ◽  
Holistic View ◽  
Chinese Older Adults

Abstract Physical activity (PA) is an essential health prompting behavior. Unfortunately, in China, only about 12% to 40% of older adults met the PA recommendations. To guide the design of future PA interventions and policy-making, innovative solutions are needed to be introduced. Physical literacy, a relatively novel concept, has been recently introduced in the field of older adults’ PA. This concept takes a holistic view of PA behavior, which proposed that a person need to be motivationally, physically, strategically, effectively, socially, and knowledgeably prepared to be and stay physically active. The aim of this study was to develop the Perceived Physical literacy for Chinese Elderly (PPLCE) questionnaire and to establish its reliability and validity. An item pool for the PPLCE was generated from literature and interviews with Chinese older adults. Expert panel reviews and cognitive interviews were applied to establish the face and content validity of the questionnaire. A convenient sample of 388 Chinese older adults was recruited to assess the psychometric properties of the PPLCE. The item-level analysis and exploratory factor analysis resulted in a 46-item self-report measure, consisting with four factors: motivation, physical competence, interaction with environment, sense of self, interaction with others, and knowledge and understanding. The Cronbach’s alpha coefficient and test-retest reliability of the PPLCE were 0.88 and 0.79 respectively. A positive correlation between PPLCE and leisure-time PA was found (r=0.43). The PPLCE has the potential to be used as a valid and reliable measure to assess Chinese older adults’ perceived physical literacy.

Reliability and validity of the Functional Assessment of Cancer Therapy-Breast quality-of-life instrument.

1997 ◽  
Vol 15 (3) ◽  
pp. 974-986 ◽  
Author(s):  
M J Brady ◽  
D F Cella ◽  
F Mo ◽  
A E Bonomi ◽  
D S Tulsky ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Cancer Therapy ◽  
Functional Assessment ◽  
Performance Status ◽  
Well Being ◽  
Self Report ◽  
Sensitivity To Change ◽  
Validity And Reliability

PURPOSE This is the first published report on the validation of the Functional Assessment of Cancer Therapy-Breast (FACT-B), a 44-item self-report instrument designed to measure multidimensional quality of life (QL) in patients with breast cancer. The FACT-B consists of the FACT-General (FACT-G) plus the Breast Cancer Subscale (BCS), which complements the general scale with items specific to QL in breast cancer. The FACT-B was developed with an emphasis on patients' values and brevity and is available in nine languages. METHODS AND RESULTS Two validation samples were used for this report. The first (n = 47) was tested twice over a 2-month period to assess sensitivity to change. Significant sensitivity to change in performance status rating (PSR) was demonstrated for the FACT-B total score, the Physical Well-Being (PWB) subscale, the Functional Well-Being (FWB) subscale, and the BCS. Sensitivity to change in QL as measured by the Functional Living Index-Cancer (FLIC) was documented in the FACT-B total score, PWB, FWB, and Emotional Well-Being (EWB). Additional validity and reliability data were obtained from a larger sample (n = 295). The alpha coefficient (internal consistency) for the FACT-B total score was high (alpha = .90), with subscale alpha coefficients ranging from .63 to .86. Evidence supported test-retest reliability, as well as convergent, divergent, and known groups validity. CONCLUSION The FACT-B is appropriate for use in oncology clinical trials, as well as in clinical practice. It demonstrates ease of administration, brevity, reliability, validity, and sensitivity to change.

Validity and reliability of the MSQ LI in cognitively impaired patients with multiple sclerosis

2003 ◽  
Vol 9 (6) ◽  
pp. 621-626 ◽  
Author(s):  
Ruth Ann Marrie ◽  
Deborah M Miller ◽  
Gordon J Chelune ◽  
Jeffrey A Cohen
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Cognitive Impairment ◽  
Construct Validity ◽  
Internal Consistency ◽  
Internal Consistency Reliability ◽  
Self Report ◽  
Cognitively Impaired ◽  
Validity And Reliability

Multiple sclerosis (MS) has important effects on quality of life but it is unknown how cognitive impairment affects the ability to assess or report this. O ur objective was to determine whether cognitive impairment negatively affects the construct validity and the reliability of the Multiple Sclerosis Q uality of Life Inventory (MSQLI). A neuropsychological test batter y and the Multiple Sclerosis Functional C omposite (MSFC) were administered to a sample of 136 patients referred for cognitive testing by their neurologists. A ge, sex, educatio n and ethnicity-adjusted T scores were calculated for each cognitive variable. C ognitive impairment was defined as any T score less than the fifth percentile. The MSQ LI was administered prior to neuropsychological testing and readministered one to four weeks later. C orrelations between the MSFC and the SF-36 were determined and compared between the cognitively impaired and unimpaired groups as the main test of construct validity. Test -retest and internal consistency reliability of each of the scales were compared for the impaired and unimpaired groups. Seventy-six (56%) patients were cognitively impaired. C onstruct validity and internal consistency reliability did not differ between the cognitively impaired and unimpaired groups. Test -retest reliability was lower for the bladder and vision scales in the impaired group, but remained acceptable for the bladder scale (r >0.7). C ognitive impairment, a common MS manifestation, does not appear to reduce the reliability or validity of the MSQ LI as a patient self-report measure of health status and quality of life.

Validity and Reliability of the German Version of the CP QOL-Child and CP QOL-Teen Questionnaire

2021 ◽  
Author(s):  
Manuel Maier ◽  
Corinna Stoltenburg ◽  
Akosua Sarpong-Bengelsdorf ◽  
Susanne Lebek
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Children And Adolescents ◽  
Well Being ◽  
Self Report ◽  
Life Questionnaire ◽  
German Version ◽  
Validity And Reliability ◽  
German Speaking

AbstractThe aim of the study was to determine the psychometric properties of the German version of the Cerebral Palsy Quality of Life Questionnaire for Children and Adolescents (CP QOL-Child and -Teen). It is a condition-specific questionnaire with a self-report version, measuring well-being rather than ill-being, which differs from existing measurement methods. Fourteen children (9–12 years) and 64 caregivers (4–12 years) answered the child questionnaire. Twenty-one adolescents and 26 caregivers (all adolescents 13–18 years) replied to the teen version. Functioning was categorized by the Gross Motor Function Classification System. For CP QOL-child internal consistency (Cronbach's α) ranged from 0.58 to 0.88 and for CP QOL-Teen from 0.68 to 0.95. Test–retest reliability after 2 to 4 weeks ranged between 0.75 and 0.94 in children's version and 0.89 and 0.96 in teen's version. Correlation with well-established generic KIDSCREEN-10 questionnaire was moderate to strong. The German versions of CP QOL-Child and -Teen are appropriate tools for assessing the quality of life of children and adolescents with cerebral palsy in the German-speaking population.

scholarly journals Deep Assessment: A Novel Framework for Improving the Care of People with Very Advanced Alzheimer’s Disease

2015 ◽  
Vol 2015 ◽  
pp. 1-8 ◽  
Author(s):  
Gordon Lyons ◽  
Michael Arthur-Kelly ◽  
Ami Eidels ◽  
Aimee Mavratzakis
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Best Practice ◽  
Cognitive Impairments ◽  
Self Report ◽  
Reflex Modulation ◽  
State Observation ◽  
Assessment Approach

Best practice in understanding and caring for people with advanced Alzheimer’s disease presents extraordinary challenges. Their severe and deteriorating cognitive impairments are such that carers find progressive difficulty in authentically ascertaining and responding to interests, preferences, and needs. Deep assessment, a novel multifaceted framework drawn from research into the experiences of others with severe cognitive impairments, has potential to empower carers and other support professionals to develop an enhanced understanding of people with advanced Alzheimer’s disease and so deliver better calibrated care in attempts to maximize quality of life. Deep assessment uses a combination of techniques, namely, Behaviour State Observation, Triangulated Proxy Reporting, and Startle Reflex Modulation Measurement, to deliver a comprehensive and deep assessment of the inner states (awareness, preferences, likes, and dislikes) of people who cannot reliably self-report. This paper explains deep assessment and its current applications. It then suggests how it can be applied to people with advanced Alzheimer’s disease to develop others’ understanding of their inner states and to help improve their quality of life. An illustrative hypothetical vignette is used to amplify this framework. We discuss the potential utility and efficacy of this technique for this population and we also propose other human conditions that may benefit from research using a deep assessment approach.

scholarly journals Literature Review on Development and Validation of Quality of Life Tool among Chemotherapy Patients

2020 ◽  
Author(s):  
Virendra Kumar Jain ◽  
Anil Sharma
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Heart Diseases ◽  
Self Report ◽  
Face Validity ◽  
World Health ◽  
Validity And Reliability ◽  
Chemotherapy Patients ◽  
C 30

Introduction: Cancer is the second commonest explanation for death subsequent to heart diseases and it represented 8.8 million deaths worldwide during 2015. Quality of Life (QOL) is all about personal satisfaction, degree or the standard to which an individual, gathering of individuals or community people can appreciates the significant inclination and experience of life like physically, mentally, socially, etc. Aim: To identify the existing tools or instrument for QOL among chemotherapy patients. Materials and Methods: A systematic review of literature for QOL tool among chemotherapy patients was conducted. Electronic databases were looked: Pubmed, proquest, PsycINFC Scopus, Cumulative Index to Nursing and Allied Health Literature (CINHAL). Results: Researcher found 673 research papers from electronic data base: from that 353 articles were excluded bases on exclusion criteria. So total retrieved articles were 320 among all 51 duplicate articles, 88 No full text available, 58 not relevant and 47 abstracts were excluded. Final retrieved articles were 76; among them 38 full articles were excluded based on inclusion criteria. Finally, according to 38 studies, out of 14 investigations utilised European Organisation for the Research and Treatment of Cancer (EORTC QOL-C 30) survey, four studies used the Health Related Quality Of Life (HRQOL) tool, four studies used World Health Organisation Quality of Life-BREF (WHOQOL-BREF) is a self-report questionnaire which assesses 4 domains of quality of life (QOL): physical health, psychological health, social relationships, and environment, Twelve studies used self administered questionnaire, four studies used other method like face to face validity, Functional Assessment of Cancer Therapy (FACT) etc. The most-normally utilised instrument was a QOL tool for use in universal clinical preliminaries in oncology having a place with EORTC QOL C-30 survey, HRQOL tool and WHO BREF tool. Conclusion: In this review study variety of instruments has been used by the researcher that explores the QOL of chemotherapy patients. The significance of psychometric properties of the instruments and its effect on discoveries rising up out of various examinations, it appears to be fundamental that more thought be paid to the validity and reliability of tool before conducting the research studies. Literature suggested that the analysts contribute enough consideration regarding the choice of standard instruments and organise the instruments' validity and reliability of their outlook explores. Finding of study suggested that tools along with ideal psychometrics properties which were good with the socio-cultural setting of particular country.

Empirical Foundations and Limits

2015 ◽  
Author(s):  
Lisa Drago Piechowski
Keyword(s):  
Mental Health ◽  
Disability Evaluation ◽  
Cognitive Disorders ◽  
Self Report ◽  
Third Party ◽  
Report Data ◽  
Effect Of Treatment ◽  
Self Report Data ◽  
The Impact ◽  
The Relationship

This chapter focuses on empirical foundations and limitations relevant to disability evaluation. It first considers the prevalence of disability claims and the demographics of disability claimants before turning to a discussion of the relationship between disability outcomes and mental health disorders such as depression, bipolar disorder, anxiety disorders, substance abuse, and cognitive disorders. It then reviews research regarding the impact on work-functioning of various mental health conditions and the effect of treatment, along with findings on the use of psychological tests, self-report data, and third-party information in disability evaluations. Finally, it assesses the prevalence of dissimulation in disability claims and describes appropriate methods for addressing this in the evaluation.

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