scholarly journals Health Care Transition in Adolescents and Young Adults With Diabetes

2010 ◽  
Vol 28 (3) ◽  
pp. 99-106 ◽  
Author(s):  
M. E. Bowen ◽  
J. A. Henske ◽  
A. Potter
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Adolescents And Young Adults ◽  
Care Transition ◽  
Health Care Transition

scholarly journals Health Care Transition of Adolescents and Young Adults with Haemophilia: the Situation in Germany and the Munich experience

2020 ◽  
Vol 40 (01) ◽  
pp. 097-104
Author(s):  
Christoph Bidlingmaier ◽  
Martin Olivieri ◽  
Freimut H. Schilling ◽  
Karin Kurnik ◽  
Isabell Pekrul
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Early Adulthood ◽  
Standard Of Care ◽  
Health Care Team ◽  
Adolescents And Young Adults ◽  
Care Transition ◽  
Future Health ◽  
Health Care Transition ◽  
Treatment Centre

AbstractPatients suffering from haemophilia encounter various phases in life, in which individual needs, life situations, and self- and disease perception change rapidly. One of these phases spans from the beginning of puberty until early adulthood, in which individuals gain self-responsibility and reach independence and autonomy. In this challenging time that determines future health, adolescents and young adults need sustainable familiar and professional support. A change in health care team and treatment centre may expose adolescent patients to threats but also provides the possible opportunity to be well prepared. While there is emerging evidence that the so-called health care transition programmes are effective in maintaining quality of care in other disease areas, transition programmes for patients with haemophilia are still rare in Germany, and the evidence is limited. We describe the situation in Germany, discuss our experience in Munich and review some of the available guidance; we conclude that transition programmes should become a standard of care in haemophilia.

Self-Management and Health Care Transition Among Adolescents and Young Adults With Chronic Kidney Disease: Medical and Psychosocial Considerations

2017 ◽  
Vol 24 (6) ◽  
pp. 405-409 ◽  
Author(s):  
Maria E. Díaz-González de Ferris ◽  
Marta Del Villar-Vilchis ◽  
Ricardo Guerrero ◽  
Victor M. Barajas-Valencia ◽  
Emily B. Vander-Schaaf ◽  
...  
Keyword(s):  
Health Care ◽  
Chronic Kidney Disease ◽  
Young Adults ◽  
Kidney Disease ◽  
Adolescents And Young Adults ◽  
Self Management ◽  
Care Transition ◽  
Health Care Transition

scholarly journals Improving health care transition and longitudinal care for adolescents and young adults with hydrocephalus: report from the Hydrocephalus Association Transition Summit

2019 ◽  
Vol 131 (4) ◽  
pp. 1037-1045 ◽  
Author(s):  
Michael A. Williams ◽  
Tessa van der Willigen ◽  
Patience H. White ◽  
Cathy C. Cartwright ◽  
David L. Wood ◽  
...  
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Health Care Professionals ◽  
Health Care Services ◽  
Care Transition ◽  
Health Care Transition ◽  
Professional Societies ◽  
Consensus Recommendations ◽  
Care Services ◽  
The Us

The health care needs of children with hydrocephalus continue beyond childhood and adolescence; however, pediatric hospitals and pediatric neurosurgeons are often unable to provide them care after they become adults. Each year in the US, an estimated 5000–6000 adolescents and young adults (collectively, youth) with hydrocephalus must move to the adult health care system, a process known as health care transition (HCT), for which many are not prepared. Many discover that they cannot find neurosurgeons to care for them. A significant gap in health care services exists for young adults with hydrocephalus. To address these issues, the Hydrocephalus Association convened a Transition Summit in Seattle, Washington, February 17–18, 2017.The Hydrocephalus Association surveyed youth and families in focus groups to identify common concerns with HCT that were used to identify topics for the summit. Seven plenary sessions consisted of formal presentations. Four breakout groups identified key priorities and recommended actions regarding HCT models and practices, to prepare and engage patients, educate health care professionals, and address payment issues. The breakout group results were discussed by all participants to generate consensus recommendations.Barriers to effective HCT included difficulty finding adult neurosurgeons to accept young adults with hydrocephalus into their practices; unfamiliarity of neurologists, primary care providers, and other health care professionals with the principles of care for patients with hydrocephalus; insufficient infrastructure and processes to provide effective HCT for youth, and longitudinal care for adults with hydrocephalus; and inadequate compensation for health care services.Best practices were identified, including the National Center for Health Care Transition Improvement’s “Six Core Elements of Health Care Transition 2.0”; development of hydrocephalus-specific transition programs or incorporation of hydrocephalus into existing general HCT programs; and development of specialty centers for longitudinal care of adults with hydrocephalus.The lack of formal HCT and longitudinal care for young adults with hydrocephalus is a significant health care services problem in the US and Canada that professional societies in neurosurgery and neurology must address. Consensus recommendations of the Hydrocephalus Association Transition Summit address 1) actions by hospitals, health systems, and practices to meet local community needs to improve processes and infrastructure for HCT services and longitudinal care; and 2) actions by professional societies in adult and pediatric neurosurgery and neurology to meet national needs to improve processes and infrastructure for HCT services; to improve training in medical and surgical management of hydrocephalus and in HCT and longitudinal care; and to demonstrate the outcomes and effectiveness of HCT and longitudinal care by promoting research funding.

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