scholarly journals Comparing the experiences of rural and urban family caregivers of the terminally ill

2013 ◽  
Author(s):  
Kevin Brazil ◽  
Sharon Kaasalainen ◽  
Allison Williams ◽  
Christine Rodriguez
Keyword(s):  
Family Caregivers ◽  
Terminally Ill ◽  
Rural And Urban ◽  
Urban Family

A Comparison of Support Needs Between Rural and Urban Family Caregivers Providing Palliative Care

2013 ◽  
Vol 31 (1) ◽  
pp. 13-19 ◽  
Author(s):  
Kevin Brazil ◽  
Sharon Kaasalainen ◽  
Allison Williams ◽  
Serge Dumont
Keyword(s):  
Palliative Care ◽  
Family Caregivers ◽  
Support Needs ◽  
Rural And Urban ◽  
Urban Family

Sleep Pattern and Predictors of Sleep Disturbance Among Family Caregivers of Terminal Ill Patients With Cancer in Taiwan: A Longitudinal Study

2018 ◽  
Vol 35 (8) ◽  
pp. 1109-1117 ◽  
Author(s):  
Kwo-Chen Lee ◽  
Ya-Ling Hsieh ◽  
Pi-Chu Lin ◽  
Yun-Ping Lin
Keyword(s):  
Longitudinal Study ◽  
Sleep Quality ◽  
Sleep Disturbance ◽  
Family Caregivers ◽  
Terminally Ill ◽  
Patients With Cancer ◽  
Terminally Ill Patients ◽  
Prospective Longitudinal

Background: Sleep disturbance commonly has a negative impact on the well-being of family caregivers (FCs) of terminally ill patients with cancer. The effect of sleep disturbance on FCs has not been explored through long-term follow-up studies in Taiwan. Objective: The purposes of this study were to (1) identify the trajectory of sleep quality of FCs of terminally ill patients with cancer in Taiwan and (2) examine the determinants of sleep disturbance through a longitudinal follow-up until patient death. Methods: A prospective, longitudinal study was conducted among 95 FCs of terminally ill patients with cancer. The FCs’ sleep quality was measured subjectively by using the Pittsburgh Sleep Quality Index and objectively by wearing a wrist actigraphy for 48 hours each month during the 6-month follow-up assessments. The trajectory and determinants of sleep quality were identified using a generalized estimation equation approach. Results: The FCs’ sleep quality significantly decreased as the patient’s death approached. Family caregivers who were women or older, had a relative with a longer survival period after diagnosis, reported higher levels of depression and fatigue, and provided lower levels of assistance to their relatives experienced more sleep disturbance. Conclusion: The sleep quality of Taiwanese FCs significantly deteriorated as the death of the terminally ill patients with cancer approached. Early detection of the FCs’ sleep disturbance, increasing their self-awareness of sleep problems, and providing nonpharmacological interventions and psychosocial support may be helpful for FCs to improve their quantity and quality of sleep.

Associations of death‐preparedness states with bereavement outcomes for family caregivers of terminally ill cancer patients

2021 ◽  
Author(s):  
Fur‐Hsing Wen ◽  
Wen‐Chi Chou ◽  
Ming‐Mo Hou ◽  
Po‐Jung Su ◽  
Wen‐Chi Shen ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Family Caregivers ◽  
Terminally Ill ◽  
Terminally Ill Cancer Patients

scholarly journals Preferences on the Timing of Initiating Advance Care Planning and Withdrawing Life-Sustaining Treatment between Terminally-Ill Cancer Patients and Their Main Family Caregivers: A Prospective Study

2020 ◽  
Vol 17 (21) ◽  
pp. 7954
Author(s):  
Cheng-Pei Lin ◽  
Jen-Kuei Peng ◽  
Ping-Jen Chen ◽  
Hsien-Liang Huang ◽  
Su-Hsuan Hsu ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Advance Care Planning ◽  
Medical Decision Making ◽  
Terminally Ill ◽  
Medical Decision ◽  
Care Planning ◽  
Terminally Ill Cancer Patients ◽  
Life Sustaining Treatment ◽  
Advance Care ◽  
A Prospective Study

Background: The Western individualistic understanding of autonomy for advance care planning is considered not to reflect the Asian family-centered approach in medical decision-making. The study aim is to compare preferences on timing for advance care planning initiatives and life-sustaining treatment withdrawal between terminally-ill cancer patients and their family caregivers in Taiwan. Methods: A prospective study using questionnaire survey was conducted with both terminally-ill cancer patient and their family caregiver dyads independently in inpatient and outpatient palliative care settings in a tertiary hospital in Northern Taiwan. Self-reported questionnaire using clinical scenario of incurable lung cancer was employed. Descriptive analysis was used for data analysis. Results: Fifty-four patients and family dyads were recruited from 1 August 2019 to 15 January 2020. Nearly 80% of patients and caregivers agreed that advance care planning should be conducted when the patient was at a non-frail stage of disease. Patients’ frail stage of disease was considered the indicator for life-sustaining treatments withdrawal except for nutrition and fluid supplements, antibiotics or blood transfusions. Patient dyads considered that advance care planning discussions were meaningful without arousing emotional distress. Conclusion: Patient dyads’ preferences on the timing of initiating advance care planning and life-sustaining treatments withdrawal were found to be consistent. Taiwanese people’s medical decision-making is heavily influenced by cultural characteristics including relational autonomy and filial piety. The findings could inform the clinical practice and policy in the wider Asia–Pacific region.

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