scholarly journals The Lived Experience of Spiritual Well-Being Amongst Informal Caregivers of Persons with Dementia on Palliative Care Living at Home

2019 ◽  
Author(s):  
Michael Baumgardner
Keyword(s):  
Palliative Care ◽  
Lived Experience ◽  
Informal Caregivers ◽  
Well Being ◽  
Spiritual Well Being ◽  
At Home

Comfort, Connection and Music: Experiences of Music Therapy and Inter-Active Listening on a Palliative Care Unit

2017 ◽  
Vol 9 (4) ◽  
pp. 227
Author(s):  
SarahRose Black ◽  
Gary Rodin ◽  
Camilla Zimmermann
Keyword(s):  
Palliative Care ◽  
Music Therapy ◽  
Lived Experience ◽  
Psychosocial Support ◽  
Well Being ◽  
Palliative Care Unit ◽  
Active Listening ◽  
Specific Effects ◽  
Spiritual Well Being ◽  
Receptive Music Therapy

Music therapy in palliative care aims to provide psychosocial support, assistance with pain and symptom management and opportunities for life review and legacy work. Although there have been a variety of studies conducted on the effects of music therapy in palliative care facilities, there is a gap in research examining the experience and feasibility of music therapy on acute palliative care units within cancer care settings. This qualitative study explored the lived experience of inter-active listening (IAL), an individualized music therapy in which the therapist plays music or sings while the patient engages through listening, for nine inpatients on a palliative care unit. The study found that a receptive music therapy referred to as IAL was associated, in cancer patients in an acute palliative care unit, with increased emotional and spiritual well-being and a greater sense of connection to self and others. Further research into specific effects of various music therapy intervention styles is warranted. 

scholarly journals Soothing Sounds: an Investigation into the Value of Music in Palliative Care

2021 ◽  
Author(s):  
◽  
Karen Anne Hall
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Lived Experience ◽  
Well Being ◽  
The Body ◽  
Holistic Care ◽  
Supportive Environment ◽  
Whole Person ◽  
Spiritual Well Being ◽  
Therapeutic Properties

<p>Music has almost turned full circle in its application for people whose physical, emotional, and spiritual well-being needs to be addressed, particularly in palliative care. Music has been used for centuries to enhance everyday life, and offer therapeutic properties to heal the body and the soul. Since the development of palliative care as a specialised area of medicine and nursing in the 1970s there has been an increased awareness in providing total or holistic care. This acknowledges the patient as a whole person, and the multitude of difficulties that patients and their families may face. Music can be useful in helping individuals to cope with the physical, emotional, mental, and spiritual pain that accompanies dying. Because of music's non-threatening nature, it can often 'speak' where words are sometimes difficult. Music is tied closely to human emotions, and often music can be the catalyst to 'lift the lid' off these emotions in a safe, supportive environment. This qualitative study focuses on van Manen's theory of the 'lived experience' in relation to two families and asks the first thesis question. What is the value of music in the care of someone who is dying? Over the course of their loved one's illness these families provided music in the patients home as part of their care. The study also captures the experiences of two nurses who work in the palliative setting, and their use of music in providing holistic care to their patients. Their experiences relate to the second question. How can nurses be assisted in introducing music into their planned care of patients? The results demonstrate the effectiveness of using taped music for someone who is dying, and the reduction in symptoms, such as anxiety, and pain. It also highlights the importance of the individual's choice, and the special moments that can be achieved for both patient and families when music is used in a caring, supportive environment. This encourages communication, especially in the sharing of emotions. This study may be the first qualitative study in New Zealand, that addresses the value of music in palliative care, therefore there is a need for continued research into this therapy as a treatment modality as part of planned care in palliative nursing.</p>

scholarly journals Soothing Sounds: an Investigation into the Value of Music in Palliative Care

2021 ◽  
Author(s):  
◽  
Karen Anne Hall
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Lived Experience ◽  
Well Being ◽  
The Body ◽  
Holistic Care ◽  
Supportive Environment ◽  
Whole Person ◽  
Spiritual Well Being ◽  
Therapeutic Properties

<p>Music has almost turned full circle in its application for people whose physical, emotional, and spiritual well-being needs to be addressed, particularly in palliative care. Music has been used for centuries to enhance everyday life, and offer therapeutic properties to heal the body and the soul. Since the development of palliative care as a specialised area of medicine and nursing in the 1970s there has been an increased awareness in providing total or holistic care. This acknowledges the patient as a whole person, and the multitude of difficulties that patients and their families may face. Music can be useful in helping individuals to cope with the physical, emotional, mental, and spiritual pain that accompanies dying. Because of music's non-threatening nature, it can often 'speak' where words are sometimes difficult. Music is tied closely to human emotions, and often music can be the catalyst to 'lift the lid' off these emotions in a safe, supportive environment. This qualitative study focuses on van Manen's theory of the 'lived experience' in relation to two families and asks the first thesis question. What is the value of music in the care of someone who is dying? Over the course of their loved one's illness these families provided music in the patients home as part of their care. The study also captures the experiences of two nurses who work in the palliative setting, and their use of music in providing holistic care to their patients. Their experiences relate to the second question. How can nurses be assisted in introducing music into their planned care of patients? The results demonstrate the effectiveness of using taped music for someone who is dying, and the reduction in symptoms, such as anxiety, and pain. It also highlights the importance of the individual's choice, and the special moments that can be achieved for both patient and families when music is used in a caring, supportive environment. This encourages communication, especially in the sharing of emotions. This study may be the first qualitative study in New Zealand, that addresses the value of music in palliative care, therefore there is a need for continued research into this therapy as a treatment modality as part of planned care in palliative nursing.</p>

The effectiveness of hope-fostering interventions in palliative care: A systematic review and meta-analysis

2021 ◽  
pp. 026921632199472
Author(s):  
Natalia Salamanca-Balen ◽  
Thomas V Merluzzi ◽  
Man Chen
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Palliative Care ◽  
Meta Analysis ◽  
Symptom Burden ◽  
Well Being ◽  
Medium Effect ◽  
Spiritual Well Being ◽  
Quasi Experimental

Background: The concept of hope is an important theme in chronic illness and palliative care and has been associated with increased psycho-spiritual well-being and quality of life. Psycho-spiritual interventions have been described in this population, but no systematic review of hope-enhancing interventions or hopelessness-reducing interventions has been conducted for persons with palliative care diseases. Aim: To describe and assess the effectiveness of interventions in palliative care that measure hope and/or hopelessness as an outcome. Design: This systematic review and meta-analysis was pre-registered (Prospero ID: CRD42019119956). Data sources: Electronic databases, journals, and references were searched. We used the Cochrane criteria to assess the risk of bias within studies. Results: Thirty-five studies (24 randomized controlled trials, 5 quasi-experimental, 6 pre-post studies) involving a total of 3296 palliative care patients were included. Compared with usual/standard cancer care alone, interventions significantly increased hope levels at a medium effect size ( g = 0.61, 95% confidence interval (CI) = 0.28–0.93) but did not significantly reduce hopelessness ( g = −0.08, 95% CI = −0.18 to 0.02). It was found that interventions significantly increase spirituality ( g = 0.70, 95% CI = 0.02–1.37) and decrease depression ( g = −0.29, 95% CI = −0.51 to −0.07), but had no significant effect over anxiety, quality of life, and symptom burden. Overall, quality of evidence across the included studies was rated as low. Conclusions: Evidence suggests that interventions can be effective in increasing hope in palliative care patients.

scholarly journals A Novel Narrative E-Writing Intervention (NeW-I) for Parents of Children with Chronic Life-Threatening Illnesses: Protocol for an Open-Label Randomized Controlled Trial

2019 ◽  
Author(s):  
Andy Hau Yan Ho ◽  
Oindrila Dutta ◽  
Geraldine Tan-Ho ◽  
Toh Hsiang Benny Tan ◽  
Casuarine Low Xinyi ◽  
...  
Keyword(s):  
Palliative Care ◽  
Family Caregivers ◽  
Controlled Trial ◽  
Well Being ◽  
Writing Intervention ◽  
Open Label ◽  
Randomized Controlled ◽  
Life Threatening Illness ◽  
Spiritual Well Being ◽  
Life Threatening

Abstract Background: Conventionally, psycho-socio-spiritual interventions for parents of children with chronic life-threatening illness begin post child loss. Pre-loss interventions addressing anticipatory grief can improve holistic well-being and grief outcomes among family caregivers of dying patients. Globally, palliative care strives to holistically support patients and their caregivers at the end-of-life. However, inadequacies exist both globally and in Singapore in providing culturally sensitive psycho-socio-spiritual support to parents whose children need pediatric palliative services. Aim: A novel evidence-based Narrative e-Writing Intervention (NeW-I) is developed to address this gap. NeW-I is a strength-focused, meaning-oriented and therapist-facilitated mobile app and web-based counseling platform that aims to enhance quality of life, spiritual well-being, hope and perceived social support, and reduce depressive symptoms, caregiver burden and risk of complicated grief among parents facing their child’s chronic life-threatening illness. Methods: The design of NeW-I is informed by an international systematic review and a Singapore-based qualitative inquiry on the lived experience of bereaved parents of children with chronic life-threatening illness. The online NeW-I platform and the relative anonymity it offers to participants is sensitive to the unique cultural needs of Asian family caregivers who are uncomfortable with emotional expression even during times of loss and separation. Together with four local pediatric palliative care providers, NeW-I is implemented in Singapore as an open-label pilot randomized controlled trial with 72 parents. Potential effectiveness of NeW-I and accessibility and feasibility of implementing and delivering the intervention are assessed. Discussion: NeW-I aspires to improve psycho-socio-spiritual well-being of parents facing their child’s chronic life-threatening illness through a structured cyber-counseling platform, thereby enhancing holistic pediatric palliative care and parental bereavement support services. Findings from this pilot study will inform the development of a standardized NeW-I protocol and further research to evaluate the efficacy of NeW-I in Singapore and in other Asian communities around the world.

scholarly journals Investigation Of Spiritual Well-Being Palliative Care Of Patients

2019 ◽  
Vol 9 (7) ◽  
pp. 496-513 ◽  
Author(s):  
Fadime Çinar*, Turgay Sirin
Keyword(s):  
Palliative Care ◽  
Personal Information ◽  
Healing Process ◽  
Well Being ◽  
Term Treatment ◽  
Long Term Treatment ◽  
Spiritual Well Being ◽  
Life Threatening ◽  
The Difference ◽  
The Individual

Background: One of the indispensable aspects of the philosophy of holistic care,and negative situations such as life-threatening illness, spiritual well-being, which isdefined as the search for a relationship with a divine soul, is a requirement that mustbe met in order to maintain the existence of the individual. The patient's need forsocial and spiritual well-being increases even more in cases of long-term treatment,such as cancer, that reduce the quality of life. Determining and meeting the spiritualneeds of the individual in the difficult times of the crisis can be realized bydetermining the spiritual well-being levels of the individuals and by providing theindividual spiritual care. This study was conducted to determine the level of thespiritual well-being of palliative care patients diagnosed with cancer. Methods: Thisis a descriptive study. The population of the study consisted of 124 patientsdiagnosed with cancer who were hospitalized in the palliative unit between Januaryand August 2018 and were treated in two state hospitals operating on the Europeanside of Istanbul. The sample consisted of 111 people with voluntary participationand communication. Personal Information Form and Spiritual Well-being Scalewere used to collect data. Data were evaluated by one-way analysis of variance (one-way anova) and significance (t-test) of the difference between the two means.Results: The total score averages from the spiritual good scale of individualsparticipating in the Study were determined to be good with x = 4,15. In terms ofthe level of education of Scale scores, only "Anomi" is significantly differentiatedbetween groups of age, with a total score of the scale, In the sub-dimension oftranscendity and the subdimension of "Harmony with Nature" according to thevariable metastasis (p > 0.05). Conclusion: Spiritual Well-being has a positive effecton the healing process of individuals with impaired health. It helps individuals whohave a crisis in life threatening diseases such as Cancer to cope with this crisis and toprovide spiritual well-being in the sense of life. In This process, spiritual careinitiatives by healthcare professionals can be transformed into a part of the healingprocess and the spiritual goodness of the individual can be increased. Furtherresearch in This area is projected to contribute to the richening of the relevantliterature in Turkey.Key words: Spiritual, spiritual well-being, palliative care, palliative care unit

Finding peace in clinical settings: A narrative review of concept and practice

2016 ◽  
Vol 15 (4) ◽  
pp. 490-498 ◽  
Author(s):  
Philip Austin ◽  
Roderick MacLeod
Keyword(s):  
Palliative Care ◽  
Chronic Illness ◽  
Terminal Illness ◽  
Well Being ◽  
Narrative Review ◽  
Clinical Settings ◽  
Positive Effects ◽  
Spiritual Well Being

ABSTRACTThe purpose of this review was to investigate and review the concept of “peace” and the role it plays in the spiritual well-being and care of people with a chronic or terminal illness. Our objectives were, first, to examine the importance of peace in palliative care as a measure of acceptance and in chronic illness settings as a predictor of improved survival. Second, we explored the dimensions of peace and their relationships with spiritual well-being. We further examined how the constructs of peace are assessed both within valid spiritual well-being measures and as individual items related solely to peace. Finally, we examined therapies aimed at promoting peace and emotional well-being in palliative and chronic illness settings. Despite much being written about different constructs of peace and the positive effects of being at peace during times of illness, the effects of therapies on the feeling of peace are not well-studied.

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