Involving the public in systematic reviews: a narrative review of organizational approaches and eight case examples

2012 ◽  
Vol 1 (5) ◽  
pp. 409-420 ◽  
Author(s):  
Jonathan Boote ◽  
Wendy Baird ◽  
Anthea Sutton
2021 ◽  
pp. 1-23
Author(s):  
Melanie A. Stearns ◽  
Carolyn E. Ievers-Landis ◽  
Christina S. McCrae ◽  
Stacey L. Simon

BMJ Open ◽  
2018 ◽  
Vol 8 (10) ◽  
pp. e026040 ◽  
Author(s):  
Carina Oedingen ◽  
Tim Bartling ◽  
Christian Krauth

IntroductionOrgan transplantation is the treatment of choice for patients with severe organ failure. Nevertheless, donor organs are a scarce resource resulting in a large mismatch between supply and demand. Therefore, priority-setting leads to the dilemma of how these scarce organs should be allocated and who should be considered eligible to receive a suitable organ. In order to improve the supply–demand mismatch in transplantation medicine, this study explores preferences of different stakeholders (general public, medical professionals and patients) for the allocation of donor organs for transplantation in Germany. The aims are (1) to determine criteria and preferences, which are relevant for the allocation of scarce donor organs and (2) to compare the results between the three target groups to derive strategies for health policy.Methods and analysisWe outline the study protocol for discrete choice experiments, where respondents are presented with different choices including attributes with varied attribute levels. They were asked to choose between these choice sets. First, systematic reviews will be conducted to identify the state of art. Subsequently, focus group discussions with the public and patients as well as expert interviews with medical professionals will follow to establish the attributes that are going to be included in the experiments and to verify the results of the systematic reviews. Using this qualitative exploratory work, discrete choice studies will be designed to quantitatively assess preferences. We will use a D-efficient fractional factorial design to survey a total sample of 600 respondents according to the public, medical professionals and patients each. Multinomial conditional logit model and latent class model will be analysed to estimate the final results.Ethics and disseminationThis study has received Ethics Approval from the Hannover Medical School Human Ethics Committee (Vote number: 7921_BO_K_2018). Findings will be disseminated through conference presentations, workshops with stakeholders and peer-reviewed journal articles.


BJPsych Open ◽  
2018 ◽  
Vol 4 (6) ◽  
pp. 427-440 ◽  
Author(s):  
Anthony F. Jorm ◽  
Anna M. Ross

BackgroundExpert-consensus guidelines have been developed for how members of the public should assist a person with a mental health problem or in a mental health crisis.AimsThis review aimed to examine the range of guidelines that have been developed and how these have been implemented in practice.MethodA narrative review was carried out based on a systematic search for literature on the development or implementation of the guidelines.ResultsThe Delphi method has been used to develop a wide range of guidelines for English-speaking countries, Asian countries and a number of other cultural groups. The primary implementation has been through informing the content of training courses.ConclusionFurther work is needed on guidelines for low- and middle-income countries.Declaration of interestA.F.J. is an unpaid member of the Board of Mental Health First Aid International (trading as Mental Health First Aid Australia), which is a not-for-profit organisation.


2020 ◽  
Vol 4 (Supplement_2) ◽  
pp. 1732-1732
Author(s):  
Huma Rana ◽  
Kaylyn Dixon ◽  
Sylvie St-Pierre ◽  
Bryony Sinclair

Abstract Objectives In an era of rising chronic disease rates and conflicting healthy eating messages, the public needs evidence-informed, credible healthy eating information to help guide their food choices. This is why credible scientific bodies have developed systematic approaches to reviewing evidence in order to inform nutrition recommendations. Health Canada compared the latest evidence review processes and grading methodologies that are used by credible scientific bodies to develop nutrition recommendations. Methods An environmental scan of evidence review approaches used by credible scientific bodies was conducted. Websites of scientific bodies were searched, and flowcharts and summaries of each scientific body's evidence review process were developed. The evidence review processes were then assessed and compared between scientific bodies, and with their own previous approaches. Results Evidence review processes of 11 scientific bodies were included in the comparison. All scientific bodies use a systematic approach to gather and review evidence, including the use of systematic reviews, and involve experts in the review of evidence to determine its strength. However, expert groups use varying criteria to grade the evidence. Interesting similarities also exist in how the evidence review processes have evolved over time to strengthen scientific rigour and credibility. For efficiency, scientific bodies are increasingly using ‘review of systematic reviews’ in their evidence review as more systematic reviews have become available. In addition, there is improved transparency in evidence review methods and scientific bodies have increased efforts to engage the public. Conclusions Overall, the methodologies of the scientific bodies are similar in their rigorous approach to reviewing evidence to inform the development of nutrition recommendations. However, they differ in how they engage experts and grade the strength of the evidence. Another difference is the transparency of their evidence review methods, which is important to allow for meaningful comparison and understanding of conclusions across scientific bodies. Funding Sources The authors received no specific funds for this work. The authors have no conflict of interest to declare.


Author(s):  
Henry Tam

This chapter provides a critical introduction to the problem of disengagement between governments and citizens. It looks at different arguments for reforming the scope and approach adopted by the state and explains why the way forward has to be through more effective state-citizen cooperation. It also gives a general outline of the three parts of the book. The first part examines the theoretical background and recent development of state-citizen cooperation to find out why more attention should be given to advance it; how its impact should be judged; and what makes it distinctive and complementary to other proposals on improving democratic governance. The second part reviews policies and strategies that have been tried out in different parts of the world to enable citizens and state institutions to work together in an informed and collaborative manner in defining and pursuing the public good. The final part considers how various underlying barriers to effective state-citizen cooperation can be overcome, with reference to specific case examples.


2018 ◽  
Vol 9 (4) ◽  
pp. 527-539 ◽  
Author(s):  
Hannah Wood ◽  
Annette O'Connor ◽  
Jan Sargeant ◽  
Julie Glanville

2020 ◽  
Vol 50 (6-7) ◽  
pp. 628-634
Author(s):  
Christopher L. Atkinson ◽  
Clifford McCue ◽  
Eric Prier ◽  
Allison M. Atkinson

The COVID-19 pandemic has placed remarkable stress on all aspects of society, from health care and the economy to the psychological well-being of communities. While the crisis is still playing out in the United States and around the world, it is nevertheless appropriate to begin to assess its impact. This article asks: What documentable public failures provide a deeper understanding of the U.S. government COVID-19 responses’ impact on supply chains? Case examples show that markets were adversely affected in ways that caused avoidable shortages of critical goods and supplies. Moreover, public procurement effectiveness was likely reduced by short-run efforts to obtain political advantage. The article begins with a brief review of disaster procurement, highlighting how public procurement professionals tried to respond to the COVID-19 pandemic. The next section delineates three politically led phenomena that adversely impacted procurement’s ability to acquire the needed goods and services, including a lack of cohesive strategy in acquiring essential personal protective equipment; preference for unproven drugs and magical thinking; and cozy relationships between the public and private sectors. The article concludes by discussing the centrality of public sector procurement professionals as a critical link for effective provision of government services, especially in times of crisis.


2019 ◽  
Vol 73 (4) ◽  
pp. 154-162 ◽  
Author(s):  
Ibrahim Nadeem ◽  
Mohammed Z. Rahman ◽  
Yasser Ad‐Dab'bagh ◽  
Mahmood Akhtar

2020 ◽  
Vol 35 (6) ◽  
pp. 1830-1835 ◽  
Author(s):  
Jennifer S. Lin ◽  
M. Hassan Murad ◽  
Brian Leas ◽  
Jonathan R. Treadwell ◽  
Roger Chou ◽  
...  

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