Developing a self-administered Decision Aid for FIT based Colorectal Cancer screening tailored to citizens with lower educational attainment: a qualitative study

2017 ◽  
Author(s):  
Pernille Gabel ◽  
Pia Kirkegaard ◽  
Mette Bach Larsen ◽  
Adrian Edwards ◽  
Berit Andersen
Keyword(s):  
Colorectal Cancer ◽  
Cancer Screening ◽  
Qualitative Study ◽  
Educational Attainment ◽  
Colorectal Cancer Screening ◽  
Decision Aid ◽  
Lower Educational Attainment

scholarly journals Making decisions about colorectal cancer screening. A qualitative study among citizens with lower educational attainment

2015 ◽  
Vol 26 (1) ◽  
pp. 176-181 ◽  
Author(s):  
Pia Kirkegaard ◽  
Gitte Lee Mortensen ◽  
Steen Lee Mortensen ◽  
Mette Bach Larsen ◽  
Pernille Gabel ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Cancer Screening ◽  
Qualitative Study ◽  
Educational Attainment ◽  
Colorectal Cancer Screening ◽  
Lower Educational Attainment

scholarly journals Effectiveness of a decision aid for colorectal cancer screening on components of informed choice according to educational attainment: A randomised controlled trial

PLoS ONE ◽  
2020 ◽  
Vol 15 (11) ◽  
pp. e0241703
Author(s):  
Pernille Gabel ◽  
Mette Bach Larsen ◽  
Adrian Edwards ◽  
Pia Kirkegaard ◽  
Berit Andersen
Keyword(s):  
Colorectal Cancer ◽  
Cancer Screening ◽  
Educational Attainment ◽  
Colorectal Cancer Screening ◽  
Decision Aid ◽  
Controlled Trial ◽  
Informed Choice ◽  
Decisional Conflict ◽  
Web Based ◽  
Randomised Controlled

Background The decision to take up colorectal cancer screening has to be made on informed grounds balancing benefits and harms. Self-administered decision aids can support citizens in making an informed choice. A self-administered web-based decision aid targeting citizens with lower educational attainment has been evaluated within the target population. However, the effectiveness in the general screening population remains unexplored. The aim of this study was to evaluate the effectiveness of a web-based decision aid for colorectal cancer screening on components of informed choice among previous non-participants in colorectal cancer screening. Methods and findings The study was designed as a parallel randomised controlled trial among non-participants in colorectal cancer screening in Central Denmark Region (men and women aged 53–74 years). Respondents to baseline and follow-up questionnaires comprised the study population (n = 1,723). The intervention group received the decision aid electronically along with the second reminder. The control group received only the second reminder. The main outcomes (knowledge, attitudes, uptake and decisional conflict) were obtained through questionnaires data and from the Danish Colorectal Cancer Screening Database. The decision aid increased the uptake rate by 8 percentage points (95% CI: 3.4;12.6) but had no effect on either knowledge (scale score differences: 0.09; 95% CI: -0.05;0.24) or attitudes (0.45; 95% CI: -0.00;0.91). Decisional conflict decreased by 1.69 scale points (95% CI: -3.18;-0.20). The effect was similar across educational attainment levels. Conclusions The web-based decision aid offers a feasible way to provide individualised screening information in a "one size fits all" approach that may hold the potential to increase informed CRC screening uptake. Trial registration ClinicalTrials.gov registration number: NCT03253888.

scholarly journals Developing a Self-Administered Decision Aid for Fecal Immunochemical Test�Based Colorectal Cancer Screening Tailored to Citizens With Lower Educational Attainment: Qualitative Study (Preprint)

2017 ◽  
Author(s):  
Pernille Gabel ◽  
Pia Kirkegaard ◽  
Mette Bach Larsen ◽  
Adrian Edwards ◽  
Berit Andersen
Keyword(s):  
Colorectal Cancer ◽  
Health Care ◽  
Cancer Screening ◽  
Colorectal Cancer Screening ◽  
Health Care Professionals ◽  
Decision Aid ◽  
Information Needs ◽  
Screening Participation ◽  
Beta Testing ◽  
Cancer Screening Participation

BACKGROUND Citizens with lower educational attainments (EA) take up colorectal cancer screening to a lesser degree, and more seldom read and understand conventional screening information than citizens with average EAs. The information needs of citizens with lower EA are diverse, however, with preferences ranging from wanting clear recommendations to seeking detailed information about screening. Decision aids have been developed to support citizens with lower EA in making informed decisions about colorectal cancer screening participation, but none embrace diverse information needs. OBJECTIVE The aim of this study was to develop a self-administered decision aid for participation in fecal immunochemical test–based colorectal cancer screening. The decision aid should be tailored to citizens with lower EA and should embrace diverse information needs. METHODS The Web-based decision aid was developed according to an international development framework, with specific steps for designing, alpha testing, peer reviewing, and beta testing the decision aid. In the design phase, a prototype of the decision aid was developed based on previous studies about the information needs of lower EA citizens and the International Patient Decision Aid Standards guidelines. Alpha testing was conducted using focus group interviews and email correspondence. Peer review was conducted using email correspondence. Both tests included both lower EA citizens and health care professionals. The beta testing was conducted using telephone interviews with citizens with lower EA. Data were analyzed using thematic analysis. RESULTS The developed decision aid presented information in steps, allowing citizens to read as much or as little as wanted. Values clarification questions were included after each section of information, and answers were summarized in a “choice-indicator” on the last page, guiding the citizens toward a decision about screening participation. Statistics were presented in both natural frequencies, absolute risk formats and graphically. The citizens easily and intuitively navigated around the final version of the decision aid and stated that they felt encouraged to think about the benefits and harms of colorectal cancer screening without being overloaded with information. They found the decision aid easy to understand and the text of suitable length. The health care professionals agreed with the citizens on most parts; however, concerns were raised about the length and readability of the text. CONCLUSIONS We have developed a self-administered decision aid presenting information in steps. We involved both citizens and health care professionals to target the decision aid for citizens with lower EA. This decision aid represents a new way of communicating detailed information and may be able to enhance informed choices about colorectal cancer screening participation among citizens with lower EA.

scholarly journals A qualitative study of barriers and enablers associated with colorectal cancer screening among Somali men in Minnesota

2018 ◽  
pp. 1-18 ◽  
Author(s):  
Charles R. Rogers ◽  
Ogechi Jessica Obidike ◽  
Sherrie F. Wallington ◽  
Musse Hussein ◽  
Zahra A. Mahamed ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Cancer Screening ◽  
Qualitative Study ◽  
Colorectal Cancer Screening ◽  
Barriers And Enablers
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