scholarly journals Correction: Caregiver Input to Optimize the Design of a Pediatric Care Planning Guide for Rehabilitation: Descriptive Study

2017 ◽  
Author(s):  
Mary A Khetani ◽  
Heather K Lim ◽  
Marya E Corden
Keyword(s):  
Descriptive Study ◽  
Pediatric Care ◽  
Care Planning ◽  
Planning Guide

scholarly journals Caregiver Input to Optimize the Design of a Pediatric Care Planning Guide for Rehabilitation: Descriptive Study (Preprint)

2017 ◽  
Author(s):  
Mary A Khetani ◽  
Heather K Lim ◽  
Marya E Corden
Keyword(s):  
Descriptive Study ◽  
Care Plan ◽  
Pediatric Care ◽  
Care Planning ◽  
Completion Rates ◽  
Web Based ◽  
Initial Care ◽  
Children’S Participation ◽  
Planning Guide ◽  
Children's Participation

BACKGROUND Participation and Environment Measure Plus (PEM+) is a guide that is compatible with the YC-PEM and may expedite care plan development and strengthen a patient’s engagement in discussions and decisions about their values, needs, and desires that shape meaningful care (ie, patient-centered care). OBJECTIVE The objective of this study was to examine the feasibility of a stepwise process for building on a baseline assessment of young children's participation in activities to develop a care plan relevant to pediatric rehabilitation. METHODS A cross-sectional descriptive study design was employed using qualitative methods. Data were collected via Web-based technology and by telephone. Twenty-five caregivers of young children (9 with developmental delays, 16 without delays) and between 1 and 7 years were recruited from a subsample of parents who had previously enrolled in a Web-based validation of a PRO on children’s participation and provided consent for future contact. Each caregiver completed a demographic questionnaire and Young Children’s Participation and Environment Measure (YC-PEM) online, followed by a 20- to 60-min semistructured and audiotaped phone interview to review and build upon PRO results as summarized in an electronic report. Interview data were content coded to the interview guide and reviewed by multiple research staff to estimate feasibility according to stepwise completion rates, perceptions of difficulty in step completion, and perceptions of overall utility. RESULTS Half of the participants in the final study sample (N=25) fully completed a stepwise process of building on their baseline PRO assessment to develop an initial care plan for their child. In most cases, similar stepwise completion rates and trends in the approaches taken for step completion were found regardless of the child’s disability status. However, more parents of children with disabilities reported difficulties in rank ordering their priorities for change and identified child-focused strategies for goal attainment. Nearly 77% (19/25) of users were willing to use the process to develop and communicate intervention priorities and strategies with professionals, family, and friends. CONCLUSIONS Results informed revisions to the care planning guide before usability and feasibility testing of an initial Web-based prototype that is now underway.

scholarly journals Assessment of the product of nursing care in specialized hospitals

2018 ◽  
Vol 71 (suppl 6) ◽  
pp. 2675-2681 ◽  
Author(s):  
Mayara Ruiz Chotolli ◽  
Danielle Fabiana Cucolo ◽  
Marcia Galan Perroca
Keyword(s):  
Nursing Care ◽  
Nursing Staff ◽  
Descriptive Study ◽  
Demographic Variables ◽  
The State ◽  
Care Planning ◽  
Weak Correlation ◽  
And Performance ◽  
And Shifts ◽  
Critical Aspects

ABSTRACT Objective: To evaluate the product of care in units of specialized hospitals, identifying the items that most contributed to the score; to compare the product of care among hospitals, units, and shifts; to verify the association between demographic and professionals variables and the product of care. Method: Descriptive study, conducted in eight units of two specialized hospitals in the State of São Paulo. The evaluation of the product of care was performed by applying an instrument to 44 nurses. Results: "Multidisciplinary interaction and performance" obtained the lowest median in both hospitals, and the "Meeting assistance needs" and "Nursing care planning" were the better assessed ones. "Dimensioning of nursing staff" was the item that most contributed to the total score. There was a weak correlation between socio-demographic variables and score. Conclusion: The product of care, as found in both hospitals, was predominantly considered "good." The tool enabled the identification of critical aspects of the nursing work.

scholarly journals Opening end-of-life discussions: How to introduce Voicing My CHOiCES™, an advance care planning guide for adolescents and young adults

2014 ◽  
Vol 13 (3) ◽  
pp. 591-599 ◽  
Author(s):  
Sima Zadeh ◽  
Maryland Pao ◽  
Lori Wiener
Keyword(s):  
Young Adults ◽  
End Of Life ◽  
Advance Care Planning ◽  
Healthcare Providers ◽  
Pediatric Hiv ◽  
Adolescents And Young Adults ◽  
Care Planning ◽  
Two Phase ◽  
Advance Care ◽  
Planning Guide

AbstractObjective:Each year, more than 11,000 adolescents and young adults (AYAs), aged 15–34, die from cancer and other life-threatening conditions. In order to facilitate the transition from curative to end-of-life (EoL) care, it is recommended that EoL discussions be routine, begin close to the time of diagnosis, and continue throughout the illness trajectory. However, due largely to discomfort with the topic of EoL and how to approach the conversation, healthcare providers have largely avoided these discussions.Method:We conducted a two-phase study through the National Cancer Institute with AYAs living with cancer or pediatric HIV to assess AYA interest in EoL planning and to determine in which aspects of EoL planning AYAs wanted to participate. These results provided insight regarding what EoL concepts were important to AYAs, as well as preferences in terms of content, design, format, and style. The findings from this research led to the development of an age-appropriate advance care planning guide, Voicing My CHOiCES™.Results:Voicing My CHOiCES™: An Advanced Care Planning Guide for AYAbecame available in November 2012. This manuscript provides guidelines on how to introduce and utilize an advance care planning guide for AYAs and discusses potential barriers.Significance of Results:Successful use of Voicing My CHOiCES™ will depend on the comfort and skills of the healthcare provider. The present paper is intended to introduce the guide to providers who may utilize it as a resource in their practice, including physicians, nurses, social workers, chaplains, psychiatrists, and psychologists. We suggest guidelines on how to: incorporate EoL planning into the practice setting, identify timepoints at which a patient's goals of care are discussed, and address how to empower the patient and incorporate the family in EoL planning. Recommendations for introducing Voicing My CHOiCES™ and on how to work through each section alongside the patient are provided.

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