scholarly journals A Computer-Assisted Personal Interview App in Research Electronic Data Capture for Administering Time Trade-off Surveys (REDCap): Development and Pretest (Preprint)

2017 ◽  
Author(s):  
Mark Oremus ◽  
Anis Sharafoddini ◽  
Gian Paolo Morgano ◽  
Xuejing Jin ◽  
Feng Xie

BACKGROUND The time trade-off (TTO) task is a method of eliciting health utility scores, which range from 0 (equivalent to death) to 1 (equivalent to perfect health). These scores numerically represent a person’s health-related quality of life. Software apps exist to administer the TTO task; however, most of these apps are poorly documented and unavailable to researchers. OBJECTIVE To fill the void, we developed an online app to administer the TTO task for a research study that is examining general public proxy health-related quality of life estimates for persons with Alzheimer’s disease. This manuscript describes the development and pretest of the app. METHODS We used Research Electronic Data Capture (REDCap) to build the TTO app. The app’s modular structure and REDCap’s object-oriented environment facilitated development. After the TTO app was built, we recruited a purposive sample of 11 members of the general public to pretest its functionality and ease of use. RESULTS Feedback from the pretest group was positive. Minor modifications included clarity enhancements, such as rearranging some paragraph text into bullet points, labeling the app to delineate different question sections, and revising or deleting text. We also added a research question to enable the identification of respondents who know someone with Alzheimer’s disease. CONCLUSIONS We developed an online app to administer the TTO task. Other researchers may access and customize the app for their own research purposes.

2012 ◽  
Vol 15 (7) ◽  
pp. A450
Author(s):  
C. Willers ◽  
V. Alekna ◽  
M.L. Bianchi ◽  
P. Clarck ◽  
M.D. Curiel ◽  
...  

2014 ◽  
Vol 38 (1) ◽  
pp. 45-52 ◽  
Author(s):  
Stewart Harris ◽  
Muhammad Mamdani ◽  
Claus B. Galbo-Jørgensen ◽  
Mette Bøgelund ◽  
Jens Gundgaard ◽  
...  

2013 ◽  
Vol 16 (11) ◽  
pp. 1357-1365 ◽  
Author(s):  
Marc Evans ◽  
Henrik Holm Jensen ◽  
Mette Bøgelund ◽  
Jens Gundgaard ◽  
Barrie Chubb ◽  
...  

2014 ◽  
Vol 17 (7) ◽  
pp. A401
Author(s):  
F. Rencz ◽  
V. Brodszky ◽  
M. Péntek ◽  
D. Bereczki ◽  
L. Gulacsi

2018 ◽  
Vol 3 (4) ◽  
pp. 346-352 ◽  
Author(s):  
P. Sendi ◽  
N. Oppliger ◽  
F. Chakroun ◽  
C.P. Marinello ◽  
H.C. Bucher ◽  
...  

Background: Health is generally regarded as a very high good, and oral health may substantially affect the quality of life of patients. Oral health–related quality of life has usually been investigated by means of disease-specific descriptive instruments, such as the Oral Health Impact Profile and the General Oral Health Assessment Index. These instruments, however, do not enable a comparison of oral health–related quality of life with other medical diseases. Economic methods, such as the time trade-off technique, enable a comparison of the impact of oral health with other medical diseases and thus provide a means to build a bridge in quality-of-life assessments between medicine and dentistry. Methods: We included in our study a total of 58 patients who received a complete denture in our clinic in the last 10 y (between January 2001 and May 2012) and who were ≥65 y old. Patient preferences for the edentulous and poorest imaginable oral health state were assessed via the time trade-off method. Results: Edentulous patients rated their current oral health state as 0.73 (SD, 0.25) and the poorest oral health state as 0.43 (SD, 0.33) on a scale between 0 (death) and 1 (best possible health state). These results are comparable to patient preferences for other serious diseases, such as breast cancer (0.75), asymptomatic HIV infection (0.69), depression (0.44), and osteoarthritis of the hip (0.44). Conclusion: In conclusion, our results suggest that oral health may substantially affect quality of life no less than other medical diseases. Knowledge Transfer Statement: Health is generally considered the highest good of humankind. In the present article, we show that oral health substantially affects quality of life. In particular, we show that loss of teeth (i.e., being edentulous) reduces quality of life no less than other systemic diseases. Treatment modalities for the edentulous patient may therefore substantially improve the patient’s well-being and should be a research priority.


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