scholarly journals Self-Management and Self-Efficacy in Patients With Acute Spinal Cord Injuries: Protocol for a Longitudinal Cohort Study (Preprint)

2017 ◽  
Author(s):  
Tijn van Diemen ◽  
Eline WM Scholten ◽  
Ilse JW van Nes ◽  
Jan HB Geertzen ◽  
Marcel WM Post ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Cohort Study ◽  
Psychological Adjustment ◽  
Self Efficacy ◽  
Self Care ◽  
The Self ◽  
Longitudinal Cohort Study ◽  
Self Management ◽  
Secondary Outcome ◽  
Longitudinal Cohort

BACKGROUND People with recently acquired spinal cord injury (SCI) experience changes in physical, social and psychological aspects of their lives. In the last decades, attention has grown for aspects of self-management and self-efficacy in SCI research. However, we still do not know what the self-management and self-efficacy outcomes of first rehabilitation are and whether utilizing these skills may prevent secondary health conditions (SHCs) and increase participation and psychological adjustment early after SCI. OBJECTIVE To describe the course and determinants of self-management and self-efficacy during and after first SCI rehabilitation; and to determine theory-based associations between self-management and self-efficacy with SHCs, participation and psychological adjustment. METHODS Multicenter prospective longitudinal cohort study. All people with a newly acquired SCI admitted to one of the 8 specialized SCI rehabilitation centers in the Netherlands will be considered for inclusion in this study. Main assessments will take place during the first and last week of admission and 3, 6 and 12 months after discharge. The target sample is 250 participants. The primary outcomes are self-management (knowledge and execution of self-care) and self-efficacy (confidence in the ability to manage the consequences of SCI and of self-care). Secondary outcome measures are SHCs, participation and psychological adjustment to SCI. RESULTS The first results with the complete set of data are expected in June 2019. CONCLUSIONS This protocol describes the SELF-SCI cohort study investigating self-management and self-efficacy of initial inpatient SCI rehabilitation. Second, associations will be investigated with SHCs, participation and psychological adjustment early after onset of SCI, until 1 year after discharge. The results will be used to test theories about motivation to perform health-promoting behaviors and adjustment to SCI.

scholarly journals Self-Management and Self-Efficacy in Patients With Acute Spinal Cord Injuries: Protocol for a Longitudinal Cohort Study

2018 ◽  
Vol 7 (2) ◽  
pp. e68 ◽  
Author(s):  
Tijn van Diemen ◽  
Eline WM Scholten ◽  
Ilse JW van Nes ◽  
Jan HB Geertzen ◽  
Marcel WM Post ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Cohort Study ◽  
Self Efficacy ◽  
Spinal Cord Injuries ◽  
Longitudinal Cohort Study ◽  
Self Management ◽  
Longitudinal Cohort

scholarly journals Self-Management and Self-Efficacy in Patients With Acute Spinal Cord Injuries: Protocol for a Longitudinal Cohort Study

2017 ◽  
Author(s):  
Tijn van Diemen ◽  
Eline WM Scholten ◽  
Ilse JW van Nes ◽  
Jan HB Geertzen ◽  
Marcel WM Post ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Cohort Study ◽  
Self Efficacy ◽  
Spinal Cord Injuries ◽  
Longitudinal Cohort Study ◽  
Self Management ◽  
Longitudinal Cohort

scholarly journals Self-Efficacy of Older People Using Technology to Self-Manage COPD, Hypertension, Heart Failure, or Dementia at Home: An Overview of Systematic Reviews

2020 ◽  
Author(s):  
Garuth Chalfont ◽  
Céu Mateus ◽  
Sandra Varey ◽  
Christine Milligan
Keyword(s):  
Heart Failure ◽  
Older People ◽  
Systematic Reviews ◽  
Self Efficacy ◽  
Patient Activation ◽  
Self Care ◽  
The Self ◽  
Self Management ◽  
Overview Of Systematic Reviews ◽  
At Home

Abstract Background and Objectives Although telehealth research among the general population is voluminous, the quality of studies is low and results are mixed. Little is known specifically concerning older people and their self-efficacy to engage with and benefit from such technologies. This article reviews the evidence for which self-care telehealth technology supports the self-efficacy of older people with long-term conditions (LTCs) living at home. Research Design and Methods Following Preferred Reporting Items for Systematic Reviews and Meta-Analyses Statement (PRISMA) guidelines, this overview of systematic reviews focused on four LTCs and the concept of “self-efficacy.” Quality was appraised using R-AMSTAR and study evaluation was guided by the PRISMS taxonomy for reporting of self-management support. Heterogeneous data evidencing technology-enhanced self-efficacy were narratively synthesized. Results Five included articles contained 74 primary studies involving 9,004 participants with chronic obstructive pulmonary disease, hypertension, heart failure, or dementia. Evidence for self-care telehealth technology supporting the self-efficacy of older people with LTCs living at home was limited. Self-efficacy was rarely an outcome, also attrition and dropout rates and mediators of support or education. The pathway from telehealth to self-efficacy depended on telehealth modes and techniques promoting healthy lifestyles. Increased self-care and self-monitoring empowered self-efficacy, patient activation, or mastery. Discussion and Implications Future research needs to focus on the process by which the intervention works and the effects of mediating variables and mechanisms through which self-management is achieved. Self-efficacy, patient activation, and motivation are critical components to telehealth’s adoption by the patient and hence to the success of self-care in self-management of LTCs. Their invisibility as outcomes is a limitation.

scholarly journals Differential survival after traumatic spinal cord injury: evidence from a multi-center longitudinal cohort study in Switzerland

Spinal Cord ◽  
2018 ◽  
Vol 56 (10) ◽  
pp. 920-930 ◽  
Author(s):  
Jonviea D. Chamberlain ◽  
Hans Peter Gmünder ◽  
Kerstin Hug ◽  
Xavier Jordan ◽  
André Moser ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Cohort Study ◽  
Longitudinal Cohort Study ◽  
Traumatic Spinal Cord Injury ◽  
Differential Survival ◽  
Longitudinal Cohort ◽  
Cord Injury

scholarly journals Medical cannabis authorization and the risk of cardiovascular events: a longitudinal cohort study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Arsene Zongo ◽  
Cerina Lee ◽  
Jason R. B. Dyck ◽  
Jihane El-Mourad ◽  
Elaine Hyshka ◽  
...  
Keyword(s):  
Cohort Study ◽  
Proportional Hazards ◽  
Incidence Rates ◽  
Cox Proportional Hazards ◽  
Longitudinal Cohort Study ◽  
Secondary Outcome ◽  
Medical Cannabis ◽  
Longitudinal Cohort ◽  
Coronary Syndrome ◽  
Increased Risk

Abstract Background Cannabis is increasingly used for therapeutic purpose. However, its safety profile is not well known. This study assessed the risk of cardiovascular-related emergency department (ED) visit and hospitalization in adult patients authorized to use medical cannabis in Ontario, Canada from 2014 to 2017. Methods This is a longitudinal cohort study of patients who received medical cannabis authorization and followed-up in cannabis clinics, matched to population-based controls. The primary outcome was an ED visit or hospitalization for acute coronary syndrome (ACS) or stroke; and secondary outcome was for any cardiovascular event. Conditional Cox proportional hazards regression was used to assess the association between cannabis authorization and risk. Results 18,653 cannabis patients were matched to 51,243 controls. During a median follow-up of 242 days, the incidence rates for ACS or stroke were 7.19/1000 person-years and 5.67/1000 person-years in the cannabis and controls group, respectively- adjusted hazard ratio (aHR) of 1.44 (95% CI 1.08–1.93). When stratified by sex, the association was only statistically significant among males: aHR 1.77 (1.23–2.56). For the secondary outcome (any CV events), the aHR was 1.47 (1.26–1.72). The aHR among males and females were 1.52 (1.24–1.86) and 1.41 (1.11–1.79), respectively. Tested interaction between cannabis authorization and sex was not significant (p > 0.05). Conclusions Medical cannabis authorization was associated with an increased risk of ED visits or hospitalization for CV events including stroke and ACS.

scholarly journals Evaluation of More Stamina, a Mobile App for Fatigue Management in Persons with Multiple Sclerosis: Protocol for a Feasibility, Acceptability, and Usability Study

10.2196/18196 ◽  
2020 ◽  
Vol 9 (8) ◽  
pp. e18196
Author(s):  
Guido Giunti ◽  
Octavio Rivera-Romero ◽  
Jan Kool ◽  
Jens Bansi ◽  
Jose Luis Sevillano ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Cohort Study ◽  
Mobile App ◽  
Longitudinal Cohort Study ◽  
Self Management ◽  
Activity Levels ◽  
User Centered Design ◽  
Total N ◽  
Longitudinal Cohort ◽  
Fatigue Management

Background Multiple sclerosis (MS) is one of the world’s most common neurologic disorders leading to severe disability in young adults. MS-related fatigue directly impacts on the quality of life and activity levels of people with MS. Self-management strategies are used to support them in the care of their health. Mobile health (mHealth) solutions can offer tools to help symptom management. Following a user-centered design and evidence-based process, an mHealth solution called More Stamina was created to help persons with MS manage their fatigue. Objective The overall study aims are to explore the feasibility, acceptability, and usability of More Stamina, a mobile app for fatigue self-management for persons with MS. Methods A mixed-methods, multicenter study will be used to assess the feasibility, acceptability, and usability of More Stamina. The study will take place during the third and fourth quarters of 2020 (Q3-Q4 2020) in 3 locations: Argentina, Spain, and Switzerland. A longitudinal cohort study will take place, and think-aloud protocols, open-ended interviews, and short answer questionnaires will be used. Persons with MS will be recruited from the different locations. This study seeks to enroll at least 20 patients that meet the criteria from each site for the longitudinal cohort study (total n=60). Results Ethical approval has been granted in Argentina and is pending in Spain and Switzerland. Outcomes will be published in peer-reviewed medical journals and presented at international conferences. Conclusions Findings from this study will be used to help understand the role that mHealth can play in fatigue management in MS. Trial Registration ClinicalTrials.gov NCT04244214; https://clinicaltrials.gov/ct2/show/NCT04244214 International Registered Report Identifier (IRRID) PRR1-10.2196/18196

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