Reddit and Brain Cancer: A Content Analysis of Online Communication on the Brain Tumor Subreddit (Preprint)

2021 ◽  
Author(s):  
Sanidhya D. Tripathi ◽  
Pearman D. Parker ◽  
Arpan V. Prabhu ◽  
Kevin O. Thomas ◽  
Analiz Rodriguez
Keyword(s):  
Content Analysis ◽  
Brain Tumor ◽  
Brain Tumors ◽  
Emotional Processing ◽  
Qualitative Content Analysis ◽  
Online Communication ◽  
Virtual Community ◽  
Community Members ◽  
Qualitative Descriptive ◽  
Met Needs

BACKGROUND Many brain tumor patients commonly utilize online resources such as Reddit as avenues for self-management and support outside of the clinical setting. OBJECTIVE We aimed to examine trends from Reddit discussion treads on brain tumors to identify areas of need in patient care. METHODS We used a qualitative, descriptive design to understand patient and caregivers unmet and met needs. We analyzed the top 100 posts from the ‘braincancer’ subreddit to identify common themes. RESULTS The qualitative content analysis revealed three major topic areas: (1) harnessing hope; (2) moving through the grief process; and (3) expressing gratitude toward other Reddit users. Most of the authors of the posts were patients with brain tumors (n = 32; 36.4%) who used Reddit as a reflective journaling tool to process associated emotions of a challenging diagnosis. CONCLUSIONS This study shows the potential of Reddit to serve as unique group therapy platform for patients affected by brain tumors. Additionally, the results highlight the importance of recommending Reddit as a therapeutic virtual community. Our results highlight the support provided by the Reddit community members as a unique mechanism to assist cancer survivors and caregivers with the emotional processing of living with brain tumors.

QOLP-26. ANALYSIS OF REDDIT USERS' PERSPECTIVES OF BRAIN TUMORS

2021 ◽  
Vol 23 (Supplement_6) ◽  
pp. vi188-vi188
Author(s):  
Sanidhya Tripathi ◽  
Arpan Prabhu ◽  
Kevin Thomas ◽  
Pearman Parker ◽  
Analiz Rodriguez
Keyword(s):  
Social Media ◽  
Brain Tumors ◽  
Online Community ◽  
Qualitative Content Analysis ◽  
Diagnostic Process ◽  
Tumor Patients ◽  
Grief Process ◽  
Qualitative Descriptive ◽  
Met Needs ◽  
Patient Outreach

Abstract BACKGROUND Reddit, ranking 6th in worldwide Internet site traffic, is a commonly used forum among patients and caregivers affected by brain tumors to discuss diagnoses, treatment, and self-care management. The use of the online forum may suggest patients and caregivers have unmet needs and are seeking further support outside of the clinical setting. We aimed to examine trends from Reddit discussion treads on brain tumors to identify areas of need in patient care. METHODS We used a qualitative, descriptive design to understand patient and caregivers unmet and met needs. We analyzed the top 100 posts and accompanying 271 comments from the ‘braincancer’ subreddit to identify common themes. RESULTS The qualitative content analysis revealed three major topic areas: (1) moving through the grief process; (2) processing diagnostic pathway; and (3) expressing gratitude toward other Reddit users. Most of the authors of the posts were patients with brain tumors (n = 32; 38.5%) who used Reddit as a reflective journaling tool to move through the grief process for themselves or loved ones. About 47% of theses posts discussed the diagnostic process of glioblastoma multiforme (GBM) brain tumors, where users requested an inclusive/welcoming environment in the clinic by their healthcare professionals (HPs). Users also solicited and gave support for other members in the online community. CONCLUSIONS This study highlights the need of implementing social media as a part of HPs’ repertoire for patient outreach/needs. Furthermore, social media outlets like Reddit can help HPs understand the level of support they can give to their patients. Plans of action for physicians seeking to meet the needs of brain tumor patients include monitoring the concerns of patients, becoming verified on the platform/openly identifying themselves online, or conducting ‘Ask Me Anything’ discussions to educate patients.

scholarly journals QOLP-27. NEURO-ONCOLOGICAL PATIENTS' AND CAREGIVERS' PSYCHOSOCIAL BURDEN DURING THE COVID-19 PANDEMIC – A PROSPECTIVE STUDY WITH QUALITATIVE CONTENT ANALYSIS

2021 ◽  
Vol 23 (Supplement_6) ◽  
pp. vi188-vi189
Author(s):  
Mirjam Renovanz ◽  
Julia Binswanger ◽  
Carolin Kohl ◽  
Felix Behling ◽  
Susan Noell ◽  
...  
Keyword(s):  
Content Analysis ◽  
Brain Tumor ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Psychosocial Assessment ◽  
Considerable Proportion ◽  
Psychosocial Burden ◽  
Public And Private ◽  
Oncological Patients ◽  
A Prospective Study

Abstract OBJECTIVE The COVID-19 pandemic may reinforce psychosocial distress of neuro-oncological patients. We aimed to 1) differentiate the burden caused by the pandemic vs. the tumor and 2) establish topics relevant for brain tumor patients (BTPs) and caregivers. METHODS Patients and caregivers were prospectively assessed from April 2020 – July 2020 by a 10-item comprising interview over the phone, including qualitative and quantitative questions. They were quantitatively evaluated i.a. by the Distress Thermometer (DT, score 1-10). The qualitative questions were analyzed using structured content analysis: The interview questions defined the main categories. Subcategories were derived by an inductive approach assessing the frequency of patients' and caregivers' answers. RESULTS A total of 69 patients and 20 caregivers were interviewed; n= 36 were female (49%), mean age was 53 years (range 32-81). Patients' disease-related DT scores were higher than the COVID-19-related DT scores: the median of the disease-related DT score was 7 (range 2-10) vs. median of COVID-19-related distress: 5.0 (range 2-7). Caregivers perceived a higher burden due to the disease (DT median disease: 8; range 2-10 vs. DT pandemic: 3, range 0-10). A total of 5 main and 21 subcategories were elaborated, most frequently mentioned were "restrictions in public and private affairs" (28%), "changes in the psychological well-being" (23%), "limited social interaction by contact restriction" (25%). Subcategories relevant for caregivers were similar to those of BTPs. CONCLUSION A considerable proportion of patients and caregivers still perceived the brain tumor disease as more burdensome than the pandemic. We established main and subcategories of interview items possibly of great relevance to patients during these difficult times, which could be implemented in the content-related adaption of the psychosocial assessment.

scholarly journals A Study of Nurses’ Stress Management in Facing and Caring for COVID-19 Patients: A Qualitative Content Analysis

2021 ◽  
Author(s):  
Mahboobeh Hosseini Moghaddam ◽  
Zinat Mohebbi ◽  
Banafsheh Tehranineshat
Keyword(s):  
Content Analysis ◽  
Stress Management ◽  
Personal Growth ◽  
Professional Growth ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Teaching Hospitals ◽  
Individual Interviews ◽  
The Face ◽  
Qualitative Descriptive

Abstract Background Being in the frontline of the battle against COVID-19, nurses need to be capable of stress management to maintain their physical and psychological well-being in the face of a variety of stressors. The present study aims to explore the challenges, strategies, and outcomes of stress management in nurses who face and provide care to COVID-19 patients. Methods The present study is a qualitative descriptive work that was conducted in teaching hospitals affiliated with Shiraz University of Medical Sciences, Iran, from June 2020 to March 2021. Fourteen nurses who were in practice in units assigned to COVID-19 patients were selected via purposeful sampling. Data were collected through semi-structured, individual interviews conducted online. The collected data were analyzed using MAXQDA 10 according to the conventional content analysis method suggested by Graneheim and Lundman. Results The data collected in the interviews resulted in 14 subcategories under 4 main categories: providing care with uncertainty and anxiety, facing psychological and mental tension, creating a context for support, and experiencing personal-professional growth. Conclusions Despite their concern over contracting the infection and transmitting it to their families, nurses feel compelled to provide professional care to patients under all circumstances. Work overload and working in exhausting conditions lead to nurses’ physical and psychological burnout, thus their need for the support of authorities and their families. Based on the nurses’ experiences, the primary outcomes of caring for COVID-19 patients are personal growth and professional empowerment.

scholarly journals Exploring the necessity of establishing a doctor of nursing practice program from experts’ views: a qualitative study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Mozhgan Rivaz ◽  
Paymaneh Shokrollahi ◽  
Elahe Setoodegan ◽  
Farkhondeh Sharif
Keyword(s):  
Content Analysis ◽  
Nursing Education ◽  
Nursing Practice ◽  
Qualitative Content Analysis ◽  
Nurse Leaders ◽  
Structured Interviews ◽  
Doctor Of Nursing Practice ◽  
Crucial Component ◽  
Qualitative Descriptive ◽  
Alternative Solutions

Abstract Background Complex healthcare systems increasingly demand influential nurse leaders adept at managing changes in unstable environments. The doctor of nursing practice (DNP) prepares the nurses for the most advanced level of clinical practice. The aim of this study was to explore the necessity of establishing a DNP program in Iran from experts’ views. Methods The study used a qualitative descriptive approach. The participants consisted of 13 faculty members and Ph.D. candidates selected using purposive sampling. Data were collected through focus group and semi-structured interviews, and analyzed using qualitative content analysis. Results The content analysis led to the extraction of two main categories: “providing infrastructures” and “DNP as an opportunity to make positive outcomes.“ Conclusions It is concluded that it is not necessary to establish a DNP program for Iran’s nursing education system. Supplying infrastructures is a crucial component to establishing a new program in Iran. Although DNP, as an opportunity to drive positive changes, is recommended, in the current situation, using alternative solutions may yield better outcomes than establishing a DNP program.

scholarly journals Experiences of Health Providers and patients in COVID‑19: A SWOT analysis

2021 ◽  
Author(s):  
Aliasghar kheirkhah ◽  
Ehsan Movahed ◽  
Fereshte gheyabi ◽  
Fatemeh kave Farsani ◽  
Fatemeh Rigabadi
Keyword(s):  
Content Analysis ◽  
Data Analysis ◽  
Health System ◽  
Swot Analysis ◽  
Qualitative Content Analysis ◽  
Main Theme ◽  
Health Providers ◽  
Structured Interviews ◽  
Community Members ◽  
The Family

Abstract Background: Health providers and patients face many problems in preventing and controlling COVID-19 in the family and the health system.Aim: The aim of the present study was to explore experiences of health providers and patients in COVID‑19.Methods: directional qualitative content analysis was applied and 15 participants, including 10 patients with COVID-19 and 5 health providers. Data were collected using semi-structured interviews and analyzed by Lundman and Graneheim qualitative content analysis methods. The MAXQDA10 software was used to manage qualitative data analysis.Results: During the data analysis, "strengths", "weaknesses", "opportunities", and "threats" were defined in terms of categories. The " Benefits and Barriers " was determined as the main theme.Conclusion: Community members and policymakers should support and reinforce the positive experiences of patients and health providers and the health system and families need to be more prepared for the crisis.

scholarly journals Cyberincivility Experience of Korean Clinical Nurses in the Workplace: A Qualitative Content Analysis

2020 ◽  
Vol 17 (23) ◽  
pp. 9052
Author(s):  
Sang Suk Kim ◽  
Ho Jeong Song ◽  
Jung Jae Lee
Keyword(s):  
Content Analysis ◽  
Qualitative Content Analysis ◽  
Healthcare Providers ◽  
Online Communication ◽  
Public Hospitals ◽  
Structured Interviews ◽  
Clinical Nurses ◽  
Health Related ◽  
Private And Public ◽  
Hierarchical Communication

Although clinical nurses use online platforms to acquire health-related information and communicate with other healthcare providers, there are increasing reports on their incivility exposure in cyberspace. However, an in-depth understanding of their cyberincivility experience is lacking. This study aimed to identify Korean clinical nurses’ perception and experience of cyberincivility. A qualitative study was conducted. Twenty clinical nurses from seven private and public hospitals in the Seoul metropolitan area were recruited using purposive sampling. Individual semi-structured interviews were conducted with the nurses from June to September 2019. Conventional content analysis was applied for the interview data analysis. Clinical nurses perceived cyberincivility as disrespectful and condemning behavior as users hide under the shield of anonymity to persecute others without fear of retribution. Four themes regarding participants’ cyberincivility experience emerged: unprofessional behavior, hierarchical communication, lack of respect and morality, and forming an inefficient work environment. The results of this study provide an understanding regarding clinical nurses’ experience of cyberincivility that goes beyond that of previous studies, which mainly focused on students. These results could increase awareness of cyberincivility among clinical nurses, and provide key information for the design of cybercivility educational programs and guidelines to curb cyberincivility, nurture professional online communication, and consequently improve quality of care.

scholarly journals Persuasive and Humanist Da’wa Message on the Gus Mus’ @s.kakung Instagram Account during the COVID-19 Pandemic

2021 ◽  
Vol 15 (1) ◽  
pp. 71-82
Author(s):  
Asna Istya Marwantika
Keyword(s):  
Content Analysis ◽  
Qualitative Content Analysis ◽  
The Public ◽  
Analysis Techniques ◽  
Qualitative Descriptive ◽  
Descriptive Method

The COVID-19 pandemic in Indonesia requires contributions from Islamic leaders to educate and provide information to the public. As an Islamic leader, Gus Mus actively responds to this condition through his Instagram account @s.kakung. This study determines Gus Mus’s contribution to the da’wa message uploaded by @s.kakung, from the preaching theme and the strategy of delivering da’wa’s message. This research uses a qualitative descriptive method with qualitative content analysis techniques—data collected from the @s.kakung Instagram account from March 16, 2020 - March 29, 2021. The results showed that the da’wa message uploaded by the @s.kakung in faith, Sharia, and moral. The creed announces that we must never forget Allah, obey Allah’s commands in pandemic conditions. Da’wa messages on the Sharia theme, such as making inner efforts, are praying, wirid, sholawat, and Hizib autad practice. The moral theme messages support the movement to help people affected by COVID-19 comply with health protocols by wearing masks, keeping their distance, washing hands, and avoiding crowds. Meanwhile, the strategy of delivering Gus Mus’ da’wa messages in the @s.kakung Instagram uses more persuasive and humanist

scholarly journals Literasi Informasi Melawan Hoaks Bidang Kesehatan di Komunitas Online

2019 ◽  
Vol 16 (1) ◽  
pp. 77
Author(s):  
Christiany Juditha
Keyword(s):  
Content Analysis ◽  
Information Literacy ◽  
Research Method ◽  
Qualitative Content Analysis ◽  
Health Sector ◽  
Information Gathering ◽  
Online Media ◽  
Community Members ◽  
Other Information ◽  
Asking Questions

This study aims to describe the development of information literacy in online communities to fight hoaxes in the health sector. The research method used is qualitative content analysis. The results show the seven pillars of information literacy, which are identification, coverage, planning, information gathering, evaluation, management and presentation of information are built into the Indonesian Hoaxes group. Anyone can participate by asking questions, discussing, and clarifying hoaxes in online media. Administrator and community members have the same role to give each other information literacy so that they get the same understanding of the truth information.

“Help me. I am so alone.” Online emotional self-disclosure in shared coping-processes of children and adolescents on social networking platforms.

2015 ◽  
Vol 40 (4) ◽  
Author(s):  
Katrin Döveling
Keyword(s):  
Content Analysis ◽  
Social Networking ◽  
Children And Adolescents ◽  
Traumatic Event ◽  
Qualitative Content Analysis ◽  
Online Communication ◽  
Close Relative ◽  
Self Disclosure ◽  
Coping Processes

AbstractLosing a close relative or friend is a traumatic event for anyone, especially for children and adolescents. This article investigates the motives and patterns of children’s and adolescents’ interpersonal online communication on bereavement platforms. A qualitative content analysis of two different youth bereavement platforms (

scholarly journals Communicating a Sales Job to Occupational Changers: A Qualitative Content Analysis of Online Job Advertisements

TEM Journal ◽  
2021 ◽  
pp. 853-857
Author(s):  
Gerriet Hinrichs ◽  
Henning Bundtzen
Keyword(s):  
Content Analysis ◽  
Qualitative Content Analysis ◽  
Online Communication ◽  
Insurance Companies ◽  
Realistic Job Preview ◽  
Job Advertisements

This paper analyses insurance companies’ online communication to potential occupational changers into sales by a qualitative content analysis of corresponding online job advertisements. Since the addressees do not know this job in detail, a realistic job preview was expected. In the structuring part of the content analysis, the main categories of the online job advertisements were determined first, after which the summarizing part shows the contents in a first and second reduction. It turns out that neither the tasks nor the requirements or compensations are described sufficiently to enable potential candidates to assess their interest or suitability.

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