Reexamining COVID-19 Self-Reported Symptom Tracking Programs in the United States: An Updated Framework Synthesis (Preprint)

2021 ◽  
Author(s):  
Miranda Lynn Janvrin ◽  
Jessica Korona-Bailey ◽  
Tracey Pérez Koehlmoos
Keyword(s):  
The United States ◽  
Time Frame ◽  
Vaccine Hesitancy ◽  
Demographic Information ◽  
Common Data Elements ◽  
Intended Audience ◽  
The Public ◽  
Pandemic Response ◽  
Data Elements ◽  
Google Search

BACKGROUND Early in the pandemic Koehlmoos et al (2020) completed a framework synthesis of currently available self-reported symptom tracking programs for COVID19. This framework described the programs, partners/affiliates, funding, responses, platform, and intended audience, among other considerations. OBJECTIVE This current study seeks to update the existing framework with the aim of identifying developments in the landscape and highlighting how programs have adapted to changes in pandemic response. METHODS Our team developed a framework to collate information on current COVD19 self-reported symptom tracking programs using the best-framework method. All programs from the previous article were included to document changes. New programs were discovered using a Google search for keywords. The time frame for the search for programs ranges from March 1, 2021, to May 6, 2021. RESULTS We screened 33 programs; 8 were included in our final framework synthesis. We identified multiple common data elements, including demographic information like race, age, gender, and affiliation (all were associated with universities, medical schools, or schools of public health). Dissimilarities included questions regarding vaccination status, vaccine hesitancy, social distancing adherence, testing, and mental health. CONCLUSIONS At this time, the future of self-reported symptom tracking for COVID-19 is unclear. Some sources have speculated that COVID-19 may become a yearly occurrence much like the flu, and if so, the data that these programs generate is still valuable. However, it is unclear if the public will maintain the same level of interest in reporting their symptoms on a regular basis if the COVID19 becomes more routine.

The Oil Spill Liability Trust Fund: How Effective an Instrument of U.S. Public Policy Has It Been?1

1999 ◽  
Vol 1999 (1) ◽  
pp. 655-658
Author(s):  
Daniel F. Sheehan
Keyword(s):  
Oil Spill ◽  
Oil Pollution ◽  
The United States ◽  
Time Frame ◽  
Trust Fund ◽  
International Regime ◽  
Exxon Valdez ◽  
The Public ◽  
International Liability ◽  
The Impact

ABSTRACT The Oil Spill Liability Trust Fund (OSLTF) was forged in the legislative cauldron of the aftermath of the Exxon Valdez casualty. However, its genesis really began with Congressional consideration and debate concerning whether to adopt an international liability and compensation regime or improve the unilateral system unique to the United States. The Oil Pollution Act of 1990 significantly expanded the scope of the unique U.S. mechanism, while at the same time it urged the Administration to continue to examine the possibilities of becoming party to an international regime. Ten years after the Exxon Valdez casualty provides a convenient and appropriate time frame for reflection on how well the public has been served by the establishment and implementation of the regime of which the OSLTF is a major element. The impact on various publics served and stakeholders impacted will be analyzed and evaluated. While there are clearly differences in scope, application, and funding mechanisms between the U.S. and international regime, there are substantial similarities in terms of process, administration, areas of concern and interest.

scholarly journals Flattening the Curve

2020 ◽  
Vol 4 (1) ◽  
Author(s):  
Victoria Power
Keyword(s):  
United States ◽  
Literature Review ◽  
Risk Communication ◽  
The United States ◽  
Quick Response ◽  
Communication Plan ◽  
The Public ◽  
Global Pandemic ◽  
Pandemic Response ◽  
Dialogue Theory

This paper explores Canada’s communications approach to the population during the global pandemic of COVID-19. Canada’s perceptive risk communication plan consists of quick response, transparency, and credible figures as representatives of information that are deemed the current principles of success (as of April 2020). The literature review inaugurates the necessary definitions for the topic and provides detailed information about the action Canada has taken in the 2020 pandemic, while the discussion evaluates and debates Canada’s communicative strengths while acknowledging areas for improvement. Following the tactics explored, comparisons are made against the United States’ pandemic response along with a review of practices to avoid in risk communication, such as blame. Finally, transformative dialogue theory is analyzed as a potential answer to the successful interactions between the Canadian government, authoritative figures, and the public. 

scholarly journals COVID-19 vaccines and vaccine hesitancy: Role of the allergist/immunologist in promotion of vaccine acceptance

2021 ◽  
Author(s):  
Joseph A. Bellanti
Keyword(s):  
Adverse Reactions ◽  
Present Report ◽  
The United States ◽  
Vaccine Hesitancy ◽  
Vaccine Acceptance ◽  
The Public ◽  
The Past ◽  
The Many ◽  
Do So

Background: Vaccine hesitancy has been defined as a delay in acceptance or refusal of vaccines, despite the availability ofvaccine services. In the past, despite an impressive record of vaccine effectiveness in the United States, several factors havecontributed to a decreased acceptance of vaccines that has resulted in outbreaks of infectious diseases, e.g., measles. More recently, vaccine hesitancy has spread to coronavirus disease 2019 (COVID-19) vaccines. There are many causes of vaccine hesitancy, such as misinformation, fallacies, and myths, that have contributed to vaccine hesitancy.Objective: The purpose of the present report is to address the many causes of vaccine hesitancy and to suggest ways that the allergist/immunologist can be involved in the promotion of vaccine acceptance.Methods: The current COVID-19 vaccines were reviewed, together with their mechanisms(s) of action and adverse reactions to them.Results: The many causes of vaccine hesitancy include many doubts and concerns related to COVID-19 vaccines as well asa diminished level of confidence and trust by segments of the public in the nation's leaders in government, medical, and business communities, that those groups once enjoyed.Conclusion: Vaccination with COVID-19 vaccines is the only way that COVID-19 will be eliminated or at least controlled today, and vaccine hesitancy is the potential nemesis. The present report describes how the allergist/immunologist not only plays a major role in the delivery of specialized therapy of COVID-19 but also in educating the public with regard to the importance of COVID-19 vaccines, in dispelling misinformation, and in promoting trust for vaccine acceptance but must be informed with the most accurate and current information to do so.

scholarly journals Standard work tools for dynamic stereoelectroencephalography using ROSA: naming convention and perioperative planning

2021 ◽  
pp. 1-9
Author(s):  
Salma M. Bakr ◽  
Ajay Patel ◽  
Mohamed A. Zaazoue ◽  
Kathryn Wagner ◽  
Sandi K. Lam ◽  
...  
Keyword(s):  
Phase I ◽  
The United States ◽  
Multicenter Studies ◽  
Common Data Elements ◽  
Standard Work ◽  
Naming Convention ◽  
Depth Electrodes ◽  
Nursing Guidelines ◽  
Data Elements ◽  
Perioperative Planning

OBJECTIVEThe grid-based orthogonal placement of depth electrodes (DEs), initially defined by Jean Talairach and Jean Bancaud, is known as stereo-electroencephalography (sEEG). Although acceptance in the United States was initially slow, advances in imaging and technology have spawned a proliferation of North American epilepsy centers offering sEEG. Despite publications highlighting minimal access techniques and varied indications, standard work for phase I targeted DE has not been defined. In this article, the authors propose the term “dynamic sEEG” and define standard work tools and related common data elements to promote uniformity in the field.METHODSA multidisciplinary approach from July to August 2016 resulted in the production of 4 standard work tools for dynamic sEEG using ROSA: 1) a 34-page illustrated manual depicting a detailed workflow; 2) a planning form to collocate all the phase I data; 3) a naming convention for DEs that encodes the data defining it; and 4) a reusable portable perioperative planning and documentation board. A retrospective review of sEEG case efficiency was performed comparing those using standard work tools (between July 2016 and April 2017) with historical controls (between March 2015 and June 2016). The standard work tools were then instituted at another epilepsy surgery center, and the results were recorded.RESULTSThe process for dynamic sEEG was formally reviewed, including anesthesia, positioning, perioperative nursing guidelines, surgical steps, and postoperative care for the workflow using cranial fixation and ROSA-guided placement. There was a 40% improvement in time per electrode, from 44.7 ± 9.0 minutes to 26.9 ± 6.5 minutes (p = 0.0007) following the development and use of the manual, the naming convention, and the reusable portable perioperative planning and documentation board. This standardized protocol was implemented at another institution and yielded a time per electrode of 22.3 ± 4.4 minutes.CONCLUSIONSThe authors propose the term dynamic sEEG for stereotactic depth electrodes placed according to phase I workup data with the intention of converting to ablation. This workflow efficiency can be optimized using the standard work tools presented. The authors also propose a novel naming convention that encodes critical data and allows portability among providers. Use of a planning form for common data elements optimizes research, and global adoption could facilitate multicenter studies correlating phase I modality and seizure onset zone identification.

scholarly journals Understanding Contextual Differences in Residential LTC Provision for Cross-National Research: Identifying Internationally Relevant CDEs

2019 ◽  
Vol 5 ◽  
pp. 233372141984059 ◽  
Author(s):  
Elena O. Siegel ◽  
Annica Backman ◽  
Yi Cai ◽  
Claire Goodman ◽  
Oscar Noel Ocho ◽  
...  
Keyword(s):  
The United States ◽  
Term Care ◽  
Common Data Elements ◽  
Working Definition ◽  
Centered Care ◽  
Definition Of ◽  
Data Elements ◽  
Measurement Infrastructure ◽  
Contextual Differences

Long-term care (LTC) reflects a growing emphasis on person-centered care (PCC), with services oriented around individuals’ needs and preferences. Addressing contextual and cultural differences across countries offers important insight into factors that facilitate or hinder application of PCC practices within and across countries. This article takes an international lens to consider country-specific contexts of LTC, describing preliminary steps to develop common data elements that capture contextual differences across LTC settings globally. Through an iterative series of online, telephone, and in-person sessions, we engaged in in-depth discussions with 11 colleague experts in residential LTC and coauthors from six countries (China and Hong Kong, England, Sweden, Thailand, Trinidad and Tobago, and the United States). Our discussions yielded rich narrative describing a vast range in types of LTC settings, leading to our development of a working definition of residential LTC. Scope of services, funding, ownership, and regulations varied greatly across countries and across different residential LTC settings within countries. Moving forward, we recommend expanding our activities to countries that reflect different stages of residential LTC development. Our goal is to contribute to a larger initiative underway by the WE-THRIVE consortium to establish a global research measurement infrastructure that advances PCC internationally.

scholarly journals Maximizing Completion of the Two-Dose COVID-19 Vaccine Series with Aid from Infographics

Vaccines ◽  
2021 ◽  
Vol 9 (11) ◽  
pp. 1229
Author(s):  
Madison Crutcher ◽  
Paul M. Seidler
Keyword(s):  
The United States ◽  
Vaccine Hesitancy ◽  
Public Health Campaign ◽  
Health Campaign ◽  
The Public ◽  
The World ◽  
Complete Series ◽  
Protection Against Infection ◽  
First Time

Two of the three COVID-19 vaccines approved in the United States require two doses to reach full efficacy, as do others available elsewhere in the world. The complete series of multidose COVID-19 vaccines offers stronger protection against infection by SARS-CoV-2 compared to single-dose injections with the same vaccines. Achieving perfect community-level adherence is a challenge in any public health campaign, even in non-pandemic times. Vaccines requiring multiple doses combined with a surge of vaccine hesitancy and misinformation that has been witnessed by the public during the COVID-19 pandemic are exacerbating the challenge of ensuring the world’s population achieves a sufficient level of immunity against COVID-19. Here, we describe the results of our study in which we sought to determine whether completion of a two-dose COVID-19 vaccine regimen could be improved by disseminating infographics that explain what the vaccine is and why returning for the second dose is beneficial. Our results show that the proportion of COVID-19 vaccine recipients returning for a second inoculation grew after COVID-19 vaccine infographics were distributed to first-time vaccine recipients. We suggest that extending communication and outreach initiatives into the clinic positively influences the rate of follow-up visits, and that infographics are useful tools to aid and bolster the deployment of COVID-19 vaccines.

scholarly journals Measuring What Matters in Long-Term Care: Common Data Elements in Brazil, China, and the United States

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 160-160
Author(s):  
Michael Lepore ◽  
Kirsten Corazzini ◽  
Sheryl Zimmerman
Keyword(s):  
Healthy Aging ◽  
Long Term Care ◽  
The United States ◽  
Term Care ◽  
Common Data Elements ◽  
Low Resource ◽  
Person Centered Care ◽  
Centered Care ◽  
Data Elements

Abstract Internationally sharable common data elements on residential long-term care (LTC) settings, such as nursing homes and assisted living facilities, can facilitate comparisons across diverse LTC settings for valuable insights on LTC regulation and oversight, practice and operations, infrastructure development, human resources issues, and quality and safety. However, such insights are predicated on the premise that data elements capture information that matters to the full LTC community, including residents, relatives and staff, and are able to be collected across diverse care settings, including low-resource contexts. A critique of much current LTC measurement is its focus on deficits and loss, rather than thriving, person-centered care, and healthy aging, which have been established as important to LTC communities internationally. Further, measurement burden, cultural differences in perceptions of data sharing, and data infrastructure differences are key issues for international data. An international collaborative of LTC researchers—Worldwide Elements to Harmonize Research in Long-Term Care Living Environments (WE-THRIVE)—has developed a set of common data elements that are recommended for parsimoniously assessing key outcomes, workforce and staffing, person-centered care, and the contexts within which LTC settings operate. The studies in this symposium provide insights into the validation and implementation of WE-THRIVE recommended measures in diverse, low-resource LTC contexts, including LTC settings in Brazil, China, and rural Midwest US. Study findings validate WE-THRIVE measures, and provide new knowledge to inform capacity-building for the measurement of person-centered care and healthy aging outcomes in diverse, low-resource, LTC settings.

scholarly journals The COVID States Project #48: Assessing the impact of the pause in Johnson & Johnson vaccine use on COVID-19 vaccination intent

2021 ◽  
Author(s):  
David Lazer ◽  
Katherine Ognyanova ◽  
Jon Green ◽  
Matthew Baum ◽  
Roy H. Perlis ◽  
...  
Keyword(s):  
United States ◽  
Blood Clot ◽  
Public Awareness ◽  
The United States ◽  
Vaccine Hesitancy ◽  
Panel Survey ◽  
Rare Type ◽  
The Public ◽  
The Impact ◽  
Number Of Individuals

On April 13, the FDA and CDC recommended a pause in the use of the Johnson and Johnson (J&J) COVID-19 vaccine. This followed reports of a rare type of blood clot emerging in a small number of individuals following the use of the vaccine. This action raised serious concerns and criticisms of these agencies that the pause might lead to an increase in vaccine hesitancy and resistance in the United States.1In this report, we evaluate the likely impact of the pause on vaccine resistance. We do this through two types of analyses, both of which took advantage of the fact that we began fielding our survey on April 1st, collecting over 8,000 responses before the April 13th pause, and continued beyond the April 23 suspension of the pause. The first analysis compares responses of individuals who participated in the survey before the pause to those who participated after the pause, to assess whether there was a post-pause change in intentions to vaccinate. For the second analysis, we conducted a smaller “panel” survey following the pause, re-interviewing a subset of respondents who had participated in our survey before April 13th and indicated that they were not yet vaccinated. This allows an evaluation of whether particular individuals changed their view toward vaccination from shortly before the pause to shortly after the pause. Below, we first evaluate the public awareness of the pause, and then turn to analyses of changes in vaccine attitudes in each of these samples.

scholarly journals Common Data Elements for Concussion in Tertiary Care: Phase One in Ontario

2017 ◽  
Vol 44 (6) ◽  
pp. 676-683 ◽  
Author(s):  
Cindy Hunt ◽  
Alicja Michalak ◽  
Donna Ouchterlony ◽  
Shawn Marshall ◽  
Cheryl Masanic ◽  
...  
Keyword(s):  
Brain Injury ◽  
Data Collection ◽  
Clinical Care ◽  
Tertiary Care ◽  
Healthcare Providers ◽  
The United States ◽  
Shared Vision ◽  
Common Data Elements ◽  
Consensus Statements ◽  
Data Elements

AbstractBackground:Standardized data collection for traumatic brain injury (TBI) (including concussion) using common data elements (CDEs) has strengthened clinical care and research capacity in the United States and Europe. Currently, Ontario healthcare providers do not collect uniform data on adult patients diagnosed with concussion.Objective:The Ontario Concussion Care Strategy (OCCS) is a collaborative network of multidisciplinary healthcare providers, brain injury advocacy groups, patient representatives, and researchers with a shared vision to improve concussion care across the province, starting with the collection of standardized data.Methods:The International Framework of Functioning Disability and Health was selected as the conceptual framework to inform the selection of CDEs. The CDEs recommended by the OCCS were identified using key literature, including the National Institute of Neurological Disorders and Stroke–Zurich Consensus Statements for concussion in sport and the Ontario Neurotrauma Foundation Concussion/mTBI clinical guidelines.Results:The OCCS has recommended and piloted CDEs for Ontario that are readily available at no cost, clinically relevant, patient friendly, easy to interpret, and recognized by the international scientific community.Conclusions:The implementation of CDEs can help to shift Ontario toward internationally recognized standard data collection, and in so doing yield a more comprehensive evidence-based approach to care while also supporting rigorous research.

scholarly journals Antivaccine Messages on Facebook: Preliminary Audit

10.2196/18878 ◽  
2020 ◽  
Vol 6 (4) ◽  
pp. e18878
Author(s):  
Dhamanpreet Dhaliwal ◽  
Cynthia Mannion
Keyword(s):  
Health Care ◽  
Social Media ◽  
Health Care Providers ◽  
The United States ◽  
World Health ◽  
Vaccine Hesitancy ◽  
Care Providers ◽  
The Public ◽  
The Government ◽  
Health Organization

Background The World Health Organization lists vaccine hesitancy as one of 10 threats to global health. The antivaccine movement uses Facebook to promote messages on the alleged dangers and consequences of vaccinating, leading to a reluctance to immunize against preventable communicable diseases. Objective We would like to know more about the messages these websites are sharing via social media that can influence readers and consumers. What messages is the public receiving on Facebook about immunization? What content (news articles, testimonials, videos, scientific studies) is being promoted? Methods We proposed using a social media audit tool and 3 categorical lists to capture information on websites and posts, respectively. The keywords “vaccine,” “vaccine truth,” and “anti-vax” were entered in the Facebook search bar. A Facebook page was examined if it had between 2500 and 150,000 likes. Data about beliefs, calls to action, and testimonials were recorded from posts and listed under the categories Myths, Truths, and Consequences. Website data were entered in a social media audit template. Results Users’ posts reflected fear and vaccine hesitancy resulting from the alleged dangers of immunization featured on the website links. Vaccines were blamed for afflictions such as autism, cancer, and infertility. Mothers shared testimonies on alleged consequences their children suffered due to immunization, which have influenced other parents to not vaccinate their children. Users denied the current measles outbreaks in the United States to be true, retaliating against the government in protests for fabricating news. Conclusions Some Facebook messages encourage prevailing myths about the safety and consequences of vaccines and likely contribute to parents’ vaccine hesitancy. Deeply concerning is the mistrust social media has the potential to cast upon the relationship between health care providers and the public. A grasp of common misconceptions can help support health care provider practice.

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