The use of telehealth in psychological treatment of patients with rheumatic diseases and diabetes: An explorative study inspired by participatory design (Preprint)

2021 ◽  
Author(s):  
Mette Juel Rothmann ◽  
Julie Drotner Mouritsen ◽  
Nanna Skov Ladefoged ◽  
Marie Nedergaard Jespersen ◽  
Anna Sofie Lillevang ◽  
...  
Keyword(s):  
Rheumatic Diseases ◽  
Participatory Design ◽  
Psychological Treatment ◽  
User Involvement ◽  
Physical Distance ◽  
Face To Face ◽  
Individual Interviews ◽  
Healthcare Settings ◽  
Video Consultation ◽  
Good Relation

BACKGROUND Video consultation is increasingly used in different healthcare settings in order to reach patients. However, little is known about telehealth in psychological treatment for patients with somatic and chronic conditions such as rheumatoid arthritis and diabetes. OBJECTIVE This study aims to provide new insight into the development of an app to support the psychological treatment and video based intervention. METHODS This study was inspired by participatory design and a qualitative approach. The content of the intervention was developed through user involvement and evaluated by individual interviews with patients and psychologists as well as questionnaires. RESULTS We co-created an app that targeted patients with rheumatic diseases and diabetes in relation to the psychological challenges of living with chronic diseases. Video based interventions was described under the four themes “The good relation despite physical distance”, “The comfort of being at home”, “The pros of saving time on transport and energy” and “A therapeutic alliance at a distance”. CONCLUSIONS Psychological treatment in relation to somatic care can be provided by video and supported by tailored information and tools delivered in an app without losing quality of care. To ensure a good alliance between the patient and the psychologist, a first face-to-face meeting is important. Being in their own home provided the patients with a safe environment, increased accessibility, and reduced travel time to the hospital.

Critical Reflections on Participation in Design

2018 ◽  
Author(s):  
Ina Wagner
Keyword(s):  
Participatory Design ◽  
User Involvement ◽  
Design Practice ◽  
Political Commitment ◽  
Design Decisions ◽  
Marginalized Groups ◽  
Participatory Techniques ◽  
Recent Developments ◽  
Critical Reflections

Participatory design has a strong moral and political commitment to including users in all design decisions from the start of a project. Hence, the ambition of participatory designers reaches beyond mere user involvement. Many of the creative participatory techniques the participatory-design community has developed have spread out. However, in spite of an impressive list of inspiring projects and major contributions to design practice, participatory design remains somewhat marginal. This chapter aims to identify why this might be so. It also looks at recent developments, such as the design of IT infrastructures, collaboration with marginalized groups, and extending participation to communities.

scholarly journals Spine Examination during COVID-19 Pandemic via Video Consultation

2021 ◽  
Author(s):  
Tom Jansen ◽  
Martin Gathen ◽  
Amadeo Touet ◽  
Hans Goost ◽  
Dieter Christian Wirtz ◽  
...  
Keyword(s):  
Pain Intensity ◽  
Range Of Motion ◽  
Test Results ◽  
Risk Of Infection ◽  
Face To Face ◽  
Reliable Tool ◽  
Provocation Tests ◽  
Active Range Of Motion ◽  
Video Consultation ◽  
Good Agreement

Abstract Introduction During the current COVID-19 pandemic video consultations are increasingly common in order to minimize the risk of infection for staff and patients. The aim of this study was to evaluate the feasibility of a spine examination via video. Methods A total of 43 patients were recruited. Each participant underwent a video-based (VB) and a conventional face-to-face (FTF) spine examination. Pain intensity, active range of motion, inspection, a neurophysiologic basic exam and provocations tests were evaluated using video-based and face-to-face methods. Results The intra-rater reliability (IRR) was measured between both examinations. Good to very good IRR values were obtained in inspection (Kappa between 0,752 und 0,944), active range of motion and basic neurophysiological examination (Kappa between 0,659 und 0,969). Only moderate matches were found in specific provocation tests (Kappa between 0,407 und 0,938). A video-based spine examination is a reliable tool for measuring pain intensity, active range of motion and a basic neurophysiologic exam. Conclusion A basic spine examination during a video consultation is possible. A good agreement of the test results between video-based and face-to-face examination could be found.

Evaluating the alliance in videolink teletherapy

1997 ◽  
Vol 3 (1_suppl) ◽  
pp. 33-35 ◽  
Author(s):  
G J Ghosh ◽  
P M Mclaren ◽  
J P Watson
Keyword(s):  
Working Alliance ◽  
Psychological Treatment ◽  
Single Case ◽  
Personality Factors ◽  
Control Group ◽  
Face To Face ◽  
Working Alliance Inventory ◽  
The Face

The use of videoconferencing in psychotherapy remains largely unexplored. Videoconferencing compromises the range and quality of interactional information and thus might be expected to affect the working alliance (WA) between client and therapist, and consequently the process and outcome of therapy. A single case study exploring the effect of videoconferencing on the development of the WA in the psychological treatment of a female–male transsexual is described. The self-rated Working Alliance Inventory (WAI) was used to measure client and therapist perceptions of the WA after each session over 10 sessions of eclectic therapy conducted over a videolink. The serial WAI measurements charting the development of the WA in 4 cases of 10-session, face-to-face therapy by Horvath and Marx1 were used as a quasi-control. Therapist and client impressions of teletherapy are described. WAI scores were essentially similar to the face-to-face control group except for lower client-rated bond subscale scores. It is suggested that client personality factors accounted for this difference and that videoconferencing did not impair the development of an adequate working alliance or successful therapeutic outcome.

scholarly journals What are the risk factors for avoidable transitions in the last year of life? A qualitative exploration of professionals’ perspectives for improving care in Germany

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Alina Kasdorf ◽  
◽  
Gloria Dust ◽  
Vera Vennedey ◽  
Christian Rietz ◽  
...  
Keyword(s):  
Healthcare Professional ◽  
Healthcare Professionals ◽  
Qualitative Content Analysis ◽  
Individual Interviews ◽  
Information Power ◽  
Care Services ◽  
Healthcare Settings ◽  
Nursing Services ◽  
Value Based Care ◽  
Qualitative Exploration

Abstract Background Little is known about the nature of patients’ transitions between healthcare settings in the last year of life (LYOL) in Germany. Patients often experience transitions between different healthcare settings, such as hospitals and long-term facilities including nursing homes and hospices. The perspective of healthcare professionals can therefore provide information on transitions in the LYOL that are avoidable from a medical perspective. This study aims to explore factors influencing avoidable transitions across healthcare settings in the LYOL and to disclose how these could be prevented. Methods Two focus groups (n = 11) and five individual interviews were conducted with healthcare professionals working in hospitals, hospices and nursing services from Cologne, Germany. They were asked to share their observations about avoidable transitions in the LYOL. The data collection continued until the point of information power was reached and were audio recorded and analysed using qualitative content analysis. Results Four factors for potentially avoidable transitions between care settings in the LYOL were identified: healthcare system, organization, healthcare professional, patient and relatives. According to the participants, the most relevant aspects that can aid in reducing unnecessary transitions include timely identification and communication of the LYOL; consideration of palliative care options; availability and accessibility of care services; and having a healthcare professional taking main responsibility for care planning. Conclusions Preventing avoidable transitions by considering the multicomponent factors related to them not only immediately before death but also in the LYOL could help to provide more value-based care for patients and improving their quality of life.

scholarly journals Values and preferences for hepatitis C self-testing among people who inject drugs in Kyrgyzstan

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Guillermo Z. Martínez-Pérez ◽  
Danil S. Nikitin ◽  
Alla Bessonova ◽  
Emmanuel Fajardo ◽  
Sergei Bessonov ◽  
...  
Keyword(s):  
Hepatitis C ◽  
Thematic Analysis ◽  
People Who Inject Drugs ◽  
Analysis Approach ◽  
Self Administration ◽  
Public Health Burden ◽  
Individual Interviews ◽  
Healthcare Settings ◽  
Self Testing ◽  
Hcv Testing

Abstract Background The prevalence of hepatitis C virus (HCV) among people who inject drugs (PWID) continues to be a major public-health burden in this highly stigmatised population. To halt transmission of HCV, rapid HCV self-testing kits represent an innovative approach that could enable PWID to know their HCV status and seek treatment. As no HCV test has yet been licenced for self-administration, it is crucial to obtain knowledge around the factors that may deter or foster delivery of HCV self-testing among PWID in resource-constrained countries. Methods A qualitative study to assess values and preferences relating to HCV self-testing was conducted in mid-2020 among PWID in the Bishkek and Chui regions of Kyrgyzstan. Forty-seven PWID participated in 15 individual interviews, two group interviews (n = 12) and one participatory action-research session (n = 20). Responses were analysed using a thematic analysis approach with 4 predefined themes: awareness of HCV and current HCV testing experiences, and acceptability and service delivery preferences for HCV self-testing. Informants’ insights were analysed using a thematic analysis approach. This research received local ethics approval. Results Awareness of HCV is low and currently PWID prefer community-based HCV testing due to stigma encountered in other healthcare settings. HCV self-testing would be accepted and appreciated by PWID. Acceptability may increase if HCV self-testing: was delivered in pharmacies or by harm reduction associations; was free of charge; was oral rather than blood-based; included instructions with images and clear information on the test’s accuracy; and was distributed alongside pre- and post-testing counselling with linkage to confirmatory testing support. Conclusions HCV self-testing could increase awareness of and more frequent testing for HCV infection among PWID in Kyrgyzstan. It is recommended that peer-driven associations are involved in the delivery of any HCV self-testing. Furthermore, efforts should be maximised to end discrimination against PWID at the healthcare institutions responsible for confirmatory HCV testing and treatment provision.

scholarly journals Combining online and offline peer support groups in mental health care: A qualitative study of service users� experiences (Preprint)

2018 ◽  
Author(s):  
Monica Strand ◽  
Deede Gammon ◽  
Lillian Sofie Eng ◽  
Cornelia Ruland
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Health Care ◽  
Peer Support ◽  
Support Groups ◽  
Local Community ◽  
Mental Health Problems ◽  
Service Users ◽  
Face To Face ◽  
Individual Interviews

BACKGROUND Peer support groups for people with long-term mental health problems are at the heart of recovery-oriented approaches in mental health care. When conducted face-to-face (offline) or on the Internet (online), peer support groups have proven to have differing strengths and weaknesses. Little is known about the benefits and challenges of combining the two formats. OBJECTIVE The aim of this study was to gain insights into the benefits and challenges of combining online and offline peer support groups facilitated through an Internet intervention designed to support recovery processes. METHODS In this exploratory and descriptive study, an e-recovery portal called ReConnect was used by service users in two mental health communities in Norway for 6-12 months. The portal included an online peer support forum which also facilitated participation in local in-person ReConnect-cafés. Both formats of peer support were facilitated by an employed service user consultant with lived experience of mental health problems and with training in peer support. Qualitative data about service users’ experiences of using the portal were collected through focus groups and individual interviews and inductively analyzed thematically with focus on benefits and challenges of peer support online and offline. RESULTS A total of 14 service users 22-63 years of age with various diagnoses, receiving services at both primary and specialist levels of mental health care participated in three focus groups and 10 individual interviews. Two main themes were identified in the analysis: 1) balancing anonymity and openness, and 2) enabling connectedness. These themes are further illustrated with the subthemes: i) dilemmas of anonymity and confidentiality, ii) towards self-disclosure and openness, iii) new friendships, and iv) networks in the local community. Three of the subthemes mainly describe benefits. Challenges were more implicit and cut across the subthemes. Identified challenges were linked to transitions from anonymity to revealing one’s identity, how to protect confidentiality, or to participation at face-to-face meetings in the local community. CONCLUSIONS Our study suggests that online peer support groups and offline meetings complement each other, and the combination is mainly beneficial to users. The identified benefits appeared to arise from participants’ options of one format or the other, or that they could combine formats in ways that suited their individual values and comfort zones. We also identified challenges related to combination of formats, and both formats require appropriate facilitation of peer support. Combining online formats that enable anonymity, a non-judgmental atmosphere, and 24/7 accessibility regardless of location, with offline formats that foster local, in-person community ties, is a promising concept for facilitating recovery-oriented care, and warrants continued research.

scholarly journals Examining Distance Learners in Hybrid Synchronous Instruction: Successes and Challenges

2017 ◽  
Vol 21 (4) ◽  
Author(s):  
Enilda Romero-Hall ◽  
Cristiane Rocha Vicentini
Keyword(s):  
Data Analysis ◽  
Focus Group ◽  
The Other ◽  
Distance Learners ◽  
Electronic Journals ◽  
Face To Face ◽  
Individual Interviews ◽  
Study Results ◽  
Successes And Challenges

This paper reports on a case study investigating distance learners participating in graduate-level hybrid synchronous instruction. This research helps inform the design of hybrid synchronous instruction in which face-to-face and distance learners engage in class sessions. Data were collected using electronic journals, individual interviews, and a focus group. The results of the data analysis provide evidence that in this case, hybrid synchronous instruction improved the study habits of distance learners. On the other hand, the case study results also revealed that there are challenging pedogogical aspects which the distance learners had to overcome during hybrid synchronous instruction. Among such challenges were the interactions, relationships, and communication exchanges between distance learners, their face-to-face counterparts, and the instructor.

scholarly journals The use of telehealth in psychological counselling of adult vulnerable patients with rheumatic diseases and diabetes: An explorative study inspired by participatory design (Preprint)

10.2196/30829 ◽  
2021 ◽  
Author(s):  
Mette Juel Rothmann ◽  
Julie Drotner Mouritsen ◽  
Nanna Skov Ladefoged ◽  
Marie Nedergaard Jeppesen ◽  
Anna Sofie Lillevang ◽  
...  
Keyword(s):  
Rheumatic Diseases ◽  
Participatory Design ◽  
Psychological Counselling ◽  
Explorative Study ◽  
Vulnerable Patients

The Mundane and Strategic Work in Collaborative Design

Design Issues ◽  
2018 ◽  
Vol 34 (3) ◽  
pp. 42-58 ◽  
Author(s):  
Virve Hyysalo ◽  
Sampsa Hyysalo
Keyword(s):  
Collaborative Design ◽  
Participatory Design ◽  
Design Research ◽  
User Involvement ◽  
Design Issue ◽  
External Context ◽  
The Future ◽  
Design Activities ◽  
Prevailing View ◽  
Do So

We address the design issue of mundane and strategic work in collaborative design. We do so through an examination of a series of participatory design activities in building a flagship library of the future. Both strategic and mundane work are found to permeate the processes, results, and further uptake of collaborative design outcomes as internal issues of user involvement, and not just as external context or excludable routine execution, which has been the prevailing view to them in design research to date.

Electronic Medical Records for (Visceral) Medicine: An Overview of the Current Status and Prospects

2021 ◽  
pp. 1-6
Author(s):  
Sven Kernebeck ◽  
Theresa Sophie Busse ◽  
Chantal Jux ◽  
Ulrich Bork ◽  
Jan P. Ehlers
Keyword(s):  
Electronic Medical Records ◽  
Medical Records ◽  
Participatory Design ◽  
User Involvement ◽  
Unintended Consequences ◽  
Current Status ◽  
User Training ◽  
Optimal Outcomes ◽  
Current State ◽  
Professional Treatment

<b><i>Background:</i></b> Electronic medical records (EMRs) offer key advantages over analog documentation in healthcare. In addition to providing details about current and past treatments, EMRs enable clear and traceable documentation regardless of the location. This supports evidence-based, multi-professional treatment and leads to more efficient healthcare. However, there are still several challenges regarding the use of EMRs. Understanding these challenges is essential to improve healthcare. The aim of this article is to provide an overview of the current state of EMRs in the field of visceral medicine, to describe the future prospects in this field, and to highlight some of the challenges that need to be faced. <b><i>Summary:</i></b> The benefits of EMRs are manifold and particularly pronounced in the area of quality assurance and improvement of communication not only between different healthcare professionals but also between physicians and patients. Besides the danger of medical errors, the health consequences for the users (cognitive load) arise from poor usability or a system that does not fit into the real world. Involving users in the development of EMRs in the sense of participatory design can be helpful here. The use of EMRs in practice together with patients should be accompanied by training to ensure optimal outcomes in terms of shared decision-making. <b><i>Key Message:</i></b> EMRs offer a variety of benefits. However, it is critical to consider user involvement, setting specificity, and user training during development, implementation, and use in order to minimize unintended consequences.

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