The Use of Person-Centered Language in Medical Research Journals Focusing on Psoriasis: A Cross-Sectional Analysis (Preprint)

2021 ◽  
Author(s):  
Ryan Ottwell ◽  
Benjamin Heigle ◽  
Arjun K. Reddy ◽  
Nicholas Sajjadi ◽  
Alexis Wirtz ◽  
...  
Keyword(s):  
Medical Condition ◽  
Data Extraction ◽  
Psoriasis Patient ◽  
Skin Condition ◽  
Cross Sectional ◽  
Person Centered Care ◽  
Centered Care ◽  
Physician Relationship ◽  
Chronic Skin ◽  
Sectional Analysis

BACKGROUND Person-centered language (PCL) places a person’s identity before any disability or medical condition they may have. Using PCL reduces stigma and improves the patient-physician relationship, potentially optimizing health outcomes. Patients with psoriasis often feel stigmatized due to their chronic skin condition. OBJECTIVE We sought to evaluate the use of PCL in psoriasis literature and to explore whether certain article characteristics were associated with non-person-centered language. METHODS We performed a systematic search on PubMed for recently published articles in journals that regularly publish psoriasis studies. After article reduction procedures, randomization, and screening, we reached our target sample of 400 articles. The following non-PCL terms were extracted from each article: "Psoriasis Patient," "Psoriasis subject," "Affected with," "Sufferer", "Suffering from", "Burdened with," "Afflicted with", and "Problems with." Screening and data extraction occurred in a masked, duplicate fashion. RESULTS Of the 400 included articles, 272 (68.0%) were not adherent to PCL guidelines according to the American Medical Association Manual of Style. The most frequent non-PCL term was "Psoriasis Patient," found in 174 (43.5%) articles. Stigmatizing language was associated with the type of article and funding status, with original investigations and funded studies having higher rates of stigmatizing language. CONCLUSIONS Articles about psoriasis commonly use non-PCL terms. It is important to shift away from using stigmatizing language about patients with psoriasis to avoid potential untoward influences. We recommend using “patients with psoriasis” or “patient living with psoriasis” to emphasize the importance of person-centered care. CLINICALTRIAL

scholarly journals The Use of Person-Centered Language in Medical Research Journals Focusing on Psoriasis: Cross-sectional Analysis

10.2196/28415 ◽  
2021 ◽  
Vol 4 (1) ◽  
pp. e28415
Author(s):  
Ryan Ottwell ◽  
Benjamin Heigle ◽  
Arjun K Reddy ◽  
Nicholas Sajjadi ◽  
Alexis Wirtz ◽  
...  
Keyword(s):  
Medical Condition ◽  
Data Extraction ◽  
Psoriasis Patient ◽  
Skin Condition ◽  
Cross Sectional ◽  
Person Centered Care ◽  
Centered Care ◽  
Physician Relationship ◽  
Chronic Skin ◽  
Sectional Analysis

Background Person-centered language places a person’s identity before any disability or medical condition they may have. Using person-centered language reduces stigma and improves the patient-physician relationship, potentially optimizing health outcomes. Patients with psoriasis often feel stigmatized due to their chronic skin condition. Objective We seek to evaluate the use of person-centered language in psoriasis literature and to explore whether certain article characteristics were associated with non–person-centered language. Methods We performed a systematic search on PubMed for recently published articles in journals that regularly publish psoriasis studies. After article reduction procedures, randomization, and screening, we reached our target sample of 400 articles. The following non–person-centered language terms were extracted from each article: “Psoriasis Patient,” “Psoriasis subject,” “Affected with,” “Sufferer,” “Suffering from,” “Burdened with,” “Afflicted with,” and “Problems with.” Screening and data extraction occurred in a masked duplicate fashion. Results Of the 400 included articles, 272 (68%) were not adherent to person-centered language guidelines according to the American Medical Association Manual of Style. The most frequent non–person-centered language term was “Psoriasis Patient,” found in 174 (43.5%) articles. The stigmatizing language was associated with the type of article and funding status, with original investigations and funded studies having higher rates of stigmatizing language. Conclusions Articles about psoriasis commonly use non–person-centered language terms. It is important to shift away from using stigmatizing language about patients with psoriasis to avoid potential untoward influences. We recommend using “patients with psoriasis” or “patient living with psoriasis” to emphasize the importance of person-centered care.

Person-centered care and engagement via technology of residents with dementia in aged care facilities

2017 ◽  
Vol 29 (12) ◽  
pp. 2099-2103 ◽  
Author(s):  
Anita M. Y. Goh ◽  
Samantha M. Loi ◽  
Alissa Westphal ◽  
Nicola T. Lautenschlager
Keyword(s):  
Aged Care ◽  
Care Staff ◽  
Residential Aged Care ◽  
Cross Sectional ◽  
Convenience Sample ◽  
Person Centered Care ◽  
People With Dementia ◽  
Care Facilities ◽  
Centered Care ◽  
Aged Care Facilities

ABSTRACTTouchscreen technology (TT) is a resource that can improve the quality of life of residents with dementia, and care staff, in residential aged care facilities (RACF) through a person-centered care approach. To enable the use of TTs to engage and benefit people with dementia in RACFs, education is needed to explore how these devices may be used, what facilitates use, and how to address barriers. We sought to provide education and explore RACF staff views and barriers on using TT to engage their residents with dementia. An educational session on using TT with residents with dementia was given to staff from three long-term RACFs in Melbourne, Australia. A cross-sectional convenience sample of 17 staff members (personal care attendants, registered nurses, enrolled nurses, allied health clinicians, and domestic staff) who attended were administered questionnaires pre- and post-sessions. As a result of the education seminar, they were significantly more confident in their ability to use TT devices with residents. TT, and education to staff about its use with residents with dementia, is a useful strategy to enhance RACF staff knowledge and confidence, thereby enhancing the use of technology in RACFs in order to improve care standards in people with dementia.

Are we ready for a person-centered care model for patient-physician consultation? A survey from family physicians of East Mediterranean Region

2013 ◽  
Vol 1 (2) ◽  
pp. 394
Author(s):  
Waris Qidwai ◽  
Kashmira Nanji ◽  
Tawfik Khoja ◽  
Salman Rawaf ◽  
Nabil Yasin Al Kurashi ◽  
...  
Keyword(s):  
Mediterranean Region ◽  
Eastern Mediterranean ◽  
Eastern Mediterranean Region ◽  
Educational Status ◽  
Cross Sectional Study ◽  
Second Phase ◽  
Care Model ◽  
Cross Sectional ◽  
Person Centered Care ◽  
Centered Care

Background: Person-centered care has long been identified as a key component of health systems and one of the six domains of quality. This study aimed to identify the perceptions of patients and physicians regarding person-centered care in the Eastern Mediterranean Region (EMR).Methods: A multicountry, cross-sectional study was conducted in 6 countries of EMR during July 2012 to September 2012. From each country, an expert Family Physician (FP) was identified and invited for the study. During the first phase, 190 FPs practicing for at least 6 months were recruited. In the second phase, the recruited FPs approached 300 patients aged > 18 years with 1 or more recurring problems. Data analysis was conducted using SPSS version 19.Results: Of a total of 360 patients, 53% were between 25-40 years of age and the majority 55.7% were females. Among physicians, 66.8% were females and 72.1% had undergone specialization in Family Medicine from EMR. About 36% of the patients, while 62.6% of the physicians, preferred a person-centered care model of care. Among physicians, field of specialization (AOR= 0.7; 95% C.I: 0.3-0.9) and regularity in continuing medical education sessions (AOR= 0.3; 95% C.I: 0.1-0.5) were significant factors for preferring a person-centered care model. Educational status (AOR= 3.0; 95% C.I: 1.1-7.9) was associated with a preference for person-centered care among patients.Conclusion: The results of the study highlight that a majority of physicians prefer person-centered care, while patients prefer a mix of both patient- and physician-centered care. Strategies should be developed that will help physicians and patients to embrace person-centered care practices.

scholarly journals Person-Centered Care in a Tertiary Hospital Through Patient’s Eyes: A Cross-Sectional Study

2021 ◽  
Vol Volume 15 ◽  
pp. 761-773
Author(s):  
Bashayer Al-Sahli ◽  
Abdelmoneim Eldali ◽  
Mohammed Aljuaid ◽  
Khaled Al-Surimi
Keyword(s):  
Tertiary Hospital ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Person Centered Care ◽  
Centered Care

scholarly journals Management of a Chronic Skin Disease in Primary Care: An Analysis of Early-Career General Practitioners’ Consultations Involving Psoriasis

2021 ◽  
pp. 2021055
Author(s):  
Sameerah Nawaz ◽  
Amanda Tapley ◽  
Andrew Davey ◽  
Mieke L Van Driel ◽  
Alison Fielding ◽  
...  
Keyword(s):  
General Practitioners ◽  
Early Career ◽  
Learning Goals ◽  
Cross Sectional ◽  
Problem Diagnosis ◽  
Multivariable Regression ◽  
Chronic Skin ◽  
New Diagnosis ◽  
Sectional Analysis ◽  
Prescribing Medication

Background: The management of psoriasis by general practitioners (GPs) is vital, given its prevalence, chronicity, and associated physical and psychosocial co-morbidities. However, there is little information on how GPs (including early-career GPs) manage psoriasis. Objectives: This study assessed the frequency with which Australian specialist GP vocational trainees (‘registrars’) provide psoriasis care and the associations of that clinical experience. Methods: A cross-sectional analysis was done of data from the ReCEnT study, an ongoing multi-site cohort study of Australian GP registrars’ experiences during vocational training. In ReCEnT, 60 consecutive consultations are recorded 3 times (6-monthly) during each registrar's training. The outcome factor for this analysis was a problem/diagnosis being psoriasis, and independent variables were related to registrar, patient, practice and consultation factors. This study analysed 17 rounds of data collection (2010-2017) using univariate and multivariable regression. Results: Data from 1,741 registrars regarding 241,888 consultations and 377,980 problems/diagnoses were analysed. Psoriasis comprised 0.15% (n=550) of all problems/diagnoses (95% CI, 0.13-0.16). Significant patient multivariable associations of a problem/diagnosis being psoriasis included age, gender, being new to a practice or a registrar, and psoriasis being an existing problem rather than a new diagnosis. Significant registrar associations included seeking in-consultation information/assistance, not scheduling a follow-up appointment, prescribing medication, and generating learning goals. Conclusions: Australian registrars have modest training exposure to psoriasis and may find psoriasis management challenging. Furthermore, continuity of care (essential for optimal chronic disease management) was modest. The findings have implications for GPs’ approaches to the management of psoriasis more widely as well for general practice education and training policies.    

scholarly journals Psychometric evaluation of the Swedish version of the Person-Centered Care Assessment Tool (P-CAT)

2011 ◽  
Vol 24 (3) ◽  
pp. 406-415 ◽  
Author(s):  
Karin Sjögren ◽  
Marie Lindkvist ◽  
Per-Olof Sandman ◽  
Karin Zingmark ◽  
David Edvardsson
Keyword(s):  
Factor Analysis ◽  
Assessment Tool ◽  
Temporal Stability ◽  
Swedish Version ◽  
Cross Sectional ◽  
Discrimination Ability ◽  
Person Centered Care ◽  
People With Dementia ◽  
Care Assessment ◽  
Centered Care

ABSTRACTBackground: Person-centered care is a multidimensional concept describing good care, especially within aged care and care for people with dementia. Research studies evaluating person-centered care interventions seldom use direct measurement of levels of person-centeredness. Existing scales that measure person-centeredness need further testing. This study evaluated the psychometric properties of the Swedish version of the Person-Centered Care Assessment Tool (P-CAT).Methods: A cross-sectional sample of 1465 staff from 195 residential care units for older people in Sweden participated in the study. Validity, reliability, and discrimination ability of the scale were evaluated.Results: Confirmatory factor analysis, parallel analysis and exploratory factor analysis supported the construct validity of a two-factor solution. Reliability and homogeneity were satisfactory for the whole P-CAT as demonstrated by a Cronbach's α of 0.75. Test-retest reliability showed temporal stability of the scale, and the discrimination ability of the scale was satisfactory.Conclusion: The Swedish version of the P-CAT was found to be valid, reliable, and applicable for further use. Two subscales are recommended for the Swedish version.

scholarly journals Data extraction methods for systematic review (semi)automation: A living review protocol

F1000Research ◽  
2020 ◽  
Vol 9 ◽  
pp. 210 ◽  
Author(s):  
Lena Schmidt ◽  
Babatunde K. Olorisade ◽  
Luke A. McGuinness ◽  
Julian P. T. Higgins
Keyword(s):  
Data Storage ◽  
Data Extraction ◽  
Extraction Methods ◽  
Learning Technologies ◽  
Annual Review ◽  
Quality Of Reporting ◽  
Cross Sectional ◽  
Review Protocol ◽  
Sectional Analysis ◽  
Based Medicine

Background: Researchers in evidence-based medicine cannot keep up with the amounts of both old and newly published primary research articles. Conducting and updating of systematic reviews is time-consuming. In practice, data extraction is one of the most complex tasks in this process. Exponential improvements in computational processing speed and data storage are fostering the development of data extraction models and algorithms. This, in combination with quicker pathways to publication, led to a large landscape of tools and methods for data extraction tasks. Objective: To review published methods and tools for data extraction to (semi)automate the systematic reviewing process. Methods: We propose to conduct a living review. With this methodology we aim to do monthly search updates, as well as bi-annual review updates if new evidence permits it. In a cross-sectional analysis we will extract methodological characteristics and assess the quality of reporting in our included papers. Conclusions: We aim to increase transparency in the reporting and assessment of machine learning technologies to the benefit of data scientists, systematic reviewers and funders of health research. This living review will help to reduce duplicate efforts by data scientists who develop data extraction methods. It will also serve to inform systematic reviewers about possibilities to support their data extraction.

Beliefs Perceptions and Knowledge among Alopecia Areata patients: A Cross-Sectional Study in the University of Lahore

2021 ◽  
Vol 15 (9) ◽  
pp. 2399-2400
Author(s):  
Aisha Malik ◽  
Syed Atif Hasnain Kazmi
Keyword(s):  
Teaching Hospital ◽  
Alopecia Areata ◽  
Unknown Origin ◽  
Skin Condition ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Chronic Skin ◽  
And Gender ◽  
The University

Background: Alopecia areata (AA) is a wide spread and chronic skin condition of unknown origin. It affects the patient's quality of life. This study was designed to assess the perception of the disease in patients with AA. Aim: To determine the belief, perception and knowledge among alopecia areata patients visiting the university of Lahore teaching hospital. Study design: Descriptive cross-sectional study. Place and duration of study: Dermatology OPD, University of Lahore Teaching Hospital Lahore from September 2019 to February 2020. Methodology: This was a description cross-sectional study from September 2019 to February, 2020 and carried out in Out- Patient Department of Dermatology at University of Lahore Teaching Hospital. The study included all the patients in the age range of 20 to 42 years of age with patchy alopecia. The duration of the study was six months, total participants were 67. A questionnaire was designed for the collection of data in the data base, such as age and gender, the onset of the disease, level of education, and is based on the knowledge, beliefs and behaviors regarding alopecia areata. The data was analyzed by using the version SPSS 25. Results: Result shows that mean age of the participant’s was 29.5±4. About 77.6 participants were married and 23.4 were unmarried. The 85.6% participants of study give yes response that alopecia areata affected the people result showed 38% considered it a serious health issue. The 76.1% participants of study give yes response that alopecia areata participants have serious financial problem. About causative factors, almost half (28%) of the participants believed that germs and viruses causes Alopecia Areata. Keywords: Alopecia areata (AA), Knowledge, Perception, Belief.

scholarly journals Person-centered care in Norwegian nursing homes and its relation to organizational factors and staff characteristics: a cross-sectional survey

2017 ◽  
Vol 30 (9) ◽  
pp. 1279-1290 ◽  
Author(s):  
Irene Røen ◽  
Øyvind Kirkevold ◽  
Ingelin Testad ◽  
Geir Selbæk ◽  
Knut Engedal ◽  
...  
Keyword(s):  
Job Satisfaction ◽  
Nursing Homes ◽  
Physical Environment ◽  
Organizational Factors ◽  
Structural Factors ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Person Centered Care ◽  
People With Dementia ◽  
Centered Care

ABSTRACTBackground:Person-centered care (PCC) is regarded as good quality care for persons with dementia. This study aimed to explore and understand the association between PCC and organizational, staff and unit characteristics in nursing homes (NHs).Methods:Staff from 175 NH units in Norway (n = 1,161) completed a survey, including measures of PCC and questions about staff characteristics and work-related psychosocial factors. In addition, data about organizational and structural factors and assessment of the physical environment in the units were obtained. The distribution of these factors in regular units (RUs) and special care units (SCUs) is described, and the differences between the two types of units are analyzed. Furthermore, multilevel linear regression analyses explored the extent to which variables were associated with PCC.Results:Higher levels of PCC were associated with a greater job satisfaction, three years or more of health-related education, a lower level of quantitative demands and role conflict, a higher level of perception of mastery, empowering leadership, innovative climate and perception of group work, in addition to the type of unit and the physical environment in the NH unit designed for people with dementia. SCU and staff job satisfaction explained most of the variation in PCC.Conclusion:This study shows an association between PCC and organizational, staff and unit characteristics in NH. These findings indicate that providing PCC in NH care is closely linked to how the staff experiences their job situation in addition to both organizational and structural factors and the physical environment. Attention needs to be given to such factors when planning NH care.

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