Observance gap between users: Lessons from a trial of a smartphone application for parental empowerment in Autism Spectrum Disorders (Preprint)

2021 ◽  
Author(s):  
Olivier Bonnot ◽  
Vladimir Adrien ◽  
Veronique Venelle ◽  
Dominique Bonneau ◽  
Fanny Gollier-Briant ◽  
...  
Keyword(s):  
Autism Spectrum Disorders ◽  
Secondary Analysis ◽  
Real Life ◽  
Smartphone Application ◽  
Autism Spectrum ◽  
Filling Rate ◽  
Actual Use ◽  
Intent To Use ◽  
Spectrum Disorders ◽  
Prospective Longitudinal

BACKGROUND Conflicting data emerge from literature regarding actual use of smartphone application in medicine, some authors considering it as a breakthrough while other suggesting that real-life use is disappointing. However, digital tools are everyday more present in medicine. We developed SMARTAUTISM, a smartphone application focused on empowerment in a day to day-based help for parents having a child with Autism Spectrum Disorders (ASD) asking questions and providing a feed-back screen with simple curves. OBJECTIVE To evaluate the qualitative and quantitative usage of a smartphone application by caregivers of ASD individuals. METHODS This is a prospective, longitudinal, exploratory, open study with a 6-month follow-up period of family having one child with ASD. Data are recorded longitudinally, and outcome criteria were: (i) overall filling rate, (ii) filling rate by degree of completion and by interest of users for our feed-back screen and qualitative questionnaire based on attrition. RESULTS Participants have a very high intent to use our app during the six months period (95%). However, secondary analysis shows that only 46 of subjects had constant filling rate over 50%. Interestingly, those high-profile users are characterized by higher use and satisfaction with the feed-back screen when compared to low (p<0.001) and moderate (p=0.007) users. CONCLUSIONS Real or perceived utility is an important incentive in the use of empowerment smartphone apps. CLINICALTRIAL Clinical Trial : NCT03020277 INTERNATIONAL REGISTERED REPORT RR2-10.1136/bmjopen-2016-012135

scholarly journals Rationale and protocol for using a smartphone application to study autism spectrum disorders: SMARTAUTISM

BMJ Open ◽  
2016 ◽  
Vol 6 (11) ◽  
pp. e012135 ◽  
Author(s):  
Olivier Bonnot ◽  
Dominique Bonneau ◽  
Aude Doudard ◽  
Philippe Duverger
Keyword(s):  
Autism Spectrum Disorders ◽  
Smartphone Application ◽  
Autism Spectrum ◽  
Spectrum Disorders

scholarly journals Observance gap between users: Lessons from a trial of a smartphone application for parental empowerment in Autism Spectrum Disorders (Preprint)

10.2196/27803 ◽  
2021 ◽  
Author(s):  
Olivier Bonnot ◽  
Vladimir Adrien ◽  
Veronique Venelle ◽  
Dominique Bonneau ◽  
Fanny Gollier-Briant ◽  
...  
Keyword(s):  
Autism Spectrum Disorders ◽  
Smartphone Application ◽  
Autism Spectrum ◽  
Spectrum Disorders ◽  
Parental Empowerment

Early indicators of autism spectrum disorders at 12 and 24 months of age: A prospective, longitudinal comparative study

Autism ◽  
2011 ◽  
Vol 16 (2) ◽  
pp. 163-177 ◽  
Author(s):  
Carly Veness ◽  
Margot Prior ◽  
Edith Bavin ◽  
Patricia Eadie ◽  
Eileen Cini ◽  
...  
Keyword(s):  
Autism Spectrum Disorders ◽  
Comparative Study ◽  
Autism Spectrum ◽  
Spectrum Disorders ◽  
Prospective Longitudinal ◽  
Early Indicators

Electrodermal activity in response to a set of mental tasks in caregivers of persons with autism spectrum disorders

2011 ◽  
Vol 26 (S2) ◽  
pp. 1595-1595
Author(s):  
L. Moya-Albiol ◽  
M.V. Sanchis-Calatayud ◽  
P. Sariñana-González ◽  
S. De Andrés-García ◽  
Á. Romero-Martínez ◽  
...  
Keyword(s):  
Autism Spectrum Disorders ◽  
Skin Conductance ◽  
Mental Stress ◽  
Electrodermal Activity ◽  
Skin Conductance Level ◽  
Real Life ◽  
Autism Spectrum ◽  
Spectrum Disorders ◽  
Different Response ◽  
Mental Tasks

IntroductionAnalysing reactivity to laboratory stressor in lab is a valid model for understanding how people act in real-life situations. Electrodermal activity is a good index of emotionality, which has not been analysed in caregivers of persons with Autism Spectrum Disorders (ASDs).Objectives and aimsThis work aims to compare the response of electrodermal activity to mental stress between caregivers of ASDs people and controls, as the former could show a different response due to their particular situation characterised by a state of continuous alert.MethodsParents of both genders of people with (n = 44) or without (n = 42) ASDs carried out a set of different mental tasks. Skin Conductance Level (SCL) was continuously registered before, during, and after the tasks. Skin Conductance Responses (SCR) were obtained from SCL levels using Acqknowledge software.ResultsFor SCL, a significant effect of “gender” and of “period x group” and “period x group x gender” interactions was observed. SCL was higher in men than in women and in controls when compared to caregivers. Controls presented more SCL Reactivity than caregivers, being these results were replicated in men (who also showed worse recovery in controls) but not in women. In caregivers, men showed lower SCR Reactivity than women.ConclusionsCaregivers of ASDs showed a lower electrodermal reactivity to mental stress than controls, and this effect was stronger in men. These results could reflect a lower reactivity to stressful situations in caregivers and, consequently, a loss of the adaptative potential of the stress response in this population.

Disfluency Characteristics Observed in Young Children With Autism Spectrum Disorders: A Preliminary Report

2010 ◽  
Vol 20 (2) ◽  
pp. 42-50 ◽  
Author(s):  
Laura W. Plexico ◽  
Julie E. Cleary ◽  
Ashlynn McAlpine ◽  
Allison M. Plumb
Keyword(s):  
Autism Spectrum Disorders ◽  
Young Children ◽  
Children With Autism ◽  
Descriptive Study ◽  
Autism Spectrum ◽  
Typically Developing ◽  
Children With Asd ◽  
Young Children With Autism ◽  
Spectrum Disorders ◽  
Developmental Stuttering

This descriptive study evaluates the speech disfluencies of 8 verbal children between 3 and 5 years of age with autism spectrum disorders (ASD). Speech samples were collected for each child during standardized interactions. Percentage and types of disfluencies observed during speech samples are discussed. Although they did not have a clinical diagnosis of stuttering, all of the young children with ASD in this study produced disfluencies. In addition to stuttering-like disfluencies and other typical disfluencies, the children with ASD also produced atypical disfluencies, which usually are not observed in children with typically developing speech or developmental stuttering. (Yairi & Ambrose, 2005).

Aging and Autism

2012 ◽  
Vol 17 (2) ◽  
pp. 69-75 ◽  
Author(s):  
Pamela A. Smith
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorders ◽  
Patient Group ◽  
Older Patients ◽  
Geriatric Patients ◽  
Recent Literature ◽  
Communication Disorders ◽  
Autism Spectrum ◽  
Need For Support ◽  
Spectrum Disorders

In this article, I will review the available recent literature about the aging population with autism, a patient group that researchers know little about and a group that is experiencing a growing need for support from communication disorders professionals. Speech-language pathologists working with geriatric patients should become familiar with this issue, as the numbers of older patients with autism spectrum disorders is likely to increase. Our profession and our health care system must prepare to meet the challenge these patients and residents will present as they age.

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