Use of On-Demand Secure Cloud Video Communications for an Ostomy Self-Management Telehealth Intervention for Cancer Survivors and their Caregivers (Preprint)

2020 ◽  
Author(s):  
Ronald S Weinstein ◽  
Julia Mo ◽  
Michael J Holcomb ◽  
Peter Yonsetto ◽  
Octavio Bojorquez ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Nurse Educators ◽  
Management Education ◽  
Self Management ◽  
Video Communications ◽  
On Demand ◽  
Critical Knowledge ◽  
Study Staff ◽  
Telehealth Intervention ◽  
Permanent Ostomy

BACKGROUND Ostomy Self-Management Telehealth (OSMT) intervention by nurse-educators and peers can equip ostomates with critical knowledge regarding ostomy care. A telehealth technology assessment aim was to measure telehealth engineer support requirements for telehealth technology related (TTR) incidents encountered during OSMT intervention sessions held via an on-demand secure cloud video communications (SCVC) service, “Zoom for Healthcare”. OBJECTIVE This paper examines technology challenges, issues, and opportunities encountered in the use of telehealth in the setting of an intervention RCT for cancer survivors living with a permanent ostomy. METHODS The Arizona Telemedicine Program (ATP) provided telehealth engineering support for 105 scheduled 90-120-minute OSMT SCVC sessions over a two-year period. OSMT groups included up to 15 participants, comprised of four to six ostomates, four to six peer-ostomates, two nurse educators, and one telehealth engineer. OSMT session TTR incidents were recorded in written comments collected contemporaneously by research study staff. TTRs were categorized and tallied. RESULTS 102 of 105 (97%) OSMT sessions were completed as scheduled. Three OSMT sessions were not held due to non-technology related reasons. Of the 93 ostomates who participated in OSMT sessions, 80 (86%) completed their OSMT curriculum. TTR incidents occurred in 35.3% of completed sessions with varying disruptive impact. Zero sessions were cancelled or rescheduled due to TTR incidents. Disruptions resulting from TTR incidents were minimized by following TTR incident prevention and incident response plans. CONCLUSIONS SCVC services can successfully enable ostomates to participate in ostomy self-management education by incorporating dedicated telehealth engineering support. OSMT potentially greatly expands availability of ostomy self-management education to new ostomates. CLINICALTRIAL NCT02974634

466-P: Cultural Adaptation of a Diabetes Self-Management Education and Support Telehealth Intervention for Rural Colorado

Diabetes ◽  
2021 ◽  
Vol 70 (Supplement 1) ◽  
pp. 466-P
Author(s):  
TAMARA OSER ◽  
MICHELLE L. LITCHMAN ◽  
BETHANY KWAN ◽  
JULIE NEUBERGER ◽  
KRISTEN CURCIJA ◽  
...  
Keyword(s):  
Cultural Adaptation ◽  
Management Education ◽  
Self Management ◽  
Telehealth Intervention

Cancer survivors’ challenges with ostomy appliances and self-management.

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e23091-e23091
Author(s):  
Virginia Sun ◽  
Octavio Bojorquez ◽  
Sabreen Raza ◽  
Marcia Grant ◽  
Mark C Hornbrook ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Skin Irritation ◽  
Self Management ◽  
Skin Area ◽  
Written Responses ◽  
Social Burden ◽  
Self Confidence ◽  
Telehealth Intervention ◽  
Related Quality

e23091 Background: Ostomies adversely affect health-related quality of life among cancer survivors. Survivors and their families must engage in ostomy self-management, make substantial behavior changes, and adjust to the consequences of their condition. We explored long-term cancer survivors’ challenges with ostomy appliances and ostomy self-management. Methods: Pooled qualitative data from two studies were used. These included 1) written responses from long-term (≥5 years) rectal cancer survivors describing their greatest challenges with ostomy appliances and associated repercussions; and 2) intervention session notes and greatest challenge responses from an ongoing RCT of a telehealth intervention with ostomy survivors. Using content analysis, several coauthors reviewed all responses related to ostomy wafers/appliances and self-management techniques, and coded each by theme. The themes were reviewed and agreed upon by the research team. Counts were tallied for each theme based on the number of times they were mentioned by respondents. Results: Eight themes emerged: bleeding, pain, leakage, skin problems/irritation/rash, wafer-related issues, materials getting under the wafer, time needed to care for ostomy, and solutions to clean the stoma. Collectively, the eight themes were mentioned 106 times by respondents. Overall, the most commonly mentioned ostomy appliance problem was leakage (27%), followed by skin problems (20%), and pain (14%). For these common problems, respondents described challenges with successfully fitting the wafer to prevent leakages, poor wafer adherence to the skin area surrounding the stoma, allergic reactions to adhesives, and painful sores around the stoma site. Respondents described how their anxiety related to leakage, odor, and/or skin irritation greatly inhibited their social activities and self-confidence with ostomy self-management. Conclusions: Cancer survivors living with an ostomy experience multiple obstacles with ostomy appliances and self-management. These obstacles undermine their ability to gain confidence in caring for their ostomy. Interventions to improve self-management and self-efficacy may ease the psychological and social burden of living with an ostomy.

Putting self-management education in the hands of patients: Ipad delivered postoperative education following cardiac surgery

2013 ◽  
Author(s):  
David Cook ◽  
Julie Hathaway ◽  
Sharon Prinsen ◽  
Erin Fischer ◽  
Anilga Moradkhani ◽  
...  
Keyword(s):  
Cardiac Surgery ◽  
Management Education ◽  
Self Management ◽  
Postoperative Education

On-Demand, App-Delivered Coaching to Enable Diabetes Self-Management in Adults with Type 2 Diabetes—A Feasibility Study

Diabetes ◽  
2018 ◽  
Vol 67 (Supplement 1) ◽  
pp. 50-LB
Author(s):  
JOHN B. HERNANDEZ ◽  
AMY ARMENTO LEE ◽  
SCOTT ROBERTSON ◽  
CARA SILVER ◽  
AMIT MAJITHIA
Keyword(s):  
Type 2 Diabetes ◽  
Feasibility Study ◽  
Self Management ◽  
On Demand

53-LB: Availability of Diabetes Self-Management Education and Support Programs in United States Counties

Diabetes ◽  
2019 ◽  
Vol 68 (Supplement 1) ◽  
pp. 53-LB
Author(s):  
BINA JAYAPAUL-PHILIP ◽  
SHIFAN DAI ◽  
EFOMO WOGHIREN ◽  
GIA E. RUTLEDGE
Keyword(s):  
United States ◽  
Management Education ◽  
Support Programs ◽  
Self Management

2180-PUB: Integration of Continuous Glucose Monitoring in Diabetes Self-Management Education for Type 2 Diabetes Improves Glycemic Control

Diabetes ◽  
2020 ◽  
Vol 69 (Supplement 1) ◽  
pp. 2180-PUB
Author(s):  
ADDIE L. FORTMANN ◽  
ALESSANDRA BASTIAN ◽  
CODY J. LENSING ◽  
SHANE HOVERSTEN ◽  
KIMBERLY LUU ◽  
...  
Keyword(s):  
Type 2 Diabetes ◽  
Glycemic Control ◽  
Continuous Glucose Monitoring ◽  
Management Education ◽  
Glucose Monitoring ◽  
Self Management
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