scholarly journals Usability of a Fall Risk Mobile Health Application for People with Multiple Sclerosis (Preprint)

2020 ◽  
Author(s):  
Katherine Hsieh ◽  
Jason Fanning ◽  
Mikaela Frechette ◽  
Jacob Sosnoff

BACKGROUND Multiple Sclerosis (MS) is a chronic, neurogenerative disease that causes a range of motor, sensory, and cognitive symptoms. Because of these symptoms, people with MS (pwMS) are at a high risk for falls, fall related injuries, and reductions in quality of life. There is no cure for MS, and managing symptoms and disease progression is important to maintain high quality of life. Mobile health applications (apps) are commonly used by people with MS (pwMS) to help manage their health. However, there are limited health apps for pwMS designed to evaluate fall risk. A fall risk app can increase access to fall risk assessment and improve self-management. When designing health apps, a user-centered approach is critical to improve usage and adoption. OBJECTIVE The purpose of this study was to develop a fall risk app for pwMS and to test the usability of the app through an iterative design process. METHODS The fall risk app, Steady-MS, consists of two components: a 25-item questionnaire about demographics and MS symptoms, and 5 standing balance tasks. Data from the questionnaire and balance tasks are inputted into an algorithm to compute a fall risk score. Two iterations of semi-structed interviews (n=5/iteration) were performed to evaluate usability. PwMS used Steady-MS on a smartphone, thinking their thoughts aloud. Interviews were recorded, transcribed, and developed into codes and themes. PwMS also completed the System Usability Scale (SUS). RESULTS Three themes were identified: 1) intuitive navigation; 2) efficiency of use; and 3) perceived value. Overall, participants found Steady-MS efficient to use and found it useful to learn their fall risk score. There were challenges related to cognitive overload during the balance tasks. Modifications were made, and after the second iteration, pwMS reported that the app was intuitive and efficient to use. Average SUS scores were 95.5 in both iterations, representing “excellent” usability. CONCLUSIONS Steady-MS is the first health app for pwMS asses their overall risk of falling and can help pwMS manage their fall risk. PwMS found Steady-MS to be usable and useful to understand their risk of falling. When developing future mobile health apps for pwMS, it is important to: 1) prevent cognitive overload through simple and clear instructions, and 2) present scores that are understood and interpreted correctly through visuals and text. These findings underscore the importance of user-center design and provide a foundation for the future development of scalable falls assessment and prevention tools for pwMS.

10.2196/25604 ◽  
2021 ◽  
Vol 8 (1) ◽  
pp. e25604 ◽  
Author(s):  
Katherine Hsieh ◽  
Jason Fanning ◽  
Mikaela Frechette ◽  
Jacob Sosnoff

Background Multiple sclerosis (MS) is a chronic, neurodegenerative disease that causes a range of motor, sensory, and cognitive symptoms. Due to these symptoms, people with MS are at a high risk for falls, fall-related injuries, and reductions in quality of life. There is no cure for MS, and managing symptoms and disease progression is important to maintain a high quality of life. Mobile health (mHealth) apps are commonly used by people with MS to help manage their health. However, there are limited health apps for people with MS designed to evaluate fall risk. A fall risk app can increase access to fall risk assessments and improve self-management. When designing mHealth apps, a user-centered approach is critical for improving use and adoption. Objective The purpose of this study is to undergo a user-centered approach to test and refine the usability of the app through an iterative design process. Methods The fall risk app Steady-MS is an extension of Steady, a fall risk app for older adults. Steady-MS consists of 2 components: a 25-item questionnaire about demographics and MS symptoms and 5 standing balance tasks. Data from the questionnaire and balance tasks were inputted into an algorithm to compute a fall risk score. Two iterations of semistructured interviews (n=5 participants per iteration) were performed to evaluate usability. People with MS used Steady-MS on a smartphone, thinking out loud. Interviews were recorded, transcribed, and developed into codes and themes. People with MS also completed the System Usability Scale. Results A total of 3 themes were identified: intuitive navigation, efficiency of use, and perceived value. Overall, the participants found Steady-MS efficient to use and useful to learn their fall risk score. There were challenges related to cognitive overload during the balance tasks. Modifications were made, and after the second iteration, people with MS reported that the app was intuitive and efficient. Average System Usability Scale scores were 95.5 in both iterations, representing excellent usability. Conclusions Steady-MS is the first mHealth app for people with MS to assess their overall risk of falling and is usable by a subset of people with MS. People with MS found Steady-MS to be usable and useful for understanding their risk of falling. When developing future mHealth apps for people with MS, it is important to prevent cognitive overload through simple and clear instructions and present scores that are understood and interpreted correctly through visuals and text. These findings underscore the importance of user-centered design and provide a foundation for the future development of tools to assess and prevent scalable falls for people with MS. Future steps include understanding the validity of the fall risk algorithm and evaluating the clinical utility of the app.


2015 ◽  
Vol 36 (9) ◽  
pp. 1982-1997 ◽  
Author(s):  
EVA TÖRNVALL ◽  
JAN MARCUSSON ◽  
EWA WRESSLE

ABSTRACTOptimal mobility is fundamental for healthy ageing and quality of life. This study is part of a cross-sectional population-based study of 85-year-old people residing in Linköping municipality, Sweden. The purpose was to describe 85-year-old peoples' health-related quality of life (HRQoL) in relation to mobility and fall risk while adjusting for gender and body mass index. Data collection included a postal questionnaire, a home visit and a reception visit. HRQoL was assessed with EQ-5D-3L, mobility with the Timed Up and Go test (TUG) and fall risk with the Downton Fall Risk Index (DFRI). All those who completed the DFRI, TUG and EQ-5D-3L were included in the present study (N = 327). Lower HRQoL was associated with longer time taken to complete TUG and higher fall risk in both genders but not with body mass index. Women had higher risk of falling, took a longer time to complete TUG and reported less physical activity compared with men. Health-care professionals should address mobility capacity and fall risk in order to maintain quality of life in elderly people. This is of utmost importance, especially for elderly women because impaired mobility, high risk of falling and occurrence of pain are common among women, and related to lower HRQoL.


2017 ◽  
Vol 19 (2) ◽  
pp. 91-98 ◽  
Author(s):  
Eva Vister ◽  
Mylou E. Tijsma ◽  
Phu D. Hoang ◽  
Stephen R. Lord

Background: Fatigue, inactivity, and falls are major health issues for people with multiple sclerosis (MS). We examined the extent to which fatigue and low walking activity are associated with quality of life and increased fall risk in people with MS. Methods: People with MS (N = 210, aged 21–74 years) were categorized as having either high or low reported fatigue and walking activity levels and were then followed up for falls using monthly fall diaries for 6 months. Results: A high level of fatigue was significantly associated with higher MS Disease Steps scores, worse balance, high composite physiological (Physiological Profile Assessment) fall risk scores, greater fear of falling, lower World Health Organization Disability Assessment Schedule (WHODAS) quality of life scores, and more prospectively recorded falls. Low walking activity was significantly associated with higher MS Disease Steps scores, reduced proprioception, worse standing and leaning balance, slow stepping, slow gait speed, worse fine motor control, high Physiological Profile Assessment fall risk scores, more fear of falling, and lower WHODAS quality of life scores. Conclusions: Increased fatigue and low walking activity levels were significantly associated with increased fall risk and lower quality of life in people with MS. Interventions aimed at addressing fatigue and inactivity may have multiple benefits for this group.


2021 ◽  
Author(s):  
María-Dolores Cortés-Vega ◽  
Cristina García-Muñoz ◽  
Juan-Carlos Hernández-Rodríguez ◽  
Lourdes M Fernández-Seguín ◽  
Isabel Escobio-Prieto ◽  
...  

BACKGROUND Background: Dizziness and imbalance are common and disabling symptoms in multiple sclerosis (MS) patients caused by a central, peripheral or mixed vestibulopathy. Central vestibular disorder is the most frequent report in the MS population due to demyelination. Vestibular rehabilitation ameliorates these symptoms and its repercussions in quality of life. However, immersive virtual reality (VRi) is a growing tool in this fieldwork, but no previous research has been performed studying its effects in MS. OBJECTIVE Objective: To apply a VRi vestibular training protocol in a patient with MS and assess the effects induced by the experimental intervention. METHODS Methods: Case study of a 54-year-old woman with relapsing remitting multiple sclerosis (RRMS). We developed a standardized VRi exercise protocol for vestibular rehabilitation based on the gold standard vestibular training of Cawthorne-Cooksey. The 20 session intervention is formed of 10 initial sessions and 10 advanced sessions. Each 50 minute session will be performed 3 times per week for 8 weeks. Four evaluations were carried out over the study period: at baseline (T0), between the two intervention phases (T1), at the end of the intervention and at the one month follow-up (T3). The outcomes of the research were dizziness, balance, gait, impact of fatigue, quality of life, repercussions in muscular tone and usability of HMD. RESULTS Results: The patient improved DHI (T0=62 points/T2=4), BBS (T0=47/T2=54), iTUG (T0=8.35 sec/T2=5.57 sec), muscular tone of the erector spinae, rectus femoris and soleus, MFIS (T0=61/T2=37) and MSQoL-54 (T2 physical area=67.16%; T2 mental area= 33.56%) after receiving the VRi vestibular protocol. System Usability Scale reached 90% of usability and A grade. CONCLUSIONS Conclusions: This research provided evidence of the first VRi vestibular protocol in the MS population to improve dizziness, balance, gait, impact of fatigue and quality of life and muscular tone through an exergame intervention. This study may help to set a standardized VRi protocol for vestibular rehabilitation.


2019 ◽  
Vol 4 (12) ◽  
pp. 101
Author(s):  
Nurul Liyana Hanapi ◽  
Sabarinah Sheikh Ahmad ◽  
Azli Abd Razak ◽  
Norhati Ibrahim

Recent study trends on elderlies range from improving their quality of life to reducing the risk of falling. This paper investigates current concerns on the risk of any untoward fall or injury of elderly residents in public housing due to the rising number of the elderly population. This study aims to analyze published literature with a focus on finding a non-semantic relation on the built environment with the elderly quality of life and risk of falling. Results show that a pleasant environment could introduce social activities in which significantly improves the quality of life and reduce fall risk among the elderly population.Keywords: elderly; quality of life; fall risk; environment.eISSN: 2398-4287 © 2019. The Authors. Published for AMER ABRA cE-Bs by e-International Publishing House, Ltd., UK. This is an open-access article under the CC BYNC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians) and cE-Bs (Centre for Environment-Behaviour Studies), Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia.DOI: https://doi.org/10.21834/e-bpj.v4i12.1939


2020 ◽  
Vol 78 (2) ◽  
pp. 557-572
Author(s):  
Klaus Hauer ◽  
Michael Schwenk ◽  
Stefan Englert ◽  
Rixt Zijlstra ◽  
Sabine Tuerner ◽  
...  

Background: Match or mismatch of objective physiological and subjectively perceived fall risk may have serious consequences in patients with dementia (PwD) while research is lacking. Objective: To analyze mismatch of objective and subjective fall risk and associated factors in PwD. Method: Cohort study in a geriatric rehabilitation center. Objective and subjective risk of falling were operationalized by Tinetti’s Performance Oriented Mobility Assessment and the Falls Efficacy Scale-International. Four sub-groups according to objective and subjective fall risk were classified. Subgroups were compared for differences in clinical, cognitive, psychological, and behavioral variables. Results: In geriatric rehab patients with mild to moderate dementia (n = 173), two-thirds showed a mismatch of subjective versus objective risk of falling, independently associated with previous falls. Underestimation of objective fall risk (37.6%) was determined by lower activity avoidance (OR 0.39), less concerns about falling due to previous falls (OR 0.25), and higher quality of life (OR 1.10), while overestimation (28.9%) was determined by higher rate of support seeking strategies (OR 50.3), activity avoidance (OR 15.2), better executive (OR 21.0) and memory functions (OR 21.5), and lower quality of life (OR.75) in multivariate logistic regression. Conclusion: The majority of patients showed a mismatch between objective and subjective falls risk. Underestimation as well as overestimation of fall risk was associated with specific profiles based on cognitive- and psychological status, falls and fall-related behavioral consequences which should be included in the comprehensive assessment of fall risk, and planning of individualized fall prevention programs for this population.


2014 ◽  
Vol 15 (5) ◽  
pp. 579-587 ◽  
Author(s):  
Sang-I Lin ◽  
Ku-Chou Chang ◽  
Hsuei-Chen Lee ◽  
Yi-Ching Yang ◽  
Jau-Yih Tsauo

2021 ◽  
Vol 4 (1) ◽  
Author(s):  
Hideo Hirai

It is known that falls in the daily life of the elderly occur frequently during walking and rising up and greatly affect their quality of life. In the previous study we obtained the COG-heel horizontal distance and the COG horizontal velocity when the subjects performed rising up under the “fastest” or “slowest” velocity task. These seat-off parameters which were an indicator of the stability in rising from a chair were defined based on the relationship between them. In this experiment with healthy adults as subjects the seat-off parameters were found to become a different distribution because of the rising up strategies of each subject. Moreover, based on the relationship between the seat-off parameters and motor function, they could become an index expressing current fall risk and predicting future fall risk.


EP Europace ◽  
2020 ◽  
Vol 22 (10) ◽  
pp. 1567-1578
Author(s):  
Deirdre A Lane ◽  
Naoimh McMahon ◽  
Josephine Gibson ◽  
Jo C Weldon ◽  
Michal M Farkowski ◽  
...  

Abstract Aims A plethora of mobile health applications (m-health apps) to support healthcare are available for both patients and healthcare professionals (HCPs) but content and quality vary considerably and few have undergone formal assessment. The aim is to systematically review the literature on m-health apps for managing atrial fibrillation (AF) that examine the impact on knowledge of AF, patient and HCP behaviour, patients’ quality-of-life, and user engagement. Methods and results MEDLINE, EMBASE, CINAHL, and PsychInfo were searched from 1 January 2005 to 5 September 2019, with hand-searching of clinical trial registers and grey literature. Studies were eligible for inclusion if they reported changes in any of the following: (i) knowledge of AF; (ii) provider behaviour (e.g. guideline adherence); (iii) patient behaviour (e.g. medication adherence); (iv) patient quality-of-life; and (v) user engagement. Two reviewers independently assessed articles for eligibility. A narrative review was undertaken as included studies varied widely in their design, interventions, comparators, and outcomes. Seven studies were included; six m-health apps aimed at patients and one at HCPs. Mobile health apps ranged widely in design, features, and method of delivery. Four studies reported patient knowledge of AF; three demonstrated significant knowledge improvement post-intervention or compared to usual care. One study reported greater HCP adherence to oral anticoagulation guidelines after m-health app implementation. Two studies reported on patient medication adherence and quality-of-life; both showed improved quality-of-life post-intervention but only one observed increased adherence. Regarding user engagement, five studies reported patient perspectives on usability, three on acceptability, and one on feasibility; overall all m-health apps were rated positively. Conclusion Mobile health apps demonstrate improvements in patient knowledge, behaviour, and quality of life. Studies formally evaluating the impact of m-health on HCP behaviour are scarce and larger-scale studies with representative patient cohorts, appropriate comparators, and longer-term assessment of the impact of m-health apps are warranted.


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