scholarly journals Patient perspectives on health data privacy and implications for adverse drug event documentation and communication: A qualitative study (Preprint)

2020 ◽  
Author(s):  
Serena S Small ◽  
Corinne M Hohl ◽  
Ellen Balka

BACKGROUND Adverse drug events are unintended and harmful events related to medication use. Using existing information and communication technologies to increase information sharing about adverse drug events may improve patient care, but can also introduce concerns about data privacy. OBJECTIVE The aim of our study was to examine patients’ and their caregivers’ views about data protection when using information and communication technologies to communicate adverse drug event information in order to improve patient safety. METHODS We conducted an exploratory qualitative study. We held four focus groups among patients who had experienced or were at risk of experiencing an adverse drug event, their family members, and their caregivers. We recruited participants through multiple avenues. We iteratively analyzed the data using situational analysis. RESULTS Of the 47 participants we recruited, 28 attended our focus groups. We identified three primary themes. First, participants felt that improved information sharing about adverse drug events within their circle of care would likely improve care. Second, participants were concerned about data handling and inappropriate access, but believed that the benefits of information sharing outweighed the risks of privacy breaches. Lastly, participants were more concerned about data privacy in the context of stigmatized health conditions. CONCLUSIONS Current conditions for maintaining health data privacy are consistent with participants’ preferences, despite the fact that health data are susceptible to breaches and mismanagement. Information sharing that increases patient safety may justify potential privacy risks. Greater attention to patient concerns and the effect of social and contextual concerns in the design and implementation of health information technologies may increase patient confidence in the privacy of their information. CLINICALTRIAL

Author(s):  
Jesus Gonzalez-Feliu ◽  
Joëlle Morana

This chapter explores the role that information sharing has on the collective decisions made in supply chain management. The authors identify information sharing as the critical factor in reasoning that occurs as stakeholders along the supply chain collaboratively make decisions. However, a shared conceptual model is required for determining what information must be shared. Their model identifies five elementsin information system management related to shared logistics projects: the enterprise‘s solutions (for each stakeholder and for the entire reasoning community), their deals, sharing management, organizational features and information and communication technologies related to the management of shared information. Moreover, the main accelerating and limitating factors are overviewed.The chapter illustrates the applicability of the model with a case study on the distribution of newspapers in France.


Author(s):  
Catherine J. Irving ◽  
Leona M. English

This chapter arises from the authors’ research interests in gender and adult learning in the community, with a special focus on how gender is enacted in communities of practice such as nonprofit women’s organizations. These organizations play a key role in adult learning—nonformally through workshops and programs and informally through mentoring, collaboration, and information sharing. They also work informally and incidentally through advocacy work for social change to redress systemic gender-based discrimination. This chapter assesses how well the services and learning that happen in this context have evolved with the adoption of Information and Communication Technologies (ICTs) by women’s groups, in this case organizational websites. The authors place this discussion within the context of a small but growing literature examining the integration of ICTs within community development. In addition, we draw on feminist theoretical understandings and critiques of technology as it affects the lives of women. Although ICTs provide opportunities to further the cause of gender equality globally, inequalities persist to limit the realization of this potential.


2021 ◽  
Author(s):  
Lisa Reid ◽  
Anthony Maeder ◽  
Didy Button ◽  
Katrina Breaden ◽  
Mark Brommeyer

Healthcare has experienced rapid transformation with the development of digital technologies which aim to make healthcare safer and more efficient. In response, health informatics has evolved, including nursing informatics, which integrates nursing, information and communication technologies (ICT) and professional knowledge to improve patient outcomes. New language has developed to describe informatics and its processes; however, this has generally been poorly understood. This paper will describe current definitions of nursing informatics from three different healthcare contexts: Australia, the United States of America and Canada, to identify the similarities and differences between these definitions and to summarise the distinct bodies of knowledge described by each country. These countries have amongst the oldest definition attempts in the literature. A pragmatic approach was taken in this narrative review, working forward from historic references and backwards from recent references extracted from published health and nursing informatics literature.


2021 ◽  
Vol 30 ◽  
Author(s):  
Olga Maria Pimenta Lopes Ribeiro ◽  
Maria Manuela Ferreira Pereira da Silva Martins ◽  
Lara Vandresen ◽  
João Miguel Almeida Ventura da Silva ◽  
Maria Filomena Passos Teixeira de Cardoso

ABSTRACT Objective to identify nurses’ perception on the usefulness of information and communication technologies in their professional practice, as well as in communication among the multidisciplinary team. Method this is a quantitative, descriptive study, of exploratory character, carried through with 3.451 nurses from 36 hospital institutions of Portugal. A questionnaire was used as a data collection instrument. In data analysis, using SPSS® resorted to descriptive statistics. Results of the nine technologies under study, we found that regarding their usefulness in professional practice, nurses qualified as useful or very useful: Intranet (84.3%), email (79.5%), SClínico® (74.8%), Nursing Practice Support System (70.9%), Physician Support System (63.2%), newsletter (62.9), ALERT® (59.4%), Health Data Platform (42.8%) and SONHO® (31.8). Regarding its usefulness in communication among the multidisciplinary team, nurses qualified as useful or very useful: email (75.2%), Intranet (74.2%), SClínico (72.5%), Nursing Practice Support System (67.1%), Physician Support System (63.6%), ALERT® (58.9%), newsletter (57.2), Health Data Platform (40.1%) and SONHO® (29.4%). Conclusion despite the usefulness of technologies presenting relevant percentages, it is pertinent to analyze why nurses’ perceived usefulness is superior to Intranet and email when compared with specific technologies of care data used in the hospital context.


2019 ◽  
Vol 18 (1) ◽  
pp. 44-61 ◽  
Author(s):  
Ronald Benard ◽  
Frankwell Dulle ◽  
Hieromin Lamtane

Purpose This paper aims to examine the challenges facing fish farmers in the use of information and communication technology (ICT) in information sharing on fish farming. Design/methodology/approach This study used both quantitative and qualitative methods. It involved 240 fish farmers who were randomly selected. Questionnaires, focus group discussions (FGDs), observation and key informant’s interviews were used as methods of data collection. Both descriptive and inferential statistics were used to analyse quantitative data, while content analysis was used for qualitative data. Findings It was found that the most frequently used ICTs by fish farmers in sharing agricultural information were mobile phones, radio and television. Also, the study revealed that major challenges facing fish farmers in sharing information include unfavourable radio or television broadcasting time, high cost of acquiring and maintenance of ICT facilities, lack of training on ICT, poor network connectivity and low level of literacy. Moreover, it was further found that there was negative significant relationship (P < 0.05) between challenges associated with the use and degree of ICT usage by fish farmers. Originality/value The study is original with the exception of areas where citations have been made. Besides, it provides awareness and understanding of the challenges facing fish farmers in ICT usage in information sharing on fish farming, and this will enable improvement of timely provision and access to relevant information and hence improved fish farming production.


2012 ◽  
pp. 31-50 ◽  
Author(s):  
Jesus Gonzalez-Feliu ◽  
Joëlle Morana

This chapter explores the role that information sharing has on the collective decisions made in supply chain management. The authors identify information sharing as the critical factor in reasoning that occurs as stakeholders along the supply chain collaboratively make decisions. However, a shared conceptual model is required for determining what information must be shared. Their model identifies five elementsin information system management related to shared logistics projects: the enterprise’s solutions (for each stakeholder and for the entire reasoning community), their deals, sharing management, organizational features and information and communication technologies related to the management of shared information. Moreover, the main accelerating and limitating factors are overviewed. The chapter illustrates the applicability of the model with a case study on the distribution of newspapers in France.


Author(s):  
A. A. Danelyan ◽  
E. E. Gulyaeva

INTRODUCTION. In the modern world, the number of crimes committed in cyberspace has significantly increased. New types of malware used to achieve illegal goals appear regularly. According to experts, the material damage to the global economy from crimes committed with the help of information and communication technologies amounts to trillions of US dollars. Such a scale requires effective means of legal regulation of relations in cyberspace. Cybersecurity is considered one of the most relevant topics of current international law, which is extremely important for ensuring the national security of states. Information and communication technologies can be used to negatively affect economic, social, cultural and political relations, to damage the economic, military, and defense potential of the state and society. In this regard, the international community is deeply interested in developing a multilateral legal framework for cooperation in the field of cybersecurity. However, a unified approach to solving this problem in the international arena has not yet been developed. Legal regulation of cyberspace is very complex due to the virtual interface characteristics of this area.MATERIALS AND METHODS. The material for the study is the works of Russian and foreign researchers in the field of international law, international legalacts adopted in the framework of the UN and the European Union, draft UN conventions, national regulatory legal acts of the Russian Federation, the People’s Republic of China and other states as well as judicial practice of international courts. Th research methodology is based on general and specific scientific methods of cognition (the dialectical method, methods of analysis and synthesis, deduction and induction, comparative legal and historical legal methods).RESEARCH RESULTS. The analysis showed that despite the applicability of the principles and rules of current international law to the information sphere, the universalization of the international legal regulation of cyberspace is required, taking into account its characteristics and in order to effectively combat the use of information and communication technologies for illegal purposes. The efforts of states to develop special rules of conduct in cyberspace are currently concentrated on a narrow sphere of issues related to human rights, data privacy, etc. Not all states are interested in creating a modern and effective mechanism for cooperation in cyberspace. Many states are openly opposing the development of new international legal instruments. For this reason, the Russian initiative to adopt the UN Convention on Cooperation in Combating Information Crimes has not been support-ed. This fact has entailed the absence of a full-fledged universal international legal framework for cooperation in the field of cyberspace.DISCUSSION AND CONCLUSIONS. Based on the analysis of doctrine and practice, the authors conclude that there is a need to create a universal international legal framework for cooperation in the fi ld of cyberspace. In modern international law, cybersecurity is one of the most pressing problems directly related to state security. The difference in the approaches of states to the problem of ensuring cybersecurity at the present stage entails the absence of an effective multilateral legal framework for cooperation in this area.


2019 ◽  
Vol 67 (4) ◽  
pp. 457-462
Author(s):  
Francisco Rodríguez-Pulido ◽  
Laura Rodríguez-Quintero ◽  
Josefa Rodríguez-Pulido ◽  
Ángeles Rodríguez-García

Introduction: Given the demands of society in the twenty-first century, information and communication technologies should be incorporated into future models of the public health system.Objective: To investigate about the use of eHealth and mHealth through a quantitative study.Materials and methods: A quantitative study was carried out using a 16-item questionnaire that inquires about 9 dimensions: self-diagnostic technologies, complementation genetic test, use of smartphones, data privacy, electronic medical records, costs of medical services, annual physical examinations, concern about radiation exposure, and management of internet and technologies.Results: The exploratory sample (n=250) was made up of health professionals (55 doctors and 77 medical students) and health service users (122 patients) from Spain. One of the similarities was the promotion of the use of smartphones, but there were differences regarding the value given to diagnosis made by using technologies as opposed to that made by professionals.Conclusion: The most relevant difference in terms of expectations among health service users and health care professionals was related to the ownership of the medical history.


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