Using Human-Centered Design Methods to Inform Digital Health Interventions: Development of a Framework (Preprint)

2019 ◽  
Author(s):  
Robin C. Anthony Kouyate ◽  
Lisa Nugent ◽  
Shawna Jackson ◽  
Meredith Y. Smith
Keyword(s):  
Rheumatoid Arthritis ◽  
Text Messaging ◽  
Digital Health ◽  
Smart Phone ◽  
Chronically Ill ◽  
Human Centered Design ◽  
Quality Healthcare ◽  
Intervention Impact ◽  
Chronically Ill Patients ◽  
Three Phases

BACKGROUND Involving chronically ill patients in the management of their health is widely recognized as a vital component of high-quality healthcare. In order to assume the role of informed participants, however, patients need both access to their health information as well as assistance in interpreting such data. Smart phone technology with text messaging (SMS) functionality offers a convenient and minimally demanding mechanism for providing such a dual capability to patients. To date, numerous such digital tools have been developed for use in various chronic and progressive disease conditions, including for rheumatoid arthritis. OBJECTIVE To describe the application of a human centered design (HCD) approach to inform the development of a framework for a digital health intervention to support symptom management and treatment adherence in rheumatoid arthritis. METHODS We reviewed the HCD approach which consists of three phases: understanding, ideation, and implementation. To develop our framework, methods were mapped to the objectives of each phase. RESULTS We developed a four-phase framework that was informed by an HCD approach. The first three phases in the framework, which consisted of understanding, ideation, and implementation, were consistent with the HCD approach. In addition, we added a fourth phase, post-implementation assessment, to enable evaluation of patient engagement and intervention impact on symptom self-management. CONCLUSIONS Applying HCD-based methods demands commitment to an iterative approach to intervention design. Each phase of our framework yields critical findings for ensuring that the final product is understandable, acceptable, and feasible, and provides value to the patient such that the intervention is both engaging and positively impacts patient outcomes. CLINICALTRIAL N/A

Prevalence and correlates for stress among caregivers for chronically ill patients at Ndola teaching hospital

2017 ◽  
Vol 4 (3) ◽  
pp. 107-111
Author(s):  
Davies Simukoko ◽  
◽  
David Mulenga ◽  
Victor Mwanakasale ◽  
◽  
...  
Keyword(s):  
Teaching Hospital ◽  
Chronically Ill ◽  
Chronically Ill Patients

PatientConcept App � an innovative tool to improve therapy adherence and to implement risk management plans. (Preprint)

2018 ◽  
Author(s):  
Michael Lang ◽  
Martin Mayr ◽  
Stefan Ringbauer ◽  
Lukas Cepek
Keyword(s):  
Risk Management ◽  
Disease Management ◽  
Chronically Ill ◽  
Patient Reported Outcome ◽  
Outcome Data ◽  
Daily Routine ◽  
Software Application ◽  
Patient Reported ◽  
Management Plans ◽  
Chronically Ill Patients

UNSTRUCTURED Background: Adherence constitutes a great challenge for disease management, particularly when treating chronically ill patients facing an extensive, complex and long-term therapy. Earlier studies emphasize the relevance of adherence for improving therapy benefits. Besides the positive impact of increased patient support, the use of mobile health applications has gained importance in disease management. Objective: We aimed to develop a software application providing innovative features to simplify the contact between patients and treating physicians in order to overcome adherence barriers, to implement risk management plans and to collect patient reported outcome data. Methods: A novel software application ensuring data security was developed. Various innovative modules have been implemented, enabling bidirectional communication between treating physicians and patients, supporting therapy monitoring and management and allowing the collection of large sets of anonymous patient data. Results: The PatientConcept app is freely available for download and is tested since 2016, with more than 1800 generated patient IDs and 279 patients documenting health data according to risk management plans online in 2017. The impact on adherence issues is currently tested in larger patient populations. Conclusion: This innovative app provides a feasible and cost-optimized possibility to intensify and simplify the communication between patients and their treating physicians across indications, thus promising an exceptional benefit to both. It may not only support chronically ill patients in managing their daily life and improving adherence, but can also facilitate the implementation of risk management plans through automated monitoring, thus supporting physicians in their daily routine. Furthermore, patient reported outcome data can be collected. Importantly, a secure ID-associated data management ensures patient anonymity complying with highest data safety standards.

Understanding care transition notifications for chronically ill patients

2021 ◽  
pp. 1-14
Author(s):  
Sarah Kianfar ◽  
Ann Schoofs Hundt ◽  
Peter L.T. Hoonakker ◽  
Doreen Salek ◽  
Janet Tomcavage ◽  
...  
Keyword(s):  
Chronically Ill ◽  
Care Transition ◽  
Chronically Ill Patients

scholarly journals PARE0008 MOBILE APPLICATION “MOJRA” FOR MONITORING PATIENTS WITH RHEUMATOID ARTHRITIS

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1290.1-1290 ◽  
Author(s):  
N. Teodorovic ◽  
S. Djordjevic ◽  
L. Vranic
Keyword(s):  
Rheumatoid Arthritis ◽  
Health Care ◽  
Best Practice ◽  
Mobile Apps ◽  
Digital Health ◽  
Work Capacity ◽  
Learning Center ◽  
Approval Procedure ◽  
The Republic

Background:In Serbia, regular examinations with a rheumatologist are scheduled on average every 3 to 4 months. With this in mind, there is a real possibility that many patient data during this period may not be presented to the doctor during the examination, either because the patient forgets them or because they may focus on other issues and may not highlight key factsObjectives:To overcome this problem, the Association of Patients with Rheumatic Diseases of Serbia-ORS in cooperation with an IT firm developed the application “MojRA”, which was presented at the annual rheumatology congress of Serbia held in September 2019. The application “MojRA” is intended for patients suffering from rheumatoid arthritis - RA. The application enables efficient storage and systematization of data, allows doctors to monitor the condition of their patients between two examinations and have a medical history. “MojRA” is available for now from smartphones running the android operating system on the google play store. The privacy of patient information is guaranteed.Methods:Patients with RA will be able to record and store information about important moments during treatment in a simple and transparent way. At each subsequent visit they will be able to describe what happened to their illness in the meantime. The application can create different types of reports and views.At the same time, the doctor can use the app to inform the patient about her/his condition in real time, which will contribute to better and more meaningful communication. All this would improve the quality of health care, preserving work capacity and improving the quality of life.Results:In order to simplify biotherapy committee approval procedure for patients of RA, the “Charger” has been developed in association with ORS and URes. The “Charger” will connect data collected by MojRa to the registry of RA patients, making the whole approval procedure more efficient and transparent.Testing of the second version of this application is underway, meetings are held between the patients using the application and the IT company that created it.Plans are to expand the app to other types of arthritis in the near future, too, and will soon be completed for devices running Apple operating systems.Conclusion:In addition to being of great benefit to patients and doctors, it can in the future be of immeasurable importance for the savings in the overall health care system of the Republic of Serbia.References:[1]Mobile Apps for Rheumatoid Arthritis: Opportunities and Challenges, Mollard E, Michaud K, Rheum Dis Clin, May 2019, Volume 45, Issue 2, Pages 197–209[2]Apps for People With Rheumatoid Arthritis to Monitor Their Disease Activity: A Review of Apps for Best Practice and Quality, Rebecca Grainger, Hutt Hospital, JMIR Publications, Advancing Digital Health Research, Feb 27, 2017.[3]ACR Mobile Apps,https://www.rheumatology.org/Learning-Center/Apps,American College of Reumatology.Disclosure of Interests:None declared

scholarly journals Attitudes to and experience of disease management programs in primary care—an exploratory survey of general practitioners in Germany

2021 ◽  
Author(s):  
Julian Wangler ◽  
Michael Jansky
Keyword(s):  
Primary Care ◽  
Disease Management ◽  
Patient Care ◽  
General Practitioners ◽  
Linear Regression Analysis ◽  
Chronically Ill ◽  
Disease Management Programs ◽  
Federal States ◽  
Set Up ◽  
Chronically Ill Patients

Summary Background Disease management programs (DMPs) were set up in Germany in 2003 to improve outpatient care of chronically ill patients. The present study looks at the attitudes and experiences of general practitioners (GPs) in relation to DMPs, how they rate them almost 20 years after their introduction and where they see a need for improvement. Methods A total of 1504 GPs in the Federal States of Rhineland Palatinate, Saarland and Hesse were surveyed between December 2019 and March 2020 using a written questionnaire. Results In total, 58% of respondents rate DMPs positively and regard them as making a useful contribution to primary care. The guarantee of regular, structured patient care and greater compliance are regarded as particularly positive aspects. It was also established that diagnostic and therapeutic knowledge was expanded through participation in DMPs. 57% essentially follow the DMP recommendations for (drug) treatment. Despite positive experiences of DMPs in patient care, the GPs surveyed mention various challenges (documentation requirements, frequent changes to the programmes, inflexibility). Univariant linear regression analysis revealed factors influencing the satisfaction with DMPs, such as improvement of compliance and clearly defined procedures in medical care. Conclusion Most of the GPs surveyed consider the combination of continuous patient care and evidence-based diagnosis and treatment to be a great advantage. To better adapt DMPs to the conditions of primary care, it makes sense to simplify the documentation requirements, to regulate cooperation with other healthcare levels more clearly and to give GPs more decision-making flexibility. Increased inclusion of GP experience in the process of developing and refining DMPs can be helpful.

Post-discharge intervention in vulnerable, chronically ill patients

2011 ◽  
Vol 7 (2) ◽  
pp. 124-130 ◽  
Author(s):  
Devan Kansagara ◽  
Rebecca S. Ramsay ◽  
David Labby ◽  
Somnath Saha
Keyword(s):  
Chronically Ill ◽  
Post Discharge ◽  
Chronically Ill Patients
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