scholarly journals Web-Based Self-Management Guide for Kidney Transplant Recipients (The Getting on With Your Life With a Transplanted Kidney Study): Protocol for Development and Preliminary Testing (Preprint)

2019 ◽  
Author(s):  
Daniela Massierer ◽  
Ruth Sapir-Pichhadze ◽  
Vanessa Bouchard ◽  
Kaberi Dasgupta ◽  
Nicolas Fernandez ◽  
...  
Keyword(s):  
Health Care ◽  
Focus Groups ◽  
Needs Assessment ◽  
Kidney Transplant ◽  
Health Care Team ◽  
Care Team ◽  
Self Management ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients ◽  
Web Based

BACKGROUND Although it is well known that compared with dialysis, kidney transplantation improves the quality of life (QoL) of patients with end-stage renal disease, posttransplant recovery of physical health and other aspects of QoL remain well below age- and sex-matched norms. In addition, most transplant recipients are not physically active even years after the transplant and face several barriers to engaging in physical activity (PA). This is of concern as low levels of PA in transplant recipients has been associated with increased risk of mortality and poor graft function. Optimization of QoL needs a team approach involving the patients and the members of the health care team. While members of the health care team are focused on optimizing the biological responses to transplant, patients may have few or no tools at their disposal to engage in behaviors that optimize QoL. To accomplish the need of supporting these patients in the self-management of their condition and to facilitate engagement with PA, new tools tailored to this population are required. OBJECTIVE The aim of this protocol study is to develop a Web-based, patient-centered self-management intervention to promote a healthy lifestyle, increase daily PA, and improve QoL in kidney transplant recipients. METHODS We will use the Obesity-Related Behavioral Intervention Trials model for developing behavioral treatments for chronic diseases to guide the proposed project. We will follow a modified version of the iterative 10-step process that was used to develop educational material for people with multiple sclerosis. The development of the intervention will occur in partnership with patients and a multidisciplinary team of clinicians and researchers. A comprehensive needs assessment including data from our pilot study, literature review, and focus groups will be conducted. The focus groups will be conducted with 6 to 10 participants for each type of stakeholders: patients and professional experts to identify areas of concerns of kidney transplant recipients that are appropriate to address through self-management. The areas of concern identified through the assessment needs will be included in the website. RESULTS This study has received funding from the Kidney Foundation of Canada for 2 years (2018-2020) and was recently granted ethics approval. Investigators have begun conducting the needs assessment described in step 1 of the study. The study is expected to be completed by the end of 2020. CONCLUSIONS This will be the first comprehensive, evidence- and experience-based self-management program for kidney transplant recipients. Once the intervention is developed, we anticipate improvements in patient experience, shared decision making, daily PA, QoL, and, in future studies, improvements in health outcomes and demonstrations of cost savings in posttransplant care. INTERNATIONAL REGISTERED REPOR PRR1-10.2196/13420

An Exploratory Correlational Study in the Use of Mobile Technology Among Adult Kidney Transplant Recipients

2018 ◽  
Vol 28 (4) ◽  
pp. 368-375 ◽  
Author(s):  
Tara O’Brien ◽  
Cynthia L. Russell ◽  
Alai Tan ◽  
Mallory Washington ◽  
Donna Hathaway
Keyword(s):  
Kidney Transplant ◽  
Mobile Technology ◽  
Mobile Apps ◽  
Self Management ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients ◽  
Cross Sectional ◽  
Adult Kidney ◽  
Access Patterns ◽  
Management Of Care

Introduction: Rapidly growing use of mobile technology provides a platform for self-management of care support for those with chronic conditions. Few studies have explored the characteristics or access patterns of kidney transplant recipients who use mHealth applications (apps) for self-management of care. Research Questions: The primary aim of this study was to describe demographics, use, barriers, and perceptions of mobile apps for self-management of care among adult kidney transplants recipients. The secondary aim was to compare blood urea nitrogen, glomerular filtration rate, and number of hospitalizations among mHealth app users, other app users, and non-app users. Methods: A cross-sectional design was used to administer the Mobile Application Use among Kidney Transplant Recipients Questionnaire. Descriptive statistics, χ2 statistics, and analysis of variance were used for the primary aim and linear regression was used for the secondary aim. Results: The sample included mostly African American males (n = 123, 75.5%) with a mean age of 50 (13.2) years. Knowledge was the greatest barrier reported by the non-app users (mHealth app users 9%, other app users 12%, non-app users, 49%, P < .001). Significantly fewer hospitalizations were found in the mHealth app users compared to other app users (regression coefficient b = −1.2, standard error [SE] = 0.5) and non-app users ( b = −0.9, SE = 0.6), adjusting for patient demographic and clinical characteristics. Discussion: Findings suggest a relationship may exist between mHealth app use and a decrease in the number of hospitalizations following kidney transplantation.

scholarly journals SP802MEDICATION ADHERENCE AND SELF MANAGEMENT IN KIDNEY TRANSPLANT RECIPIENTS

2017 ◽  
Vol 32 (suppl_3) ◽  
pp. iii413-iii413
Author(s):  
Barbora Vaīova ◽  
Josef Maly ◽  
Katerina Ladova ◽  
Pavel Navratil ◽  
Sylvie Dusilova-Sulkova
Keyword(s):  
Kidney Transplant ◽  
Self Management ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients

scholarly journals Effect of an interactive voice response system on self-management in kidney transplant recipients

Medicine ◽  
2019 ◽  
Vol 98 (6) ◽  
pp. e14291 ◽  
Author(s):  
Raheleh Ganjali ◽  
Zhila Taherzadeh ◽  
Mahin Ghorban Sabbagh ◽  
Fatemeh Nazemiyan ◽  
Fereshteh Mamdouhi ◽  
...  
Keyword(s):  
Kidney Transplant ◽  
Interactive Voice Response ◽  
Interactive Voice Response System ◽  
Self Management ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients ◽  
Response System ◽  
Voice Response

scholarly journals An Effective Model of Diabetes Care and Education: Revising the AADE7 Self-Care Behaviors®

2020 ◽  
Vol 46 (2) ◽  
pp. 139-160 ◽  
Author(s):  
Keyword(s):  
Health Care ◽  
Diabetes Management ◽  
Management Education ◽  
Self Care ◽  
Position Statement ◽  
Health Care Team ◽  
Care Team ◽  
Self Management ◽  
Health Related ◽  
Problem Solve

Purpose The AADE7 Self-Care Behaviors® (AADE7) is a robust framework for self-management of diabetes and other related conditions, such as prediabetes and cardiometabolic diseases. It is the position of the American Association of Diabetes Educators (AADE) that, at the cornerstone of diabetes self-management education and support, the AADE7 is the framework for achieving behavior change that leads to effective self-management through improved behavior and clinical outcome measures. The AADE7 model guides the health care team in effective person-centered collaboration and goal setting to achieve health-related outcomes and improved quality of life. Continued research and evidence are critical to expand this model and broaden its application to other chronic conditions. Given the advances in the science of diabetes management, as well as in diabetes self-management education and support, AADE has evaluated the AADE7 within the framework of these advances, including the digital and dynamic health care landscape. Conclusion This revised position statement blends the updates in research and AADE’s vision and expansion beyond diabetes to refresh the AADE7 framework. This revision reflects the perspectives of all members of the health care team as they problem solve with individuals who are at risk for or who have diabetes and related conditions to achieve healthier outcomes.

scholarly journals Evaluating the feasibility of a nurse-led self-management support intervention for kidney transplant recipients: a pilot study

2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Janet M. J. Been-Dahmen ◽  
Denise K. Beck ◽  
Mariëlle A. C. Peeters ◽  
Heleen van der Stege ◽  
Mirjam Tielen ◽  
...  
Keyword(s):  
Pilot Study ◽  
Kidney Transplant ◽  
Self Management ◽  
Management Support ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients ◽  
Support Intervention

scholarly journals Developing a Shared Patient-Centered, Web-Based Medication Platform for Type 2 Diabetes Patients and Their Health Care Providers: Qualitative Study on User Requirements (Preprint)

2017 ◽  
Author(s):  
Gerda Bernhard ◽  
Cornelia Mahler ◽  
Hanna Marita Seidling ◽  
Marion Stützle ◽  
Dominik Ose ◽  
...  
Keyword(s):  
Type 2 Diabetes ◽  
Health Care ◽  
Qualitative Study ◽  
Focus Groups ◽  
Self Management ◽  
Care Providers ◽  
Patient Centered ◽  
Web Based ◽  
Access Methods

BACKGROUND Information technology tools such as shared patient-centered, Web-based medication platforms hold promise to support safe medication use by strengthening patient participation, enhancing patients’ knowledge, helping patients to improve self-management of their medications, and improving communication on medications among patients and health care professionals (HCPs). However, the uptake of such platforms remains a challenge also due to inadequate user involvement in the development process. Employing a user-centered design (UCD) approach is therefore critical to ensure that user’ adoption is optimal. OBJECTIVE The purpose of this study was to identify what patients with type 2 diabetes mellitus (T2DM) and their HCPs regard necessary requirements in terms of functionalities and usability of a shared patient-centered, Web-based medication platform for patients with T2DM. METHODS This qualitative study included focus groups with purposeful samples of patients with T2DM (n=25), general practitioners (n=13), and health care assistants (n=10) recruited from regional health care settings in southwestern Germany. In total, 8 semistructured focus groups were conducted. Sessions were audio- and video-recorded, transcribed verbatim, and subjected to a computer-aided qualitative content analysis. RESULTS Appropriate security and access methods, supported data entry, printing, and sending information electronically, and tracking medication history were perceived as the essential functionalities. Although patients wanted automatic interaction checks and safety alerts, HCPs on the contrary were concerned that unspecific alerts confuse patients and lead to nonadherence. Furthermore, HCPs were opposed to patients’ ability to withhold or restrict access to information in the platform. To optimize usability, there was consensus among participants to display information in a structured, chronological format, to provide information in lay language, to use visual aids and customize information content, and align the platform to users’ workflow. CONCLUSIONS By employing a UCD, this study provides insight into the desired functionalities and usability of patients and HCPs regarding a shared patient-centered, Web-based medication platform, thus increasing the likelihood to achieve a functional and useful system. Substantial and ongoing engagement by all intended user groups is necessary to reconcile differences in requirements of patients and HCPs, especially regarding medication safety alerts and access control. Moreover, effective training of patients and HCPs on medication self-management (support) and optimal use of the tool will be a prerequisite to unfold the platform’s full potential.

Motivations, Challenges, and Attitudes to Self-management in Kidney Transplant Recipients: A Systematic Review of Qualitative Studies

2016 ◽  
Vol 67 (3) ◽  
pp. 461-478 ◽  
Author(s):  
Nathan J. Jamieson ◽  
Camilla S. Hanson ◽  
Michelle A. Josephson ◽  
Elisa J. Gordon ◽  
Jonathan C. Craig ◽  
...  
Keyword(s):  
Systematic Review ◽  
Kidney Transplant ◽  
Qualitative Studies ◽  
Self Management ◽  
Transplant Recipients ◽  
Kidney Transplant Recipients

scholarly journals Development of Self-Management Scale for Kidney Transplant Recipients, Including Management of Post-Transplantation Chronic Kidney Disease

2013 ◽  
Vol 2013 ◽  
pp. 1-7 ◽  
Author(s):  
Shiho Kosaka ◽  
Makoto Tanaka ◽  
Tomoko Sakai ◽  
Shinji Tomikawa ◽  
Kazunari Yoshida ◽  
...  
Keyword(s):  
Factor Analysis ◽  
Kidney Transplantation ◽  
Kidney Transplant ◽  
Intraclass Correlation ◽  
Clinical Importance ◽  
Self Management ◽  
Transplant Recipients ◽  
Validity And Reliability ◽  
Kidney Transplant Recipients ◽  
Post Transplantation

An evaluation scale is indispensable for the promotion of continuing, effective postkidney transplantation self-management behaviors. We aimed to develop and validate a new self-management scale for kidney transplant recipients to improve their long-term outcomes and prevent the recurrence of CKD complications. Two hundred and thirty-nine Japanese patients who had undergone kidney transplantation were recruited from three hospitals. The scale’s validity and reliability were evaluated using exploratory factor analysis and intraclass correlation coefficients. Scale items were selected by considering the findings of a clinical importance survey of 17 experts. Four subscales were identified by the factor analysis: “Self-monitoring” (six items), “Self-care behavior in daily living” (seven items), “Early detecting and coping with abnormalities after kidney transplantation” (four items), and “Stress management” (three items). Cronbach’s alpha coefficients for the subscales ranged from 0.61 to 0.87. A further four items with high clinical importance were added to the scale. The final scale comprised 24 items within four subscales and four single items. The intraclass correlation ranged from 0.88 to 0.95 in each subscale and the weighted kappa coefficient for the single items ranged from 0.33 to 0.72. The validity and reliability of our new self-management scale were confirmed by a patient-based field survey.

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