scholarly journals DiabetesSistersVoices: Virtual Patient Community to Identify Research Priorities for Women Living With Diabetes (Preprint)

2019 ◽  
Author(s):  
Peijin Han ◽  
Wanda Nicholson ◽  
Anna Norton ◽  
Karen Graffeo ◽  
Richard Singerman ◽  
...  
Keyword(s):  
Women Of Color ◽  
Virtual Community ◽  
Research Priorities ◽  
The United States ◽  
Virtual Patient ◽  
Diabetes Research ◽  
Patient Centered ◽  
Web Based ◽  
Use Of Social Media

BACKGROUND Women with or at high risk of diabetes have unique health concerns across their life course. Effective methods are needed to engage women living with diabetes to develop and carry out a patient-centered research agenda. OBJECTIVE This study aimed to (1) describe the creation of DiabetesSistersVoices, a virtual patient community for women living with and at risk for diabetes and (2) assess the feasibility and acceptability of DiabetesSistersVoices for engaging women in talking about their experiences, health care, and research priorities. METHODS We partnered with a national advocacy organization to create DiabetesSistersVoices and to develop recruitment strategies, which included use of social media, Web-based newsletters, and weblinks through partnering organizations. Study inclusion criteria were as follows: Being a woman aged ≥18 years, residing in the United States, and self-reporting a diagnosis of diabetes or risk of diabetes. Eligible participants were given access to DiabetesSistersVoices and completed online surveys at enrollment and 6 months. We assessed trends in participants’ activities, including posting questions, sharing experiences about living with diabetes, and searching for posted resources. RESULTS We enrolled 332 women (white: 86.5%; type 1 diabetes: 76.2%; median age: 51 years [interquartile range: 31 to 59 years]) over 8 months. Most (41.6%, 138/332) were classified as being active users (ie, posting) of the virtual community, 36.1% (120/332) as observers (ie, logged in but no posts), and 22.3% (74/332) as never users (ie, completed baseline surveys but then never logged in). Online activities were constant during the study, although participants had the highest website usage during the first 10 weeks after their enrollment. CONCLUSIONS We demonstrated the feasibility and acceptability of an online patient community for women living with diabetes by showing durability of recruitment and online usage over 6 months of testing. Next steps are to address barriers to joining a virtual patient community for women of color and women with type 2 diabetes to enhance inclusiveness and gain diverse perspectives to inform diabetes research.

scholarly journals A Patient-Centered Framework for Measuring the Economic Value of the Clinical Benefits of Digital Health Apps: Theoretical Modeling

10.2196/18812 ◽  
2020 ◽  
Vol 7 (10) ◽  
pp. e18812
Author(s):  
Adam Powell ◽  
John Torous
Keyword(s):  
Digital Health ◽  
Economic Value ◽  
Research Priorities ◽  
Health Impact ◽  
The United States ◽  
Quality Adjusted Life Year ◽  
Patient Centered ◽  
Health Apps ◽  
Clinical Benefits ◽  
Country Specific

Background As digital health tools such as smartphone apps evolve and enter clinical use, questions regarding their value must be addressed. Although there are scarce generalizable data on the value of health apps given their nascency and diverse use cases, it is possible to estimate the economic value of the clinical improvement they bring to patients using a quality-adjusted life-year (QALY)-based approach and generalized values from existing literature. Objective This paper aims to provide a patient-centered framework for assessing the economic value of the clinical benefits delivered by digital health apps. Methods We proposed a model based upon 5 levers: country-specific monetary value of a QALY, QALYs lost due to the condition, engagement rate of app users, average effect size of the app’s health impact, and duration of the app’s impact before remission. Results Using 2 digital health apps from the United States and United Kingdom as examples, we explored how this model could generate country-specific estimates of the economic value of the clinical benefits of health apps. Conclusions This new framework can help drive research priorities for digital health by elucidating the factors that influence the economic value.

scholarly journals T1DBase, a community web-based resource for type 1 diabetes research

2004 ◽  
Vol 33 (Database issue) ◽  
pp. D544-D549 ◽  
Author(s):  
L. J. Smink
Keyword(s):  
Type 1 Diabetes ◽  
Diabetes Research ◽  
Web Based

Technologies for Conducting an Online Ethnography of Communication

2015 ◽  
pp. 105-124 ◽  
Author(s):  
Tabitha Hart
Keyword(s):  
English Language Learners ◽  
Language Learners ◽  
English Language ◽  
Critical Role ◽  
Virtual Community ◽  
The United States ◽  
Ethnography Of Communication ◽  
Web Based ◽  
Online Ethnography ◽  
For Profit

In this chapter, the author describes the technologies she employed while conducting an Ethnography of Communication on Eloqi (pseudonym), a for-profit start-up company that built and operated a proprietary Web-based, voice-enabled platform connecting English language learners in China with trainers in the United States. While Eloqi existed, its unique platform not only connected trainers and students for short one-to-one English conversation lessons but also brought together the company admins, trainers, and students in a virtual community. This chapter describes the technologies that the author used to carry out the qualitative study from start to finish, including the steps of online participant observations, online and offline interviews, qualitative coding, and qualitative data analysis. Because the author studied a virtual community, technologies played a critical role in how she collected, managed, and analyzed the dataset, which was completely electronic. The chapter concludes with tips and advice for fellow researchers using technologies to support qualitative studies of communication, whether online or offline.

scholarly journals Using the Facebook Advertisement Platform to Recruit Chinese, Korean, and Latinx Cancer Survivors for Psychosocial Research: Web-Based Survey Study (Preprint)

2018 ◽  
Author(s):  
William Tsai ◽  
Daisy Zavala ◽  
Sol Gomez
Keyword(s):  
United States ◽  
Cancer Survivors ◽  
Ethnic Minority ◽  
Limited English Proficiency ◽  
East Asian ◽  
The United States ◽  
Survey Study ◽  
Future Research ◽  
Web Based ◽  
Use Of Social Media

BACKGROUND Ethnic minority cancer survivors remain an understudied and underrepresented population in cancer research, in part, due to the challenge of low participant recruitment rates. Therefore, identifying effective recruitment strategies is imperative for reducing cancer health disparities among this population. With the widespread use of social media, health researchers have turned to Facebook as a potential source of recruitment. OBJECTIVE We aimed to evaluate the feasibility and effectiveness of purchasing ads on Facebook to recruit Chinese, Korean, and Latinx cancer survivors residing in the United States. We assessed their experience with participating in a Web-based survey and their interest for future research. METHODS We showed 5 purchased ads in English, simplified Chinese, traditional Chinese, Korean, and Spanish on Facebook. Participants who clicked on the Facebook ad were directed to the study website and asked to submit their emails to receive the link to the 30-minute Web-based survey. Inclusion criteria included being of Asian or Latinx heritage, age ≥18 years, having a cancer diagnosis, and being within 5 years of cancer treatment. Participants who completed the survey were sent a US $10 Walmart eGiftcard. RESULTS The Facebook ads were shown for 48 consecutive days for a total spending of US $1200.46 (US $25/day budget). Overall, 11 East Asian and 15 Latinx cancer survivors completed the study, resulting in an average cost per participant of US $46.17. The East Asian and Latinx cancer survivors did not significantly differ in age, years lived in the United States, education level, generation status, and time since diagnosis. However, Latinx cancer survivors were marginally more likely to have limited English proficiency and lower annual income than East Asian cancer survivors. Both Latinx and East Asian cancer survivors reported that they enjoyed participating in this study and indicated an interest in participating in future psychosocial research studies. CONCLUSIONS The use of Facebook ads successfully resulted in the recruitment of East Asian and Latinx cancer survivors with different cancer diagnoses who reside in various geographic regions of the United States. We found that East Asian and Latinx cancer survivors recruited through Facebook were interested in participating in future psychosocial research, thereby providing support for the feasibility and effectiveness of using Facebook as a source of recruitment for ethnic minority cancer survivors.

A low-fidelity serious game for medical-based cultural competence education

2017 ◽  
Vol 25 (3) ◽  
pp. 632-648 ◽  
Author(s):  
Zain Khan ◽  
Bill Kapralos
Keyword(s):  
Cultural Competence ◽  
Culturally Diverse ◽  
Healthcare Providers ◽  
Healthcare Setting ◽  
The United States ◽  
Virtual Patient ◽  
Serious Game ◽  
Web Based ◽  
Cultural Competence Education

Research has shown that the quality of care is compromised when healthcare providers respond inappropriately to patient language and cultural factors. However, research indicates that medical education is not keeping pace with the changing composition of the patient population in culturally diverse societies such as Canada and the United States, and many healthcare providers do not possess the attitudes or skills required to be effective within a culturally diverse healthcare setting. Here, we present Fydlyty, a web-based, low-fidelity serious game for medical-based cultural competence education. Fydlyty includes both a scenario and dialogue editor providing the ability to develop conversations, interpret responses, and respond to questions/answers from the game player. These responses are based on predefined cultural characteristics of the virtual patient and on different moods that the virtual patient may express depending on the situation. The results of a usability experiment conducted with medical professionals and trainees revealed that the game is easy to use, intuitive, and engaging.

scholarly journals A Patient-Centered Framework for Measuring the Economic Value of the Clinical Benefits of Digital Health Apps: Theoretical Modeling (Preprint)

2020 ◽  
Author(s):  
Adam Powell ◽  
John Torous
Keyword(s):  
Digital Health ◽  
Economic Value ◽  
Research Priorities ◽  
Health Impact ◽  
The United States ◽  
Quality Adjusted Life Year ◽  
Patient Centered ◽  
Health Apps ◽  
Clinical Benefits ◽  
Country Specific

BACKGROUND As digital health tools such as smartphone apps evolve and enter clinical use, questions regarding their value must be addressed. Although there are scarce generalizable data on the value of health apps given their nascency and diverse use cases, it is possible to estimate the economic value of the clinical improvement they bring to patients using a quality-adjusted life-year (QALY)-based approach and generalized values from existing literature. OBJECTIVE This paper aims to provide a patient-centered framework for assessing the economic value of the clinical benefits delivered by digital health apps. METHODS We proposed a model based upon 5 levers: country-specific monetary value of a QALY, QALYs lost due to the condition, engagement rate of app users, average effect size of the app’s health impact, and duration of the app’s impact before remission. RESULTS Using 2 digital health apps from the United States and United Kingdom as examples, we explored how this model could generate country-specific estimates of the economic value of the clinical benefits of health apps. CONCLUSIONS This new framework can help drive research priorities for digital health by elucidating the factors that influence the economic value.

209-OR: ADA Presidents' Select Abstract: Type 1 Diabetes and the Developing Brain—A Longitudinal Study of Brain Growth by the Diabetes Research in Children Network (DirecNet)

Diabetes ◽  
2019 ◽  
Vol 68 (Supplement 1) ◽  
pp. 209-OR ◽  
Author(s):  
ANA MARIA ARBELAEZ ◽  
STEFANI O’DONOGHUE ◽  
NELLY MAURAS ◽  
BRUCE A. BUCKINGHAM ◽  
NEIL H. WHITE ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Longitudinal Study ◽  
Developing Brain ◽  
Diabetes Research ◽  
Brain Growth ◽  
Select Abstract
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