scholarly journals Oncofertility decision support resources for women of reproductive age: a systematic review (Preprint)

2018 ◽  
Author(s):  
Brittany Speller ◽  
Selena Micic ◽  
Corinne Daly ◽  
Lebei Pi ◽  
Tari Little ◽  
...  
Keyword(s):  
Decision Support ◽  
Cancer Patients ◽  
Decision Aids ◽  
The United States ◽  
Reproductive Age ◽  
Care Providers ◽  
Women Of Reproductive Age ◽  
Specific Patient ◽  
Patient Information Needs ◽  
Support Resources

BACKGROUND Cancer treatments have the potential to cause infertility among women of reproductive age. Many cancer patients do not receive sufficient oncofertility information or referrals to reproductive specialists prior to beginning cancer treatment. While health care providers cite lack of awareness on the available oncofertility resources, the majority of cancer patients utilize the Internet as a resource to find additional information to supplement discussions with their providers. OBJECTIVE To identify and characterize existing oncofertility decision support resources for women of reproductive age with a diagnosis of any cancer. METHODS Five databases and the grey literature were searched from 1994 to 2018. The developer and content information for identified resources was extracted. Each resource underwent a quality assessment. RESULTS Thirty-one open access resources including four decision aids and 27 health educational materials were identified. The most common fertility preservation options listed in the resources included embryo (100%), egg (100%), and ovarian tissue (97%) freezing. Notably, approximately one-third (35%) contained references and five (16%) had a reading level of grade 8 or below. Resources were of varying quality; two decision aids from Australia and the Netherlands, two booklets from Australia and the United Kingdom, and three websites from Canada and the United States rated as the highest quality. CONCLUSIONS This comprehensive review characterizes numerous resources available to support patients and providers with oncofertility information, counseling, and decision-making. More focus is required to improve the awareness and the access of existing resources among patients and providers. Providers can address patient information needs by leveraging or adapting existing resources to support clinical discussions and their specific patient population. CLINICALTRIAL NA

scholarly journals Oncofertility Decision Support Resources for Women of Reproductive Age: Systematic Review

JMIR Cancer ◽  
10.2196/12593 ◽  
2019 ◽  
Vol 5 (1) ◽  
pp. e12593 ◽  
Author(s):  
Brittany Speller ◽  
Selena Micic ◽  
Corinne Daly ◽  
Lebei Pi ◽  
Tari Little ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Health Care Providers ◽  
Decision Aids ◽  
The United States ◽  
Reading Level ◽  
Reproductive Age ◽  
Care Providers ◽  
Women Of Reproductive Age ◽  
Specific Patient ◽  
Patient Information Needs

Background Cancer treatments have the potential to cause infertility among women of reproductive age. Many cancer patients do not receive sufficient oncofertility information or referrals to reproductive specialists prior to starting cancer treatment. While health care providers cite lack of awareness on the available oncofertility resources, the majority of cancer patients use the internet as a resource to find additional information to supplement discussions with their providers. Objective Our aim was to identify and characterize Web-based oncofertility decision aids and health education materials accessible for women of reproductive age with a diagnosis of any cancer. Methods We searched five databases and the gray literature for the years 1994-2018. The developer and content information for identified resources was extracted. Each resource underwent a quality assessment. Results We identified 31 open access resources including 4 decision aids and 27 health educational materials. The most common fertility preservation options listed in the resources included embryo (31/31, 100%), egg (31, 100%), and ovarian tissue freezing (30, 97%). Notably, approximately one-third (11, 35%) contained references and 5 (16%) had a reading level of grade 8 or below. Resources were of varying quality; two decision aids from Australia and the Netherlands, two booklets from Australia and the United Kingdom, and three websites from Canada and the United States rated as the highest quality. Conclusions This comprehensive review characterizes numerous resources available to support patients and providers with oncofertility information, counseling, and decision making. More focus is required to improve the awareness and the access of existing resources among patients and providers. Providers can address patient information needs by leveraging or adapting existing resources to support clinical discussions and their specific patient population.

Development of a decision aid for young canadians diagnosed with breast cancer who are at risk of infertility following cancer treatment.

2017 ◽  
Vol 35 (5_suppl) ◽  
pp. 108-108
Author(s):  
Brittany Speller ◽  
Marcia Facey ◽  
Amanda Sissons ◽  
Corinne Daly ◽  
Erin Diane Kennedy ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Decision Support ◽  
Cancer Patients ◽  
Health Care Providers ◽  
Decision Aid ◽  
Breast Cancer Survivors ◽  
Care Providers ◽  
Breast Cancer Patients ◽  
Support Resources ◽  
Young Breast Cancer

108 Background: Young breast cancer patients are at risk of temporary or permanent infertility following the administration of gonadotoxic cancer treatments. Currently patients do not feel they receive enough information to make informed fertility decisions before treatment. We aim to determine the fertility-related information health care providers and breast cancer survivors consider valuable to include in a Canadian decision aid (Can-DA) for young breast cancer patients by reviewing existing decision support resources. Methods: A qualitative descriptive approach was used to evaluate 6 decision support resources created in other jurisdictions. Using purposeful sampling, 8 multi-disciplinary health care providers and 8 breast cancer survivors from across Canada evaluated 1 to 2 decision support resources in structured interviews. Interviews were conducted in-person and by telephone from March to June 2016 and ranged in length from 30 to 90 minutes. Interviews were transcribed verbatim, organized in NVivo, and analyzed deductively using the pre-defined sections of the interview guide as a framework. Results: Each decision support resource had valuable components to adapt for the Can-DA. Participants valued the inclusion of Canadian-specific and accurate information on resources for additional support and the success rates and cost ranges of fertility preservation procedures. There were mixed views on the impact and value of including in-depth fertility information such as adoption and other fertility-related options after treatment. Discrepancies were also seen on the value of personal stories and an explicit values clarification exercise. There was consensus on the inclusion of only pertinent fertility-related information that does not replicate information in supplementary patient education material to avoid overwhelming patients. Conclusions: The evaluation provided valuable insight on the information and design features to consider for the Can-DA. Findings will be used in combination with the International Patient Decision Aid Standards criteria to ensure the Can-DA meets the fertility information needs of young breast cancer patients in Canada.

scholarly journals Cigar and Marijuana Blunt Use Among Pregnant and Nonpregnant Women of Reproductive Age in the United States, 2006–2016

2018 ◽  
Vol 108 (8) ◽  
pp. 1073-1075 ◽  
Author(s):  
Victoria H. Coleman-Cowger ◽  
Wallace B. Pickworth ◽  
Robert A. Lordo ◽  
Erica N. Peters
Keyword(s):  
United States ◽  
The United States ◽  
Reproductive Age ◽  
Women Of Reproductive Age

scholarly journals Trends and associated characteristics for Chagas disease among women of reproductive age in the United States, 2002 to 2017

2020 ◽  
Vol 11 ◽  
pp. e00167
Author(s):  
Chioma Ikedionwu ◽  
Deepa Dongarwar ◽  
Manvir Kaur ◽  
Lisa Nunez ◽  
Annabella Awazi ◽  
...  
Keyword(s):  
United States ◽  
Chagas Disease ◽  
The United States ◽  
Reproductive Age ◽  
Women Of Reproductive Age

Customized electronic alerts to boost pneumococcal vaccinations in high risk cancer patients.

2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e18227-e18227
Author(s):  
Ananta Bhatt ◽  
Shoshana Hort ◽  
Daniel J Gelb ◽  
Todd MacKenzie ◽  
Frederick Lansigan
Keyword(s):  
High Risk ◽  
Cancer Patients ◽  
Case Fatality ◽  
Primary Care Providers ◽  
The United States ◽  
Immunocompromised Patients ◽  
Care Providers ◽  
Electronic Alerts ◽  
Cdc Guidelines ◽  
Order Set

e18227 Background: Streptococcus pneumoniae remains a leading cause of serious illness, including bacteremia, meningitis, and pneumonia among adults in the United States. Approximately 10% of all patients with invasive pneumococcal disease die of their illness, but case-fatality rates are higher for immunocompromised adults including cancer patients. Current Center for Disease Control (CDC) guidelines recommend routine use of 13-valent (Prevnar 13) and 23-valent (Pneumovax 23) pneumococcal vaccines (PV) for immunocompromised patients. We conducted a quality improvement (QI) project utilizing our electronic medical record (EMR) system to improve PV compliance (PVC) rates in our patients. Methods: We created automatic reminders called best practice alerts (BPA) and linked them to a smart order set within our EMR that appeared upon opening patient charts. The smart set ordered the correct vaccine in sequence based on CDC guidelines. From August 2015- January 2017, we implemented this BPA for one of six hematology providers and the remaining providers were provided with verbal guidelines and reminders to administer PV to their patients. Results: At baseline only 22% of 3000 hematology patients within the practice had received PV. The pilot provider with the BPA linked to a smart order set within the EMR improved PVC within his patients from 23% to 66%. Providers who were just given verbal guidelines improved PVC from an average of 22% to 45%. The difference in the improvement between the pilot provider and the reference group is 21% (p < 0.001). Conclusions: In an EMR era, we took advantage of the tools within our system to improve PVC rates. BPA linked to a smart order set within the EMR provided better means of improving PVC than verbal prompts in high-risk immunocompromised patients. Additionally, the increase in PVC throughout the hematology practice is due to primary care providers using similar reminders within the same EMR. The PV BPA will be conducted as a standard of care in our clinic and will be expanded to oncology patients as well.

Vaginal and rectal clostridial colonization among women of reproductive age in the United States

Contraception ◽  
2010 ◽  
Vol 82 (2) ◽  
pp. 214 ◽  
Author(s):  
C. Shannon ◽  
M. Veatch ◽  
E. Chong ◽  
K. Agnew ◽  
D. Nucatola ◽  
...  
Keyword(s):  
United States ◽  
The United States ◽  
Reproductive Age ◽  
Women Of Reproductive Age
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