scholarly journals Quality of Medical Advice Provided Between Members of a Web-Based Message Board for Patients With Implantable Defibrillators: Mixed-Methods Study (Preprint)

2018 ◽  
Author(s):  
Christopher E Knoepke ◽  
D Hogan Slack ◽  
M Pilar Ingle ◽  
Daniel D Matlock ◽  
Lucas N Marzec
Keyword(s):  
Medical Information ◽  
Medical Advice ◽  
Mixed Methods Study ◽  
Message Board ◽  
Web Based ◽  
Activity Restriction ◽  
Message Boards ◽  
Lead Management ◽  
Quality Categories

BACKGROUND Patients use Web-based medical information to understand medical conditions and treatments. A number of efforts have been made to understand the quality of professionally created content; however, none have described the quality of advice being provided between anonymous members of Web-based message boards. OBJECTIVE The objective of this study was to characterize the quality of medical information provided between members of an anonymous internet message board addressing treatment with an implantable cardioverter-defibrillator (ICD). METHODS We quantitatively analyzed 2 years of discussions using a mixed inductive-deductive framework, first, for instances in which members provided medical advice and, then, for the quality of the advice. RESULTS We identified 82 instances of medical advice within 127 discussions. Advice covered 6 topical areas: (1) Device information, (2) Programming, (3) Cardiovascular disease, (4) Lead management, (5) Activity restriction, and (6) Management of other conditions. Across all advice, 50% (41/82) was deemed generally appropriate, 24% (20/82) inappropriate for most patients, 6% (5/82) controversial, and 20% (16/82) without sufficient context. Proportions of quality categories varied between topical areas. We have included representative examples. CONCLUSIONS The quality of advice shared between anonymous members of a message board regarding ICDs varied considerably according to topical area and the specificity of advice. This report provides a model to describe the quality of the available Web-based patient-generated material.

scholarly journals Quality of Medical Advice Provided Between Members of a Web-Based Message Board for Patients With Implantable Defibrillators: Mixed-Methods Study

JMIR Cardio ◽  
10.2196/11358 ◽  
2018 ◽  
Vol 2 (2) ◽  
pp. e11358
Author(s):  
Christopher E Knoepke ◽  
D Hogan Slack ◽  
M Pilar Ingle ◽  
Daniel D Matlock ◽  
Lucas N Marzec
Keyword(s):  
Mixed Methods ◽  
Medical Advice ◽  
Mixed Methods Study ◽  
Message Board ◽  
Implantable Defibrillators ◽  
Web Based

scholarly journals A credibility assessment of online breast cancer information

2021 ◽  
Author(s):  
Michelle Abarca-Cuming
Keyword(s):  
Health Information ◽  
Medical Information ◽  
Code Of Conduct ◽  
Rapid Expansion ◽  
Cancer Information ◽  
Digital Environment ◽  
Web Based ◽  
Written Information ◽  
Health Market

The rapid expansion of the Internet and changes in the health market are giving rise to the emergence of web-based tools for seeking health information. As a result, the Web empowers consumers by allowing them to access important medical information that has traditionally been mediated through healthcare professionals. Along with this growing trend comes the challenge of establishing credibility in a digital environment saturated with health information. One way to begin addressing this challenge is to assess the projection of credibility of health information found online. The purpose of this paper is twofold. Firstly, to develop a better understanding of how projections of credibility might differ between traditional and non-traditional online health sources. The former defined as websites belonging to formal and conventional institutions and the latter defined as informal and unconventional organizations. Secondly, to develop some strategic approaches that might be employed to enhance perceptions of online credibility. This paper conducts a content analysis using the Health on the Net Foundation’s Code of Conduct for medical and health websites and DISCERN, an instrument that assesses the quality of written information about treatment choices (DISCERN, 2012).

scholarly journals Evaluating the User Experience of a Web-Based Child Health Record System

2020 ◽  
Vol 5 (3) ◽  
pp. 17-24
Author(s):  
Nadia Abdul Wahab ◽  
Nor Marlina Sahabudin ◽  
Aznoora Osman ◽  
Norfiza Ibrahim
Keyword(s):  
Child Health ◽  
User Experience ◽  
Medical Information ◽  
Health Record ◽  
Medical Conditions ◽  
Record System ◽  
Web Based ◽  
System User ◽  
Experience Questionnaire

The aim for this research is to design , develop and evaluate a web - based child health record system with appointment notification. This system has the ability to record all the medical information about a child such as the heig ht, weight, treatments and medical conditions . It also has the ability to rec ord the visit s and immunization details, reminder for next visits and immunization appointments. A User Experience ( UX ) Test were conducted during the study to evaluate the system . User Experience Questionnaire (UEQ) is the instrument that is being utilized during the UX Testing to evaluate the user experience quality of a product. UEQ has been divided into six scales which are attractiveness, perspicuity, efficiency, dependability, stimulation and novelty . During the UX Testing, the users were given a chance to explore and evaluate the system. The result from the UX Testing indicates that most of the users agree that the system is attractive and has a good perspicuity, efficiency, dependability, stimulation and novelty. In conclusion, this research h as achieved the objectives which are to design, develop and evaluate a Web - Based Child Health Record System with Appointment Notifications.

scholarly journals A credibility assessment of online breast cancer information

2021 ◽  
Author(s):  
Michelle Abarca-Cuming
Keyword(s):  
Health Information ◽  
Medical Information ◽  
Code Of Conduct ◽  
Rapid Expansion ◽  
Cancer Information ◽  
Digital Environment ◽  
Web Based ◽  
Written Information ◽  
Health Market

The rapid expansion of the Internet and changes in the health market are giving rise to the emergence of web-based tools for seeking health information. As a result, the Web empowers consumers by allowing them to access important medical information that has traditionally been mediated through healthcare professionals. Along with this growing trend comes the challenge of establishing credibility in a digital environment saturated with health information. One way to begin addressing this challenge is to assess the projection of credibility of health information found online. The purpose of this paper is twofold. Firstly, to develop a better understanding of how projections of credibility might differ between traditional and non-traditional online health sources. The former defined as websites belonging to formal and conventional institutions and the latter defined as informal and unconventional organizations. Secondly, to develop some strategic approaches that might be employed to enhance perceptions of online credibility. This paper conducts a content analysis using the Health on the Net Foundation’s Code of Conduct for medical and health websites and DISCERN, an instrument that assesses the quality of written information about treatment choices (DISCERN, 2012).

scholarly journals A Web-Based Mobile App (INTERACCT App) for Adolescents Undergoing Cancer and Hematopoietic Stem Cell Transplantation Aftercare to Improve the Quality of Medical Information for Clinicians: Observational Study

10.2196/18781 ◽  
2020 ◽  
Vol 8 (6) ◽  
pp. e18781 ◽  
Author(s):  
Anita Lawitschka ◽  
Stephanie Buehrer ◽  
Dorothea Bauer ◽  
Konrad Peters ◽  
Marisa Silbernagl ◽  
...  
Keyword(s):  
Stem Cell ◽  
Health Status ◽  
Hematopoietic Stem Cell ◽  
Medical Information ◽  
Mobile App ◽  
Case Vignette ◽  
Web Based ◽  
Hematopoietic Stem ◽  
Paper And Pencil

Background A growing number of cancer and hematopoietic stem cell transplant (HSCT) survivors require long-term follow-up with optimal communication schemes, and patients' compliance is crucial. Adolescents have various unmet needs. Regarding self-report of symptoms and health status, users of mobile apps showed enhanced compliance. Currently, HSCT aftercare at the HSCT outpatient clinic of the St. Anna Children’s Hospital in Vienna, Austria, is based on handwritten diaries, carrying various disadvantages. Recently, we developed the prototype of a web-based, self-monitoring gamified mobile app tailored for adolescents: the INTERACCT (Integrating Entertainment and Reaction Assessment into Child Cancer Therapy) app. Objective This observational, prospective study evaluated the usability of the INTERACCT app for tracking real-time self-reported symptoms and health status data in adolescent HSCT patients and a healthy matched control group. The primary outcome of the study was the quality of the self-reported medical information. We hypothesized that the mobile app would provide superior medical information for the clinicians than would the handwritten diaries. Methods Health data were reported via paper diary and mobile app for 5 consecutive days each. The quality of medical information was rated on a 5-point scale independently and blinded by two HSCT clinicians, and the duration of use was evaluated. A total of 52 participant questionnaires were assessed for gaming patterns and device preferences, self-efficacy, users’ satisfaction, acceptability, and suggestions for improvement of the mobile app. Interrater reliability was calculated with the intraclass correlation coefficient, based on a two-way mixed model; one-way repeated-measures analysis of variance and t tests were conducted post hoc. Descriptive methods were used for correlation with participants’ demographics. For users’ satisfaction and acceptability of the mobile app, the median and the IQR were calculated. Results Data from 42 participants—15 patients and 27 healthy students—with comparable demographics were evaluated. The results of our study indicated a superiority of the quality of self-reported medical data in the INTERACCT app over traditional paper-and-pencil assessment (mobile app: 4.14 points, vs paper-based diary: 3.77 points, P=.02). The mobile app outperformed paper-and-pencil assessments mainly among the patients, in particular among patients with treatment-associated complications (mobile app: 4.43 points, vs paper-based diary: 3.73 points, P=.01). The mobile app was used significantly longer by adolescents (≥14 years: 4.57 days, vs ≤13 years: 3.14 days, P=.03) and females (4.76 days for females vs 2.95 days for males, P=.004). This corresponds with a longer duration of use among impaired patients with comorbidities. User satisfaction and acceptability ratings for the mobile app were high across all groups, but adherence to entering a large amount of data decreased over time. Based on our results, we developed a case vignette of the target group. Conclusions Our study was the first to show that the quality of patient-reported medical information submitted via the INTERACCT app embedded in a serious game is superior to that submitted via a handwritten diary. In light of these results, a refinement of the mobile app supported by a machine learning approach is planned within an international research project.

A Web-Based Mobile App (INTERACCT App) for Adolescents Undergoing Cancer and Hematopoietic Stem Cell Transplantation Aftercare to Improve the Quality of Medical Information for Clinicians: Observational Study (Preprint)

2020 ◽  
Author(s):  
Anita Lawitschka ◽  
Stephanie Buehrer ◽  
Dorothea Bauer ◽  
Konrad Peters ◽  
Marisa Silbernagl ◽  
...  
Keyword(s):  
Stem Cell ◽  
Health Status ◽  
Hematopoietic Stem Cell ◽  
Medical Information ◽  
Mobile App ◽  
Case Vignette ◽  
Web Based ◽  
Hematopoietic Stem ◽  
Paper And Pencil

BACKGROUND A growing number of cancer and hematopoietic stem cell transplant (HSCT) survivors require long-term follow-up with optimal communication schemes, and patients' compliance is crucial. Adolescents have various unmet needs. Regarding self-report of symptoms and health status, users of mobile apps showed enhanced compliance. Currently, HSCT aftercare at the HSCT outpatient clinic of the St. Anna Children’s Hospital in Vienna, Austria, is based on handwritten diaries, carrying various disadvantages. Recently, we developed the prototype of a web-based, self-monitoring gamified mobile app tailored for adolescents: the INTERACCT (Integrating Entertainment and Reaction Assessment into Child Cancer Therapy) app. OBJECTIVE This observational, prospective study evaluated the usability of the INTERACCT app for tracking real-time self-reported symptoms and health status data in adolescent HSCT patients and a healthy matched control group. The primary outcome of the study was the quality of the self-reported medical information. We hypothesized that the mobile app would provide superior medical information for the clinicians than would the handwritten diaries. METHODS Health data were reported via paper diary and mobile app for 5 consecutive days each. The quality of medical information was rated on a 5-point scale independently and blinded by two HSCT clinicians, and the duration of use was evaluated. A total of 52 participant questionnaires were assessed for gaming patterns and device preferences, self-efficacy, users’ satisfaction, acceptability, and suggestions for improvement of the mobile app. Interrater reliability was calculated with the intraclass correlation coefficient, based on a two-way mixed model; one-way repeated-measures analysis of variance and <i>t</i> tests were conducted post hoc. Descriptive methods were used for correlation with participants’ demographics. For users’ satisfaction and acceptability of the mobile app, the median and the IQR were calculated. RESULTS Data from 42 participants—15 patients and 27 healthy students—with comparable demographics were evaluated. The results of our study indicated a superiority of the quality of self-reported medical data in the INTERACCT app over traditional paper-and-pencil assessment (mobile app: 4.14 points, vs paper-based diary: 3.77 points, <i>P</i>=.02). The mobile app outperformed paper-and-pencil assessments mainly among the patients, in particular among patients with treatment-associated complications (mobile app: 4.43 points, vs paper-based diary: 3.73 points, <i>P</i>=.01). The mobile app was used significantly longer by adolescents (≥14 years: 4.57 days, vs ≤13 years: 3.14 days, <i>P</i>=.03) and females (4.76 days for females vs 2.95 days for males, <i>P</i>=.004). This corresponds with a longer duration of use among impaired patients with comorbidities. User satisfaction and acceptability ratings for the mobile app were high across all groups, but adherence to entering a large amount of data decreased over time. Based on our results, we developed a case vignette of the target group. CONCLUSIONS Our study was the first to show that the quality of patient-reported medical information submitted via the INTERACCT app embedded in a serious game is superior to that submitted via a handwritten diary. In light of these results, a refinement of the mobile app supported by a machine learning approach is planned within an international research project.

scholarly journals Development and Early Feasibility of Chatbots for Educating Patients With Lung Cancer and Their Caregivers in Japan: Mixed Methods Study

JMIR Cancer ◽  
10.2196/26911 ◽  
2021 ◽  
Vol 7 (1) ◽  
pp. e26911
Author(s):  
Yuki Kataoka ◽  
Tomoyasu Takemura ◽  
Munehiko Sasajima ◽  
Naoki Katoh
Keyword(s):  
Lung Cancer ◽  
Mixed Methods ◽  
Health Care Providers ◽  
Medical Information ◽  
Phase 1 ◽  
Test Phase ◽  
Mixed Methods Study ◽  
Phase 2 ◽  
Care Providers ◽  
Web Based

Background Chatbots are artificial intelligence–driven programs that interact with people. The applications of this technology include the collection and delivery of information, generation of and responding to inquiries, collection of end user feedback, and the delivery of personalized health and medical information to patients through cellphone- and web-based platforms. However, no chatbots have been developed for patients with lung cancer and their caregivers. Objective This study aimed to develop and evaluate the early feasibility of a chatbot designed to improve the knowledge of symptom management among patients with lung cancer in Japan and their caregivers. Methods We conducted a sequential mixed methods study that included a web-based anonymized questionnaire survey administered to physicians and paramedics from June to July 2019 (phase 1). Two physicians conducted a content analysis of the questionnaire to curate frequently asked questions (FAQs; phase 2). Based on these FAQs, we developed and integrated a chatbot into a social network service (phase 3). The physicians and paramedics involved in phase I then tested this chatbot (α test; phase 4). Thereafter, patients with lung cancer and their caregivers tested this chatbot (β test; phase 5). Results We obtained 246 questions from 15 health care providers in phase 1. We curated 91 FAQs and their corresponding responses in phase 2. In total, 11 patients and 1 caregiver participated in the β test in phase 5. The participants were asked 60 questions, 8 (13%) of which did not match the appropriate categories. After the β test, 7 (64%) participants responded to the postexperimental questionnaire. The mean satisfaction score was 2.7 (SD 0.5) points out of 5. Conclusions Medical staff providing care to patients with lung cancer can use the categories specified in this chatbot to educate patients on how they can manage their symptoms. Further studies are required to improve chatbots in terms of interaction with patients.

Sign in / Sign up

Export Citation Format

Share Document