scholarly journals Developing a Third-Party Analytics Application Using Australia’s National Personal Health Records System: Case Study

2018 ◽  
Vol 6 (2) ◽  
pp. e28 ◽  
Author(s):  
Niranjan Bidargaddi ◽  
Yasmin van Kasteren ◽  
Peter Musiat ◽  
Michael Kidd
Keyword(s):  
Personal Health Records ◽  
Third Party ◽  
Personal Health ◽  
Health Records

scholarly journals Assessing commercially available personal health records for home health

2016 ◽  
Vol 07 (02) ◽  
pp. 355-367 ◽  
Author(s):  
Yong Choi ◽  
George Demiris ◽  
Laura Kneale
Keyword(s):  
Information Needs ◽  
Medical Information ◽  
Healthcare Providers ◽  
Study Data ◽  
Home Health ◽  
Personal Health Records ◽  
Personal Health ◽  
Health Records ◽  
Home Health Nurses

SummaryHome health nurses and clients experience unmet information needs when transitioning from hospital to home health. Personal health records (PHRs) support consumer-centered information management activities. Previous work has assessed PHRs associated with healthcare providers, but these systems leave home health nurses unable to access necessary information.To evaluate the ability of publically available PHRs to accept, manage, and share information from a home health case study.Two researchers accessed the publically available PHRs on myPHR.com, and attempted to enter, manage, and share the case study data. We qualitatively described the PHR features, and identified gaps between the case study information and PHR functionality.Eighteen PHRs were identified in our initial search. Seven systems met our inclusion criteria, and are included in this review. The PHRs were able to accept basic medical information. Gaps occurred when entering, managing, and/or sharing data from the acute care and home health episodes. The PHRs that were reviewed were unable to effectively manage the case study information. Therefore, increasing consumer health literacy through these systems may be difficult. The PHRs that we reviewed were also unable to electronically share their data.The gap between the existing functionality and the information needs from the case study may make these PHRs difficult to use for home health environments. Additional work is needed to increase the functionality of the PHR systems to better fit the data needs of home health clients.

scholarly journals Consumers’ Intentions to Adopt Blockchain-Based Personal Health Records and Data Sharing: Focus Group Study (Preprint)

2020 ◽  
Author(s):  
Chang Lu ◽  
Danielle Batista ◽  
Hoda Hamouda ◽  
Victoria Lemieux
Keyword(s):  
Health Care ◽  
Focus Group ◽  
Data Sharing ◽  
Health Data ◽  
Personal Health Records ◽  
Third Party ◽  
Personal Health ◽  
Health Records ◽  
The Third ◽  
The Third Party

BACKGROUND Although researchers are giving increased attention to blockchain-based personal health records (PHRs) and data sharing, the majority of research focuses on technical design. Very little is known about health care consumers’ intentions to adopt the applications. OBJECTIVE This study aims to explore the intentions and concerns of health care consumers regarding the adoption of blockchain-based personal health records and data sharing. METHODS Three focus groups were conducted, in which 26 participants were shown a prototype of a user interface for a self-sovereign blockchain-based PHR system (ie, a system in which the individual owns, has custody of, and controls access to their personal health information) to be used for privacy and secure health data sharing. A microinterlocutor analysis of focus group transcriptions was performed to show a descriptive overview of participant responses. NVivo 12.0 was used to code the categories of the responses. RESULTS Participants did not exhibit a substantial increase in their willingness to become owners of health data and share the data with third parties after the blockchain solution was introduced. Participants were concerned about the risks of losing private keys, the resulting difficulty in accessing care, and the irrevocability of data access on blockchain. They did, however, favor a blockchain-based PHR that incorporates a private key recovery system and offers a health wallet hosted by government or other positively perceived organizations. They were more inclined to share data via blockchain if the third party used the data for collective good and offered participants nonmonetary forms of compensation and if the access could be revoked from the third party. CONCLUSIONS Health care consumers were not strongly inclined to adopt blockchain-based PHRs and health data sharing. However, their intentions may increase when the concerns and recommendations demonstrated in this study are considered in application design.

scholarly journals Consumers’ Intentions to Adopt Blockchain-Based Personal Health Records and Data Sharing: Focus Group Study

10.2196/21995 ◽  
2020 ◽  
Vol 4 (11) ◽  
pp. e21995
Author(s):  
Chang Lu ◽  
Danielle Batista ◽  
Hoda Hamouda ◽  
Victoria Lemieux
Keyword(s):  
Health Care ◽  
Focus Group ◽  
Data Sharing ◽  
Health Data ◽  
Personal Health Records ◽  
Third Party ◽  
Personal Health ◽  
Health Records ◽  
The Third ◽  
The Third Party

Background Although researchers are giving increased attention to blockchain-based personal health records (PHRs) and data sharing, the majority of research focuses on technical design. Very little is known about health care consumers’ intentions to adopt the applications. Objective This study aims to explore the intentions and concerns of health care consumers regarding the adoption of blockchain-based personal health records and data sharing. Methods Three focus groups were conducted, in which 26 participants were shown a prototype of a user interface for a self-sovereign blockchain-based PHR system (ie, a system in which the individual owns, has custody of, and controls access to their personal health information) to be used for privacy and secure health data sharing. A microinterlocutor analysis of focus group transcriptions was performed to show a descriptive overview of participant responses. NVivo 12.0 was used to code the categories of the responses. Results Participants did not exhibit a substantial increase in their willingness to become owners of health data and share the data with third parties after the blockchain solution was introduced. Participants were concerned about the risks of losing private keys, the resulting difficulty in accessing care, and the irrevocability of data access on blockchain. They did, however, favor a blockchain-based PHR that incorporates a private key recovery system and offers a health wallet hosted by government or other positively perceived organizations. They were more inclined to share data via blockchain if the third party used the data for collective good and offered participants nonmonetary forms of compensation and if the access could be revoked from the third party. Conclusions Health care consumers were not strongly inclined to adopt blockchain-based PHRs and health data sharing. However, their intentions may increase when the concerns and recommendations demonstrated in this study are considered in application design.

scholarly journals Energy efficiency in software: A case study on sustainability in personal health records

2021 ◽  
Vol 282 ◽  
pp. 124262
Author(s):  
José A. García-Berná ◽  
José L. Fernández-Alemán ◽  
Juan M. Carrillo de Gea ◽  
Ambrosio Toval ◽  
Javier Mancebo ◽  
...  
Keyword(s):  
Energy Efficiency ◽  
Personal Health Records ◽  
Personal Health ◽  
Health Records

scholarly journals Corrigendum to “Energy efficiency in software: A case study on sustainability in personal health records” [J. Clean. Prod. 282 (2021) 124262]

2021 ◽  
Vol 296 ◽  
pp. 126544
Author(s):  
José A. García-Berná ◽  
José L. Fernández-Alemán ◽  
Juan M. Carrillo de Gea ◽  
Ambrosio Toval ◽  
Javier Mancebo ◽  
...  
Keyword(s):  
Energy Efficiency ◽  
Personal Health Records ◽  
Personal Health ◽  
Health Records ◽  
Clean Prod

Personal health records

2011 ◽  
Vol 17 (1) ◽  
pp. 63-71 ◽  
Author(s):  
Deborah Beranek Lafky ◽  
Thomas A. Horan
Keyword(s):  
Personal Health Records ◽  
Personal Health ◽  
Health Records
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