scholarly journals Identifying Information Needs for Hirschsprung Disease Through Caregiver Involvement via Social Media: A Prioritization Study and Literature Review

2018 ◽  
Vol 20 (12) ◽  
pp. e297 ◽  
Author(s):  
Kristy DM Wittmeier ◽  
Kendall Hobbs-Murison ◽  
Cindy Holland ◽  
Elizabeth Crawford ◽  
Hal Loewen ◽  
...  
2018 ◽  
Author(s):  
Kristy DM Wittmeier ◽  
Kendall Hobbs-Murison ◽  
Cindy Holland ◽  
Elizabeth Crawford ◽  
Hal Loewen ◽  
...  

BACKGROUND Patient and public involvement in health research is important to produce relevant and impactful results. OBJECTIVE This paper aimed to prioritize and summarize Hirschsprung disease (HD)–related information needs among caregivers of children with HD and pediatric surgeons through partnership with a parent-initiated social media campaign. METHODS We conducted a Web-based survey with the 2 stakeholder groups to identify information needs. The caregiver survey was conducted through a global Web-based community, and the surgeon survey was distributed to members of the Canadian Association of Paediatric Surgeons (CAPS). We conducted a literature review to identify evidence on the prioritized topics. RESULTS Our findings showed that 54.9% (89/162) of the individuals completed the caregiver survey and 23.8% (52/218 listed members) of the pediatric surgeons completed the survey distributed through CAPS. Only 20% (18/89) of the caregivers reported being very satisfied or satisfied with the current HD-related resources. A final prioritized list of information needs included bowel management, nutrition and growth, infection, perianal irritation, gastrointestinal pain, surgical diagnostics, and surgical complications. In total, 87 studies were included in the literature review, which included the following: 8 reviews, 2 randomized controlled trials, 74 cohort studies, and 3 practice guidelines. Two priority issues identified by caregivers had only a single study that met the inclusion criteria, whereas 1 topic had none. CONCLUSIONS With caregiver and surgeon input, we identified 7 information priority areas related to HD. A review of the literature on the priorities found little evidence to support the development of high-quality guidelines. More research is necessary to meet the information needs related to HD as identified by stakeholders.


2021 ◽  
Vol 5 (2) ◽  
pp. 39-48
Author(s):  
Andhika Febi Hardina ◽  
Irwansyah Irwansyah

This research discusses the social media Twitter, which is the first platform to search for the latest information or news. This is backed up by the large amount of news or information circulating on online news portals, often sourced from the social media Twitter. The purpose of this literature review is to see how Twitter was chosen by social media users as a place to fulfill their information needs. The scope of this research is in the mass media communication circle using Uses & Gratifications Theory (UGT) to explain why users choose their media to complement their needs. This study uses an in-depth interview exploratory description method. Data collection from journals or previous research is carried out based on the context and cases where the data and information are needed in this study. In addition, this study uses an exploratory description method of in-depth interviews with four respondents who use social media Twitter. Questions are given in a structured manner. The result of this research is that there is a new motivation for people to use Twitter.  


2018 ◽  
Vol 3 (2) ◽  
Author(s):  
Natela DOGHONADZE ◽  
Ekaterine PIPIA ◽  
Nikoloz PARJANADZE

The article deals with various aspects of plagiarism: definition (discriminating it from cheating and copyright violation), types (intended / unintended), involved people, causes, prevention, detection and punishment of plagiarism. A survey (questionnaire containing 42 items to be assessed in a 5-point Likert scale and one open- ended item) was conducted in Georgia. The questionnaire developed based on the literature review was uploaded on social media in three variants (to analyze the results separately and compare them): for students, for researchers and for assessors. The obtained results revealed that the opinions of the three groups of respondents differed to a certain degree, but were quite similar, eventually. The survey disclosed the existing problems, such as: lack of academic writing (in the native and especially foreign language) and research skills, lack of training in avoiding plagiarism, insufficiently clear university policies in the area, the emphasis on punishment instead of prevention, etc. Based on the obtained results recommendations for universities are given concerning plagiarism policies. 


SAGE Open ◽  
2021 ◽  
Vol 11 (2) ◽  
pp. 215824402110164
Author(s):  
Lian Tang ◽  
Siti Zobidah Omar ◽  
Jusang Bolong ◽  
Julia Wirza Mohd Zawawi

The widespread use of social media has promoted extensive academic research on this channel. The present study conducts a systematic analysis of extant research on social media use among young people in China. This systematic literature review aims to identify and bridge gaps in topics, theories, variables, and conceptual frameworks in studies of social media usage among young people in China. The study aims to develop a cause–effect framework that shows the causal relationships among research structures. The PRISMA method is used to review 20 articles drawn from the Scopus and Google Scholar databases. From the analysis, 10 major research topics, eight theories or models, and a complete framework of causal relations emerge. It is recommended that future research on social media should include a greater diversity of types of social media, investigate a wider range of research topics, and adopt different theories or models. Researchers should also implement a more complete and detailed systematic method for reviewing literature on social media research in China.


Author(s):  
Rutika, B. Maske

The purpose of this review is to provide the latest information on Down syndrome. The author conducted a literature search of available sources describing the issue of down syndrome with special focus on syndrome and made a comparison and evaluation of relevant findings.The results of this review indicate that Down syndrome (DS) is one of the commonest disorders with huge medical and social cost. DS is associated with number of phenotypes including congenital heart defects, leukemia, Alzeihmer’s disease, Hirschsprung disease etc. DS individuals are affected by these phenotypes to a variable extent thus understanding the cause of this variation is a key challenge. In the present review article, we emphasize an overview of DS, DS-associated phenotypes diagnosis and management of the disease.


2021 ◽  
Vol 3 (1) ◽  
pp. 14-25
Author(s):  
Sónia Ferreira ◽  
Sara Santos ◽  
Pedro Espírito Santo

The internet search trend has caused that online users are looking for more and more enriched information. The evolution of social media has been huge and users relate to social networks differently than they did before. Currently, there are more than 4 billion active users on social networks and brands are looking to showcase their products and services. Our research found the following factors that influence social media engagement: informativeness, self-connection and advertising stimulation. Through literature review, we propose a conceptual model that has been tested in the PLS-SEM. Data were collected from 237 consumers and our survey found that engagement in social media is explained by the variables identified by our model. Important contributions to brand theory and management will be found in this investigation.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Katie Elson Anderson

Purpose This paper aims to provide information and promote discussion around the social media platform TikTok. Design/methodology/approach Research, literature review. Findings Libraries and library and information professionals should be aware of the potential of TikTok for engagement and information sharing. Originality/value Adds to the research on the social media platform TikTok.


2021 ◽  
Author(s):  
Jingzhong Xie ◽  
Jun Lai ◽  
Dongying Zhang

BACKGROUND Social media has become an important tool to implement risk communication in COVID-19 pandemic, and made health information can gain more exposure by re-posting. OBJECTIVE This paper attempts to identify the factors associated with re-posting of social media messages about health information METHODS Content analysis was applied to scrutinize 4396 Weibo posts that were posted by national and provincial public health agencies Weibo accounts and identified features of information sources and information features, and adopted Zero-Inflated Negative Binomial (ZINB) model to analyze the association between these features and the frequency of message being re-posted. RESULTS Results showed that the followers and the governmental level of information sources are correlated with increased message reposting. The information features, such as hashtags#, picture, video, emotional(!), and the usage of severity, reassurance, efficacy and action frame were associated with increased message reposting behaviors, while hyperlink and usage of uncertainty frame correlated with reduced message reposting behaviors. CONCLUSIONS The features of health information sources, structures , style and content should be paid close attention by health organizations and medical professionals to satisfy the public’s information needs and preferences, promote the public's health engagement. Suitable information systems designing, and health communication strategies making during different stages of the pandemic may improve public awareness of the COVID-19, alleviate negative emotions, promote preventive measures to curb the spread of the virus.


Author(s):  
Botambu Collins ◽  
Dinh Tuyen Hoang ◽  
Dai Tho Dang ◽  
Dosam Hwang

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