scholarly journals Development and Usability Evaluation of an Art and Narrative-Based Knowledge Translation Tool for Parents With a Child With Pediatric Chronic Pain: Multi-Method Study

2017 ◽  
Vol 19 (12) ◽  
pp. e412 ◽  
Author(s):  
Kathy Reid ◽  
Lisa Hartling ◽  
Samina Ali ◽  
Anne Le ◽  
Allison Norris ◽  
...  
Keyword(s):  
Chronic Pain ◽  
Knowledge Translation ◽  
Usability Evaluation ◽  
Pediatric Chronic Pain

scholarly journals Development and Usability Evaluation of an Art and Narrative-Based Knowledge Translation Tool for Parents With a Child With Pediatric Chronic Pain: Multi-Method Study (Preprint)

2017 ◽  
Author(s):  
Kathy Reid ◽  
Lisa Hartling ◽  
Samina Ali ◽  
Anne Le ◽  
Allison Norris ◽  
...  
Keyword(s):  
Chronic Pain ◽  
Knowledge Translation ◽  
Pain Treatment ◽  
Qualitative Interviews ◽  
Treatment Options ◽  
Clinical Problem ◽  
Usability Evaluation ◽  
Pain Clinic ◽  
Pediatric Chronic Pain ◽  
Significant Difference

BACKGROUND Chronic pain in childhood is increasingly being recognized as a significant clinical problem for children and their families. Previous research has identified that families want information about the causes of their child’s chronic pain, treatment options, and effective strategies to help their child cope with the pain. Unfortunately, parents have reported that finding this information can be challenging. OBJECTIVE The aim of this study was to actively work together with children attending a pediatric chronic pain clinic and their parents to develop, refine, and evaluate the usability of an art and narrative-based electronic book (e-book) for pediatric chronic pain. METHODS A multiphase, multi-method research design employing patient engagement techniques was used to develop, refine, and evaluate the usability of an art and narrative based e-book for pediatric chronic pain management to facilitate knowledge translation for parents with a child with chronic pain. The multiple phases included the following: (1) qualitative interviews to compile parents’ narratives using qualitative interviews; (2) qualitative data analysis; (3) development of an e-book prototype; (4) expert clinician feedback; (5) parent usability evaluation, knowledge change, and confidence in knowledge responses using an electronic survey; (6) e-book refinement; and (7) dissemination of the e-book. RESULTS A 48-page e-book was developed to characterize the experiences of a family living with a child with chronic pain. The e-book was a composite narrative of the parent interviews and encompassed descriptions of the effects the condition has on each member of the family. This was merged with the best available research evidence on the day-to-day management of pediatric chronic pain. The e-book was vetted for clinical accuracy by expert pediatric pain clinicians. All parents that participated in the usability evaluation (N=14) agreed or strongly agreed the content of the e-book was easy to understand and stated that they would recommend the e-book to other families who have children with chronic pain. Our research identified up to a 21.4% increase in knowledge after using the e-book, and paired t tests demonstrated a statistically significant difference in confidence in answering two of the five knowledge questions (chronic pain is a disease involving changes in the nervous system; the use of ibuprofen is usually effective at controlling chronic pain); t13=0.165, P=.001 and t13=0.336, P=.002, respectively, after being exposed to the e-book. CONCLUSIONS Our results demonstrate that parents positively rated an e-book developed for parents with a child with chronic pain. Our results also identify that overall, parents’ knowledge increased after using the e-book, and confidence in their knowledge about chronic pain and its management increased in two aspects after e-book exposure. These results suggest that art and narrative-based knowledge translation interventions may be useful in transferring complex health information to parents.

Patterns of anxiety symptoms in pediatric chronic pain as reported by youth, mothers, and fathers.

2016 ◽  
Vol 4 (1) ◽  
pp. 51-62 ◽  
Author(s):  
Susan T. Tran ◽  
Kristen E. Jastrowski Mano ◽  
Kim Anderson Khan ◽  
W. Hobart Davies ◽  
Keri R. Hainsworth
Keyword(s):  
Chronic Pain ◽  
Anxiety Symptoms ◽  
Mothers And Fathers ◽  
Pediatric Chronic Pain

Role of Ethnicity on Pain Perception, Fatigue, and Quality of Life in a Pediatric Chronic Pain Population

2007 ◽  
Author(s):  
Jeffrey I. Gold ◽  
Trina Haselrig ◽  
D. Colette Nicolaou ◽  
Katharine A. Belmont
Keyword(s):  
Quality Of Life ◽  
Chronic Pain ◽  
Pain Perception ◽  
Pediatric Chronic Pain

Anger as a mechanism of injustice appraisals in pediatric chronic pain

2021 ◽  
Author(s):  
Megan M. Miller ◽  
Amy E. Williams ◽  
Eric. L. Scott ◽  
Zina Trost ◽  
Adam T. Hirsh
Keyword(s):  
Chronic Pain ◽  
Pediatric Chronic Pain

Preliminary Validation of the Pain Burden Inventory in a Pediatric Chronic Pain Population

2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Melissa Santos ◽  
James P. Santanelli ◽  
William T. Zempsky
Keyword(s):  
Chronic Pain ◽  
Pediatric Chronic Pain ◽  
Preliminary Validation

scholarly journals Biomarkers of Allostatic Load as Correlates of Impairment in Youth with Chronic Pain: An Initial Investigation

Children ◽  
2021 ◽  
Vol 8 (8) ◽  
pp. 709
Author(s):  
Sarah Nelson ◽  
Samantha Bento ◽  
Michelle Bosquet Enlow
Keyword(s):  
Risk Factors ◽  
Chronic Pain ◽  
Allostatic Load ◽  
Functional Disability ◽  
Pain Treatment ◽  
Pediatric Pain ◽  
Childhood Experiences ◽  
High Exposure ◽  
Pediatric Chronic Pain ◽  
Study Results

Pediatric chronic pain is common and responsible for significant healthcare burden. However, the mechanisms underlying the development and/or maintenance of pediatric chronic pain remain poorly understood. Allostatic load (AL), or wear and tear on the nervous system following significant or prolonged stress, has been proposed to play a role in the maintenance of chronic pain, but minimal research has examined this possibility. This gap in research is particularly notable given the high exposure to adverse childhood experiences (ACEs; abuse/neglect, etc.) and psychological stress in this population. Accordingly, the current study aimed to preliminarily examine the measurement of AL in a treatment-seeking pediatric pain population. Biomarkers were collected during an already scheduled new patient pain evaluation and included salivary cortisol, dehydroepiandrosterone (DHEA), and C-reactive protein, in addition to waist–hip ratio, body-mass index, and blood pressure. A total of 61 children and adolescents with chronic pain (Mage = 14.47 years; 88.5% female and white/Caucasian) completed study procedures and were included in analyses. Preliminary results indicated that a multifactorial AL composite is feasible to assess for in a tertiary pain treatment setting and that over 50% of youth with chronic pain were classified as high risk for AL (two or more risk factors). Further, it was found that individual AL risk factors were significantly associated with functional disability and that AL may moderate the association between psychosocial and functional outcomes. Given the pilot nature of this study, results should be used to inform future investigations with larger and more diverse pediatric pain samples.

scholarly journals The Cost-Effectiveness of Intensive Interdisciplinary Pediatric Chronic Pain Rehabilitation

2015 ◽  
Vol 41 (8) ◽  
pp. 849-856 ◽  
Author(s):  
Jenny R. Evans ◽  
Ethan Benore ◽  
Gerard A. Banez
Keyword(s):  
Chronic Pain ◽  
Cost Effectiveness ◽  
Pediatric Chronic Pain ◽  
The Cost

scholarly journals Pain Interference Mediates the Relationship between Pain and Functioning in Pediatric Chronic Pain

2016 ◽  
Vol 7 ◽  
Author(s):  
Rikard K. Wicksell ◽  
Marie Kanstrup ◽  
Mike K. Kemani ◽  
Linda Holmström
Keyword(s):  
Chronic Pain ◽  
Pain Interference ◽  
Pediatric Chronic Pain ◽  
The Relationship
Sign in / Sign up

Export Citation Format

Share Document